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Untold Story of Alzheimer’s Impact On Communities of Color | Renee Chenault Fattah | TEDxNorristown


[Applause]

[Applause] good evening

good evening

good evening you know after having worked for so many

you know after having worked for so many

you know after having worked for so many years as an evening news anchor I have

years as an evening news anchor I have

years as an evening news anchor I have to tell you just for a moment I was

to tell you just for a moment I was

to tell you just for a moment I was tempted to say good evening our top

tempted to say good evening our top

tempted to say good evening our top story tonight or good evening breaking

story tonight or good evening breaking

story tonight or good evening breaking news this just in the North town old

news this just in the North town old

news this just in the North town old habits die hard seriously the only thing

habits die hard seriously the only thing

habits die hard seriously the only thing in 24 years of anchoring the evening

in 24 years of anchoring the evening

in 24 years of anchoring the evening news that I was not allowed to say the

news that I was not allowed to say the

news that I was not allowed to say the only phrase was the big story is and

only phrase was the big story is and

only phrase was the big story is and that’s because that phrase is used by

that’s because that phrase is used by

that’s because that phrase is used by the competition which I know sounds a

the competition which I know sounds a

the competition which I know sounds a little silly and certainly that part of

little silly and certainly that part of

little silly and certainly that part of the job I don’t miss but what I do miss

the job I don’t miss but what I do miss

the job I don’t miss but what I do miss is the opportunity to tell important

is the opportunity to tell important

is the opportunity to tell important stories big stories stories that matter

stories big stories stories that matter

stories big stories stories that matter which is why I am so very excited and so

which is why I am so very excited and so

which is why I am so very excited and so very passionate about being here with

very passionate about being here with

very passionate about being here with you tonight because I have a big story I

you tonight because I have a big story I

you tonight because I have a big story I get to say that now I have a big story

get to say that now I have a big story

get to say that now I have a big story to tell but it’s an untold story and I

to tell but it’s an untold story and I

to tell but it’s an untold story and I want to change that I would like for us

want to change that I would like for us

want to change that I would like for us to engage in some upside-down thinking I

to engage in some upside-down thinking I

to engage in some upside-down thinking I want us to turn thinking on its head now

want us to turn thinking on its head now

want us to turn thinking on its head now as it turns out we’ve all had a lot of

as it turns out we’ve all had a lot of

as it turns out we’ve all had a lot of experience with that given the past year

experience with that given the past year

experience with that given the past year that we’ve had 2017 was the year of

that we’ve had 2017 was the year of

that we’ve had 2017 was the year of upside-down thinking wasn’t it when

upside-down thinking wasn’t it when

upside-down thinking wasn’t it when events and occurrences challenged

events and occurrences challenged

events and occurrences challenged everything we had been led to believe we

everything we had been led to believe we

everything we had been led to believe we were forced to conceive the

were forced to conceive the

were forced to conceive the inconceivable imagine the unimaginable

inconceivable imagine the unimaginable

inconceivable imagine the unimaginable and accept the unacceptable like for

and accept the unacceptable like for

and accept the unacceptable like for example a president who instead of

example a president who instead of

example a president who instead of encouraging optimism and hope and unity

encouraging optimism and hope and unity

encouraging optimism and hope and unity does just the opposite or an act of

does just the opposite or an act of

does just the opposite or an act of Mother Nature that forced us to accept

Mother Nature that forced us to accept

Mother Nature that forced us to accept not just one hurricane in a season

not just one hurricane in a season

not just one hurricane in a season but three now I know all those examples

but three now I know all those examples

but three now I know all those examples I just gave you we’re very negative and

I just gave you we’re very negative and

I just gave you we’re very negative and that’s not what I’m seeking to do with

that’s not what I’m seeking to do with

that’s not what I’m seeking to do with this upside-down thinking tonight what

this upside-down thinking tonight what

this upside-down thinking tonight what I want us to do is through looking at

I want us to do is through looking at

I want us to do is through looking at something through a different lens a

something through a different lens a

something through a different lens a different perspective to help us all

different perspective to help us all

different perspective to help us all start to tell this untold story about a

start to tell this untold story about a

start to tell this untold story about a disease that we probably think we know

disease that we probably think we know

disease that we probably think we know about but that well my goal here tonight

about but that well my goal here tonight

about but that well my goal here tonight is to show you that perhaps there are

is to show you that perhaps there are

is to show you that perhaps there are some things you don’t know about it and

some things you don’t know about it and

some things you don’t know about it and I’m talking about Alzheimer’s now

I’m talking about Alzheimer’s now

I’m talking about Alzheimer’s now certainly it’s been in the news a lot

certainly it’s been in the news a lot

certainly it’s been in the news a lot lately

lately

lately Bill Gates just earlier this week

Bill Gates just earlier this week

Bill Gates just earlier this week announced that he was going to give a

announced that he was going to give a

announced that he was going to give a hundred million dollars of his own money

hundred million dollars of his own money

hundred million dollars of his own money to help find a cure and just a few

to help find a cure and just a few

to help find a cure and just a few months ago the the Postal Service

months ago the the Postal Service

months ago the the Postal Service announced that they were issuing a

announced that they were issuing a

announced that they were issuing a commemorative stamp and that’s a great

commemorative stamp and that’s a great

commemorative stamp and that’s a great thing because any time these

thing because any time these

thing because any time these commemorative stamps come out that means

commemorative stamps come out that means

commemorative stamps come out that means that much-needed dollars are poured into

that much-needed dollars are poured into

that much-needed dollars are poured into research let’s do some upside-down

research let’s do some upside-down

research let’s do some upside-down thinking the face on the stamp is of a

thinking the face on the stamp is of a

thinking the face on the stamp is of a very gentle very kind looking elderly

very gentle very kind looking elderly

very gentle very kind looking elderly white woman upside down thinking that is

white woman upside down thinking that is

white woman upside down thinking that is not the face of Alzheimer’s hers is not

not the face of Alzheimer’s hers is not

not the face of Alzheimer’s hers is not the face of Alzheimer’s please don’t get

the face of Alzheimer’s please don’t get

the face of Alzheimer’s please don’t get me wrong don’t misunderstand

me wrong don’t misunderstand

me wrong don’t misunderstand obviously elderly white men and women

obviously elderly white men and women

obviously elderly white men and women suffer from Alzheimer’s and it’s a

suffer from Alzheimer’s and it’s a

suffer from Alzheimer’s and it’s a horrific disease having nothing at all

horrific disease having nothing at all

horrific disease having nothing at all to do with your race and we have empathy

to do with your race and we have empathy

to do with your race and we have empathy we have sympathy for anyone going

we have sympathy for anyone going

we have sympathy for anyone going through this but when you start talking

through this but when you start talking

through this but when you start talking about the face of Alzheimer’s all the

about the face of Alzheimer’s all the

about the face of Alzheimer’s all the research tells us that if you are

research tells us that if you are

research tells us that if you are african-american if you are Native

african-american if you are Native

african-american if you are Native American or you were Hispanic you are

American or you were Hispanic you are

American or you were Hispanic you are twice as likely to have Alzheimer’s and

twice as likely to have Alzheimer’s and

twice as likely to have Alzheimer’s and when you talk about the economic burden

when you talk about the economic burden

when you talk about the economic burden of this disease dr. Darrell Gaskin at

of this disease dr. Darrell Gaskin at

of this disease dr. Darrell Gaskin at Johns Hopkins University did a study

Johns Hopkins University did a study

Johns Hopkins University did a study where he said looking just at African

where he said looking just at African

where he said looking just at African Americans we’re about thirteen point six

Americans we’re about thirteen point six

Americans we’re about thirteen point six percent of the population and yet when

percent of the population and yet when

percent of the population and yet when you look at the economic burden

you look at the economic burden

you look at the economic burden one-third of the cost of Alzheimer’s is

one-third of the cost of Alzheimer’s is

one-third of the cost of Alzheimer’s is shouldered by African Americans that’s

shouldered by African Americans that’s

shouldered by African Americans that’s because most of the cost associated with

because most of the cost associated with

because most of the cost associated with Alzheimer’s has to do with caregiving so

Alzheimer’s has to do with caregiving so

Alzheimer’s has to do with caregiving so why are we more at risk and what exactly

why are we more at risk and what exactly

why are we more at risk and what exactly is this disease we’ll get into that in

is this disease we’ll get into that in

is this disease we’ll get into that in just a little bit

just a little bit

just a little bit but first let’s do a little bit more

but first let’s do a little bit more

but first let’s do a little bit more this upside down thinking we’ve already

this upside down thinking we’ve already

this upside down thinking we’ve already talked about the face of Alzheimer’s now

talked about the face of Alzheimer’s now

talked about the face of Alzheimer’s now I want you to look at sort of what we

I want you to look at sort of what we

I want you to look at sort of what we expect as the way of the world the

expect as the way of the world the

expect as the way of the world the natural order of things the natural

natural order of things the natural

natural order of things the natural order of things is you’re raised by

order of things is you’re raised by

order of things is you’re raised by let’s say your parents or maybe a

let’s say your parents or maybe a

let’s say your parents or maybe a grandparent or an aunt or a caregiver

grandparent or an aunt or a caregiver

grandparent or an aunt or a caregiver you grow up you venture out into the

you grow up you venture out into the

you grow up you venture out into the world you meet someone you have a child

world you meet someone you have a child

world you meet someone you have a child we’ve all seen the circle of life from

we’ve all seen the circle of life from

we’ve all seen the circle of life from The Lion King we know how that works

The Lion King we know how that works

The Lion King we know how that works except in the upside-down world of

except in the upside-down world of

except in the upside-down world of Alzheimer’s because that circle of life

Alzheimer’s because that circle of life

Alzheimer’s because that circle of life actually goes in Reverse

actually goes in Reverse

actually goes in Reverse you may now be an adult a parent with a

you may now be an adult a parent with a

you may now be an adult a parent with a child of your own and yet your parent

child of your own and yet your parent

child of your own and yet your parent due to no fault of their own now needs

due to no fault of their own now needs

due to no fault of their own now needs you to do everything for them that was

you to do everything for them that was

you to do everything for them that was done for you as a child everything from

done for you as a child everything from

done for you as a child everything from watching them to bathing them to helping

watching them to bathing them to helping

watching them to bathing them to helping them with the most personal of bodily

them with the most personal of bodily

them with the most personal of bodily functions let’s look at relationships

functions let’s look at relationships

functions let’s look at relationships personal relationships sexual

personal relationships sexual

personal relationships sexual relationships we all expect our husbands

relationships we all expect our husbands

relationships we all expect our husbands and our wives to be faithful and when

and our wives to be faithful and when

and our wives to be faithful and when they’re not all hell breaks loose right

they’re not all hell breaks loose right

they’re not all hell breaks loose right seriously there is nothing more painful

seriously there is nothing more painful

seriously there is nothing more painful nothing more unaccepted in our society

nothing more unaccepted in our society

nothing more unaccepted in our society than infidelity unless you’re talking

than infidelity unless you’re talking

than infidelity unless you’re talking about the upside-down world of

about the upside-down world of

about the upside-down world of Alzheimer’s because if your spouse

Alzheimer’s because if your spouse

Alzheimer’s because if your spouse doesn’t recognize you and they’re in a

doesn’t recognize you and they’re in a

doesn’t recognize you and they’re in a care facility and they meet somebody or

care facility and they meet somebody or

care facility and they meet somebody or they make an inappropriate comment to

they make an inappropriate comment to

they make an inappropriate comment to someone maybe even a family member

someone maybe even a family member

someone maybe even a family member sexual you have to look at that

sexual you have to look at that

sexual you have to look at that interaction differently because of this

interaction differently because of this

interaction differently because of this disease taking it one step further your

disease taking it one step further your

disease taking it one step further your spouse has Alzheimer’s you’re fine but

spouse has Alzheimer’s you’re fine but

spouse has Alzheimer’s you’re fine but you have needs and yes you took a vow to

you have needs and yes you took a vow to

you have needs and yes you took a vow to honor till death do you part but in a

honor till death do you part but in a

honor till death do you part but in a sense isn’t this a form of death let’s

sense isn’t this a form of death let’s

sense isn’t this a form of death let’s take a little break from this upside

take a little break from this upside

take a little break from this upside down thinking because it really can kind

down thinking because it really can kind

down thinking because it really can kind of make you a little dizzy

of make you a little dizzy

of make you a little dizzy what exactly is the disease and why are

what exactly is the disease and why are

what exactly is the disease and why are we as african-americans Hispanics Native

we as african-americans Hispanics Native

we as african-americans Hispanics Native Americans more at risk first what is the

Americans more at risk first what is the

Americans more at risk first what is the disease I am 60 years old and on any

disease I am 60 years old and on any

disease I am 60 years old and on any given day I can walk into a room get

given day I can walk into a room get

given day I can walk into a room get halfway into the room and say what in

halfway into the room and say what in

halfway into the room and say what in the heck did I come in here for or on

the heck did I come in here for or on

the heck did I come in here for or on any given day drive my mom drive my

any given day drive my mom drive my

any given day drive my mom drive my daughter crazy saying you know where is

daughter crazy saying you know where is

daughter crazy saying you know where is my phone has anybody seen my keys

my phone has anybody seen my keys

my phone has anybody seen my keys that is not Alzheimer’s Alzheimer’s is a

that is not Alzheimer’s Alzheimer’s is a

that is not Alzheimer’s Alzheimer’s is a disease in the brain that I guess the

disease in the brain that I guess the

disease in the brain that I guess the best way to sort of describe it now wish

best way to sort of describe it now wish

best way to sort of describe it now wish we had a diagram here so I’m gonna ask

we had a diagram here so I’m gonna ask

we had a diagram here so I’m gonna ask you to sort of play along with me on

you to sort of play along with me on

you to sort of play along with me on this but our brains a hundred million

this but our brains a hundred million

this but our brains a hundred million neurons in your brain neurons are

neurons in your brain neurons are

neurons in your brain neurons are basically information cells neuron a

basically information cells neuron a

basically information cells neuron a sending information to neuron B through

sending information to neuron B through

sending information to neuron B through the space that the information is able

the space that the information is able

the space that the information is able to transfer through that’s what happens

to transfer through that’s what happens

to transfer through that’s what happens in a healthy brain but in a brain with

in a healthy brain but in a brain with

in a healthy brain but in a brain with Alzheimer’s that space that I’m talking

Alzheimer’s that space that I’m talking

Alzheimer’s that space that I’m talking about

about

about well these sticky clumps of protein

well these sticky clumps of protein

well these sticky clumps of protein researchers experts call it amyloid beta

researchers experts call it amyloid beta

researchers experts call it amyloid beta or they call it a plaque well that

or they call it a plaque well that

or they call it a plaque well that starts to form in those spaces so now

starts to form in those spaces so now

starts to form in those spaces so now the information cannot go from neuron a

the information cannot go from neuron a

the information cannot go from neuron a to neuron B and as that information just

to neuron B and as that information just

to neuron B and as that information just sort of poof’s goes away those cells

sort of poof’s goes away those cells

sort of poof’s goes away those cells which are responsible for transmitting

which are responsible for transmitting

which are responsible for transmitting the information they die and as they die

the information they die and as they die

the information they die and as they die so dies memories first short-term

so dies memories first short-term

so dies memories first short-term memories then long-term memories then

memories then long-term memories then

memories then long-term memories then the memory on how to speak and

the memory on how to speak and

the memory on how to speak and eventually unless there’s some sort of

eventually unless there’s some sort of

eventually unless there’s some sort of secondary illness this disease

secondary illness this disease

secondary illness this disease eventually progresses to the stage when

eventually progresses to the stage when

eventually progresses to the stage when you die there is no cure there is no

you die there is no cure there is no

you die there is no cure there is no treatment that is the what of this

treatment that is the what of this

treatment that is the what of this horrific disease now let’s get to the

horrific disease now let’s get to the

horrific disease now let’s get to the why why are we as african-americans as

why why are we as african-americans as

why why are we as african-americans as Hispanics as Native Americans more at

Hispanics as Native Americans more at

Hispanics as Native Americans more at risk well certainly for a very small

risk well certainly for a very small

risk well certainly for a very small percentage of the population if you and

percentage of the population if you and

percentage of the population if you and this has nothing to do with race this is

this has nothing to do with race this is

this has nothing to do with race this is if you’re black or white brown

if you’re black or white brown

if you’re black or white brown doesn’t matter if you have a certain

doesn’t matter if you have a certain

doesn’t matter if you have a certain combination of a genetic mutation you’re

combination of a genetic mutation you’re

combination of a genetic mutation you’re going to get Alzheimer’s but that’s a

going to get Alzheimer’s but that’s a

going to get Alzheimer’s but that’s a very small percentage for the rest of

very small percentage for the rest of

very small percentage for the rest of people of the people when you talk about

people of the people when you talk about

people of the people when you talk about why we are more at risk well I’ve asked

why we are more at risk well I’ve asked

why we are more at risk well I’ve asked this a lot of doctors and researchers

this a lot of doctors and researchers

this a lot of doctors and researchers and they’ll start off by telling you

and they’ll start off by telling you

and they’ll start off by telling you they really don’t know why we’re more at

they really don’t know why we’re more at

they really don’t know why we’re more at risk but they do have some indicators

risk but they do have some indicators

risk but they do have some indicators one of the indicators has to do with

one of the indicators has to do with

one of the indicators has to do with certain diseases which puts you at risk

certain diseases which puts you at risk

certain diseases which puts you at risk diseases like hypertension and heart

diseases like hypertension and heart

diseases like hypertension and heart disease and stroke and diabetes and

disease and stroke and diabetes and

disease and stroke and diabetes and right now you’re starting to get the

right now you’re starting to get the

right now you’re starting to get the picture because if these are diseases

picture because if these are diseases

picture because if these are diseases which put you more at risk these are

which put you more at risk these are

which put you more at risk these are also diseases which disproportionately

also diseases which disproportionately

also diseases which disproportionately impact and affect African Americans and

impact and affect African Americans and

impact and affect African Americans and Hispanics and Native Americans so now

Hispanics and Native Americans so now

Hispanics and Native Americans so now you see the correlation if these are

you see the correlation if these are

you see the correlation if these are diseases that are increase your risk and

diseases that are increase your risk and

diseases that are increase your risk and these are diseases that

these are diseases that

these are diseases that disproportionately impact marginalized

disproportionately impact marginalized

disproportionately impact marginalized communities we understand why that’s a

communities we understand why that’s a

communities we understand why that’s a problem another issue stress my god are

problem another issue stress my god are

problem another issue stress my god are we not the most stressed people on the

we not the most stressed people on the

we not the most stressed people on the planet seriously stress researchers in

planet seriously stress researchers in

planet seriously stress researchers in Sweden tell us that when they look at

Sweden tell us that when they look at

Sweden tell us that when they look at mice mice they’re stressed and I’m not

mice mice they’re stressed and I’m not

mice mice they’re stressed and I’m not quite sure how they stress the mice but

quite sure how they stress the mice but

quite sure how they stress the mice but mice that are stressed have memory

mice that are stressed have memory

mice that are stressed have memory issues when they do autopsies on the

issues when they do autopsies on the

issues when they do autopsies on the brains of these mice once again they

brains of these mice once again they

brains of these mice once again they find these sorts of clumps of toxic

find these sorts of clumps of toxic

find these sorts of clumps of toxic protein that we were talking about the

protein that we were talking about the

protein that we were talking about the same sorts of things that are in the

same sorts of things that are in the

same sorts of things that are in the brains of people with Alzheimer’s one of

brains of people with Alzheimer’s one of

brains of people with Alzheimer’s one of the things that I used to hear about a

the things that I used to hear about a

the things that I used to hear about a lot when I was doing the news one of the

lot when I was doing the news one of the

lot when I was doing the news one of the criticisms is that every day we’d be

criticisms is that every day we’d be

criticisms is that every day we’d be coming to your home and we would give

coming to your home and we would give

coming to your home and we would give you nothing but problem have – problem

you nothing but problem have – problem

you nothing but problem have – problem after problem seldom were there any

after problem seldom were there any

after problem seldom were there any solutions true to form I’ve come here

solutions true to form I’ve come here

solutions true to form I’ve come here tonight and I’ve laid out a host of

tonight and I’ve laid out a host of

tonight and I’ve laid out a host of problems there are some solutions of it

problems there are some solutions of it

problems there are some solutions of it I just briefly want to talk about when

I just briefly want to talk about when

I just briefly want to talk about when you talk about diseases that put you at

you talk about diseases that put you at

you talk about diseases that put you at risk like diabetes heart disease all the

risk like diabetes heart disease all the

risk like diabetes heart disease all the research says that in most instances

research says that in most instances

research says that in most instances certainly not all but in most instance

certainly not all but in most instance

certainly not all but in most instance is a lifestyle change changing how you

is a lifestyle change changing how you

is a lifestyle change changing how you eat exercise makes a difference stress

eat exercise makes a difference stress

eat exercise makes a difference stress there are things we can do in terms of

there are things we can do in terms of

there are things we can do in terms of something as simple as breathing

something as simple as breathing

something as simple as breathing exercises or meditation makes a

exercises or meditation makes a

exercises or meditation makes a difference with stress one of the best

difference with stress one of the best

difference with stress one of the best things we can do when we talk about a

things we can do when we talk about a

things we can do when we talk about a solution for Alzheimer’s is get involved

solution for Alzheimer’s is get involved

solution for Alzheimer’s is get involved in a clinical trial now I know when you

in a clinical trial now I know when you

in a clinical trial now I know when you say clinical trial if we can have like

say clinical trial if we can have like

say clinical trial if we can have like thought bubbles out there there would be

thought bubbles out there there would be

thought bubbles out there there would be one thought bubble that says I don’t

one thought bubble that says I don’t

one thought bubble that says I don’t want to be experimented on and there

want to be experimented on and there

want to be experimented on and there would be another thought bubble that

would be another thought bubble that

would be another thought bubble that says I’m not interested in being a

says I’m not interested in being a

says I’m not interested in being a guinea pig

guinea pig

guinea pig and the third thought bubble way back

and the third thought bubble way back

and the third thought bubble way back there would be don’t you remember the

there would be don’t you remember the

there would be don’t you remember the Tuskegee syphilis experiments and

Tuskegee syphilis experiments and

Tuskegee syphilis experiments and certainly that happened from the 30s to

certainly that happened from the 30s to

certainly that happened from the 30s to the 70s african-american men were

the 70s african-american men were

the 70s african-american men were experimented on they were exposed to

experimented on they were exposed to

experimented on they were exposed to syphilis it was not allowed to be

syphilis it was not allowed to be

syphilis it was not allowed to be treated they suffered they died that is

treated they suffered they died that is

treated they suffered they died that is a fact but what is also a fact is that

a fact but what is also a fact is that

a fact but what is also a fact is that after that safeguards were implemented

after that safeguards were implemented

after that safeguards were implemented to make sure that that could not happen

to make sure that that could not happen

to make sure that that could not happen again

again

again there is a pioneering geneticist and

there is a pioneering geneticist and

there is a pioneering geneticist and biologist named dr. Goldie Byrd who is

biologist named dr. Goldie Byrd who is

biologist named dr. Goldie Byrd who is at North Carolina A&T she has not only

at North Carolina A&T she has not only

at North Carolina A&T she has not only looked at the genetic link between

looked at the genetic link between

looked at the genetic link between Alzheimer’s and african-americans she’s

Alzheimer’s and african-americans she’s

Alzheimer’s and african-americans she’s also worked on coming up with a protocol

also worked on coming up with a protocol

also worked on coming up with a protocol for clinical trials that don’t just

for clinical trials that don’t just

for clinical trials that don’t just increase participation but also engage

increase participation but also engage

increase participation but also engage communities and see what communities

communities and see what communities

communities and see what communities need and go into individuals homes to

need and go into individuals homes to

need and go into individuals homes to bring them into the clinical trial

bring them into the clinical trial

bring them into the clinical trial process that is serving as a model for

process that is serving as a model for

process that is serving as a model for clinical trials and it’s important to

clinical trials and it’s important to

clinical trials and it’s important to emphasize that the only way we’re going

emphasize that the only way we’re going

emphasize that the only way we’re going to get a cure or even a treatment is

to get a cure or even a treatment is

to get a cure or even a treatment is through a clinical trial and right now

through a clinical trial and right now

through a clinical trial and right now african-americans Hispanics Native

african-americans Hispanics Native

african-americans Hispanics Native Americans woefully underrepresented in

Americans woefully underrepresented in

Americans woefully underrepresented in clinical trials now I look out here and

clinical trials now I look out here and

clinical trials now I look out here and I see most of you are very young you

I see most of you are very young you

I see most of you are very young you look like you’re near 20s your 30s your

look like you’re near 20s your 30s your

look like you’re near 20s your 30s your 40s and I’m sure you’re thinking yes I

40s and I’m sure you’re thinking yes I

40s and I’m sure you’re thinking yes I have empathy from my parents my

have empathy from my parents my

have empathy from my parents my grandparents you may even think I have

grandparents you may even think I have

grandparents you may even think I have empathy for Renee she’s at that age

empathy for Renee she’s at that age

empathy for Renee she’s at that age the truth is by the time someone my age

the truth is by the time someone my age

the truth is by the time someone my age starts to show symptoms of Alzheimer’s

starts to show symptoms of Alzheimer’s

starts to show symptoms of Alzheimer’s those toxic plaque the clumps that I was

those toxic plaque the clumps that I was

those toxic plaque the clumps that I was talking about they have been developing

talking about they have been developing

talking about they have been developing for decades so all the research is now

for decades so all the research is now

for decades so all the research is now looking at individuals in their 20s

looking at individuals in their 20s

looking at individuals in their 20s their 30s and 40s getting them involved

their 30s and 40s getting them involved

their 30s and 40s getting them involved because that’s where the best hope is in

because that’s where the best hope is in

because that’s where the best hope is in terms of getting at this plaque in terms

terms of getting at this plaque in terms

terms of getting at this plaque in terms of trying to find a treatment I just

of trying to find a treatment I just

of trying to find a treatment I just want to say something real quick about

want to say something real quick about

want to say something real quick about the solutions that I had touched on just

the solutions that I had touched on just

the solutions that I had touched on just a few moments ago about how if you

a few moments ago about how if you

a few moments ago about how if you change how you eat and if you exercise

change how you eat and if you exercise

change how you eat and if you exercise that’s certainly a way to get at some of

that’s certainly a way to get at some of

that’s certainly a way to get at some of these risk factors for certain diseases

these risk factors for certain diseases

these risk factors for certain diseases that was accurate but it wasn’t really

that was accurate but it wasn’t really

that was accurate but it wasn’t really honest because if an expert says to you

honest because if an expert says to you

honest because if an expert says to you yes you can through healthy eating

yes you can through healthy eating

yes you can through healthy eating eliminate diabetes and yet you live in a

eliminate diabetes and yet you live in a

eliminate diabetes and yet you live in a community where there are no outlets for

community where there are no outlets for

community where there are no outlets for healthy food or you don’t have access to

healthy food or you don’t have access to

healthy food or you don’t have access to quality education that’s going to

quality education that’s going to

quality education that’s going to prepare you for the job to make the

prepare you for the job to make the

prepare you for the job to make the money to buy the healthy food then

money to buy the healthy food then

money to buy the healthy food then that’s not really an honest solution or

that’s not really an honest solution or

that’s not really an honest solution or if you tell people to exercise and there

if you tell people to exercise and there

if you tell people to exercise and there are no green spaces in our community or

are no green spaces in our community or

are no green spaces in our community or you step outside your door and it’s

you step outside your door and it’s

you step outside your door and it’s broken pavement and it’s unsafe again

broken pavement and it’s unsafe again

broken pavement and it’s unsafe again not an honest solution and when we look

not an honest solution and when we look

not an honest solution and when we look at solutions to these problems these

at solutions to these problems these

at solutions to these problems these inequalities whether it’s an access to

inequalities whether it’s an access to

inequalities whether it’s an access to health care or healthy food or adequate

health care or healthy food or adequate

health care or healthy food or adequate housing or education when we look to the

housing or education when we look to the

housing or education when we look to the institution’s for solutions to those

institution’s for solutions to those

institution’s for solutions to those problems we tend to look to our elected

problems we tend to look to our elected

problems we tend to look to our elected officials we tend to look to the courts

officials we tend to look to the courts

officials we tend to look to the courts we may look to our community activists

we may look to our community activists

we may look to our community activists and leaders maybe the media to shine a

and leaders maybe the media to shine a

and leaders maybe the media to shine a spotlight one more exercise and upside

spotlight one more exercise and upside

spotlight one more exercise and upside down on its side thinking is that I

down on its side thinking is that I

down on its side thinking is that I would suggest in addition to those

would suggest in addition to those

would suggest in addition to those institutions being called upon and they

institutions being called upon and they

institutions being called upon and they certainly have a responsibility to

certainly have a responsibility to

certainly have a responsibility to address these problems but one of the

address these problems but one of the

address these problems but one of the elements one of the aspects one of the

elements one of the aspects one of the

elements one of the aspects one of the group’s we need to look at are our

group’s we need to look at are our

group’s we need to look at are our doctors and our health care

doctors and our health care

doctors and our health care professionals because who is in a better

professionals because who is in a better

professionals because who is in a better position they are on the front

position they are on the front

position they are on the front lines they see the harmful effects of

lines they see the harmful effects of

lines they see the harmful effects of inadequate access to health care and

inadequate access to health care and

inadequate access to health care and quality food and inequalities in

quality food and inequalities in

quality food and inequalities in education so they get the problem after

education so they get the problem after

education so they get the problem after the problems already been created and

the problems already been created and

the problems already been created and asked to solve it more to the point

asked to solve it more to the point

asked to solve it more to the point whose voice is more respected who is

whose voice is more respected who is

whose voice is more respected who is more revered in our community than our

more revered in our community than our

more revered in our community than our doctors and our healthcare professionals

doctors and our healthcare professionals

doctors and our healthcare professionals so I would say that their voice needs to

so I would say that their voice needs to

so I would say that their voice needs to be brought into this body of people who

be brought into this body of people who

be brought into this body of people who are looking to address this problem

are looking to address this problem

are looking to address this problem before I was a journalist I was a lawyer

before I was a journalist I was a lawyer

before I was a journalist I was a lawyer and one of my personal heroes was and

and one of my personal heroes was and

and one of my personal heroes was and still is his Harvard Law Professor

still is his Harvard Law Professor

still is his Harvard Law Professor Charles Ogletree brilliant jurist

Charles Ogletree brilliant jurist

Charles Ogletree brilliant jurist scholar race theorist social activist

scholar race theorist social activist

scholar race theorist social activist for civil justice civil rights a mentor

for civil justice civil rights a mentor

for civil justice civil rights a mentor to generations of lawyers well when I

to generations of lawyers well when I

to generations of lawyers well when I was in college so unless you know it’s

was in college so unless you know it’s

was in college so unless you know it’s been a long time ago he was just a few

been a long time ago he was just a few

been a long time ago he was just a few years ahead of me in law school and we

years ahead of me in law school and we

years ahead of me in law school and we met on the steps of the Supreme Court it

met on the steps of the Supreme Court it

met on the steps of the Supreme Court it was the night before the landmark

was the night before the landmark

was the night before the landmark affirmative action education case the

affirmative action education case the

affirmative action education case the Bakke case the University of California

Bakke case the University of California

Bakke case the University of California Regents v Bakke and he’s talked to us I

Regents v Bakke and he’s talked to us I

Regents v Bakke and he’s talked to us I mean we had all night to kill because we

mean we had all night to kill because we

mean we had all night to kill because we were trying to get in for oral arguments

were trying to get in for oral arguments

were trying to get in for oral arguments the next morning he talked to me he

the next morning he talked to me he

the next morning he talked to me he talked to my best girlfriend we both

talked to my best girlfriend we both

talked to my best girlfriend we both were aspiring to be lawyers and he

were aspiring to be lawyers and he

were aspiring to be lawyers and he talked about how we all as future

talked about how we all as future

talked about how we all as future lawyers had a responsibility to use our

lawyers had a responsibility to use our

lawyers had a responsibility to use our voice to advocate on behalf of those who

voice to advocate on behalf of those who

voice to advocate on behalf of those who don’t have a voice now of course he went

don’t have a voice now of course he went

don’t have a voice now of course he went on to do just that my best girlfriend

on to do just that my best girlfriend

on to do just that my best girlfriend Pat she went on to become the Human

Pat she went on to become the Human

Pat she went on to become the Human Rights Commissioner of New York City for

Rights Commissioner of New York City for

Rights Commissioner of New York City for over a decade ironically professor

over a decade ironically professor

over a decade ironically professor Ogletree came here to Philadelphia about

Ogletree came here to Philadelphia about

Ogletree came here to Philadelphia about a year and a half ago and for the first

a year and a half ago and for the first

a year and a half ago and for the first time made the announcement that he has

time made the announcement that he has

time made the announcement that he has Alzheimer’s but that he was going to use

Alzheimer’s but that he was going to use

Alzheimer’s but that he was going to use his voice to advocate on behalf of all

his voice to advocate on behalf of all

his voice to advocate on behalf of all those african-american Hispanic and

those african-american Hispanic and

those african-american Hispanic and Native Americans who are

Native Americans who are

Native Americans who are disproportionately affected by this

disproportionately affected by this

disproportionately affected by this disease we all have a responsibility to

disease we all have a responsibility to

disease we all have a responsibility to use our voices to tell this untold story

use our voices to tell this untold story

use our voices to tell this untold story on behalf of our parents on behalf of

on behalf of our parents on behalf of

on behalf of our parents on behalf of our grandparents on behalf of ourselves

our grandparents on behalf of ourselves

our grandparents on behalf of ourselves on behalf of the Charles Ogletree z– of

on behalf of the Charles Ogletree z– of

on behalf of the Charles Ogletree z– of the world on behalf of all those people

the world on behalf of all those people

the world on behalf of all those people who can’t use their voice right now

who can’t use their voice right now

who can’t use their voice right now because they are in the throes of

because they are in the throes of

because they are in the throes of battling this disease that is the untold

battling this disease that is the untold

battling this disease that is the untold story that each one of us has a

story that each one of us has a

story that each one of us has a responsibility to tell until the day

responsibility to tell until the day

responsibility to tell until the day comes when somebody can get up here and

comes when somebody can get up here and

comes when somebody can get up here and say the big story is we have a cure

”

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