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From patient to entrepreneur | René van Alphen | TEDxSittardGeleen


I am an era less surfer for almost 20

I am an era less surfer for almost 20 years

years

years some people say RLS is a horrendously

some people say RLS is a horrendously

some people say RLS is a horrendously underestimated neurological problem

underestimated neurological problem

underestimated neurological problem between 2 and 10 percent of the world

between 2 and 10 percent of the world

between 2 and 10 percent of the world population suffers from RLS so that are

population suffers from RLS so that are

population suffers from RLS so that are about 700 million people so that’s a lot

about 700 million people so that’s a lot

about 700 million people so that’s a lot RLS means that when you are in a resting

RLS means that when you are in a resting

RLS means that when you are in a resting position your legs are going to live

position your legs are going to live

position your legs are going to live their own life they move around but you

their own life they move around but you

their own life they move around but you don’t want them to move around for

don’t want them to move around for

don’t want them to move around for instance where you are in a plane or a

instance where you are in a plane or a

instance where you are in a plane or a car or when you are sitting in a cinema

car or when you are sitting in a cinema

car or when you are sitting in a cinema or a theater your legs start moving and

or a theater your legs start moving and

or a theater your legs start moving and you cannot control them another example

you cannot control them another example

you cannot control them another example when we are sitting here in this theater

when we are sitting here in this theater

when we are sitting here in this theater and you have got a lot of RLS you need

and you have got a lot of RLS you need

and you have got a lot of RLS you need to sit at the end of the row then you

to sit at the end of the row then you

to sit at the end of the row then you can get your leg your legs can move

can get your leg your legs can move

can get your leg your legs can move around when you go on a holiday you need

around when you go on a holiday you need

around when you go on a holiday you need to sit in a plane or a car mostly after

to sit in a plane or a car mostly after

to sit in a plane or a car mostly after 10 minutes your legs start to move

10 minutes your legs start to move

10 minutes your legs start to move around and instead of settling into your

around and instead of settling into your

around and instead of settling into your journey it’s like hell to sit in that

journey it’s like hell to sit in that

journey it’s like hell to sit in that car so long when you are when you are a

car so long when you are when you are a

car so long when you are when you are a lying in bed and your legs start moving

lying in bed and your legs start moving

lying in bed and your legs start moving around you don’t have sleep enough so

around you don’t have sleep enough so

around you don’t have sleep enough so when you need to go to your work it’s

when you need to go to your work it’s

when you need to go to your work it’s not a nice thing to work when you are

not a nice thing to work when you are

not a nice thing to work when you are sleeping also your partner has suffers

sleeping also your partner has suffers

sleeping also your partner has suffers from that because when you are in bed

from that because when you are in bed

from that because when you are in bed and your legs start to move around it’s

and your legs start to move around it’s

and your legs start to move around it’s not nice for your partner to live there

not nice for your partner to live there

not nice for your partner to live there so tool idea so you need to go to

so tool idea so you need to go to

so tool idea so you need to go to another room and that’s not obviously

another room and that’s not obviously

another room and that’s not obviously not a nice situation some years ago

not a nice situation some years ago

not a nice situation some years ago three years ago I was

three years ago I was

three years ago I was suffering with or less very bad I wasn’t

suffering with or less very bad I wasn’t

suffering with or less very bad I wasn’t bad and then I thought I need to do I

bad and then I thought I need to do I

bad and then I thought I need to do I lost my text totally wait in 2017 there

lost my text totally wait in 2017 there

lost my text totally wait in 2017 there are a lot of doctors who don’t know what

are a lot of doctors who don’t know what

are a lot of doctors who don’t know what are Alice’s they think it’s part of

are Alice’s they think it’s part of

are Alice’s they think it’s part of Parkinson disease but it’s not Parkinson

Parkinson disease but it’s not Parkinson

Parkinson disease but it’s not Parkinson disease it’s something different people

disease it’s something different people

disease it’s something different people get medication for Parkinson disease but

get medication for Parkinson disease but

get medication for Parkinson disease but it don’t works the medication sometimes

it don’t works the medication sometimes

it don’t works the medication sometimes you need to take more medication and

you need to take more medication and

you need to take more medication and then you get withdrawal symptoms and

then you get withdrawal symptoms and

then you get withdrawal symptoms and with Joe Simpsons mean that you take

with Joe Simpsons mean that you take

with Joe Simpsons mean that you take more medications habituation so that’s

more medications habituation so that’s

more medications habituation so that’s not a good quality of life then three

not a good quality of life then three

not a good quality of life then three years ago I was in my bed and my legs

years ago I was in my bed and my legs

years ago I was in my bed and my legs were moving very badly there was

were moving very badly there was

were moving very badly there was something beside my bed I took it off my

something beside my bed I took it off my

something beside my bed I took it off my it was a mattress cover

it was a mattress cover

it was a mattress cover I bought it some days before and I cut

I bought it some days before and I cut

I bought it some days before and I cut it off because I didn’t use that and it

it off because I didn’t use that and it

it off because I didn’t use that and it took that thing what was lying beside me

took that thing what was lying beside me

took that thing what was lying beside me I stuck it around my leg and something

I stuck it around my leg and something

I stuck it around my leg and something terribly happened my legs stop moving I

terribly happened my legs stop moving I

terribly happened my legs stop moving I thought oh my god what’s happening and

thought oh my god what’s happening and

thought oh my god what’s happening and then I took that thing off because I was

then I took that thing off because I was

then I took that thing off because I was afraid that something happened to my leg

afraid that something happened to my leg

afraid that something happened to my leg and I didn’t want to lose my leg after

and I didn’t want to lose my leg after

and I didn’t want to lose my leg after all then I took that thing again and I

all then I took that thing again and I

all then I took that thing again and I tighten it around my leg and immediately

tighten it around my leg and immediately

tighten it around my leg and immediately my legs stop moving and that was very

my legs stop moving and that was very

my legs stop moving and that was very strange when I took it off after 15

strange when I took it off after 15

strange when I took it off after 15 minutes I fell asleep and there was no

minutes I fell asleep and there was no

minutes I fell asleep and there was no problem anymore the day after when I

problem anymore the day after when I

problem anymore the day after when I woke up I thought this is something

woke up I thought this is something

woke up I thought this is something different than medication I don’t need

different than medication I don’t need

different than medication I don’t need medication anymore

medication anymore

medication anymore no no habitation no side effects so I

no no habitation no side effects so I

no no habitation no side effects so I try to keep this bring this to the next

try to keep this bring this to the next

try to keep this bring this to the next level

level

level but there was a problem was I the only

but there was a problem was I the only

but there was a problem was I the only one were helped that that tightened my

one were helped that that tightened my

one were helped that that tightened my leg off

leg off

leg off and how could I prove that now

and how could I prove that now

and how could I prove that now coincidentally after several days I need

coincidentally after several days I need

coincidentally after several days I need to go to sleep study because of my are a

to go to sleep study because of my are a

to go to sleep study because of my are a lesson of my bed sleeping and went there

lesson of my bed sleeping and went there

lesson of my bed sleeping and went there and they stuck all kind of electrodes on

and they stuck all kind of electrodes on

and they stuck all kind of electrodes on my on my hair to anonymize on my life or

my on my hair to anonymize on my life or

my on my hair to anonymize on my life or my body and they asked them to stuck

my body and they asked them to stuck

my body and they asked them to stuck electrodes on my legs as well because

electrodes on my legs as well because

electrodes on my legs as well because maybe I could test them if the when I

maybe I could test them if the when I

maybe I could test them if the when I tie the band around my leg maybe it was

tie the band around my leg maybe it was

tie the band around my leg maybe it was a scientific evidence I asked the nurse

a scientific evidence I asked the nurse

a scientific evidence I asked the nurse and she did it she stuck also electrodes

and she did it she stuck also electrodes

and she did it she stuck also electrodes on my on my leg I went home and I hope

on my on my leg I went home and I hope

on my on my leg I went home and I hope that night that I could have the

that night that I could have the

that night that I could have the symptoms of RLS normally I didn’t want

symptoms of RLS normally I didn’t want

symptoms of RLS normally I didn’t want it but that night I want to have the

it but that night I want to have the

it but that night I want to have the symptoms and then at 4 o’clock the

symptoms and then at 4 o’clock the

symptoms and then at 4 o’clock the symptoms start my legs start to move and

symptoms start my legs start to move and

symptoms start my legs start to move and then at 4:17 I took the band tied my leg

then at 4:17 I took the band tied my leg

then at 4:17 I took the band tied my leg and it stopped and I was so happy

and it stopped and I was so happy

and it stopped and I was so happy because on the EEG it should be visible

because on the EEG it should be visible

because on the EEG it should be visible then the day after I went to the

then the day after I went to the

then the day after I went to the hospital they took all of the electrodes

hospital they took all of the electrodes

hospital they took all of the electrodes of my of my body and of my leg and they

of my of my body and of my leg and they

of my of my body and of my leg and they asked asked the nurse if it was allowed

asked asked the nurse if it was allowed

asked asked the nurse if it was allowed to see the EEG and when I saw it

to see the EEG and when I saw it

to see the EEG and when I saw it there was the peel and this the

there was the peel and this the

there was the peel and this the periodically black movement it became a

periodically black movement it became a

periodically black movement it became a flatline so there was my evidence that

flatline so there was my evidence that

flatline so there was my evidence that when I stuck there I tied the band on my

when I stuck there I tied the band on my

when I stuck there I tied the band on my leg the leg movement stopped and I was

leg the leg movement stopped and I was

leg the leg movement stopped and I was glad about that after that I became an

glad about that after that I became an

glad about that after that I became an entrepreneur I want to bring this

entrepreneur I want to bring this

entrepreneur I want to bring this product to the next to the next level

product to the next to the next level

product to the next to the next level and now I have a beautiful product with

and now I have a beautiful product with

and now I have a beautiful product with the help of a lot of people and after

the help of a lot of people and after

the help of a lot of people and after being a driving instructor for almost 40

being a driving instructor for almost 40

being a driving instructor for almost 40 years and at the age of 62 I’m gonna

years and at the age of 62 I’m gonna

years and at the age of 62 I’m gonna start a new business I can start a new

start a new business I can start a new

start a new business I can start a new business and that’s that’s what I want I

business and that’s that’s what I want I

business and that’s that’s what I want I want to help a lot of people it’s this

want to help a lot of people it’s this

want to help a lot of people it’s this very simple solution no medication no

very simple solution no medication no

very simple solution no medication no side effects no nothing just

side effects no nothing just

side effects no nothing just just this thing that’s all that’s all

just this thing that’s all that’s all

just this thing that’s all that’s all you need that’s what that’s what I want

you need that’s what that’s what I want

you need that’s what that’s what I want to help a lot a lot of people and at

to help a lot a lot of people and at

to help a lot a lot of people and at last I want to regain this talk to my

last I want to regain this talk to my

last I want to regain this talk to my mother she passed away last week and she

mother she passed away last week and she

mother she passed away last week and she was very proud that I was here on this

was very proud that I was here on this

was very proud that I was here on this stage thank you very much

”

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