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Lessons from chronic illness in success | Emily Bonia | TEDxYouth@StJohns


[Music]

[Music] I am really bad at directions so bad

I am really bad at directions so bad

I am really bad at directions so bad that even top-notch navigation apps

that even top-notch navigation apps

that even top-notch navigation apps cannot save me from complete and utter

cannot save me from complete and utter

cannot save me from complete and utter disaster

disaster

disaster I find myself continually frustrated

I find myself continually frustrated

I find myself continually frustrated because these apps are not as precise as

because these apps are not as precise as

because these apps are not as precise as I need them to be

I need them to be

I need them to be while the warning feature of 200 meters

while the warning feature of 200 meters

while the warning feature of 200 meters may be fine for everyone else unless

may be fine for everyone else unless

may be fine for everyone else unless you’d like to witness an accident I need

you’d like to witness an accident I need

you’d like to witness an accident I need at least 700 meters of warning before

at least 700 meters of warning before

at least 700 meters of warning before making a turn especially a sudden left

making a turn especially a sudden left

making a turn especially a sudden left turn like my diagnosis of Crohn’s

turn like my diagnosis of Crohn’s

turn like my diagnosis of Crohn’s disease it often feels like my gut is

disease it often feels like my gut is

disease it often feels like my gut is twisting inside out like I’m drowning

twisting inside out like I’m drowning

twisting inside out like I’m drowning and spit waiting to vomit but the

and spit waiting to vomit but the

and spit waiting to vomit but the trapdoor in my throat will never open

trapdoor in my throat will never open

trapdoor in my throat will never open like the fighter pilot in my stomach has

like the fighter pilot in my stomach has

like the fighter pilot in my stomach has decided to do an airshow and no one can

decided to do an airshow and no one can

decided to do an airshow and no one can see that I’m in pain

see that I’m in pain

see that I’m in pain except for me with 25% of the Millennial

except for me with 25% of the Millennial

except for me with 25% of the Millennial Generation suffering from two or more

Generation suffering from two or more

Generation suffering from two or more chronic illnesses my story is not unique

chronic illnesses my story is not unique

chronic illnesses my story is not unique but what is unique is what I have done

but what is unique is what I have done

but what is unique is what I have done to find success since my diagnosis

to find success since my diagnosis

to find success since my diagnosis following other people’s maps is just

following other people’s maps is just

following other people’s maps is just something I was never really meant to do

something I was never really meant to do

something I was never really meant to do when you think of the best way to get

when you think of the best way to get

when you think of the best way to get from point A to point B it’s often a

from point A to point B it’s often a

from point A to point B it’s often a straight line

straight line

straight line we’re told that success starts with

we’re told that success starts with

we’re told that success starts with graduating high school and then with a

graduating high school and then with a

graduating high school and then with a white picket fence two point four kids

white picket fence two point four kids

white picket fence two point four kids and a partner of the opposite sex but I

and a partner of the opposite sex but I

and a partner of the opposite sex but I want to tell you is that the world

want to tell you is that the world

want to tell you is that the world offers us one narrative one pathway to

offers us one narrative one pathway to

offers us one narrative one pathway to success that I would have most

success that I would have most

success that I would have most definitely failed had I have tried to

definitely failed had I have tried to

definitely failed had I have tried to follow it further even if I had followed

follow it further even if I had followed

follow it further even if I had followed the straight and narrow and became

the straight and narrow and became

the straight and narrow and became successful in the way that’s been sold

successful in the way that’s been sold

successful in the way that’s been sold to us I might not be happy and maybe

to us I might not be happy and maybe

to us I might not be happy and maybe neither would you

neither would you

neither would you do not be fooled I’m still sick and it

do not be fooled I’m still sick and it

do not be fooled I’m still sick and it is still difficult for me to say that I

is still difficult for me to say that I

is still difficult for me to say that I am sick out loud

am sick out loud

am sick out loud but now I have found ways to no longer

but now I have found ways to no longer

but now I have found ways to no longer compare myself to others instead I’ve

compare myself to others instead I’ve

compare myself to others instead I’ve decided to learn cartography and draw my

decided to learn cartography and draw my

decided to learn cartography and draw my own routes to success most of the times

own routes to success most of the times

own routes to success most of the times my professors teachers and employers

my professors teachers and employers

my professors teachers and employers have been more impressed about my

have been more impressed about my

have been more impressed about my ability to adapt then they are

ability to adapt then they are

ability to adapt then they are frustrated that I’m not following their

frustrated that I’m not following their

frustrated that I’m not following their routes to success sometimes no matter

routes to success sometimes no matter

routes to success sometimes no matter how hard we try to design our Maps

how hard we try to design our Maps

how hard we try to design our Maps perfectly there will always be potholes

perfectly there will always be potholes

perfectly there will always be potholes u-turns obstructions and even dead ends

u-turns obstructions and even dead ends

u-turns obstructions and even dead ends I know this because while I was

I know this because while I was

I know this because while I was following other people’s Maps I tried to

following other people’s Maps I tried to

following other people’s Maps I tried to drop out of high school more times than

drop out of high school more times than

drop out of high school more times than not I failed far too many university

not I failed far too many university

not I failed far too many university courses and I never really took care of

courses and I never really took care of

courses and I never really took care of myself I was nine years old when I was

myself I was nine years old when I was

myself I was nine years old when I was chosen to be a mediator on the school

chosen to be a mediator on the school

chosen to be a mediator on the school playground after a weekend of training

playground after a weekend of training

playground after a weekend of training in conflict resolution I was set out on

in conflict resolution I was set out on

in conflict resolution I was set out on the playground and ready to go the first

the playground and ready to go the first

the playground and ready to go the first time I stopped a bully from picking on

time I stopped a bully from picking on

time I stopped a bully from picking on another student I was so proud and

another student I was so proud and

another student I was so proud and excited about my new role that’s when I

excited about my new role that’s when I

excited about my new role that’s when I knew I wanted to stop the world’s

knew I wanted to stop the world’s

knew I wanted to stop the world’s biggest bullies and become a foreign

biggest bullies and become a foreign

biggest bullies and become a foreign service agent but once I was diagnosed

service agent but once I was diagnosed

service agent but once I was diagnosed with Crohn’s disease

with Crohn’s disease

with Crohn’s disease I needed to draw my map a different

I needed to draw my map a different

I needed to draw my map a different colour my treatments require me to be

colour my treatments require me to be

colour my treatments require me to be tethered to IV poles every six weeks I

tethered to IV poles every six weeks I

tethered to IV poles every six weeks I need to be near cities with hospitals

need to be near cities with hospitals

need to be near cities with hospitals and I need a few days off after to

and I need a few days off after to

and I need a few days off after to recover sadly this Justin isn’t a normal

recover sadly this Justin isn’t a normal

recover sadly this Justin isn’t a normal work scenario and the type of role I had

work scenario and the type of role I had

work scenario and the type of role I had dreamed of with the Foreign Service

dreamed of with the Foreign Service

dreamed of with the Foreign Service so my direction changed I thought long

so my direction changed I thought long

so my direction changed I thought long and hard about what I wanted and what I

and hard about what I wanted and what I

and hard about what I wanted and what I needed out of my life I want a job that

needed out of my life I want a job that

needed out of my life I want a job that challenges me and helps my country I

challenges me and helps my country I

challenges me and helps my country I still need to know where the closest

still need to know where the closest

still need to know where the closest bathrooms are because the fighter pilots

bathrooms are because the fighter pilots

bathrooms are because the fighter pilots in my stomach give air shows daily now I

in my stomach give air shows daily now I

in my stomach give air shows daily now I want to work as a strategist with the

want to work as a strategist with the

want to work as a strategist with the Department of National Defence a job

Department of National Defence a job

Department of National Defence a job that challenges me and helps my

that challenges me and helps my

that challenges me and helps my country immensely and a job in a city

country immensely and a job in a city

country immensely and a job in a city where I can get treatment and find

where I can get treatment and find

where I can get treatment and find bathrooms at every corner I’ve been able

bathrooms at every corner I’ve been able

bathrooms at every corner I’ve been able to connect what I want with what I need

while I was following other people’s

while I was following other people’s maps and even before I became good at

maps and even before I became good at

maps and even before I became good at creating my own maps I was in and out of

creating my own maps I was in and out of

creating my own maps I was in and out of hospital constantly I was on the

hospital constantly I was on the

hospital constantly I was on the heaviest of medications to be considered

heaviest of medications to be considered

heaviest of medications to be considered normal or whatever that looks like and I

normal or whatever that looks like and I

normal or whatever that looks like and I almost didn’t make it to University

almost didn’t make it to University

almost didn’t make it to University today because of my cartography skills I

today because of my cartography skills I

today because of my cartography skills I am no longer on steroids

am no longer on steroids

am no longer on steroids I went from 10 inches to six inches of

I went from 10 inches to six inches of

I went from 10 inches to six inches of diseased bowel and I am seven years 8

diseased bowel and I am seven years 8

diseased bowel and I am seven years 8 months surgery free since my diagnosis

months surgery free since my diagnosis

months surgery free since my diagnosis I’m also a published author I have won

I’m also a published author I have won

I’m also a published author I have won national awards in debate and I run a

national awards in debate and I run a

national awards in debate and I run a successful non for profit while you may

successful non for profit while you may

successful non for profit while you may be impressed by my map what I want to

be impressed by my map what I want to

be impressed by my map what I want to tell you is to create your own Maps keys

tell you is to create your own Maps keys

tell you is to create your own Maps keys and legends because I have planned my

and legends because I have planned my

and legends because I have planned my own route and I am ready for detours I

own route and I am ready for detours I

own route and I am ready for detours I am successful in the areas that I focus

am successful in the areas that I focus

am successful in the areas that I focus on so what I leave you with is a key

on so what I leave you with is a key

on so what I leave you with is a key question why is it that we enforce

question why is it that we enforce

question why is it that we enforce societal norms on everyone even when we

societal norms on everyone even when we

societal norms on everyone even when we cannot or do not follow them ourselves I

cannot or do not follow them ourselves I

cannot or do not follow them ourselves I would tell you that it is because it is

would tell you that it is because it is

would tell you that it is because it is easier to follow a predetermined route

easier to follow a predetermined route

easier to follow a predetermined route than to resist others expectations and

than to resist others expectations and

than to resist others expectations and follow your own map but there will

follow your own map but there will

follow your own map but there will always be potholes obstructions u-turns

always be potholes obstructions u-turns

always be potholes obstructions u-turns and even dead ends so learn cartography

and even dead ends so learn cartography

and even dead ends so learn cartography make your own map thank you

make your own map thank you

make your own map thank you [Applause]

[Applause]

[Applause] [Music]

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