do not
do not
[Music]
a November 22 and a few years
we were sitting in front of
Russian doctors of the institute the sibat
when they told us that our daughter
I had cerebral palsy
at that moment to me for me the world
paralyzed
it’s as if I had left the
I would have been put in a soul
blender and after a while me
they had put back put we were
there in front of a forecast for me was
as a trance not really me
they said that and in that moment the ears
they started buzzing me and I stopped being
present where we were sitting there
in my mind there were only so many
issues
if I was a princess and my daughter was a
Princess
how was it possible that this was not
happening this happened in other houses in
other realities to other families at
neighbor to this story that you’ve heard of
your mom’s friends but not me
and less to me in all this trance
I also thought
ok I have this diagnosis that we have
searched for years are giving me
they are giving cold ice cream in Russian that
it would be worse than in Spanish and there was no
way not to sweeten the de of
feel it in a different way inside
of all this trance I also thought
good and now what are we going to do to
have a normal life this how you eat
this like how are we going to help
how are we going to do it so that it is already
better if at any time
that capacity for improvement
when I could go back inside all this
trance also I thought good and here
there are two soups or hug this
diagnosis that we searched so much
time he accepted it and starts acting or I
I go to all these processes of the already
denial the negotiation and see if any
day the acceptance arrives and I lose the
time and I opted for the first one then
when I return from this trip in which
I was in my mind that
so it lasted five minutes 10 or 20 when
I became aware again of where I was
what I can hear is that these
doctors in rosso translated into Spanish
I said it was an option that had
a surgery that was called fruit me
pleased the muscle that consisted in that
with a scalpel he could make a
percutaneous cuts to the muscle is basic
that this had very good results that
they have been doing it for many years
therefore had results in which
children improve their quality of life but
I also had the result that I had
children who could even walk and
have a greater range of movements not
we had many options all
doors had closed on our faces
in an impressive way that I say
ENCLOSED had not accepted well in
face
many times like many dads and
mothers of children with a disability
we had seen a lot of doctors and
everyone had said that there was nothing
do
on the one hand or on the other hand there are gentlemen
so exaggerated
go to early stimulation
go to the swimming
there is maybe a therapy but
nobody told us what it was that had
then this one that was not exactly the
better was not the most viable alternative
At that moment a dim light appears and
little girl
but a light was a a something that a
we encouraged us to continue
forward and it was a hope that my
daughter was better and we take that
option
then, but apart, it was not like
there is pm I do not come from Russia
volpi of a second opinion and return
will be and we can operate it tomorrow and for
make the decision that we stop it daily
following what they told us is then
it arrived the next day
this would not be so obviously we arrived
fasting and without sleep because that night
you can not sleep
we arrived the next day and he received us
the Russians operating a lot pity these
years now it’s already very familiar
with that moment was child girl or boy
Mahkama hammock bed and are being
the children then you find out about the
history of which is next to you from
the other
comes there a ivan drago and this
house that there is pure millennial no
will understand what I say but I mean
some and big Russian who fought with rocky
in the film Rocky 4 000 685 already know
nothing now
then this ivan drago arrives and
They take and pulguita makes him Maria Antonia
I grabbed my little fleas and it takes the
silk in front of time he dropped the
jaw and I said no but I do not know
here as you look guys, you give it to me
I ‘ve been taking it to mexico here it did not happen
nothing and I do not know you
Here, as I endured, I understood that
At that time, the protagonism
it should exist and that the patient was
another was taken
and at 20 minutes they brought me another daughter
they left me another daughter my daughter if she spoke
and he spoke very clearly
but he did not articulate such big phrases and
when they brought it to me so super drunk
of anesthesia that in the peace and love
my daughter said mom
Saturday is my friend’s holiday and
I want to take a princess as a gift
at this moment because although I know but
how can it be that is articulating
such long sentences not how is it possible that
already be talking about yes yes indeed
One month passed we performed the surgery
He spent a month and after one month this will
platico was 22 on November 23
December exploded leaving my two
children
the chaparro read gonza ya maría
antonia does the flea he exploded
leaving at ski school in vail
Colorado
we have we had sat down
in front of doctors who had told us
that Maria Antonia was not going to be able to
will not be able to walk that will not be able to
talk that he was not going to be able and that he was not going to
be able then for us all this
it was a duty to his miracle I am
training lawyer and I’m leaving
lawyer training works for a while in the
onu in new york as they already
they mentioned then work a foundation
that is called house alliance that is a
super ong that supports children in situation
from
of abandoned street you Centes them what was
in a financial group
and there he was in education and
also of children in street situation
of violence of topics also of
ecology of migrant children
accompanied that a super project
then I felt at that moment with
the academic capacity as well as with the
work experience to be able to put my
own NGO and in this NGO to be able to extract
Russian doctors who have operated at
my daughter to operate on children who did not have
the ability to go to Spain
or some other countries where the
doctors and who could operate here in
mexico to poor children
I felt very canchera felt that if
could it help to be very easy
the elections have been many,
because what I’ve noticed is that
it is not enough to want to help there
do it and you have to do it in a way
very professional and my daughter was born of 38
weeks with four days which is
normal
I do not see any pregnant here but I
they will understand perfect
38 – with four days determined not to
remains in incubator did not stay in
intensive therapy nothing when I
they delivered nothing else they told us that
had to give birth to da and that this
it was had to somehow see with
the orthopedists we saw orthopedists the
I really was not so worried
until they started spending those days
that become weeks and then months and
we realize in this impotence that
something was wrong or had no control
cephalic was not filmed narrated with the
two little hands and that really was a
drama no no because we could not in that
You can help her at that moment
it was better to get drunk November 22
we found these Russian doctors already
we had gone through all the neurologists
orthopedic pediatricians the homeopath
stop giving gluten was with the geox coach
we did everything we were told
that we put him up we raise alcohol with
crumbs that my grandmother brought me
we did everything that any of us
I would have done for a son and not
we found him we did not find that
that could give you the difference
we found that diagnosis that
we were looking until the 22 of
November we arrived
the Russians then we did the
negotiations with the doctors after
of surgery so that they come to mexico
I do not have an operating room out there
hidden in my house then we look
the alliances and I am proudly
Hidalgo
we seek the first alliance with him the
dif Hidalgo had that alliance and for
I was very important two things that the
project was within everyone’s reach
children of all families and that
media is added
because it took me a lot of work to give
with these Russians
then we get closer to the
media I remember having
I was sitting opposite to outside the
marta dance show booth and there would be
an email address in case someone
I had some doubt
from there that program of this first
interview
we left with more than three thousand 118
support requests
it did not matter what the children had or
people had heard that I said that
there were some Russians who composed children and
all come and then we did this
first day at the child’s hospital
dif there
pachuca hidalgo and it was madness because
many children came with all kinds of
disabilities
with all kinds of syndromes that we
we could not help the doctors came out
of the rooms first decision is in
serious to so many patients or we carry 60
ratings this is not human from there
I learned many things not to say that the
surgery and simbad and I say it clear and
strong is not a magic wand
This surgery is very good and helps
children with cerebral palsy
spastic nothing more than contracture
loose handles loose on the body
relax and you can from there with a lot
a lot of grace to improve your
quality of life to the ranges in
movements and so on we did not learn to
have clear selection processes for
Let patients know what is coming
know which patients are candidates
we learned accept to put these things in
in order let’s say it like that not the lessons
in the foundation they have been very hard
it’s up to me to learn the bad and it has
and touched learn these lessons
he has learned much more love
one other of these lessons that you
break the soul that you are sown from the
deeper of those I learned a lot
then this last year has been very
challenger also in that sense do not put
things all in order the foundation
have the discipline and invest a lot
time many resources in putting everything
this in order because now we go from
be we see a foundation
literally the dining room of my house of
dining room dining room and where
you could make a space there
children’s records
we went from that to be a foundation
much more established already with offices and
audited by this union already with lawyers
with her everything
let’s say that in a much more way
professional and this has helped us
We can not support more children
right now I’m here to
opinion after a team of volunteers
awesome that are my friends my
sisters of soul are in a city
sound evaluating children is the day
number 18 of the foundation
We have more than a thousand children cared for and
assessed and more than 600 surgeries with
Days in Hidalgo in Sonora in Oaxaca
in new lion in mexico in huejutla and in
other places
the elections have been many this
issue of trying to maintain balance
among the children all the dads that
they have children with some problem with
Some disability will understand me
try that in your family your children
all of them feel valuable to
try that the short one makes him a
Semi flea Marie Antonia feel that
for me they are just as valuable if one does not
feel displaced by the other is a
very important and sometimes difficult challenge
to be able to achieve it because surely the
dads understand me all the dads that
they split in 20 so that all the children
they feel just as important as the
mentioned I have the privilege to have
this project
surrounded by a group of volunteers who
without them I could not do the big
merit of this they have it because
their children are healthy and they only go
they went all terrain to all kinds
communities to all kinds of places
defying the early goals he
afraid to fly the traffic when leaving the
husband the children and the personal agenda
that is very difficult to leave for
attend to anonymous children with him a the
sole purpose of these children being
best
that’s the only thing that moves them then
that’s super valuable and I think you already have
much more merit of what I do for
I have a phrase that I really like what
what did I do
get ready for the problems because
the way is full of them me then
get ready with heroism for the
problems because the problems are going to
get there when people tell me they look
it’s good that this happens to people who
can make a difference and hall in the
acceptance process when my daughter
arrives and tells me mom is that they do not choose me
for the competitions and I’m very sad
because I can not not start the no
they work and I can not run like
others when they call me if they bring the
Russians school to explain
to my friends because I run different
because I can not move like the
others feel the signature the words
because my dad see this let’s not say
the words in front of my dad but he
and feel like you imagine it we ate you
part of the soul and from there come two
reflections for me an opening of yours
we give thanks every day that
you can walk that you can run is a
super power and then I caught it itself
listening to the face and can run and there
for me my drama ended there I understand
that all I can do is give thanks
to God what happened to us and I
second point is that if I were
Would you say that it’s great that this
He passed
I would be lying is not true there is no
shape
I, like many dads and moms, has
touched assume this with courage with
interested with faith and with much love because
from me flea
I learn every day I learn these
so wonderful lessons that every time
who loses his balance and I fall
I shake and follow him as I eat
he does it and if it’s true that I do this
for the children so that the children are
better for children to have a
better quality of life and can therefore
some cases walk not at all for
that they can eat on their own stretch
the little hands that are better but they know
something I do more for dads and
moms so that one day like me
just as I feel in this hope
It’s little light that you see like that when when
the tunnel is to have a child with
disability and come together and it’s a tunnel
dark and then I do it so that
have that little light of hope and that
at some point someone day them there is a
surgery and we can operate it tomorrow
thanks for listening
[Music]
”
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