[Music]
I live with 55% capacity
respiratory
I live on the limit all against the
cystic fibrosis
I was diagnosed with this
illness when I was two years old and then
right away the doctors told my
parents
you are four years old already
finally that I was child I was
rather fit
and then we were four brothers at the
home she Saturday afternoon we
was doing well the bazaar so my dad
took us in the car they would
took them to the next village to
3 km and we will run back then he
there was the one running in front for
avoid the hassles and then the one
who was running behind crying because
that he had grown in
nettles that was how I
did sport the sport is
beneficial for my health it allows me
to bring out what I have in the
lungs
and then at the head it feels good
disease has evolved the years have
past and I could not tell you the
number of times I found myself
all alone in my bed crying the
number of times I found myself
all alone in the middle of the fields insulted
the sky to tell him but but why
what did I do I did not have the
right aubenas and then little by little I
I found myself in besançon but I
ran I ran fifteen minutes
I was all red
I vomited I spit blood I
am told but it’s over I do not
will never run again and before the transplant
of lungs and from that moment on
down I spent a lot of time at
wait then I waited after the
drugs the antibiotics the
infusions the doctors the researchers
the lung transplant finally
I was waiting for what game while
I was waiting to die what I was waiting for
to burst and
and I have an awareness I
realized
I realized the urgency of the
life of the urgency of life until May
26 years old actually this whole period
corresponds to a period of denial of
the disease where I wore a mask I
pretend a lot of things
I was normal in society the image of
month they were all up there then
that actually when I was under
perfusion at home I was very low and
and finally between these two
elastic situations that ended up
fart that’s what happened to me I had
a lot of anger in me I wanted
to god to my parents to society
to the world of work to girls to the
whole earth
I felt lonely and understood I had
afraid of being rejected and then this
disease I did not speak and I want
round one and in high school no one
knew where here nobody knew brief
I was full of false beliefs is
carved limiting and deep inside me
yet I knew I knew that
it was better than all that and
and then Jesus way it’s sad this taking
of conscience sorry for the urgency of the
life the urgency of the time that passes I want
to say if this italy it is not such that
you do not want this opinion today
not fit it’s not the fault of the
parents it’s not God’s fault it’s
not the fault of the doctor is the fault
it’s your fault
it’s you who has the power it’s you
when control to change the
things you’re the boss you’re the
boss you who decides what you can
do what you can not do it’s not
your doctor and this is even less the
disease me I am a specialist of
disease
I test a lot of things everyday
every day to be better tomorrow
short no choice you have choice to stay
in your sofa tired of waiting for
complain
and then wait to die or such
choice to get up and beat yourself
look for happiness everywhere where he
so is that what you choose get up
what
lift your joy to see the glass to
half empty or see the glass to
half full it’s the moment it’s
now that it’s happening
such captain of filming is the master
of your destiny upside down
In short, here is this decision
consciousness and life is like the
poker
if you put no you do not know so you have
nothing to lose
the first thing to do is true
and authentic to be vain with his
fears his beliefs his values should
with his body and then should with the
others and the more you will be true and
authentic
then you will meet real people and
also genuine people who tell you
looks like
and then and then more and more people
Extraordinary increasingly positive
more and more optimistic brief you are
not only you are not alone
going to see people going to see people brief
with all that in mind
well i slammed my book is young
and I bought myself a nice bike I
I enjoyed myself
and then I went to ride twice
we three times a week 20 km 50 km
and me what I liked was
to have an opponent in front of me me this
which I preferred was to go
ride a time like today
it was going to roll when there was
a storm warning
as to use less 20 or when there
had the storm i love five years i love
that and where I found myself at
besancon to roll a day there was doing
cold it was windy there was a
little drip well disgusting
the finish on the side and I got
said but shit what shit y’a no
sports and sports without kiss on
bouquet of flowers without glory without
podium and especially without a medal and
especially without idea of progress
progress in the sport and face the
disease the best way to fight
disease
it’s not about keeping the capacity
respiratory is not to defend the
best defense is the attacked
so I pushed a little bit stronger
on the pedals and then despite that eh
well I felt like condemned to
to play sports it was necessary that it serves
something
it had to be worth it and
so I started writing I’m
to write because I had my head
full of questions hover negative
full full of anger again and
I put all this in my diary
intimate I wrote four pages
I went in my shower behind
I said to myself wow I think pure and
then in parallel I found myself
models philippe croizon who has
amputated of the four limbs that has
crossed the sleeve to swim
maud fontenoy gerard d’aboville when
both crossed the Atlantic at
paddle
and then mike horn i love mike horn and
and there I said to myself I thought
if for all these people it was
possible to realize their dreams
well it could be for me too
finally and me my dream was to
run a marathon
here
it’s April 7, 2013 you’re on
fields-elysées in the departure lock
marathon de paris
there are forty thousand people around
you thirty thousand people are ready
to give everything
go through way to go
to the end until the end of its 42 km
195
the tension is unheard of you are
terrified you’re terrifying the words
you will want to do battle
you are a lion are in lyon you
are a lion in a cage because
now from paris there are so many
blood behind all this is a baroud
honor
his foals the doctor told him that
it’s impossible that you will do
marathon of paris
it’s proving to your parents to your
family prove yourself to yourself and
and then to the children who are watching us
you can do it
from Paris it’s been six months
only that you run five six seven
sessions per week
you have slept up to 3
morning hours only
this question dumas have ended we want
you win or fail at sea
it was like that so
so you are in the departure lock
and that’s it it’s gone we run and the
marathon de paris the sport challenge is
also an opportunity to recover
instead of having an illness that he takes
all this place everyday eh ben la
reduce to not much
and then finally the common crush
short clubs during and then
behind 30 kilometer dad fucking
Mom I love you it was the moment it is
the moment to make mistakes we arrive
in the world the rights of the wood of
boulogne
there is a montparnasse tower opposite it is
this little white dot at the very top of the
turn you are focus on small
crossed he did not give in
40th kilometer lahrache raging whore
because it’s good that’s it is
do it there is your dream
he’s here he’s right there right there
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[Applause]
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[Music]
14h41 4:41 stella three times that it is
did in France it’s impossible
impossible to wait for Paris Thursday
did three times in 2014 I put four
hours missed one and then in 2015
for three months I counted that
up to 4 1 2 3 and 4
I was going to be four o’clock I put
four hours 54 seconds
the sporting challenge surpassing oneself
in general, it is also a
human adventure because ya my family
there are my friends and then they are there
just there behind his mask and
oriane she lives with the request the same
illness that me and have nothing said to
his mother back in school I ‘m going
register athletics not what I
will do like Paul is
extraordinary and then these same
parents like his mother who come to me
see and we have tears in our eyes
because you can be 30 years old you can
have a job you can have a
girlfriend you can run marathons and
despite the diagnosis of the disease
ben their children who is big like
saïda live he will live it’s
wonderful this extraordinary for the
girlfriend brain
that’s done and we for three
month in fact I was invaded by a
feeling of deep joy
a happiness wow and not a feeling
also of any power
I had something that flows in my
veins to the tips of my fingers war
I had the power it could happen to me
anything could fall from
meteorite on the corner of the jaws
I was going to recover anyway
it was extraordinary
behind the summer comes people
go on vacation but beautiful
photos on facebook but I live
always with cystic fibrosis and he
needed a new challenge to continue
to play sports so I went
see my brother
Thursday August 15, 2013 and then I say
listen what are you doing next week
do not say anything i say well we’ll take
the traffic of the parents we managed
we remove the seats
but now instead I take
my bike and then you go with me
traffic
and then we’ll see how far we go
then Monday morning at 10:30 we left
from the place saint-pierre to besançon the
Monday night the stage omar is nice
pomarin one is not far from bordeaux
Besides, it’s the same girlfriend
margot too I like so pommard the
next day on Tuesday we are in nevers the
wednesday nevers bourges vierzon
romorantin we were stung by the
mosquitoes in sologne chambord next day
chambord cheverny chenonceau tower saumur
angers 200 km I missed my brother at
refueling with figo him is a
I was very tired so I did
a small stop in the village of
dungeon because you are really drover
and then behind you go up on nantes
valves 20 knots saturday I’m on saturday
I remember all the villages
before valves texts musics divia klaus
Bernard in the mess but I had
very bad buttocks
it was very very hard and one in the evening
we were in Lorient and on Sundays
lorient contains concarneau pont-aven
quimper audierne and you’ll understand
those who are good in geography
I was going west towards the light
towards the tip of the raz
I really like this picture and I think
that she also characterizes me
many contrasts and at first
plan we have all this energy all
this violence with the coast that is
torn by the waves a
inspiration and then in the background
the sun that comes to bathe in
the ocean all calm this serenity
this peace and I would like to be there
down I would like to touch the horizon
I would like to sit there
to kiss the good one here that’s my
history
this is my story is now so
you had to remember two things the
first is to face your fears
will always continue to face
mounts it’s time to look at the
disease in the eyes of the problems
in the face-to-face eyes coping
george guynemer it’s a bone of the
first World War
I love aviation is one when you
confronts your fears you take
trust in you you learn everything is
says 2nd the second thing to do is
to realize dreams dream dream
so I put you tomorrow it will be day
es12 update maybe it’s not
ambitious but when you will be at the bottom
from the bottom up to tell oneself that a tomorrow will be a
other day
tomorrow tomorrow I will be better tomorrow I
will be better tomorrow I will be better tomorrow
I ‘ll be better I thought I’m
says ‘ it’s days and days and
days
tomorrow it will be day dream dreamed
hope hope is vital and for
finish one is at la rochelle I
would like to take this opportunity I’m in front
you in addition there is the bed behind
there is the lighthouse at the end of the world
extraordinary finally brief
thanks thanks to the cystic fibrosis of me
to do what I do is the
alone that I’m in my head because
it’s all thanks to them and for
finish here is me if I do it this
that I can do anyone can the
do I ‘m not going to be doing me
to denigrate that’s what I’m trying
to say is that you can do it
you can do it too you can
do it you are all extraordinary
life is now touching
the horizon
I started my speech
saying I had 55% capacity
respiratory
Tuesday I was at the hospital I have such
measure at 65% of breathing capacity
to the doctor he believed that the machine is
blinded
it’s true it’s true he believed that the
machine is so touch the horizon to
the ego
[Applause]
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