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To know better is to do better | Vanessa Grubbs | TEDxSanFranciscoSalon


on April 14th 2005 I was a primary care

on April 14th 2005 I was a primary care physician walking through a hospital

physician walking through a hospital

physician walking through a hospital hall like I had done many times before

hall like I had done many times before

hall like I had done many times before but this day was different because I was

but this day was different because I was

but this day was different because I was about to be the patient I was about to

about to be the patient I was about to

about to be the patient I was about to give my left kidney to Robert Phillips a

give my left kidney to Robert Phillips a

give my left kidney to Robert Phillips a man who had been on dialysis for several

man who had been on dialysis for several

man who had been on dialysis for several years and who I have started dating less

years and who I have started dating less

years and who I have started dating less than a year prior now how I got to this

than a year prior now how I got to this

than a year prior now how I got to this point I think can best be summed up by

point I think can best be summed up by

point I think can best be summed up by part of a quote from Maya Angelou when

part of a quote from Maya Angelou when

part of a quote from Maya Angelou when you know better do better and I say this

you know better do better and I say this

you know better do better and I say this because when I was a resident physician

because when I was a resident physician

because when I was a resident physician and training I took care of lots of

and training I took care of lots of

and training I took care of lots of patients in the hospital who are on

patients in the hospital who are on

patients in the hospital who are on dialysis but then I was usually

dialysis but then I was usually

dialysis but then I was usually sleep-deprived and always eager to get

sleep-deprived and always eager to get

sleep-deprived and always eager to get on to the next patient

on to the next patient

on to the next patient I paid careful attention to the dialysis

I paid careful attention to the dialysis

I paid careful attention to the dialysis orders and the blood test results but

orders and the blood test results but

orders and the blood test results but sadly not so much to the person living

sadly not so much to the person living

sadly not so much to the person living with a serious illness all that changed

with a serious illness all that changed

with a serious illness all that changed when I became Roberts girlfriend as

when I became Roberts girlfriend as

when I became Roberts girlfriend as Roberts girlfriend I wasn’t in a rush

Roberts girlfriend I wasn’t in a rush

Roberts girlfriend I wasn’t in a rush anymore I wanted to be with him at

anymore I wanted to be with him at

anymore I wanted to be with him at dialysis as often as possible to help

dialysis as often as possible to help

dialysis as often as possible to help him pass the time for hours three times

him pass the time for hours three times

him pass the time for hours three times a week trying hard not to move his left

a week trying hard not to move his left

a week trying hard not to move his left arm too much and dislodged the needles

arm too much and dislodged the needles

arm too much and dislodged the needles that were connecting him to the dialysis

that were connecting him to the dialysis

that were connecting him to the dialysis machine as girlfriend I watched him

machine as girlfriend I watched him

machine as girlfriend I watched him struggle to not drink too much liquid in

struggle to not drink too much liquid in

struggle to not drink too much liquid in between Dallas’s treatments even though

between Dallas’s treatments even though

between Dallas’s treatments even though he was thirsty all the time because if

he was thirsty all the time because if

he was thirsty all the time because if he did because his kidneys couldn’t pee

he did because his kidneys couldn’t pee

he did because his kidneys couldn’t pee it out he would pay for it with swelling

it out he would pay for it with swelling

it out he would pay for it with swelling and cramping and feeling short of breath

and cramping and feeling short of breath

and cramping and feeling short of breath I went with him to his transplant

I went with him to his transplant

I went with him to his transplant evaluation appointment and there I saw a

evaluation appointment and there I saw a

evaluation appointment and there I saw a sight of medicine that I couldn’t see as

sight of medicine that I couldn’t see as

sight of medicine that I couldn’t see as a primary care doctor it was a sigh that

a primary care doctor it was a sigh that

a primary care doctor it was a sigh that felt like it was stacked against him

felt like it was stacked against him

felt like it was stacked against him because it was part of a system in which

because it was part of a system in which

because it was part of a system in which blacks waited nearly two years longer to

blacks waited nearly two years longer to

blacks waited nearly two years longer to get a kidney transplant than whites so

get a kidney transplant than whites so

get a kidney transplant than whites so it was that day that I decided I was

it was that day that I decided I was

it was that day that I decided I was gonna give him one of my kidneys because

gonna give him one of my kidneys because

gonna give him one of my kidneys because I knew what he was going through because

I knew what he was going through because

I knew what he was going through because I knew better and because I knew better

I knew better and because I knew better

I knew better and because I knew better I also went on to become a nephrologist

I also went on to become a nephrologist

I also went on to become a nephrologist a kidney doctor so my goal today is to

a kidney doctor so my goal today is to

a kidney doctor so my goal today is to tell you about three patients that I’ve

tell you about three patients that I’ve

tell you about three patients that I’ve encountered since becoming a

encountered since becoming a

encountered since becoming a nephrologist that I say demonstrate how

nephrologist that I say demonstrate how

nephrologist that I say demonstrate how we can all do better

we can all do better

we can all do better the first is Chris when I met Chris he

the first is Chris when I met Chris he

the first is Chris when I met Chris he was this 25 year old fresh-faced

was this 25 year old fresh-faced

was this 25 year old fresh-faced strawberry blonde head at young man who

strawberry blonde head at young man who

strawberry blonde head at young man who should have been able to just focus on

should have been able to just focus on

should have been able to just focus on his future but instead he was facing

his future but instead he was facing

his future but instead he was facing kidney failure his kidneys were failing

kidney failure his kidneys were failing

kidney failure his kidneys were failing because of an autoimmune disease called

because of an autoimmune disease called

because of an autoimmune disease called IgA nephropathy and he needed to start

IgA nephropathy and he needed to start

IgA nephropathy and he needed to start dialysis less than a year later now I

dialysis less than a year later now I

dialysis less than a year later now I don’t know how many of you noticed this

don’t know how many of you noticed this

don’t know how many of you noticed this little guy at the bottom of the picture

little guy at the bottom of the picture

little guy at the bottom of the picture having tea with Chris but this is his

having tea with Chris but this is his

having tea with Chris but this is his dialysis catheter surgically implanted

dialysis catheter surgically implanted

dialysis catheter surgically implanted into his belly and this is the way Chris

into his belly and this is the way Chris

into his belly and this is the way Chris coped with his illness take the little

coped with his illness take the little

coped with his illness take the little face on it named it called it his

face on it named it called it his

face on it named it called it his closest newest friend Chris also had two

closest newest friend Chris also had two

closest newest friend Chris also had two older brothers both healthy but both

older brothers both healthy but both

older brothers both healthy but both said no to giving baby brother a kidney

said no to giving baby brother a kidney

said no to giving baby brother a kidney they figured he’s on the waiting list to

they figured he’s on the waiting list to

they figured he’s on the waiting list to get a kidney from somebody who’s passed

get a kidney from somebody who’s passed

get a kidney from somebody who’s passed away and he can just do dialysis until

away and he can just do dialysis until

away and he can just do dialysis until then now the problem with that logic is

then now the problem with that logic is

then now the problem with that logic is that it can take up to nine years to get

that it can take up to nine years to get

that it can take up to nine years to get a deceased donor kidney transplant

a deceased donor kidney transplant

a deceased donor kidney transplant depending on your blood type and where

depending on your blood type and where

depending on your blood type and where you live and every year there are

you live and every year there are

you live and every year there are another hundred thousand people on that

another hundred thousand people on that

another hundred thousand people on that same list but we only do about 12,000

same list but we only do about 12,000

same list but we only do about 12,000 deceased donor kidney transplants each

deceased donor kidney transplants each

deceased donor kidney transplants each year and another 5,000 roughly living

year and another 5,000 roughly living

year and another 5,000 roughly living donor transplants so that’s how we end

donor transplants so that’s how we end

donor transplants so that’s how we end up with thirteen people dying

up with thirteen people dying

up with thirteen people dying every day waiting for a kidney

every day waiting for a kidney

every day waiting for a kidney transplant one of the brothers came to

transplant one of the brothers came to

transplant one of the brothers came to visit Chris for the first time since he

visit Chris for the first time since he

visit Chris for the first time since he started Dallas’s and he saw how Chris

started Dallas’s and he saw how Chris

started Dallas’s and he saw how Chris had to connect himself every night to a

had to connect himself every night to a

had to connect himself every night to a Dallas’s machine that pushed and pulled

Dallas’s machine that pushed and pulled

Dallas’s machine that pushed and pulled fluid in and out of the space between

fluid in and out of the space between

fluid in and out of the space between his skin and his abdominal organs all

his skin and his abdominal organs all

his skin and his abdominal organs all night long and Chris just hoped it he

night long and Chris just hoped it he

night long and Chris just hoped it he could get through the night before the

could get through the night before the

could get through the night before the alarm would be beeping are accidentally

alarm would be beeping are accidentally

alarm would be beeping are accidentally tugging on his catheter and that’s all

tugging on his catheter and that’s all

tugging on his catheter and that’s all it took to make the brother change his

it took to make the brother change his

it took to make the brother change his mind

mind

mind and he decided to give Chris one of his

and he decided to give Chris one of his

and he decided to give Chris one of his kidneys

kidneys

kidneys now his donation gave Chris the best

now his donation gave Chris the best

now his donation gave Chris the best chance for a longer and better quality

chance for a longer and better quality

chance for a longer and better quality of life better than a deceased donor

of life better than a deceased donor

of life better than a deceased donor kidney could way better than the Alice’s

kidney could way better than the Alice’s

kidney could way better than the Alice’s could after five years two-thirds of all

could after five years two-thirds of all

could after five years two-thirds of all kidney transplants are going strong at

kidney transplants are going strong at

kidney transplants are going strong at five years but only about a third of

five years but only about a third of

five years but only about a third of Dallas’s patients are even alive now

Dallas’s patients are even alive now

Dallas’s patients are even alive now four months after surgery Robert became

four months after surgery Robert became

four months after surgery Robert became my husband I know he kind of had to

my husband I know he kind of had to

my husband I know he kind of had to marry me

but he has had my kidney for 12 years

but he has had my kidney for 12 years and Counting and the longest living

and Counting and the longest living

and Counting and the longest living kidney lasted for 54 years

kidney lasted for 54 years

kidney lasted for 54 years in a man who died when he was 88 years

in a man who died when he was 88 years

in a man who died when he was 88 years old now this man happened to be named

old now this man happened to be named

old now this man happened to be named Robert Phillips – you know at my core I

Robert Phillips – you know at my core I

Robert Phillips – you know at my core I am a superstitious country girl so I

am a superstitious country girl so I

am a superstitious country girl so I take that as a very good sign so if now

take that as a very good sign so if now

take that as a very good sign so if now that you know what people with kidney

that you know what people with kidney

that you know what people with kidney failure are facing if you know if

failure are facing if you know if

failure are facing if you know if there’s somebody in your life who is in

there’s somebody in your life who is in

there’s somebody in your life who is in need of a kidney transplant and you’re

need of a kidney transplant and you’re

need of a kidney transplant and you’re healthy enough to give one I hope you’ll

healthy enough to give one I hope you’ll

healthy enough to give one I hope you’ll consider it I get that it’s a bit

consider it I get that it’s a bit

consider it I get that it’s a bit daunting I had all kinds of butterflies

daunting I had all kinds of butterflies

daunting I had all kinds of butterflies in my stomach the morning of surgery

in my stomach the morning of surgery

in my stomach the morning of surgery but when I woke up and I saw this bag at

but when I woke up and I saw this bag at

but when I woke up and I saw this bag at the foot of Roberts bed in recovery just

the foot of Roberts bed in recovery just

the foot of Roberts bed in recovery just filling up with lots of pale yellow

filling up with lots of pale yellow

filling up with lots of pale yellow urine I was like that’s my kidney doing

urine I was like that’s my kidney doing

urine I was like that’s my kidney doing that

and I was just so happy because I knew

and I was just so happy because I knew that soon he won’t be able to drink as

that soon he won’t be able to drink as

that soon he won’t be able to drink as much ice-cold beverages his thirst

much ice-cold beverages his thirst

much ice-cold beverages his thirst desired and if I could go back in time I

desired and if I could go back in time I

desired and if I could go back in time I would do it again and to be a donor you

would do it again and to be a donor you

would do it again and to be a donor you don’t need to be related and the only

don’t need to be related and the only

don’t need to be related and the only race that matters is the human race you

race that matters is the human race you

race that matters is the human race you don’t even have to be a perfect match in

don’t even have to be a perfect match in

don’t even have to be a perfect match in fact Robert and I only had 1 out of 6

fact Robert and I only had 1 out of 6

fact Robert and I only had 1 out of 6 genetic markers felt important at the

genetic markers felt important at the

genetic markers felt important at the time and common at the very least I hope

time and common at the very least I hope

time and common at the very least I hope you will consider registering as a organ

you will consider registering as a organ

you will consider registering as a organ donor with the DMV and let your family

donor with the DMV and let your family

donor with the DMV and let your family know that you did so that after you’re

know that you did so that after you’re

know that you did so that after you’re gone

gone

gone they will uphold your wishes and all

they will uphold your wishes and all

they will uphold your wishes and all your healthy parts will go to make the

your healthy parts will go to make the

your healthy parts will go to make the lives of others longer and better now if

lives of others longer and better now if

lives of others longer and better now if you’re one of the 26 million adults in

you’re one of the 26 million adults in

you’re one of the 26 million adults in this country with chronic kidney disease

this country with chronic kidney disease

this country with chronic kidney disease the story of my next patient who I’ll

the story of my next patient who I’ll

the story of my next patient who I’ll call miss a photo is for you miss a

call miss a photo is for you miss a

call miss a photo is for you miss a photo was almost 50 years old when I met

photo was almost 50 years old when I met

photo was almost 50 years old when I met her she had this smooth brown Samoan

her she had this smooth brown Samoan

her she had this smooth brown Samoan skin but her kidneys were shrunken and

skin but her kidneys were shrunken and

skin but her kidneys were shrunken and shriveled hardly functioning because of

shriveled hardly functioning because of

shriveled hardly functioning because of years and years of uncontrolled diabetes

years and years of uncontrolled diabetes

years and years of uncontrolled diabetes and high blood pressure which caused

and high blood pressure which caused

and high blood pressure which caused two-thirds of chronic kidney disease in

two-thirds of chronic kidney disease in

two-thirds of chronic kidney disease in this country but even though she has

this country but even though she has

this country but even though she has such advanced disease she tried to run

such advanced disease she tried to run

such advanced disease she tried to run away from it she wouldn’t believe me

away from it she wouldn’t believe me

away from it she wouldn’t believe me when I told her that her kidneys would

when I told her that her kidneys would

when I told her that her kidneys would soon fell and that she needed to prepare

soon fell and that she needed to prepare

soon fell and that she needed to prepare for analysis she said things like you

for analysis she said things like you

for analysis she said things like you know the swelling in my legs that’s

know the swelling in my legs that’s

know the swelling in my legs that’s that’s because I’ve been on my feet all

that’s because I’ve been on my feet all

that’s because I’ve been on my feet all day and this metallic taste that’s

day and this metallic taste that’s

day and this metallic taste that’s because of the pills that you tell me to

because of the pills that you tell me to

because of the pills that you tell me to take not because of kidney failure truth

take not because of kidney failure truth

take not because of kidney failure truth is there is no outrunning kidney failure

is there is no outrunning kidney failure

is there is no outrunning kidney failure unless something else gets you first

unless something else gets you first

unless something else gets you first like you get hit by a bus or your heart

like you get hit by a bus or your heart

like you get hit by a bus or your heart stops beating kidney failure will catch

stops beating kidney failure will catch

stops beating kidney failure will catch you and I know she was hoping for a

you and I know she was hoping for a

you and I know she was hoping for a miracle but in truth the only miracle

miracle but in truth the only miracle

miracle but in truth the only miracle that was really in her near future was

that was really in her near future was

that was really in her near future was dialysis because 60 years ago

dialysis because 60 years ago

dialysis because 60 years ago Dallas’s didn’t exist and everybody with

Dallas’s didn’t exist and everybody with

Dallas’s didn’t exist and everybody with kidney failure just passed away so

kidney failure just passed away so

kidney failure just passed away so because miss of futa could not face the

because miss of futa could not face the

because miss of futa could not face the reality she ended up with a lot of

reality she ended up with a lot of

reality she ended up with a lot of avoidable things like the trauma of

avoidable things like the trauma of

avoidable things like the trauma of feeling like you’re about to die and

feeling like you’re about to die and

feeling like you’re about to die and having to call 9-1-1 13 hours in the

having to call 9-1-1 13 hours in the

having to call 9-1-1 13 hours in the emergency room a plastic Dallas’s

emergency room a plastic Dallas’s

emergency room a plastic Dallas’s catheter in her chest a hospital

catheter in her chest a hospital

catheter in her chest a hospital admission she was looking at dialysis as

admission she was looking at dialysis as

admission she was looking at dialysis as if it would be the end of her life when

if it would be the end of her life when

if it would be the end of her life when in truth it would just make her life

in truth it would just make her life

in truth it would just make her life different no it wouldn’t be perfect or

different no it wouldn’t be perfect or

different no it wouldn’t be perfect or take away all the issues that come with

take away all the issues that come with

take away all the issues that come with a vital organ dying yes it would have

a vital organ dying yes it would have

a vital organ dying yes it would have his frustrations and take time but the

his frustrations and take time but the

his frustrations and take time but the time in between could be filled with

time in between could be filled with

time in between could be filled with life and all the things that she wanted

life and all the things that she wanted

life and all the things that she wanted to keep doing with Dallas’s she could

to keep doing with Dallas’s she could

to keep doing with Dallas’s she could expect to live for many years without it

expect to live for many years without it

expect to live for many years without it once her kidneys fail completely

once her kidneys fail completely

once her kidneys fail completely she get a week maybe two now roughly 80%

she get a week maybe two now roughly 80%

she get a week maybe two now roughly 80% of adults in this country have

of adults in this country have

of adults in this country have significant chronic kidney disease and

significant chronic kidney disease and

significant chronic kidney disease and don’t even know it so if you might be a

don’t even know it so if you might be a

don’t even know it so if you might be a patient for example you have diabetes or

patient for example you have diabetes or

patient for example you have diabetes or high blood pressure or even if it just

high blood pressure or even if it just

high blood pressure or even if it just runs in your family

runs in your family

runs in your family get tested a simple blood and urine test

get tested a simple blood and urine test

get tested a simple blood and urine test can detect kidney disease long before

can detect kidney disease long before

can detect kidney disease long before you’ll ever feel anything and knowing is

you’ll ever feel anything and knowing is

you’ll ever feel anything and knowing is doing better for yourself and your

doing better for yourself and your

doing better for yourself and your family if you already know you’re a

family if you already know you’re a

family if you already know you’re a patient then don’t let fear get in the

patient then don’t let fear get in the

patient then don’t let fear get in the way of you accepting reality so that you

way of you accepting reality so that you

way of you accepting reality so that you can do

can do

can do how many of you saw this movie The Book

how many of you saw this movie The Book

how many of you saw this movie The Book of Eli starring Denzel Washington yeah

of Eli starring Denzel Washington yeah

of Eli starring Denzel Washington yeah not many so the next patient that I’ll

not many so the next patient that I’ll

not many so the next patient that I’ll tell you about looks exactly like Denzel

tell you about looks exactly like Denzel

tell you about looks exactly like Denzel in this movie now I know what some of

in this movie now I know what some of

in this movie now I know what some of you are probably thinking but I have

you are probably thinking but I have

you are probably thinking but I have never been among the multitudes of women

never been among the multitudes of women

never been among the multitudes of women who would just wriggle out of her

who would just wriggle out of her

who would just wriggle out of her panties and throw them on any stage that

panties and throw them on any stage that

panties and throw them on any stage that Denzel stands on I just saw my patient

Denzel stands on I just saw my patient

Denzel stands on I just saw my patient who I will call because Eli as a

who I will call because Eli as a

who I will call because Eli as a good-looking brother who had a chronic

good-looking brother who had a chronic

good-looking brother who had a chronic kidney problem now when I met Book of

kidney problem now when I met Book of

kidney problem now when I met Book of Eli

Eli

Eli he was very muscular I needed a large

he was very muscular I needed a large

he was very muscular I needed a large extra-large blood pressure cuff to take

extra-large blood pressure cuff to take

extra-large blood pressure cuff to take his blood pressure but five years later

his blood pressure but five years later

his blood pressure but five years later as his kidney disease declined from a

as his kidney disease declined from a

as his kidney disease declined from a disease called membranous nephropathy

disease called membranous nephropathy

disease called membranous nephropathy his muscles had wasted away too and so a

his muscles had wasted away too and so a

his muscles had wasted away too and so a regular blood pressure cuff would do at

regular blood pressure cuff would do at

regular blood pressure cuff would do at every visit I would tell him about all

every visit I would tell him about all

every visit I would tell him about all of his test results and cout including

of his test results and cout including

of his test results and cout including creatinine the blood tests that we used

creatinine the blood tests that we used

creatinine the blood tests that we used to find out about kidney function in

to find out about kidney function in

to find out about kidney function in 1999 a group of researchers publish a

1999 a group of researchers publish a

1999 a group of researchers publish a study of 1,600 adults who they examined

study of 1,600 adults who they examined

study of 1,600 adults who they examined to find out equations that we could use

to find out equations that we could use

to find out equations that we could use to estimate kidney function using

to estimate kidney function using

to estimate kidney function using creatinine now because creatinine is a

creatinine now because creatinine is a

creatinine now because creatinine is a breakdown product of our muscles

breakdown product of our muscles

breakdown product of our muscles released at a fairly constant rate all

released at a fairly constant rate all

released at a fairly constant rate all day the equations that they came up with

day the equations that they came up with

day the equations that they came up with also include age and gender because as

also include age and gender because as

also include age and gender because as we get older we tend to lose muscle mass

we get older we tend to lose muscle mass

we get older we tend to lose muscle mass and men tend to have higher muscle mass

and men tend to have higher muscle mass

and men tend to have higher muscle mass the women but if the patient is black

the women but if the patient is black

the women but if the patient is black they suggested that we also need to

they suggested that we also need to

they suggested that we also need to multiply by 1.2 because what they found

multiply by 1.2 because what they found

multiply by 1.2 because what they found is that blacks in their study generally

is that blacks in their study generally

is that blacks in their study generally had a higher muscle mass than the white

had a higher muscle mass than the white

had a higher muscle mass than the white folks did

folks did

folks did so these equations got applied to the

so these equations got applied to the

so these equations got applied to the entire population everybody even though

entire population everybody even though

entire population everybody even though that original study only included about

that original study only included about

that original study only included about 200 black people and no American Samoans

200 black people and no American Samoans

200 black people and no American Samoans no Native Americans no Asians no Latinos

no Native Americans no Asians no Latinos

no Native Americans no Asians no Latinos and these groups have very different

and these groups have very different

and these groups have very different body frames but in our equations they’re

body frames but in our equations they’re

body frames but in our equations they’re just not black so the implication then

just not black so the implication then

just not black so the implication then only black people are different and the

only black people are different and the

only black people are different and the problem with generalizations at least

problem with generalizations at least

problem with generalizations at least one of them is that sometimes they’re

one of them is that sometimes they’re

one of them is that sometimes they’re not true but in medicine we tend to not

not true but in medicine we tend to not

not true but in medicine we tend to not challenge these things particularly when

challenge these things particularly when

challenge these things particularly when they are in line with our underlying

they are in line with our underlying

they are in line with our underlying assumptions and beliefs like the belief

assumptions and beliefs like the belief

assumptions and beliefs like the belief that our social construct of race is the

that our social construct of race is the

that our social construct of race is the same as a real biological science even

same as a real biological science even

same as a real biological science even though the human genome project

though the human genome project

though the human genome project completed sequencing the entire human

completed sequencing the entire human

completed sequencing the entire human DNA into in 2003 and found that we

DNA into in 2003 and found that we

DNA into in 2003 and found that we humans are 99.9% identical and that

humans are 99.9% identical and that

humans are 99.9% identical and that point 1% difference does not fit into

point 1% difference does not fit into

point 1% difference does not fit into our made-up race categories now I wonder

our made-up race categories now I wonder

our made-up race categories now I wonder how many health care providers when

how many health care providers when

how many health care providers when they’re sitting in front of their

they’re sitting in front of their

they’re sitting in front of their patients interpreting lab results and

patients interpreting lab results and

patients interpreting lab results and deciding what they will do or not about

deciding what they will do or not about

deciding what they will do or not about them how many remember or even know that

them how many remember or even know that

them how many remember or even know that this race adjustment is really supposed

this race adjustment is really supposed

this race adjustment is really supposed to be about muscle mass a proxy for

to be about muscle mass a proxy for

to be about muscle mass a proxy for muscle mass or are they just focusing on

muscle mass or are they just focusing on

muscle mass or are they just focusing on the race or the person in front of them

and which one of these people they would

and which one of these people they would quote the race adjusted kidney function

quote the race adjusted kidney function

quote the race adjusted kidney function estimate to the skinny black woman or

estimate to the skinny black woman or

estimate to the skinny black woman or the white male bodybuilder these

the white male bodybuilder these

the white male bodybuilder these shortcuts can have significant negative

shortcuts can have significant negative

shortcuts can have significant negative consequences for black people who need a

consequences for black people who need a

consequences for black people who need a kidney transplant

kidney transplant

kidney transplant and happen to have lower muscle mass

and happen to have lower muscle mass

and happen to have lower muscle mass like my patient Book of Eli so I

like my patient Book of Eli so I

like my patient Book of Eli so I explained all of this to him and I asked

explained all of this to him and I asked

explained all of this to him and I asked him to collect his urine for a full 24

him to collect his urine for a full 24

him to collect his urine for a full 24 hours and get a blood test so that we

hours and get a blood test so that we

hours and get a blood test so that we could get a more accurate measure of how

could get a more accurate measure of how

could get a more accurate measure of how well his kidneys were filtering blood

what we call a glomerular filtration

what we call a glomerular filtration rate our GFR now this more accurate

rate our GFR now this more accurate

rate our GFR now this more accurate estimate showed that his GFR was 20 and

estimate showed that his GFR was 20 and

estimate showed that his GFR was 20 and that was the same as the shortcut

that was the same as the shortcut

that was the same as the shortcut equation GFR but not racist at one at 20

equation GFR but not racist at one at 20

equation GFR but not racist at one at 20 at a GFR 20 people can be placed on the

at a GFR 20 people can be placed on the

at a GFR 20 people can be placed on the waitlist for kidney transplant Book of

waitlist for kidney transplant Book of

waitlist for kidney transplant Book of Eli would have had to wait an additional

Eli would have had to wait an additional

Eli would have had to wait an additional year had I waited for his race adjusted

year had I waited for his race adjusted

year had I waited for his race adjusted estimate which was 24 at the time to

estimate which was 24 at the time to

estimate which was 24 at the time to fall to 20 and this matters because time

fall to 20 and this matters because time

fall to 20 and this matters because time on the waitlist is one of the most

on the waitlist is one of the most

on the waitlist is one of the most important determinants of when a person

important determinants of when a person

important determinants of when a person gets a kidney transplant so by using a

gets a kidney transplant so by using a

gets a kidney transplant so by using a more accurate estimate Book of Eli got

more accurate estimate Book of Eli got

more accurate estimate Book of Eli got more time on the list and for patients

more time on the list and for patients

more time on the list and for patients dealing with kidney failure time is life

so today I’ve told you about Robert and

so today I’ve told you about Robert and Chris so that you would know at least

Chris so that you would know at least

Chris so that you would know at least some of what people with kidney failure

some of what people with kidney failure

some of what people with kidney failure are going through I told you about Ms o

are going through I told you about Ms o

are going through I told you about Ms o futa so you would know what happens when

futa so you would know what happens when

futa so you would know what happens when we let fear paralyze us and I told you

we let fear paralyze us and I told you

we let fear paralyze us and I told you about Book of Eli so you wouldn’t know

about Book of Eli so you wouldn’t know

about Book of Eli so you wouldn’t know how when we make assumptions about race

how when we make assumptions about race

how when we make assumptions about race it can blur the lines of real science so

it can blur the lines of real science so

it can blur the lines of real science so now that you know better what would you

now that you know better what would you

now that you know better what would you do

do

do thank you

thank you

thank you you

”

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