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The Psychology of Beating an Incurable Illness | Bob Cafaro | TEDxCharlottesville


in December of 1998 after just having

in December of 1998 after just having turned 40 years old I started

turned 40 years old I started

turned 40 years old I started experiencing a strange numbness in my

experiencing a strange numbness in my

experiencing a strange numbness in my right leg and I didn’t think much of it

right leg and I didn’t think much of it

right leg and I didn’t think much of it until about a week later I was at a

until about a week later I was at a

until about a week later I was at a rehearsal and I stepped off the riser

rehearsal and I stepped off the riser

rehearsal and I stepped off the riser onto the stage of my right leg collapsed

onto the stage of my right leg collapsed

onto the stage of my right leg collapsed from under me at this point I saw two

from under me at this point I saw two

from under me at this point I saw two doctors and they both thought it’s

doctors and they both thought it’s

doctors and they both thought it’s probably just a pinched nerve nothing to

probably just a pinched nerve nothing to

probably just a pinched nerve nothing to worry about

worry about

worry about good two months later I started to lose

good two months later I started to lose

good two months later I started to lose peripheral vision in my left eye which

peripheral vision in my left eye which

peripheral vision in my left eye which was now a worrisome situation and I saw

was now a worrisome situation and I saw

was now a worrisome situation and I saw my very first neurologist and he

my very first neurologist and he

my very first neurologist and he examined me and said you have MS and I

examined me and said you have MS and I

examined me and said you have MS and I didn’t want to hear this my only

didn’t want to hear this my only

didn’t want to hear this my only knowledge of multiple sclerosis was the

knowledge of multiple sclerosis was the

knowledge of multiple sclerosis was the Great British cellist Jacqueline Duprey

Great British cellist Jacqueline Duprey

Great British cellist Jacqueline Duprey who was forced to stop playing at the

who was forced to stop playing at the

who was forced to stop playing at the age of 26 and later died from

age of 26 and later died from

age of 26 and later died from complications of the disease at 42 so

complications of the disease at 42 so

complications of the disease at 42 so you could imagine a professional cellist

you could imagine a professional cellist

you could imagine a professional cellist being told I have this debilitating

being told I have this debilitating

being told I have this debilitating disease denial was a river in Egypt I

disease denial was a river in Egypt I

disease denial was a river in Egypt I was not willing to accept this and then

was not willing to accept this and then

was not willing to accept this and then four months later I started losing

four months later I started losing

four months later I started losing peripheral vision in my right eye which

peripheral vision in my right eye which

peripheral vision in my right eye which was really scary because my left eye had

was really scary because my left eye had

was really scary because my left eye had never recovered completely and about one

never recovered completely and about one

never recovered completely and about one week after that I came down with what I

week after that I came down with what I

week after that I came down with what I thought was a stomach bug but it didn’t

thought was a stomach bug but it didn’t

thought was a stomach bug but it didn’t go away it turned out to be a prolonged

go away it turned out to be a prolonged

go away it turned out to be a prolonged period of something like motion sickness

period of something like motion sickness

period of something like motion sickness I wound up vomiting couldn’t keep food

I wound up vomiting couldn’t keep food

I wound up vomiting couldn’t keep food or water down for a week and I wound up

or water down for a week and I wound up

or water down for a week and I wound up in the hospital for severe dehydration I

in the hospital for severe dehydration I

in the hospital for severe dehydration I was released from the hospital four days

was released from the hospital four days

was released from the hospital four days later and I was unable to move my hands

later and I was unable to move my hands

later and I was unable to move my hands I could no longer

I could no longer

I could no longer play the cello I could hardly walk I was

play the cello I could hardly walk I was

play the cello I could hardly walk I was incontinent my entire body felt like I

incontinent my entire body felt like I

incontinent my entire body felt like I was receiving electrical current I was

was receiving electrical current I was

was receiving electrical current I was hearing helicopters all the time and I

hearing helicopters all the time and I

hearing helicopters all the time and I saw my neuro-ophthalmologist whom I had

saw my neuro-ophthalmologist whom I had

saw my neuro-ophthalmologist whom I had been seeing for the previous six months

been seeing for the previous six months

been seeing for the previous six months and he gave me a basic vision test and I

and he gave me a basic vision test and I

and he gave me a basic vision test and I was unable to see even the largest

was unable to see even the largest

was unable to see even the largest letters on the chart and he proceeded

letters on the chart and he proceeded

letters on the chart and he proceeded then with a visual field test where

then with a visual field test where

then with a visual field test where you’re given a clicker and you click

you’re given a clicker and you click

you’re given a clicker and you click every time you see a light flesh in the

every time you see a light flesh in the

every time you see a light flesh in the periphery and I sat there completely

periphery and I sat there completely

periphery and I sat there completely frozen not one click I couldn’t see a

frozen not one click I couldn’t see a

frozen not one click I couldn’t see a thing

thing

thing he changed through the other eye i sat

he changed through the other eye i sat

he changed through the other eye i sat there once again no clicking he stopped

there once again no clicking he stopped

there once again no clicking he stopped the test and he said the words I’ll

the test and he said the words I’ll

the test and he said the words I’ll never forget I’ll write you a note for

never forget I’ll write you a note for

never forget I’ll write you a note for permanent disability whoo this was just

permanent disability whoo this was just

permanent disability whoo this was just insane I don’t know what happened at

insane I don’t know what happened at

insane I don’t know what happened at this point but something went through me

this point but something went through me

this point but something went through me and I told him you can take that note

and I told him you can take that note

and I told him you can take that note and you can use it as a suppository

because I’m going back to work in six

because I’m going back to work in six weeks when the orchestra season started

weeks when the orchestra season started

weeks when the orchestra season started I said I’m going back to work in six

I said I’m going back to work in six

I said I’m going back to work in six weeks when the orchestra season started

weeks when the orchestra season started

weeks when the orchestra season started and he said how are you gonna do that he

and he said how are you gonna do that he

and he said how are you gonna do that he didn’t believe it was possible but I did

didn’t believe it was possible but I did

didn’t believe it was possible but I did so what do I do I have this

so what do I do I have this

so what do I do I have this I’m completely taken out my central

I’m completely taken out my central

I’m completely taken out my central nervous system is up in smoke I can’t do

nervous system is up in smoke I can’t do

nervous system is up in smoke I can’t do anything there’s a story of a

anything there’s a story of a

anything there’s a story of a tractor-trailer that gets stuck under an

tractor-trailer that gets stuck under an

tractor-trailer that gets stuck under an overpass and structural engineers are

overpass and structural engineers are

overpass and structural engineers are brought to the scene how do they raise

brought to the scene how do they raise

brought to the scene how do they raise the overpass dig grooves into the

the overpass dig grooves into the

the overpass dig grooves into the pavement under the wheels a six year old

pavement under the wheels a six year old

pavement under the wheels a six year old boy comes along on his bicycle and says

boy comes along on his bicycle and says

boy comes along on his bicycle and says hey mister why don’t you just let the

hey mister why don’t you just let the

hey mister why don’t you just let the air out of the tires so we were all six

air out of the tires so we were all six

air out of the tires so we were all six years old once but we lose that over

years old once but we lose that over

years old once but we lose that over time and with education so I said to

time and with education so I said to

time and with education so I said to that six-year-old boy inside me I need

that six-year-old boy inside me I need

that six-year-old boy inside me I need your help

your help

your help you’ve got to show me how to let the air

you’ve got to show me how to let the air

you’ve got to show me how to let the air out of the tires of this disease so

out of the tires of this disease so

out of the tires of this disease so together we started looking for obvious

together we started looking for obvious

together we started looking for obvious things that were overlooked by the

things that were overlooked by the

things that were overlooked by the experts and

experts and

experts and the first thing I found was the water

the first thing I found was the water

the first thing I found was the water cure I started drinking half my body

cure I started drinking half my body

cure I started drinking half my body weight in ounces of water a day I

weight in ounces of water a day I

weight in ounces of water a day I noticed my first signs of improvement I

noticed my first signs of improvement I

noticed my first signs of improvement I looked at other things I looked at MS

looked at other things I looked at MS

looked at other things I looked at MS rates around the world and noticed that

rates around the world and noticed that

rates around the world and noticed that your very poorest nations have rates of

your very poorest nations have rates of

your very poorest nations have rates of MS that are about 1/3 of your wealthy

MS that are about 1/3 of your wealthy

MS that are about 1/3 of your wealthy affluent industrialized nations I looked

affluent industrialized nations I looked

affluent industrialized nations I looked at Japan having been there with its

at Japan having been there with its

at Japan having been there with its environmental and overcrowding issues

environmental and overcrowding issues

environmental and overcrowding issues very low rates of MS

very low rates of MS

very low rates of MS I saw the Okinawa centenarian study over

I saw the Okinawa centenarian study over

I saw the Okinawa centenarian study over 900 people that were looked at over the

900 people that were looked at over the

900 people that were looked at over the age of 100 and in perfect health so I

age of 100 and in perfect health so I

age of 100 and in perfect health so I began to believe that our wealthy lavish

began to believe that our wealthy lavish

began to believe that our wealthy lavish lifestyle has some link with higher

lifestyle has some link with higher

lifestyle has some link with higher rates of multiple sclerosis I also

rates of multiple sclerosis I also

rates of multiple sclerosis I also looked at something called the placebo

looked at something called the placebo

looked at something called the placebo effect and this is where the

effect and this is where the

effect and this is where the six-year-old boy helped if you look at

six-year-old boy helped if you look at

six-year-old boy helped if you look at clinical trials where you get people who

clinical trials where you get people who

clinical trials where you get people who inexplicably improve in the placebo

inexplicably improve in the placebo

inexplicably improve in the placebo group it’s written off as an anomaly by

group it’s written off as an anomaly by

group it’s written off as an anomaly by the experts the six-year-old boy said

the experts the six-year-old boy said

the experts the six-year-old boy said something is happening here so I started

something is happening here so I started

something is happening here so I started learning the placebo effect by

learning the placebo effect by

learning the placebo effect by meditating to 30-minute sessions a day

meditating to 30-minute sessions a day

meditating to 30-minute sessions a day that the MS was going into remission and

that the MS was going into remission and

that the MS was going into remission and leaving my body completely one of the

leaving my body completely one of the

leaving my body completely one of the other things I used experiences all

other things I used experiences all

other things I used experiences all through my life and I was once on a

through my life and I was once on a

through my life and I was once on a backpacking trip not far from here in

backpacking trip not far from here in

backpacking trip not far from here in shannon Doan National Park and after

shannon Doan National Park and after

shannon Doan National Park and after three days in the woods I came out at a

three days in the woods I came out at a

three days in the woods I came out at a visitor center and I saw a big sign with

visitor center and I saw a big sign with

visitor center and I saw a big sign with a beautiful picture of a deer and it

a beautiful picture of a deer and it

a beautiful picture of a deer and it said do not feed the deer when you feed

said do not feed the deer when you feed

said do not feed the deer when you feed a deer human foods such as chips and

a deer human foods such as chips and

a deer human foods such as chips and candy you reduce its lifespan by 30

candy you reduce its lifespan by 30

candy you reduce its lifespan by 30 percent so I’m thinking I’m gonna be as

percent so I’m thinking I’m gonna be as

percent so I’m thinking I’m gonna be as healthy as this deer so I basically

healthy as this deer so I basically

healthy as this deer so I basically adopted the deers diet a deer drinks

adopted the deers diet a deer drinks

adopted the deers diet a deer drinks water eats vegetation probably some

water eats vegetation probably some

water eats vegetation probably some insects I passed on that one but

insects I passed on that one but

insects I passed on that one but another thing I started to do is I

another thing I started to do is I

another thing I started to do is I looked at people who accomplished the

looked at people who accomplished the

looked at people who accomplished the impossible how do they do this your most

impossible how do they do this your most

impossible how do they do this your most basic example is in 1954 the first

basic example is in 1954 the first

basic example is in 1954 the first person to run a mile in under four

person to run a mile in under four

person to run a mile in under four minutes was Roger Bannister prior to

minutes was Roger Bannister prior to

minutes was Roger Bannister prior to that people said it’s impossible human

that people said it’s impossible human

that people said it’s impossible human body can never do it he does it it’s now

body can never do it he does it it’s now

body can never do it he does it it’s now an achievable goal the baseball pitcher

an achievable goal the baseball pitcher

an achievable goal the baseball pitcher Nolan Ryan who threw his seventh

Nolan Ryan who threw his seventh

Nolan Ryan who threw his seventh no-hitter at the age of 44 and in that

no-hitter at the age of 44 and in that

no-hitter at the age of 44 and in that game throwing the ball 96 miles per hour

game throwing the ball 96 miles per hour

game throwing the ball 96 miles per hour he stayed off the aging process of the

he stayed off the aging process of the

he stayed off the aging process of the human body for 25 years so I’ve adopted

human body for 25 years so I’ve adopted

human body for 25 years so I’ve adopted his lifestyle

his lifestyle

his lifestyle every morning I begin with yoga

every morning I begin with yoga

every morning I begin with yoga stretching weight lifting you name it

stretching weight lifting you name it

stretching weight lifting you name it cycling I live a very disciplined

cycling I live a very disciplined

cycling I live a very disciplined lifestyle in 2013 I had the privilege of

lifestyle in 2013 I had the privilege of

lifestyle in 2013 I had the privilege of meeting someone who accomplished the

meeting someone who accomplished the

meeting someone who accomplished the impossible and that was Nando parado who

impossible and that was Nando parado who

impossible and that was Nando parado who survived the famous plane crash in 1972

survived the famous plane crash in 1972

survived the famous plane crash in 1972 in the Andes Mountains and when the

in the Andes Mountains and when the

in the Andes Mountains and when the plane crashed in the winter high up in

plane crashed in the winter high up in

plane crashed in the winter high up in the mountains nanda was thrown from row

the mountains nanda was thrown from row

the mountains nanda was thrown from row 9 into the bulkhead his skull was

9 into the bulkhead his skull was

9 into the bulkhead his skull was fractured in four places he was given up

fractured in four places he was given up

fractured in four places he was given up for dead and placed in the cold with the

for dead and placed in the cold with the

for dead and placed in the cold with the bodies three days later he awoke from a

bodies three days later he awoke from a

bodies three days later he awoke from a coma and 72 days after the crash Nando

coma and 72 days after the crash Nando

coma and 72 days after the crash Nando showed up in the foothills and got help

showed up in the foothills and got help

showed up in the foothills and got help this man had gone 37 and a half miles

this man had gone 37 and a half miles

this man had gone 37 and a half miles through one of the most difficult

through one of the most difficult

through one of the most difficult mountain ranges in the world in the

mountain ranges in the world in the

mountain ranges in the world in the winter he had never seen snow

winter he had never seen snow

winter he had never seen snow he had no survival training no gloves no

he had no survival training no gloves no

he had no survival training no gloves no boots no equipment and no food his only

boots no equipment and no food his only

boots no equipment and no food his only source of food was the people who had

source of food was the people who had

source of food was the people who had perished in the crash mountain climbing

perished in the crash mountain climbing

perished in the crash mountain climbing teams that reconstructed his route said

teams that reconstructed his route said

teams that reconstructed his route said what this man did was not possible so I

what this man did was not possible so I

what this man did was not possible so I met him and I said to him I always

met him and I said to him I always

met him and I said to him I always wanted to meet you and thank you because

wanted to meet you and thank you because

wanted to meet you and thank you because you were one of my guides when I was

you were one of my guides when I was

you were one of my guides when I was finished I’m not supposed to be here and

finished I’m not supposed to be here and

finished I’m not supposed to be here and he said I’m not supposed to be here

he said I’m not supposed to be here

he said I’m not supposed to be here either and when this giant gave me a hug

either and when this giant gave me a hug

either and when this giant gave me a hug something went through me I felt like

something went through me I felt like

something went through me I felt like for the first time that I had cured

for the first time that I had cured

for the first time that I had cured myself of this incurable disease and I

myself of this incurable disease and I

myself of this incurable disease and I went back to my neurologist whom I

went back to my neurologist whom I

went back to my neurologist whom I Sene for 11 years and he did a complete

Sene for 11 years and he did a complete

Sene for 11 years and he did a complete series of MRIs again on my brain and

series of MRIs again on my brain and

series of MRIs again on my brain and spinal cord in 1999 my brain had over 50

spinal cord in 1999 my brain had over 50

spinal cord in 1999 my brain had over 50 active lesions in my spinal cord had one

active lesions in my spinal cord had one

active lesions in my spinal cord had one that was three and a half centimeters in

that was three and a half centimeters in

that was three and a half centimeters in length and I worked so hard at my

length and I worked so hard at my

length and I worked so hard at my recovery and true to my word I went back

recovery and true to my word I went back

recovery and true to my word I went back to work in six weeks when the orchestra

to work in six weeks when the orchestra

to work in six weeks when the orchestra season started wasn’t easy but I kept

season started wasn’t easy but I kept

season started wasn’t easy but I kept going never missed work I missed five

going never missed work I missed five

going never missed work I missed five weeks of work that year when I was

weeks of work that year when I was

weeks of work that year when I was hospitalized so I had in 2013 I had a

hospitalized so I had in 2013 I had a

hospitalized so I had in 2013 I had a complete series of MRIs then when my

complete series of MRIs then when my

complete series of MRIs then when my neurologist looked at the results he

neurologist looked at the results he

neurologist looked at the results he said to me you did the impossible

said to me you did the impossible

said to me you did the impossible because there were no more lesions and

because there were no more lesions and

because there were no more lesions and no traces of the disease anymore

no traces of the disease anymore

no traces of the disease anymore whatsoever so I was so taken out in 1999

whatsoever so I was so taken out in 1999

whatsoever so I was so taken out in 1999 but I worked hard and everything came

but I worked hard and everything came

but I worked hard and everything came back I got the use of my legs back I got

back I got the use of my legs back I got

back I got the use of my legs back I got the use of my eyesight back I now make

the use of my eyesight back I now make

the use of my eyesight back I now make it to the bathroom when I need to go I I

it to the bathroom when I need to go I I

it to the bathroom when I need to go I I don’t hear helicopters anymore and I

don’t hear helicopters anymore and I

don’t hear helicopters anymore and I don’t feel like I’m receiving electrical

don’t feel like I’m receiving electrical

don’t feel like I’m receiving electrical current anymore but the most important

current anymore but the most important

current anymore but the most important thing I’ve gotten the use of my hands

thing I’ve gotten the use of my hands

thing I’ve gotten the use of my hands back

back

back [Applause]

[Music]

[Music] [Applause]

”

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