Meine Geschichte mit Retinitis pigmentosa. | Peter Böhm | TEDxTuebingen

[Music]

I want to talk about one tonight

eye disease speak my falls

an eye disease over short or

long leads to blindness there is

different variants at the moment

had taken a bit longer

much earlier then blindly recently

there was nothing else

to do it

it was just plain you lose that

eyesight and that we are

i was six years old when i diagnosed

I got the eye disease

retinitis pigmentosa I briefly that

later during the lecture always

again as dt and my parents

were there and of course it went

Immediately for the future too, chances are much

hope my parents then asked the

doctor what can you do about it

and the answer was short and short

Concise is still in my head today

Nothing

that was formative and it was clearly loss

would accompany me so see these

could not really help me then

Imagine what it means to my parents

I think I have a much clearer one

Imagination for me it was just a

a bit more the buzz in the

evening hours that maybe more often

times against lamppost has run as

other friends maybe easy

only that one with the class play with the

friends just not there constantly

established and most popular players

was

I was actually fine with that

do not be surprised if

I adapted myself again upstairs

was that can heart attack say that

a kind of timer that’s not the time

convict because look on display

it just strikes me hard per se

So yes, this will lose this topic

something that was there early and on the

other side but also the chances

associated with that actually has

Somebody expects something from me

typical professions suggested to me

manual things were basket weavers

have here, I did not at that time

really excited and become

we were not against what

a great job I often talk about today

should not have done

but yes, that was not mine then

Forecast is a fascinating yes me

love technology i love cars though

to demonize them are motorcyclists

I know where to ask someone

clearly not been in Hesel but

the motorcycle

yes, my passion was easy

I wanted to develop engines

best there porsche with vw otherwise

we work so it was clear I wanted

I also wanted to graduate from high school

then he does and develops naturally

also to get through my methods

not to go through somehow though

then it’s easy for me to do it

something to remember and from the very beginning on

to listen to teachers and to the face

look and always my attention

to give as somehow dull

what to find up from the on the blackboard

which is absolutely necessary in the normal case

I just could not and then

easy to repeat in the evening

recap

So I learned because I have to change

be if i try a standard who

that does not work that lies

just not my options

i graduated from high school

Well passed

but never has anyone again

Asked so many parents in this respect

nor do they give no sooner everything

so bad

I am then and then we go

which means losing lose

also always means a crossroads

to go another way to go

have to

and have to branch off behind this

There is often a new chance for something

other things also reach through my eyes

Of course, you have to be unfit for service

not to the Bundeswehr and I regret

not really and could for one

spend a year in Paris and have there too

learned a lot for me and

economic benefit is not

but judicial originated from it

Of course, a lot for my own

personality and as I say that

already describe small place

also lose if I win

good eyes had which

Bundeswehr has been in the

then I have time actually

even more my motorcycle license

times driving license allows but

car license with 18 that was still possible

very good motorcycle license was already

asks me a lot, I really still

be sensible to attack other prey

and I wish it fulfilled the

was very important to me that was

not so easy you had to get this one

first wishes to come true and too

they are standing and that is what I believe

something everyone in the room for

Getting along can be very important

not only make his wishes clear

not only do they always talk about it

Again, I would mention that too

like by itself, I say want and then

be clear here again if I am

something i want from something

say goodbye to something else

maybe peace in the family

because they did not think so

sparkling the motorcycle became women

and then that look turns on

the world, of course, in its

I have a lot in the time 20-30

seen from the world family motorcycle

on the road with friends pretty cross

Europe has come to the

Atlantic coast in Spain and that were

simply things that was not

of course I will be seen

I would certainly be very strong on

mechanical engineering studies gone during

window gone in

I do not want to talk bad about that

of course, that was done, of course

a dream study i would have that

like to exist now would like to be an engineer

but that is just a variant

it is not drama but is only

different

we only have one life path and that

we have to understand that when we do that

understand

then what we no longer create is what emerges

have the future the chance and the

possibility not to look what can

I’m not watching anymore but watching what

I have in my hands

what can I work with what suits me

to disposal

typically the partnerships

People who are single look the

partner the families to the couples

want to be in such a construct too

live and he has lived in family

maybe she wishes again

freedom couple minutes for yourself

for his own longings and

maybe even your own

unreasonableness as with sense of responsibility

then no longer works

it just works that way

again this chance to see that’s mine

somehow early succeeded

maybe it just happened

maybe it was up to me I can do it

do not track anymore nowadays

In every case was always my view

open and what is it a loss

was over the eyes was

freedom and that is I am free me

I have never narrowed down anywhere

felt and I was never in any one

hamster wheel

unless I have a certain time

really enjoyed it for a long time

I’m driving on this motorcycle

It must also be a bit of money

then I worked by the way my

study meyer say a love affair

mechanical engineering pre-diploma

economics pre-diploma always

if the subjects have been crisp

the eyes are no longer enough

were always bad that was

it is always clear that it is also a degree

to start is a recapture mine

whole life is one

rearguard sounds now

terribly dramatic but that at

everyone here in the room as well as we come

not not we do not go with nothing

and somewhere in between Essenberg

descent

we’ll all go through so we should

do not forget and monty python and

certainly shows me this quote

So we get nothing went into

nothing that just needs my orientation

check again a bit

I still have the room yes so

then speak and bandage speak

first again

it’s all laughing too, so I am

who are doing reasonably well

yes in any case, the time not too

overlooked so my life was exciting

I always have many options

and then could as well

Freelancer is set as fixed there

you did not want me because then one

handicapped would have been annoying

you could not cancel

and so I was forced or maybe

also motivates me as a freelance

then do it on your own and

then have various projects in

different cities of germany

make a gift again

actual forced because I did not want one

and afterwards wonderful times in

Berlin and Cologne

exhausting but nice and in berlin

is that what happened then synonymous proportion

This evening from my lecture I am

I read a report popular

scientific magazine

glossy on the front a huge word

I hope I change correctly

demand here bionics that was natural

mainz biology technique mesh mechanics

There was an immediate presence and there it went

then a retina chip in the

Germany was developed somewhere

It was also a report on

paraplegia I found that

incredibly exciting because I thought

or the other way I was always sure

Mankind is traveling wisely

research urge and it will eventually

but I was sure too

not in my lifetime I was there

very confident and that’s where I stand

the ones on this chip with the

baptized here in tübingen

The wet environment became one of them

people should be thrown, we should be glad

he wrote somebody once or even

again a quote half helped

half-hearted a chip in the body

to be involved somehow is like

a flat picture

when you throw in the sea and stuff

hope it works and that too

all over several years

So much thanks to the people

which it tries for the first time

and have dealt with naivety

that can go

At the time I thought okay

another cable on the back of the head

after all, it’s nothing for me

that he can not do that but that

at some point as far as I would like

because somehow participate and me

bring in and clear as a doctor me

I did not contribute anything

The perfect surgeon than that will stop

nothing but wanted to participate somewhere

I stop and then I thought so too

His little human is not

so serious they do not need you

who have enough are as many as that

I do not want to believe that

then that was shelved and a few

years later then I had one

project in Stuttgart I accepted

stuttgart had hardly until 2005 actually

a reference other than the wilhelma the

beautiful is my women want

after all, it enjoyed the free time

was stuttgart then would go to

work and a very appreciated colleague

from me then very good friend

By then I finally gave it to me

breaks from the newspaper you meant that is

but what the one I have there is one

chip there is built nearby

I say this if I may then

I have the report but then anyway

read in the depth and have me

inquire what is this chip and there

I would like a bit out

So what can this chip do?

Retina chip of the blind reunion

to enable

and there is difficult what I see

for her now is clear

Ideas you go to the cinema

avatar or any beautiful

personal film from visually up

to the master of the rings

of course that’s for see

me a lot or what is for someone who

black is blind 10

and there is not already at the beginning

in vain this car dark knight of

falco wrapped it is about this

behind it a light behind me

I hope I tell it

right a fireworks and this one

watch fireworks with your own eyes

even if it’s just bright on dark

is only white on black

unbelievable also at the moment where

The technology was created a dam failure

and of course the big problem was

start to get that far at all

That’s what you think about developing the chip

to plant in the people is there

It’s not just about seeing it now

is also a cross-sectional palsy to

quite a lot of things but I am

Subjectively, I am just here

affected for the very strong

focused on this thing 40 times 40

Points that’s not much

So the first windows systems these

Their own little ones have been around for a long time

some more information picture

Above all, they had color information

I figured 40 times 40

picture points thus 60 1600 what does that mean?

and have as a human or technology on

an affinity I’ve been thinking

how do I work anyway and that was

In 2012 my work is about that

I write text files that I am

Send a calculator and what he says

has to do and which fellow colleague

pay to provide

it’s not all

really high hit thrilling or

difficult but it just has to be tapped

his and I have the luck that the

Technology always a bit with me

has been keeping pace with technology

That’s the way we mean my eyes

got worse and between

i program by typing letters like that

two three inches tall white on

black background sees it too

even then as to 45 percent in good

lighting

In any case, this chip the reck

I can figure out a few letters

and that was for me

World so unbelievable it was a hope

in the future

that was mostly your own life back in

to take the hand and say the right one

eye to which I am currently still

work becomes worse the left eye

if it would be operated and me

I got the chip then

that would have he has the potential

that it can remain stable then that it

maybe even in the future

can be re implanted

I got the chip then and

could really draw lines then

Letters read my expectations

have been completely taken and

among other things, that is why the beautiful

bild I have the input sequence

Fireworks seen another patient

had described that to me and I had

not for myself at all

possible I thought that thought

I’m not that good with the guy and so good

I was then really me

was and could be at a folk festival

this firework with the tip

see our folk festival two fireworks

the first at the right eye biological

looked at completely and the other with

the left eye

with the technical and it was both

Equally well with the technical it has

even a few more

more options

it is not long I like everything

it will not taste good again

anyone here and the world at the beginning

But it is not necessary at all

what the type has given the more

people were not allowed to meet

also at the place really my thanks

would like to pronounce because that

works as fascinating as if

people 20 years of their working life in the

hang freely where they might be

do not know if that someday

can lead and I have to confess yes

unbelievable and yes and in that sense i can

just tell everyone we will all be with

loss may be the topic wanted

I enter a bit and more because

I think that’s what you can do here

take

we can handle that chip that

he exists and that he shines again

the dark brings for people even

dont pull

as I said not easy but one

wonderful beginning but what anyone can do

they never take any of them with them

in so deep the valley also graz once

the topic in it is maybe only one has

the wrong look maybe it is

since I just and carefree I continue

to go maybe is to listen directly

not necessary for them

imperative is openness and freedom

fight back your freedom

and then i would be happy if i did

someday someone out of the room

I meet says’ve done it I

have a bit of freedom for me in

won back my life and with it

I would like to have my speech now

[Applause]

[Music]