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Living with diabetes: the past and the present. | Katarína Hricová & Flore Santucci | TEDxYouth@EEB3


actually we managed we met randomly we

actually we managed we met randomly we are breaking theater together and it was

are breaking theater together and it was

are breaking theater together and it was sometime in October we hadn’t known each

sometime in October we hadn’t known each

sometime in October we hadn’t known each other before well it was a long time ago

other before well it was a long time ago

other before well it was a long time ago when it started for me it was February

when it started for me it was February

when it started for me it was February 1985 and I was when I got flu so I and

1985 and I was when I got flu so I and

1985 and I was when I got flu so I and [Music]

[Music]

[Music] exhausted all the time but I couldn’t

exhausted all the time but I couldn’t

exhausted all the time but I couldn’t sleep well my mum noticed something was

sleep well my mum noticed something was

sleep well my mum noticed something was not going well but she didn’t think it

not going well but she didn’t think it

not going well but she didn’t think it was that important later in August 1985

was that important later in August 1985

was that important later in August 1985 I was almost 12 years old she took me to

I was almost 12 years old she took me to

I was almost 12 years old she took me to a doctor for the blood tests and well I

a doctor for the blood tests and well I

a doctor for the blood tests and well I was diagnosed diabetes type 1 taken to

was diagnosed diabetes type 1 taken to

was diagnosed diabetes type 1 taken to hospital for two weeks to start the

hospital for two weeks to start the

hospital for two weeks to start the treatment and then start a new life with

treatment and then start a new life with

treatment and then start a new life with no disease that was a challenge it was

no disease that was a challenge it was

no disease that was a challenge it was with my father to make my injections

with my father to make my injections

with my father to make my injections because you know it’s putting a sting in

because you know it’s putting a sting in

because you know it’s putting a sting in your own daughter is not funny and I

your own daughter is not funny and I

your own daughter is not funny and I guess it’s the same for every close

guess it’s the same for every close

guess it’s the same for every close person we had it was very hard for both

person we had it was very hard for both

person we had it was very hard for both them and us for me I was so scared of

them and us for me I was so scared of

them and us for me I was so scared of needles that I was not able to inject

needles that I was not able to inject

needles that I was not able to inject myself so my mom and my dad had to be

myself so my mom and my dad had to be

myself so my mom and my dad had to be trained on how to do it for me it took

trained on how to do it for me it took

trained on how to do it for me it took me two years to do it myself finally

me two years to do it myself finally

me two years to do it myself finally well it was not always that easy

well it was not always that easy

well it was not always that easy when we were diagnosed with diabetes one

when we were diagnosed with diabetes one

when we were diagnosed with diabetes one we have to explain what diabetes one is

we have to explain what diabetes one is

we have to explain what diabetes one is because we’re talking about that

so the British type one is when the body

so the British type one is when the body attacks a hormone called insulin which

attacks a hormone called insulin which

attacks a hormone called insulin which regulates its sugar level so with that

regulates its sugar level so with that

regulates its sugar level so with that the insulin your body will just tuck the

the insulin your body will just tuck the

the insulin your body will just tuck the sugar in you and it wouldn’t go away so

sugar in you and it wouldn’t go away so

sugar in you and it wouldn’t go away so you would just be refugees refrigerated

you would just be refugees refrigerated

you would just be refugees refrigerated like with your sugar and it can lead to

like with your sugar and it can lead to

like with your sugar and it can lead to blindness you can lead to amputations

blindness you can lead to amputations

blindness you can lead to amputations and so on on the other hand type 2

and so on on the other hand type 2

and so on on the other hand type 2 diabetes is different you can see it

diabetes is different you can see it

diabetes is different you can see it mainly in older people usually due to

mainly in older people usually due to

mainly in older people usually due to obesity they can be diagnosed based on

obesity they can be diagnosed based on

obesity they can be diagnosed based on different symptoms like problems with

different symptoms like problems with

different symptoms like problems with eyesight or her high blood pressure or

eyesight or her high blood pressure or

eyesight or her high blood pressure or heart problems and it is sometimes more

heart problems and it is sometimes more

heart problems and it is sometimes more dangerous than diabetes type 1 another

dangerous than diabetes type 1 another

dangerous than diabetes type 1 another one is just a tional diabetes that can

one is just a tional diabetes that can

one is just a tional diabetes that can occur during pregnancy but doesn’t mean

occur during pregnancy but doesn’t mean

occur during pregnancy but doesn’t mean that it have to stay so there is a few

that it have to stay so there is a few

that it have to stay so there is a few technology that we use every day so the

technology that we use every day so the

technology that we use every day so the first one is for injecting our insulin

first one is for injecting our insulin

first one is for injecting our insulin so the one that our body cannot create

so the one that our body cannot create

so the one that our body cannot create so Katerina has the pump with her for

so Katerina has the pump with her for

so Katerina has the pump with her for myself I have the pen it really looks

myself I have the pen it really looks

myself I have the pen it really looks like a pen and it really doesn’t hurt

like a pen and it really doesn’t hurt

like a pen and it really doesn’t hurt it’s really this medicine is way better

it’s really this medicine is way better

it’s really this medicine is way better than it was when Katerina first yeah

than it was when Katerina first yeah

than it was when Katerina first yeah back to those times we had to use

back to those times we had to use

back to those times we had to use syringe that was reused now and then it

syringe that was reused now and then it

syringe that was reused now and then it has to be boiled to become sterile again

has to be boiled to become sterile again

has to be boiled to become sterile again later we had insulin injections there

later we had insulin injections there

later we had insulin injections there was something better finally and moved

was something better finally and moved

was something better finally and moved to insulin pen and now I have had my

to insulin pen and now I have had my

to insulin pen and now I have had my insulin pump for eight years and it’s

insulin pump for eight years and it’s

insulin pump for eight years and it’s working much better than the other ones

working much better than the other ones

working much better than the other ones well to know how to treat diabetes this

well to know how to treat diabetes this

well to know how to treat diabetes this is not the only thing we also need to

is not the only thing we also need to

is not the only thing we also need to measure our glycemia so this was one of

measure our glycemia so this was one of

measure our glycemia so this was one of the old hey it used to be like that

the old hey it used to be like that

the old hey it used to be like that it was really easy but nowadays since

it was really easy but nowadays since

it was really easy but nowadays since two years does the new technology that I

two years does the new technology that I

two years does the new technology that I have with me but you can’t really see it

have with me but you can’t really see it

have with me but you can’t really see it so this is just how it works and now you

so this is just how it works and now you

so this is just how it works and now you have my glycaemia and this is really

have my glycaemia and this is really

have my glycaemia and this is really easy for me now to take my glycaemia I

easy for me now to take my glycaemia I

easy for me now to take my glycaemia I don’t have to wait so much and I know if

don’t have to wait so much and I know if

don’t have to wait so much and I know if I’m going higher or lower so I can like

I’m going higher or lower so I can like

I’m going higher or lower so I can like so I can balance my yeah for me it was

so I can balance my yeah for me it was

so I can balance my yeah for me it was very funny when I was a kid in mid 80s

very funny when I was a kid in mid 80s

very funny when I was a kid in mid 80s in Slovakia socialist country the

in Slovakia socialist country the

in Slovakia socialist country the treatment was very interesting sometimes

treatment was very interesting sometimes

treatment was very interesting sometimes you feel like in laboratory to break on

you feel like in laboratory to break on

you feel like in laboratory to break on a kind of project so I could not really

a kind of project so I could not really

a kind of project so I could not really know how high my blood sugar was because

know how high my blood sugar was because

know how high my blood sugar was because I didn’t have glucometer and I didn’t

I didn’t have glucometer and I didn’t

I didn’t have glucometer and I didn’t have a chance to measure it regularly

have a chance to measure it regularly

have a chance to measure it regularly the only things I could do was a very

the only things I could do was a very

the only things I could do was a very strict diet and exercising that was

strict diet and exercising that was

strict diet and exercising that was really the only those things that helped

really the only those things that helped

really the only those things that helped to balance my sugar somehow well living

to balance my sugar somehow well living

to balance my sugar somehow well living with diabetes was not always very much

with diabetes was not always very much

with diabetes was not always very much fun sometimes you get reactions from

fun sometimes you get reactions from

fun sometimes you get reactions from people they didn’t know how to treat you

people they didn’t know how to treat you

people they didn’t know how to treat you and since I was only 12 beginning at the

and since I was only 12 beginning at the

and since I was only 12 beginning at the beginning of the new school year in 1985

beginning of the new school year in 1985

beginning of the new school year in 1985 they didn’t know how to handle people

they didn’t know how to handle people

they didn’t know how to handle people were scared so they better avoided me

were scared so they better avoided me

were scared so they better avoided me they talked behind my back

they talked behind my back

they talked behind my back the teachers were afraid to take me to

the teachers were afraid to take me to

the teachers were afraid to take me to trip’s survived excluded it was not very

trip’s survived excluded it was not very

trip’s survived excluded it was not very happy but still we had to leave these

happy but still we had to leave these

happy but still we had to leave these lives somehow later it became better I

lives somehow later it became better I

lives somehow later it became better I started travelling I felt more

started travelling I felt more

started travelling I felt more independent and I felt more accepted by

independent and I felt more accepted by

independent and I felt more accepted by other people so that was a very big

other people so that was a very big

other people so that was a very big moment for me you can see a picture from

moment for me you can see a picture from

moment for me you can see a picture from a can that I was when I was 21 in Sweden

a can that I was when I was 21 in Sweden

a can that I was when I was 21 in Sweden it was summer international

it was summer international

it was summer international international summer village for kids of

international summer village for kids of

international summer village for kids of age 11 I am very young so I haven’t done

age 11 I am very young so I haven’t done

age 11 I am very young so I haven’t done much the further have been nice to

much the further have been nice to

much the further have been nice to Canada and it was it was really

Canada and it was it was really

Canada and it was it was really stressing for me because I know I would

stressing for me because I know I would

stressing for me because I know I would be alone without any clothes

be alone without any clothes

be alone without any clothes who could take care of me if anything

who could take care of me if anything

who could take care of me if anything wrong happened so I’m here nothing wrong

wrong happened so I’m here nothing wrong

wrong happened so I’m here nothing wrong happened and truly really fun time but

happened and truly really fun time but

happened and truly really fun time but there’s other time where it’s really not

there’s other time where it’s really not

there’s other time where it’s really not the same things for example just

the same things for example just

the same things for example just yesterday I had a big April I see Mia

yesterday I had a big April I see Mia

yesterday I had a big April I see Mia and we had classes and just because we

and we had classes and just because we

and we had classes and just because we had classes or whatever my friends

had classes or whatever my friends

had classes or whatever my friends wouldn’t come with me to take some sugar

wouldn’t come with me to take some sugar

wouldn’t come with me to take some sugar to the cafeteria which was in the other

to the cafeteria which was in the other

to the cafeteria which was in the other side of the school so I had to go by

side of the school so I had to go by

side of the school so I had to go by myself

myself

myself and when I came to see them after they

and when I came to see them after they

and when I came to see them after they just didn’t wanted to do two meters to

just didn’t wanted to do two meters to

just didn’t wanted to do two meters to come forth to come closer to the chair

come forth to come closer to the chair

come forth to come closer to the chair sitting on so I just left because I was

sitting on so I just left because I was

sitting on so I just left because I was crying I was in a very bad mood because

crying I was in a very bad mood because

crying I was in a very bad mood because of the iPod lay Samia

of the iPod lay Samia

of the iPod lay Samia well I also had a moment a long time ago

well I also had a moment a long time ago

well I also had a moment a long time ago when I needed help

when I needed help

when I needed help I was a hypoglycemic it means my blood

I was a hypoglycemic it means my blood

I was a hypoglycemic it means my blood sugar really dropped down and that time

sugar really dropped down and that time

sugar really dropped down and that time you need other people sometimes we are

you need other people sometimes we are

you need other people sometimes we are very weak and we cannot really take care

very weak and we cannot really take care

very weak and we cannot really take care of ourselves the first aid is sugar or

of ourselves the first aid is sugar or

of ourselves the first aid is sugar or glucose or a kind of liquid drink with

glucose or a kind of liquid drink with

glucose or a kind of liquid drink with sugar or glucose and I needed sugar

sugar or glucose and I needed sugar

sugar or glucose and I needed sugar desperately that person who was very

desperately that person who was very

desperately that person who was very close to me just gave me the sugar and a

close to me just gave me the sugar and a

close to me just gave me the sugar and a spoon because the only thing I could

spoon because the only thing I could

spoon because the only thing I could think about at that time was to put

think about at that time was to put

think about at that time was to put sugar on a spoon to eat it and to drink

sugar on a spoon to eat it and to drink

sugar on a spoon to eat it and to drink a bit of water to get better but I was

a bit of water to get better but I was

a bit of water to get better but I was pouring sugar on a spoon and it was

pouring sugar on a spoon and it was

pouring sugar on a spoon and it was messing around and the patient shouted

messing around and the patient shouted

messing around and the patient shouted at me like what are you doing you make

at me like what are you doing you make

at me like what are you doing you make it mess around you can’t you see and I

it mess around you can’t you see and I

it mess around you can’t you see and I was not able to even react I started

was not able to even react I started

was not able to even react I started laughing because when you hypoglycemic

laughing because when you hypoglycemic

laughing because when you hypoglycemic your symptoms are very strange you shake

your symptoms are very strange you shake

your symptoms are very strange you shake all over your hands are not study you

all over your hands are not study you

all over your hands are not study you very pale

very pale

very pale you have blurred vision you cannot

you have blurred vision you cannot

you have blurred vision you cannot really think logically there are many

really think logically there are many

really think logically there are many other symptoms so you need people you

other symptoms so you need people you

other symptoms so you need people you depend on other people after that yeah a

depend on other people after that yeah a

depend on other people after that yeah a little bit about numbers so this graph

little bit about numbers so this graph

little bit about numbers so this graph is from 2013 so the numbers are even

is from 2013 so the numbers are even

is from 2013 so the numbers are even higher today there is more than four

higher today there is more than four

higher today there is more than four hundred millions people they diagnosed

hundred millions people they diagnosed

hundred millions people they diagnosed diabetic and some of them are still

diabetic and some of them are still

diabetic and some of them are still undiagnosed it’s really alarming because

undiagnosed it’s really alarming because

undiagnosed it’s really alarming because they expect that in a few years the

they expect that in a few years the

they expect that in a few years the number will double so it’s really

number will double so it’s really

number will double so it’s really important to know take care of others

important to know take care of others

important to know take care of others who have the disease because it might

who have the disease because it might

who have the disease because it might happen to you it might happen to one of

happen to you it might happen to one of

happen to you it might happen to one of your family it might happen it might

your family it might happen it might

your family it might happen it might happen to a close one and if you’re not

happen to a close one and if you’re not

happen to a close one and if you’re not there for them then it’s useless yeah I

there for them then it’s useless yeah I

there for them then it’s useless yeah I would like to get back to the picture

would like to get back to the picture

would like to get back to the picture because we just I would like to mention

because we just I would like to mention

because we just I would like to mention something you know every woman can have

something you know every woman can have

something you know every woman can have a baby

a baby

a baby probably but for diabetic woman it’s

probably but for diabetic woman it’s

probably but for diabetic woman it’s always very sensitive period and it

always very sensitive period and it

always very sensitive period and it happened to me I was very happy and all

happened to me I was very happy and all

happened to me I was very happy and all nine months were just smoothly and then

nine months were just smoothly and then

nine months were just smoothly and then I gave a birth to healthy baby my

I gave a birth to healthy baby my

I gave a birth to healthy baby my daughter so I was very proud become very

daughter so I was very proud become very

daughter so I was very proud become very proud mother that I managed this fight

proud mother that I managed this fight

proud mother that I managed this fight of diabetes type one I was taking care

of diabetes type one I was taking care

of diabetes type one I was taking care of and well when people support you you

of and well when people support you you

of and well when people support you you can really do whatever you want

can really do whatever you want

can really do whatever you want it’s very nice challenge in life so what

it’s very nice challenge in life so what

it’s very nice challenge in life so what you can do after is to be more healthy

you can do after is to be more healthy

you can do after is to be more healthy take care of yourself not getting

take care of yourself not getting

take care of yourself not getting diabetes type 2 and also be there for

diabetes type 2 and also be there for

diabetes type 2 and also be there for those who needs you because they’ll be

those who needs you because they’ll be

those who needs you because they’ll be there for you back yeah like friends the

there for you back yeah like friends the

there for you back yeah like friends the people to support you usually it’s

people to support you usually it’s

people to support you usually it’s family you can see my family on on the

family you can see my family on on the

family you can see my family on on the other side sometimes they are friends or

other side sometimes they are friends or

other side sometimes they are friends or people that know you please let them

people that know you please let them

people that know you please let them know that you are there for them cares

know that you are there for them cares

know that you are there for them cares about them be more empathetic try to put

about them be more empathetic try to put

about them be more empathetic try to put yourself in the issues we do the same

yourself in the issues we do the same

yourself in the issues we do the same for people we really care about people

for people we really care about people

for people we really care about people and friends you never know one day your

and friends you never know one day your

and friends you never know one day your partner might be diabetic and then you

partner might be diabetic and then you

partner might be diabetic and then you will know how to take care of him or her

will know how to take care of him or her

will know how to take care of him or her thank you thank you

”

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