[Applause]
[Music]
in 2005 I am a cadre in a big
group
married and mom of two boys of 2
and 5 years millio and célian we live
a nice little house on the road of
millio wines was the happy millio
speaks a language that only his brother
understands trying is happy to go to
school
a simple and limitless happiness thinking
we because at that moment if we
had told the rest we would not have
not believed his lions often ask
drink water and at night he does not leave
not his gourd the family doctor gets
wants reassuring up to two liters per
day to five years there is no need to
to worry about and the 600 km that we
separate from the family for
join at christmas are cut off from
many pee pauses
he drinks so he eliminates we think
then the two liters of come 5 to
pediatric emergencies 1 they prescribe
examinations and weaning on several
days at the hospital
this weaning for its links is a
punishment he needs our help
especially at night the doctors conclude
it’s a dc followed by a
psychologist
so it’s lyon every week
meet a psychologist at work
the hello tour becomes
complicated everyone knows that there is
a problem and no one finds the
words in front of children
our priority is to keep smiling
in june 2006 it’s lyon at six and the
wood 10 liters per day the equivalent
of a full bucket he is exhausted from drinking
night and day
he feels guilty for complicating life
and he does not smile anymore we go back to
pediatric emergencies and they tell me
madam, we’ve already told you your son
has nothing here under observation he knows
stop drinking
go home tie him to his bed
or do it internally and in the car park
from the hospital in the retro I observe
my son with his blanket and he is
sad like a rag doll
washed out I can not remember
tears and he tells me I’m going to die mom
these kids tear up I take myself back and
Thursday no darling we will take care of
you’re going to see deep inside me I know
that I can not give up
even if the family doctor but said
being a mother is not being a
wonder woman time goes on and celian
father of colors the moral the taste of
life and trust to adults in
white blouse green and blue pardon
it’s the emotion for the generalist
the duty of a mother is not the one
to be a wonder woman for the hospital
celian does not have any dysfunction
physical and me I belly murderer
the heart that explodes I do not accept it
I do not know better than
doctors but I’m his mom and who
better than me to return the earth
to cure celian in the summer of 2006
I study I use my time for
study the hypotheses every
hypotheses at the origin of the disorders of
these lions I’m learning on the internet on
the dipsy milk polio rice from
French English expert publications
and german
I leave consequences observed for
go back to the probable causes
and as I am not polyglot I
translate keywords I let nothing
at the moment his return also forgiveness
after several weeks
I establish a good cause podium in
my sea ignorant logic it gives
brain tumor hormonal disorder
diabetes in water
at night I think of the brain tumor
I do not know the legacy I
do not know the therapy it’s
maybe a cancer
my nights are frequently asked questions
but I am determined to know at
moment of his return to the podium in
hand we meet a pediatrician
endocrinologist new exams are
prescribed for the first time there
pass an irm
finally a path that is not a stalemate
time goes by and celian at school
has no friends about millau each
morning they cling to me and cry
the school provides valuable support and
he waved me to the window with his
little hand and traces of red to
lips that I leave him to do it
smile
a september evening
the endocrinologist call us and we
request to come as quickly as possible to
other exams and there I understand that
it becomes clear
I am ready to hear the diagnosis
I am ready to announce it to my
close to taking care of my two
children I am very very near you
love me the analyzes reveal that the
growth of those having this decree
and delivered shows the origin of his thirst
it’s a skull you for a rape of a
benign brain tumor with fortress
y divine and it is healing
the pituitary gland affected by the
tumor does not produce enough
the hormone that keeps the upper body and
the body in an adult is composed of
60% of water and in a child of 75% a
Infant and more since then
more than 10 months
it is to survive while his body
do not keep it wood- bound it
eliminates so he drinks and there I know that
it’s the beginning of the end of the problem
the specialist tells him it’s lyon us
have found what you have besides if
I too had it I will not stop
to go to the bathroom all day
like you have a little ball in the
head
we will think about the best
solution to remove it
in the meantime I’ll give you a stamp
you will not need to drink hot and
Celian jump for joy on his bed
neurosurgeon the neurosurgeon has a
air of benabar and celian emilio are
fans it takes fifteen days to
consult with counterparts and validate the
best of the three possible options of
my side I’m doing a second podium
and promise to consult another
neurosurgeon if our findings
differ and they are identical
he explains to us that the difficulty
it is to totally remove the tumor
stretching like a spider’s web
on healthy organs to avoid
any recurrence
in an isolated room of the hospital
I call my parents to announce them
and I feel their pain
I entrust them with the mission of giving
news to loved ones because I do not
do not have the strength
I announce ac lyon the rest worthy and
confident comic book
the anesthetist pleases him well and that’s
that he will wake up with pipes
in the nose and enter the room
operating inches in the air
a big smile with his blanket
doors close and our smile to
we run away
we present in silence
the intervention that was to last three
hours lasts five hours in the service
of resuscitation the neurosurgeon
seems satisfied everything went well
I rather remove the risk of
recurrence is less and we cry
we find these lions on his bed
infusions in the arms on the
leg of the tubes in the nose of
plasters everywhere and his comforter too
he is holding our hand
to live things as they had
been announced for loved ones at
phone
the pressure falls these lions will keep
friendly links with sandro surgeon
and his endocrinologist back to the
House
family life and nights
calm again if lyon take
pills three times a day and the
evening he has a mailhiot injection to 4
years when he attends for the first
time to this injection and he gets
curl up in a corner and hide
the eyes the language of this little is
always an enigma and he needs
to be helped millions will be
diagnosed deaf on 20% of
frequencies for three years
every week he will go to learn how to
pronounce the consonants let it has
placed his tongue sucking at the right time
without a will limit him
will not be fit
today he is 14 years old and thanks to his
tenacity effect of improvisation on stage
it’s lyon at age 17 he’s a sportsman at
the personality appreciated the year
last he left five months in
a host family in tasmania
with these ordinances does it translate into
option these people these injections and its
drugs and get this trip to victory
end of the world is a big victory
on life because the victory we have
wins every day but not in a day
it’s lyon had to relearn how to do
confidence in the competence of adults
millio has stopped being too discreet
to finally express his joy of living
this year the super 10 kg I
faced with the prospect of
death of my child I offered to
hope I discovered the power of
love is today my life is
more the same
the little worries make me smile
seeming to be indifferent to me
inner wealth of individuals me
touch
my role as a mother and to sign
children
the free will to become actors of
their life project and my children are
treasures
they are here tonight if lyon and emilio
they will join me
and to tell you everything tonight they have
discovered part of this story
I never met them
told
[Applause]
after hearing this story I
do not have the same anymore because you know that
you have in you the ability to pass
besides the certainties of others and
roar if necessary and love
deeply love is the most
powerful engines where is the limit
love for what keeps you
heart
do not let go nobody will do it for
you
thank you very much
[Applause]
”
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