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Creating New Narratives for those Affected By Mental Illness | Alyssa Cypher | TEDxPittsburghWomen


wow this is scary I know what it’s like

wow this is scary I know what it’s like to perform on a daily basis and to not

to perform on a daily basis and to not

to perform on a daily basis and to not really be given a choice about whether I

really be given a choice about whether I

really be given a choice about whether I even want to perform for many of us

even want to perform for many of us

even want to perform for many of us living with mental illness daily life

living with mental illness daily life

living with mental illness daily life can be a rehearsed performance skillful

can be a rehearsed performance skillful

can be a rehearsed performance skillful and rehearsed you have to wake up and

and rehearsed you have to wake up and

and rehearsed you have to wake up and put on a face every day for a society

put on a face every day for a society

put on a face every day for a society that still doesn’t truly accept you see

that still doesn’t truly accept you see

that still doesn’t truly accept you see with a mental illness you get really

with a mental illness you get really

with a mental illness you get really good at performing because you have to

good at performing because you have to

good at performing because you have to you have to put on a face and be

you have to put on a face and be

you have to put on a face and be acceptable hide your symptoms and make

acceptable hide your symptoms and make

acceptable hide your symptoms and make conversation and that takes energy so

conversation and that takes energy so

conversation and that takes energy so much energy and you’re spending all this

much energy and you’re spending all this

much energy and you’re spending all this energy just so the people around you

energy just so the people around you

energy just so the people around you don’t have to feel uncomfortable so that

don’t have to feel uncomfortable so that

don’t have to feel uncomfortable so that you don’t have to worry about not being

you don’t have to worry about not being

you don’t have to worry about not being accepted it feels hollow and isolating

accepted it feels hollow and isolating

accepted it feels hollow and isolating and burdensome you feel cut off from the

and burdensome you feel cut off from the

and burdensome you feel cut off from the world while simultaneously being a part

world while simultaneously being a part

world while simultaneously being a part of it and I mean sure no one’s forcing

of it and I mean sure no one’s forcing

of it and I mean sure no one’s forcing you to perform but not doing so can be

you to perform but not doing so can be

you to perform but not doing so can be risky you could lose your job be

risky you could lose your job be

risky you could lose your job be alienated from your friends and loved

alienated from your friends and loved

alienated from your friends and loved ones face violence or discrimination and

ones face violence or discrimination and

ones face violence or discrimination and frankly that’s not a risk many people

frankly that’s not a risk many people

frankly that’s not a risk many people are willing to take in fact many people

are willing to take in fact many people

are willing to take in fact many people hide all the way up until they can’t

hide all the way up until they can’t

hide all the way up until they can’t anymore

anymore

anymore once they’ve had a breakdown been

once they’ve had a breakdown been

once they’ve had a breakdown been hospitalized

hospitalized

hospitalized or even completed suicide for me this is

or even completed suicide for me this is

or even completed suicide for me this is a deeply personal struggle because I

a deeply personal struggle because I

a deeply personal struggle because I spent the majority of my life trying to

spent the majority of my life trying to

spent the majority of my life trying to hide the fact that I have a mental

hide the fact that I have a mental

hide the fact that I have a mental illness from an early age I learned the

illness from an early age I learned the

illness from an early age I learned the benefits of performing in order to

benefits of performing in order to

benefits of performing in order to appear in

appear in

appear in I had more educational opportunities I

I had more educational opportunities I

I had more educational opportunities I made more friends I didn’t have to worry

made more friends I didn’t have to worry

made more friends I didn’t have to worry about being discriminated against

about being discriminated against

about being discriminated against I thought the benefits outweighed the

I thought the benefits outweighed the

I thought the benefits outweighed the cons and that cons what those cons were

cons and that cons what those cons were

cons and that cons what those cons were that terrible feeling in my stomach when

that terrible feeling in my stomach when

that terrible feeling in my stomach when I knew that I was only being accepted

I knew that I was only being accepted

I knew that I was only being accepted because I was being someone I wasn’t

because I was being someone I wasn’t

because I was being someone I wasn’t that heavy burden knowing that I

that heavy burden knowing that I

that heavy burden knowing that I couldn’t be honest with my loved ones

couldn’t be honest with my loved ones

couldn’t be honest with my loved ones eventually

eventually

eventually the pressure got so intense that it

the pressure got so intense that it

the pressure got so intense that it started to seep into my life making me

started to seep into my life making me

started to seep into my life making me feel isolated depressed anxious I didn’t

feel isolated depressed anxious I didn’t

feel isolated depressed anxious I didn’t know what to do next but I wanted to try

know what to do next but I wanted to try

know what to do next but I wanted to try something different so I went on my

something different so I went on my

something different so I went on my Facebook and made a public post I live

Facebook and made a public post I live

Facebook and made a public post I live with a mental illness I lit it all out

with a mental illness I lit it all out

with a mental illness I lit it all out on the post and just posted it and ran

on the post and just posted it and ran

on the post and just posted it and ran away from the computer because I was

away from the computer because I was

away from the computer because I was afraid of what people would say but the

afraid of what people would say but the

afraid of what people would say but the response was overwhelmingly positive the

response was overwhelmingly positive the

response was overwhelmingly positive the thing that impacted me the most though

thing that impacted me the most though

thing that impacted me the most though were the private messages people

were the private messages people

were the private messages people reaching out to me and telling me that

reaching out to me and telling me that

reaching out to me and telling me that they felt similarly but for a number of

they felt similarly but for a number of

they felt similarly but for a number of reasons

reasons

reasons they couldn’t be open about it so I

they couldn’t be open about it so I

they couldn’t be open about it so I started thinking how can I take this

started thinking how can I take this

started thinking how can I take this amazing positive experience that I just

amazing positive experience that I just

amazing positive experience that I just had and bring it to those people who

had and bring it to those people who

had and bring it to those people who still have to perform I started thinking

still have to perform I started thinking

still have to perform I started thinking about the good and bad aspects of

about the good and bad aspects of

about the good and bad aspects of performance and it got me thinking about

performance and it got me thinking about

performance and it got me thinking about a couple questions instead of performing

a couple questions instead of performing

a couple questions instead of performing to appear normal

to appear normal

to appear normal can we ask others to perform to appear

can we ask others to perform to appear

can we ask others to perform to appear crazy

to understand the thoughts and

to understand the thoughts and experiences that we learn not to talk

experiences that we learn not to talk

experiences that we learn not to talk about to use performance to tell a story

about to use performance to tell a story

about to use performance to tell a story about mental illness rather than to hide

about mental illness rather than to hide

about mental illness rather than to hide from it I’m tired of sympathy I’m tired

from it I’m tired of sympathy I’m tired

from it I’m tired of sympathy I’m tired I’m tired of talking about the worst

I’m tired of talking about the worst

I’m tired of talking about the worst parts of me just to feel like people

parts of me just to feel like people

parts of me just to feel like people care I’m tired of being an inspiration

care I’m tired of being an inspiration

care I’m tired of being an inspiration I’m tired of being brave I want to be

I’m tired of being brave I want to be

I’m tired of being brave I want to be ordinary and small and still see you

ordinary and small and still see you

ordinary and small and still see you there next to me cheers because I will

there next to me cheers because I will

there next to me cheers because I will be a worthless parent can I do this

be a worthless parent can I do this

be a worthless parent can I do this cheers for micro and body and for my

cheers for micro and body and for my

cheers for micro and body and for my selfishness for crying about

selfishness for crying about

selfishness for crying about tears because this is hard and constant

tears because this is hard and constant

tears because this is hard and constant and lonely I don’t want this how much me

and lonely I don’t want this how much me

and lonely I don’t want this how much me is living right now and how much am i

is living right now and how much am i

is living right now and how much am i spending each and every day on cognitive

spending each and every day on cognitive

spending each and every day on cognitive maintenance I feel like an old beat-up

maintenance I feel like an old beat-up

maintenance I feel like an old beat-up car

car

car sledge hammer carnival so the

sledge hammer carnival so the

sledge hammer carnival so the performances you just heard are part of

performances you just heard are part of

performances you just heard are part of a series called anonymous open mic a

a series called anonymous open mic a

a series called anonymous open mic a project by my organization inside our

project by my organization inside our

project by my organization inside our minds so here’s how it works

minds so here’s how it works

minds so here’s how it works anonymous storytellers can submit a poem

anonymous storytellers can submit a poem

anonymous storytellers can submit a poem spoken word piece or short story about

spoken word piece or short story about

spoken word piece or short story about their experience with mental illness

their experience with mental illness

their experience with mental illness then community volunteers can sign up to

then community volunteers can sign up to

then community volunteers can sign up to perform the pieces live on behalf of the

perform the pieces live on behalf of the

perform the pieces live on behalf of the anonymous storytellers without knowing

anonymous storytellers without knowing

anonymous storytellers without knowing their identity the anonymous

their identity the anonymous

their identity the anonymous storytellers can impact the performance

storytellers can impact the performance

storytellers can impact the performance by providing context performance

by providing context performance

by providing context performance guidelines and trigger warnings while

guidelines and trigger warnings while

guidelines and trigger warnings while the performers interpret the piece and

the performers interpret the piece and

the performers interpret the piece and give it the respect it deserves every

give it the respect it deserves every

give it the respect it deserves every anonymous open-mike is free and open to

anonymous open-mike is free and open to

anonymous open-mike is free and open to the public including the anonymous

the public including the anonymous

the public including the anonymous storytellers who are invited to sit in

storytellers who are invited to sit in

storytellers who are invited to sit in the audience and watch their story come

the audience and watch their story come

the audience and watch their story come to life the aim of anonymous open mic is

to life the aim of anonymous open mic is

to life the aim of anonymous open mic is twofold

twofold

twofold one provide a platform for people to

one provide a platform for people to

one provide a platform for people to share their story about mental illness

share their story about mental illness

share their story about mental illness and to educate our community about

and to educate our community about

and to educate our community about mental illness through storytelling

mental illness through storytelling

mental illness through storytelling while we often focus the educational

while we often focus the educational

while we often focus the educational aspects on people without lived

aspects on people without lived

aspects on people without lived experience it’s important to build

experience it’s important to build

experience it’s important to build bridges among people with mental illness

bridges among people with mental illness

bridges among people with mental illness as well because of the huge diversity

as well because of the huge diversity

as well because of the huge diversity and diagnosis and lived experience there

and diagnosis and lived experience there

and diagnosis and lived experience there can be a lot of infighting polarization

can be a lot of infighting polarization

can be a lot of infighting polarization and even stigma within the mental

and even stigma within the mental

and even stigma within the mental illness community we can all benefit

illness community we can all benefit

illness community we can all benefit from learning about the experiences of

from learning about the experiences of

from learning about the experiences of others even those of us who think we

others even those of us who think we

others even those of us who think we already know it all as far as life with

already know it all as far as life with

already know it all as far as life with illness and when you’re performing these

illness and when you’re performing these

illness and when you’re performing these pieces you can help build a bridge over

pieces you can help build a bridge over

pieces you can help build a bridge over that sense of isolation that comes with

that sense of isolation that comes with

that sense of isolation that comes with hiding so for an example at our first

hiding so for an example at our first

hiding so for an example at our first Anonymous open mic a performer gave a

Anonymous open mic a performer gave a

Anonymous open mic a performer gave a thought provoking an emotional

thought provoking an emotional

thought provoking an emotional performance of a poem about bipolar

performance of a poem about bipolar

performance of a poem about bipolar disorder on the stage the anonymous

disorder on the stage the anonymous

disorder on the stage the anonymous storyteller who was in the audience felt

storyteller who was in the audience felt

storyteller who was in the audience felt compelled to approach him afterwards and

compelled to approach him afterwards and

compelled to approach him afterwards and tell him how beautifully he performed

tell him how beautifully he performed

tell him how beautifully he performed that person’s story they had this

that person’s story they had this

that person’s story they had this natural connection almost like a shared

natural connection almost like a shared

natural connection almost like a shared experience except instead of a shared

experience except instead of a shared

experience except instead of a shared experience it was a blending of lived

experience it was a blending of lived

experience it was a blending of lived experience and empathic performance lost

experience and empathic performance lost

experience and empathic performance lost my place I got my notes secretly in here

[Music]

[Music] yeah this is an emotional topic for me

yeah this is an emotional topic for me

yeah this is an emotional topic for me but yeah I got it back now so by

but yeah I got it back now so by

but yeah I got it back now so by witnessing connections like these I’ve

witnessing connections like these I’ve

witnessing connections like these I’ve learned that while you can’t fully

learned that while you can’t fully

learned that while you can’t fully replicate someone’s life through such a

replicate someone’s life through such a

replicate someone’s life through such a small snapshot you can increase your

small snapshot you can increase your

small snapshot you can increase your empathy for that person as researcher

empathy for that person as researcher

empathy for that person as researcher storyteller and famous TEDx or brené

storyteller and famous TEDx or brené

storyteller and famous TEDx or brené Brown said empathy is feeling with

Brown said empathy is feeling with

Brown said empathy is feeling with people in what better way to feel with

people in what better way to feel with

people in what better way to feel with people than to bring their story to life

people than to bring their story to life

people than to bring their story to life I honestly can’t think of a better one

I honestly can’t think of a better one

I honestly can’t think of a better one and that’s why I started Anonymous open

and that’s why I started Anonymous open

and that’s why I started Anonymous open mic you can perform someone’s story and

mic you can perform someone’s story and

mic you can perform someone’s story and give it life and maybe even learn

give it life and maybe even learn

give it life and maybe even learn something in the process so why are

something in the process so why are

something in the process so why are events like anonymous open mic so

events like anonymous open mic so

events like anonymous open mic so important because speaking publicly like

important because speaking publicly like

important because speaking publicly like I’m doing now is a privilege that many

I’m doing now is a privilege that many

I’m doing now is a privilege that many people still do not have there’s no

people still do not have there’s no

people still do not have there’s no shame in not being able to share your

shame in not being able to share your

shame in not being able to share your story for any number of reasons whether

story for any number of reasons whether

story for any number of reasons whether it be stigma discrimination and we want

it be stigma discrimination and we want

it be stigma discrimination and we want to have a platform for these people that

to have a platform for these people that

to have a platform for these people that really want to share this story and have

really want to share this story and have

really want to share this story and have that connection but maybe for a number

that connection but maybe for a number

that connection but maybe for a number of reasons can’t do so anonymous sharing

of reasons can’t do so anonymous sharing

of reasons can’t do so anonymous sharing can be the first step in the process or

can be the first step in the process or

can be the first step in the process or the ultimate goal for some and Wow a

the ultimate goal for some and Wow a

the ultimate goal for some and Wow a world without performance is our

world without performance is our

world without performance is our ultimate goal a future without stigma

ultimate goal a future without stigma

ultimate goal a future without stigma discrimination and ableism is still a

discrimination and ableism is still a

discrimination and ableism is still a long way off but in the meantime

long way off but in the meantime

long way off but in the meantime anonymous open mic and other events like

anonymous open mic and other events like

anonymous open mic and other events like it can provide a space for people to

it can provide a space for people to

it can provide a space for people to share their story however they’re

share their story however they’re

share their story however they’re comfortable and able whether anonymously

comfortable and able whether anonymously

comfortable and able whether anonymously or not so final takeaways question

or not so final takeaways question

or not so final takeaways question constantly what you know and understand

constantly what you know and understand

constantly what you know and understand about mental illness instead of passing

about mental illness instead of passing

about mental illness instead of passing judgment try and feel with people try

judgment try and feel with people try

judgment try and feel with people try and experience what they’re going

and experience what they’re going

and experience what they’re going through we’re not crazy for having

through we’re not crazy for having

through we’re not crazy for having mental illness the only thing that’s

mental illness the only thing that’s

mental illness the only thing that’s crazy is having to hide it thank you

crazy is having to hide it thank you

crazy is having to hide it thank you [Applause]

”

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