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Sick While Single? Don’t Die of Discrimination | Dr. Joan DelFattore | TEDxWilmingtonWomen


six years ago I was diagnosed with a

six years ago I was diagnosed with a kind of cancer that usually kills people

kind of cancer that usually kills people

kind of cancer that usually kills people within a few months I was incredibly

within a few months I was incredibly

within a few months I was incredibly lucky I found a brilliant and

lucky I found a brilliant and

lucky I found a brilliant and compassionate surgeon who gave me a

compassionate surgeon who gave me a

compassionate surgeon who gave me a chance but I still needed chemotherapy

chance but I still needed chemotherapy

chance but I still needed chemotherapy so there was in the oncologists office

so there was in the oncologists office

so there was in the oncologists office and we very quickly established that I

and we very quickly established that I

and we very quickly established that I had no health conditions that would

had no health conditions that would

had no health conditions that would interfere but then he got really hung up

interfere but then he got really hung up

interfere but then he got really hung up on the fact that I did not have a

on the fact that I did not have a

on the fact that I did not have a husband he kept coming back to it he

husband he kept coming back to it he

husband he kept coming back to it he kept saying how are you going to manage

kept saying how are you going to manage

kept saying how are you going to manage I kept trying to tell him about friends

I kept trying to tell him about friends

I kept trying to tell him about friends about extended family who would be there

about extended family who would be there

about extended family who would be there for me

for me

for me he talked right over me then he said he

he talked right over me then he said he

he talked right over me then he said he was going to give me just this one mild

was going to give me just this one mild

was going to give me just this one mild drug but the only thing that had any

drug but the only thing that had any

drug but the only thing that had any chance of killing off that kind of

chance of killing off that kind of

chance of killing off that kind of cancer was a combination of that drug

cancer was a combination of that drug

cancer was a combination of that drug and a much stronger one so I said why

and a much stronger one so I said why

and a much stronger one so I said why always said I wouldn’t risk the

always said I wouldn’t risk the

always said I wouldn’t risk the side-effects of anything stronger with

side-effects of anything stronger with

side-effects of anything stronger with somebody in your situation so I went

somebody in your situation so I went

somebody in your situation so I went elsewhere I went to an oncologist who

elsewhere I went to an oncologist who

elsewhere I went to an oncologist who has it turned out had lived on her own

has it turned out had lived on her own

has it turned out had lived on her own for a number of years before she married

for a number of years before she married

for a number of years before she married she had the perspective to ask broader

she had the perspective to ask broader

she had the perspective to ask broader questions is there someone who will come

questions is there someone who will come

questions is there someone who will come and stay overnight with you is there

and stay overnight with you is there

and stay overnight with you is there someone who you could say with would

someone who you could say with would

someone who you could say with would someone give you rides with someone

someone give you rides with someone

someone give you rides with someone bring you meals that’s what a doctor

bring you meals that’s what a doctor

bring you meals that’s what a doctor needs to know as long as it’s a

needs to know as long as it’s a

needs to know as long as it’s a competent adult there’s no medical

competent adult there’s no medical

competent adult there’s no medical reason why it has to be one particular

reason why it has to be one particular

reason why it has to be one particular person she gave me the good chemotherapy

person she gave me the good chemotherapy

person she gave me the good chemotherapy and as you see I survived but even so I

and as you see I survived but even so I

and as you see I survived but even so I was really bothered by the fact that

was really bothered by the fact that

was really bothered by the fact that even one oncologist would have done what

even one oncologist would have done what

even one oncologist would have done what that first one did so being a researcher

that first one did so being a researcher

that first one did so being a researcher by profession I did some fact-checking I

by profession I did some fact-checking I

by profession I did some fact-checking I was astonished I had no idea how often

was astonished I had no idea how often

was astonished I had no idea how often that happens of all the evidence that I

that happens of all the evidence that I

that happens of all the evidence that I found the best was a massive database

found the best was a massive database

found the best was a massive database that’s maintained by the National Cancer

that’s maintained by the National Cancer

that’s maintained by the National Cancer Institute

Institute

Institute it’s a government agency the database is

it’s a government agency the database is

it’s a government agency the database is called seer se er it tracks the records

called seer se er it tracks the records

called seer se er it tracks the records of millions of cancer patients in all

of millions of cancer patients in all

of millions of cancer patients in all different parts of the country among

different parts of the country among

different parts of the country among other things attracts them by marital

other things attracts them by marital

other things attracts them by marital status you probably have seen headlines

status you probably have seen headlines

status you probably have seen headlines that were based on seer studies every

that were based on seer studies every

that were based on seer studies every now and then a major Medical Journal

now and then a major Medical Journal

now and then a major Medical Journal puts out a big study gets on the

puts out a big study gets on the

puts out a big study gets on the headlines gets on the evening news and

headlines gets on the evening news and

headlines gets on the evening news and the big news is people who are currently

the big news is people who are currently

the big news is people who are currently married are more likely to survive all

married are more likely to survive all

married are more likely to survive all different kinds of cancer than those who

different kinds of cancer than those who

different kinds of cancer than those who are divorced widowed or never married

are divorced widowed or never married

are divorced widowed or never married but there’s another statistic that

but there’s another statistic that

but there’s another statistic that doesn’t make the headlines if you show

doesn’t make the headlines if you show

doesn’t make the headlines if you show up without a current partner based on

up without a current partner based on

up without a current partner based on the millions of cases in the seer

the millions of cases in the seer

the millions of cases in the seer database you are significantly less

database you are significantly less

database you are significantly less likely to be offered the most aggressive

likely to be offered the most aggressive

likely to be offered the most aggressive cancer treatment just like what almost

cancer treatment just like what almost

cancer treatment just like what almost happened to me and that is true even

happened to me and that is true even

happened to me and that is true even when the researchers take into account

when the researchers take into account

when the researchers take into account other factors like age economic level

other factors like age economic level

other factors like age economic level and of the stage of the cancer seer does

and of the stage of the cancer seer does

and of the stage of the cancer seer does not say why that happens

not say why that happens

not say why that happens but the medical researchers who write

but the medical researchers who write

but the medical researchers who write these articles suggest that it’s

these articles suggest that it’s

these articles suggest that it’s entirely on the patient if you don’t

entirely on the patient if you don’t

entirely on the patient if you don’t have a partner they suggest you don’t

have a partner they suggest you don’t

have a partner they suggest you don’t have the motivation to seek aggressive

have the motivation to seek aggressive

have the motivation to seek aggressive cancer treatment you might not even have

cancer treatment you might not even have

cancer treatment you might not even have the motivation to live you might be

the motivation to live you might be

the motivation to live you might be depressed you might be on drugs you

depressed you might be on drugs you

depressed you might be on drugs you might be alcoholic you might not be able

might be alcoholic you might not be able

might be alcoholic you might not be able to follow medical instructions now we

to follow medical instructions now we

to follow medical instructions now we all know there are some single people

all know there are some single people

all know there are some single people there are some people who live alone who

there are some people who live alone who

there are some people who live alone who do fit that model they are socially

do fit that model they are socially

do fit that model they are socially isolated by any definition of that term

isolated by any definition of that term

isolated by any definition of that term there’s a sociologist named Eric

there’s a sociologist named Eric

there’s a sociologist named Eric Klinenberg who wrote a best-seller going

Klinenberg who wrote a best-seller going

Klinenberg who wrote a best-seller going solo in which he told the detailed

solo in which he told the detailed

solo in which he told the detailed stories of several of those isolated

stories of several of those isolated

stories of several of those isolated people but Klein and Berg also pointed

people but Klein and Berg also pointed

people but Klein and Berg also pointed out as a mirror

out as a mirror

out as a mirror seconds wait longer before marrying the

seconds wait longer before marrying the

seconds wait longer before marrying the first time as some never marry at all as

first time as some never marry at all as

first time as some never marry at all as divorce becomes more common as people

divorce becomes more common as people

divorce becomes more common as people remain single longer between

remain single longer between

remain single longer between relationships as people are less likely

relationships as people are less likely

relationships as people are less likely to remarry after widowhood or divorce

to remarry after widowhood or divorce

to remarry after widowhood or divorce the typical American typical American

the typical American typical American

the typical American typical American between age 18 and death will spend more

between age 18 and death will spend more

between age 18 and death will spend more time single than married and for much of

time single than married and for much of

time single than married and for much of that time they will live alone according

that time they will live alone according

that time they will live alone according to the United States Census Bureau 28%

to the United States Census Bureau 28%

to the United States Census Bureau 28% of American households are occupied by

of American households are occupied by

of American households are occupied by an adult living alone that’s more than

an adult living alone that’s more than

an adult living alone that’s more than one in four with numbers like that there

one in four with numbers like that there

one in four with numbers like that there is no medical justification for assuming

is no medical justification for assuming

is no medical justification for assuming that everyone in that category has the

that everyone in that category has the

that everyone in that category has the same needs that is a personal belief

psychologists have done a good deal of

psychologists have done a good deal of study of the personal beliefs of

study of the personal beliefs of

study of the personal beliefs of physicians and how those affect the

physicians and how those affect the

physicians and how those affect the medical treatment that’s offered to

medical treatment that’s offered to

medical treatment that’s offered to patients sometimes it’s on lifestyle it

patients sometimes it’s on lifestyle it

patients sometimes it’s on lifestyle it may be on race it may be weight it may

may be on race it may be weight it may

may be on race it may be weight it may be whether a patient smokes educational

be whether a patient smokes educational

be whether a patient smokes educational level but so far I found only one

level but so far I found only one

level but so far I found only one medical researcher who dared to ask the

medical researcher who dared to ask the

medical researcher who dared to ask the question or physicians personal beliefs

question or physicians personal beliefs

question or physicians personal beliefs affecting the treatment of cancer

affecting the treatment of cancer

affecting the treatment of cancer patients her research showed that

patients her research showed that

patients her research showed that oncologists do sometimes have a

oncologists do sometimes have a

oncologists do sometimes have a stereotype of single people that leads

stereotype of single people that leads

stereotype of single people that leads to withholding the most effective cancer

to withholding the most effective cancer

to withholding the most effective cancer treatments from patients who could have

treatments from patients who could have

treatments from patients who could have handled it that researchers name is Nina

handled it that researchers name is Nina

handled it that researchers name is Nina Cavalli björkman she is a Swedish

Cavalli björkman she is a Swedish

Cavalli björkman she is a Swedish oncologist

oncologist

oncologist she gave a TEDx talk in Sweden about how

she gave a TEDx talk in Sweden about how

she gave a TEDx talk in Sweden about how people turn their lives around it’s

people turn their lives around it’s

people turn their lives around it’s worth watching I’d also recommend a TEDx

worth watching I’d also recommend a TEDx

worth watching I’d also recommend a TEDx talk that was done in Belgium by an

talk that was done in Belgium by an

talk that was done in Belgium by an America psychologist named Bella DiPaolo

America psychologist named Bella DiPaolo

America psychologist named Bella DiPaolo she’s talking about myths that people

she’s talking about myths that people

she’s talking about myths that people believe about what it means to live

believe about what it means to live

believe about what it means to live single to give one example

single to give one example

single to give one example the myth that everybody who is single

the myth that everybody who is single

the myth that everybody who is single necessarily is looking for a partner now

necessarily is looking for a partner now

necessarily is looking for a partner now of course having a loving partner can be

of course having a loving partner can be

of course having a loving partner can be a wonderful way to find comfort and

a wonderful way to find comfort and

a wonderful way to find comfort and support in a serious illness and

support in a serious illness and

support in a serious illness and certainly it is the way most people

certainly it is the way most people

certainly it is the way most people would prefer to do it but on any given

would prefer to do it but on any given

would prefer to do it but on any given day in this country almost half of

day in this country almost half of

day in this country almost half of adults are single it may be through

adults are single it may be through

adults are single it may be through choice or it may be because that’s where

choice or it may be because that’s where

choice or it may be because that’s where life has led them and that can happen

life has led them and that can happen

life has led them and that can happen very unexpectedly the belief that the

very unexpectedly the belief that the

very unexpectedly the belief that the people who love them the people who are

people who love them the people who are

people who love them the people who are there for them somehow don’t count is

there for them somehow don’t count is

there for them somehow don’t count is not true and in a medical setting it can

not true and in a medical setting it can

not true and in a medical setting it can be deadly right now that we know that

be deadly right now that we know that

be deadly right now that we know that what do we do about it well for that one

what do we do about it well for that one

what do we do about it well for that one I consulted experts I was writing a

I consulted experts I was writing a

I consulted experts I was writing a story about this for The Washington Post

story about this for The Washington Post

story about this for The Washington Post and I interviewed the supervisors of

and I interviewed the supervisors of

and I interviewed the supervisors of Social Work at three medical

Social Work at three medical

Social Work at three medical institutions the Mayo Clinic in

institutions the Mayo Clinic in

institutions the Mayo Clinic in Minnesota sloan-kettering in New York

Minnesota sloan-kettering in New York

Minnesota sloan-kettering in New York City and Christiana Care in Delaware I

City and Christiana Care in Delaware I

City and Christiana Care in Delaware I interviewed them separately but each one

interviewed them separately but each one

interviewed them separately but each one said pretty much the same thing first

said pretty much the same thing first

said pretty much the same thing first they said yes it is true if you show up

they said yes it is true if you show up

they said yes it is true if you show up without a partner you may be subject to

without a partner you may be subject to

without a partner you may be subject to discrimination by all kinds of health

discrimination by all kinds of health

discrimination by all kinds of health care workers who may not even realize

care workers who may not even realize

care workers who may not even realize they’re doing it it’s not because those

they’re doing it it’s not because those

they’re doing it it’s not because those health care workers are bad people but

health care workers are bad people but

health care workers are bad people but like the rest of us they don’t tend to

like the rest of us they don’t tend to

like the rest of us they don’t tend to think through things they have been

think through things they have been

think through things they have been taught to believe the solution is not

taught to believe the solution is not

taught to believe the solution is not blamed the solution is education

blamed the solution is education

blamed the solution is education awareness getting the word out and all

awareness getting the word out and all

awareness getting the word out and all three of those social workers have the

three of those social workers have the

three of those social workers have the same suggestion about how to get the

same suggestion about how to get the

same suggestion about how to get the word out they said now that so many

word out they said now that so many

word out they said now that so many people are living single and so many of

people are living single and so many of

people are living single and so many of those single people do have good support

those single people do have good support

those single people do have good support systems suppose that when somebody is

systems suppose that when somebody is

systems suppose that when somebody is goes into a hospital or starts being

goes into a hospital or starts being

goes into a hospital or starts being cared for at a Medical Center suppose

cared for at a Medical Center suppose

cared for at a Medical Center suppose the patient or someone with them were to

the patient or someone with them were to

the patient or someone with them were to say to

say to

say to a hospital social worker a patient care

a hospital social worker a patient care

a hospital social worker a patient care representative in a doctor’s office

representative in a doctor’s office

representative in a doctor’s office maybe a nurse practitioner excuse me I’m

maybe a nurse practitioner excuse me I’m

maybe a nurse practitioner excuse me I’m single or my sister who was just

single or my sister who was just

single or my sister who was just admitted to your hospital is single my

admitted to your hospital is single my

admitted to your hospital is single my friend my neighbor and we’ve heard that

friend my neighbor and we’ve heard that

friend my neighbor and we’ve heard that there are stories showing that we could

there are stories showing that we could

there are stories showing that we could have some discrimination here

have some discrimination here

have some discrimination here can you help can you make people aware

can you help can you make people aware

can you help can you make people aware can you get the word out in a doctor’s

can you get the word out in a doctor’s

can you get the word out in a doctor’s office instead of waiting for the doctor

office instead of waiting for the doctor

office instead of waiting for the doctor to ask questions about what they think a

to ask questions about what they think a

to ask questions about what they think a social support system is what about

social support system is what about

social support system is what about getting out in front taking the

getting out in front taking the

getting out in front taking the initiative before we talk about that

initiative before we talk about that

initiative before we talk about that treatment plan doctor I want you to know

treatment plan doctor I want you to know

treatment plan doctor I want you to know I am not alone six years ago if I had

I am not alone six years ago if I had

I am not alone six years ago if I had not known what chemotherapy I was

not known what chemotherapy I was

not known what chemotherapy I was supposed to receive I would have had no

supposed to receive I would have had no

supposed to receive I would have had no reason not to stay with that oncologist

reason not to stay with that oncologist

reason not to stay with that oncologist who wanted to give me that one mile drug

who wanted to give me that one mile drug

who wanted to give me that one mile drug it would greatly have reduced my chance

it would greatly have reduced my chance

it would greatly have reduced my chance of survival it is quite likely that

of survival it is quite likely that

of survival it is quite likely that right now I would be a statistic seeming

right now I would be a statistic seeming

right now I would be a statistic seeming to validate all those studies that say

to validate all those studies that say

to validate all those studies that say that unmarried patients are less likely

that unmarried patients are less likely

that unmarried patients are less likely to survive and the sad part is nobody

to survive and the sad part is nobody

to survive and the sad part is nobody would have realized that with the same

would have realized that with the same

would have realized that with the same cancer but without the social prejudice

cancer but without the social prejudice

cancer but without the social prejudice more patients without partners could

more patients without partners could

more patients without partners could have an equal chance to stay alive –

have an equal chance to stay alive –

have an equal chance to stay alive – thank you

”

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