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The Stigma Around Disability | Virali Modi | TEDxGLAU


[Applause]

[Applause] [Music]

[Music]

[Music] thank you for having me this is pretty

thank you for having me this is pretty

thank you for having me this is pretty amazing so let me just start sticks and

amazing so let me just start sticks and

amazing so let me just start sticks and stones may break my bones but words will

stones may break my bones but words will

stones may break my bones but words will never hurt me ever since a young age I

never hurt me ever since a young age I

never hurt me ever since a young age I was made to believe that

was made to believe that

was made to believe that well what’s didn’t hurt but surprise

well what’s didn’t hurt but surprise

well what’s didn’t hurt but surprise what’s actually hurt a lot

what’s actually hurt a lot

what’s actually hurt a lot I tried killing myself not once but

I tried killing myself not once but

I tried killing myself not once but twice because of hurtful words shocking

twice because of hurtful words shocking

twice because of hurtful words shocking right ever since I became paralyzed in

right ever since I became paralyzed in

right ever since I became paralyzed in the year 2006 I realized that my

the year 2006 I realized that my

the year 2006 I realized that my inability to walk is a big deal

inability to walk is a big deal

inability to walk is a big deal to other people not to me I’ve been

to other people not to me I’ve been

to other people not to me I’ve been reminded time and again that I’m not

reminded time and again that I’m not

reminded time and again that I’m not able to walk for example in 2006 my

able to walk for example in 2006 my

able to walk for example in 2006 my friends left my side because apparently

friends left my side because apparently

friends left my side because apparently I was a burden to them because I

I was a burden to them because I

I was a burden to them because I couldn’t walk they thought how are we

couldn’t walk they thought how are we

couldn’t walk they thought how are we gonna hang out with all she can’t even

gonna hang out with all she can’t even

gonna hang out with all she can’t even move then in 2007 I overheard a family

move then in 2007 I overheard a family

move then in 2007 I overheard a family member of mine tell my cousin not to

member of mine tell my cousin not to

member of mine tell my cousin not to hang around with me because and I quote

hang around with me because and I quote

hang around with me because and I quote if you hang around with all you’ll catch

if you hang around with all you’ll catch

if you hang around with all you’ll catch whatever she had and you will end up

whatever she had and you will end up

whatever she had and you will end up paralyzed and on a wheelchair horrendous

paralyzed and on a wheelchair horrendous

paralyzed and on a wheelchair horrendous right for a 15 year old girl these words

right for a 15 year old girl these words

right for a 15 year old girl these words who are like salt to my wounds I was

who are like salt to my wounds I was

who are like salt to my wounds I was being reminded of my loss I was being

being reminded of my loss I was being

being reminded of my loss I was being reminded that I can’t walk I was being

reminded that I can’t walk I was being

reminded that I can’t walk I was being treated as if I was an illness a virus

treated as if I was an illness a virus

treated as if I was an illness a virus that could destroy lives more than that

that could destroy lives more than that

that could destroy lives more than that I wasn’t being treated like a human why

I wasn’t being treated like a human why

I wasn’t being treated like a human why just because I can’t walk is it really a

just because I can’t walk is it really a

just because I can’t walk is it really a big deal well I suppose it is ever since

big deal well I suppose it is ever since

big deal well I suppose it is ever since I was young I have had dreams of being

I was young I have had dreams of being

I was young I have had dreams of being an actress and a model and despite

an actress and a model and despite

an actress and a model and despite having a disability

having a disability

having a disability I didn’t let those dreams die

I didn’t let those dreams die

I didn’t let those dreams die in 2014 I won second place in the missed

in 2014 I won second place in the missed

in 2014 I won second place in the missed wheelchair India pageant and I decided

wheelchair India pageant and I decided

wheelchair India pageant and I decided that it was the right time to pursue my

that it was the right time to pursue my

that it was the right time to pursue my dream unfortunately though it was

dream unfortunately though it was

dream unfortunately though it was short-lived I went to many auditions

short-lived I went to many auditions

short-lived I went to many auditions contacted many casting directors and

contacted many casting directors and

contacted many casting directors and even uploaded my profile on too many

even uploaded my profile on too many

even uploaded my profile on too many casting portals but the one thing that I

casting portals but the one thing that I

casting portals but the one thing that I heard from everyone was and I quote

heard from everyone was and I quote

heard from everyone was and I quote Murali you’re beautiful you have the

Murali you’re beautiful you have the

Murali you’re beautiful you have the perfect features your acting skills are

perfect features your acting skills are

perfect features your acting skills are on point and you’d be perfect for this

on point and you’d be perfect for this

on point and you’d be perfect for this role but not a problem here

role but not a problem here

role but not a problem here it’s your wheelchair if you are walking

it’s your wheelchair if you are walking

it’s your wheelchair if you are walking nah I swear we would have costed you for

nah I swear we would have costed you for

nah I swear we would have costed you for this role so again I was judged because

this role so again I was judged because

this role so again I was judged because of my inability it seems to me that most

of my inability it seems to me that most

of my inability it seems to me that most people with disabilities are judged by

people with disabilities are judged by

people with disabilities are judged by the inner abilities but one thing these

the inner abilities but one thing these

the inner abilities but one thing these in abilities they have been decided by

in abilities they have been decided by

in abilities they have been decided by society not by us

society not by us

society not by us surprisingly the stigma around

surprisingly the stigma around

surprisingly the stigma around disability is still prevalent to this

disability is still prevalent to this

disability is still prevalent to this day it may not be that obvious but it’s

day it may not be that obvious but it’s

day it may not be that obvious but it’s still there the other day I was called a

still there the other day I was called a

still there the other day I was called a dev young by an unknown man now if

dev young by an unknown man now if

dev young by an unknown man now if you’re unfamiliar with the tone it

you’re unfamiliar with the tone it

you’re unfamiliar with the tone it basically means divine body it’s also

basically means divine body it’s also

basically means divine body it’s also been encouraged to use the tongue live

been encouraged to use the tongue live

been encouraged to use the tongue live young

young

young in place of Vick Lang or disabled great

in place of Vick Lang or disabled great

in place of Vick Lang or disabled great right so apparently I am considered

right so apparently I am considered

right so apparently I am considered divine because I have a disability so

divine because I have a disability so

divine because I have a disability so according to that logic I wasn’t divine

according to that logic I wasn’t divine

according to that logic I wasn’t divine before questionable right now I didn’t

before questionable right now I didn’t

before questionable right now I didn’t take it to heart but I decided to see if

take it to heart but I decided to see if

take it to heart but I decided to see if my status of being divine is perceived

my status of being divine is perceived

my status of being divine is perceived in the same way by other people now a

in the same way by other people now a

in the same way by other people now a couple of months ago I went out on

couple of months ago I went out on

couple of months ago I went out on restaurant audits to justice in

restaurant audits to justice in

restaurant audits to justice in Mumbai just to see if restaurants are

Mumbai just to see if restaurants are

Mumbai just to see if restaurants are truly accessible foiling alert then not

truly accessible foiling alert then not

truly accessible foiling alert then not anyway I called the restaurant up that I

anyway I called the restaurant up that I

anyway I called the restaurant up that I was supposed to go to and I asked the

was supposed to go to and I asked the

was supposed to go to and I asked the employee there if the premises was

employee there if the premises was

employee there if the premises was accessible first of all he didn’t know

accessible first of all he didn’t know

accessible first of all he didn’t know the meaning of accessibility so I had to

the meaning of accessibility so I had to

the meaning of accessibility so I had to explain it to him in extreme detail

explain it to him in extreme detail

explain it to him in extreme detail anyway he finally told me that there

anyway he finally told me that there

anyway he finally told me that there were some steps there and so I asked him

were some steps there and so I asked him

were some steps there and so I asked him politely if they could help me up those

politely if they could help me up those

politely if they could help me up those steps and surprisingly he said no I was

steps and surprisingly he said no I was

steps and surprisingly he said no I was shocked I thought I was doing hello I

shocked I thought I was doing hello I

shocked I thought I was doing hello I thought I was divine I thought I was

thought I was divine I thought I was

thought I was divine I thought I was supposed to be treated that way so why

supposed to be treated that way so why

supposed to be treated that way so why was this guy saying note I was

was this guy saying note I was

was this guy saying note I was disheartened instead I felt as if he

disheartened instead I felt as if he

disheartened instead I felt as if he should have treated me that way I’m a

should have treated me that way I’m a

should have treated me that way I’m a divya after all anti I should be treated

divya after all anti I should be treated

divya after all anti I should be treated as if I’m but that’s the thing

as if I’m but that’s the thing

as if I’m but that’s the thing I’m not divine I’m a normal human being

I’m not divine I’m a normal human being

I’m not divine I’m a normal human being that went through a traumatic incident

that went through a traumatic incident

that went through a traumatic incident that left me wheelchair-bound and that’s

that left me wheelchair-bound and that’s

that left me wheelchair-bound and that’s about it it’s the same for almost every

about it it’s the same for almost every

about it it’s the same for almost every person out there with the disability we

person out there with the disability we

person out there with the disability we want to be treated in the same manner we

want to be treated in the same manner we

want to be treated in the same manner we don’t want to be treated specially but I

don’t want to be treated specially but I

don’t want to be treated specially but I don’t understand why it’s so difficult

don’t understand why it’s so difficult

don’t understand why it’s so difficult for everyone to understand but sadly it

for everyone to understand but sadly it

for everyone to understand but sadly it is it is difficult to understand all we

is it is difficult to understand all we

is it is difficult to understand all we ask is that you treat us like human

ask is that you treat us like human

ask is that you treat us like human beings

beings

beings but sometimes humanity fails us and

but sometimes humanity fails us and

but sometimes humanity fails us and humanity has failed me more than once I

humanity has failed me more than once I

humanity has failed me more than once I was molested three times by the luggage

was molested three times by the luggage

was molested three times by the luggage porters at a railway station in Mumbai

porters at a railway station in Mumbai

porters at a railway station in Mumbai I’m sure many of you must be knowing

I’m sure many of you must be knowing

I’m sure many of you must be knowing this because of my petition for

this because of my petition for

this because of my petition for accessible railways called my train too

accessible railways called my train too

accessible railways called my train too now

now

now why was I touched and manhandled I

why was I touched and manhandled I

why was I touched and manhandled I suppose it’s because of the lack of

suppose it’s because of the lack of

suppose it’s because of the lack of infrastructure sometimes it seems as if

infrastructure sometimes it seems as if

infrastructure sometimes it seems as if my nation doesn’t consider me to be

my nation doesn’t consider me to be

my nation doesn’t consider me to be human it feels as if I don’t have any

human it feels as if I don’t have any

human it feels as if I don’t have any rights why I understand that according

rights why I understand that according

rights why I understand that according to society I have three strikes going

to society I have three strikes going

to society I have three strikes going against me I’m a woman I’m disabled and

against me I’m a woman I’m disabled and

against me I’m a woman I’m disabled and I’m single I realize that but my life is

I’m single I realize that but my life is

I’m single I realize that but my life is just as important and significant as

just as important and significant as

just as important and significant as yours so why don’t I have these rights

yours so why don’t I have these rights

yours so why don’t I have these rights why am I not treated as a human being it

why am I not treated as a human being it

why am I not treated as a human being it seems to me that this sorry it seems to

seems to me that this sorry it seems to

seems to me that this sorry it seems to me that this unintentional ignorance is

me that this unintentional ignorance is

me that this unintentional ignorance is mainly because people have different

mainly because people have different

mainly because people have different perceptions about disability according

perceptions about disability according

perceptions about disability according to everyone it seems as if people think

to everyone it seems as if people think

to everyone it seems as if people think that disability is just black and white

that disability is just black and white

that disability is just black and white apparently to them there is no gray area

apparently to them there is no gray area

apparently to them there is no gray area there is no in-between disability is

there is no in-between disability is

there is no in-between disability is supposedly just black and white

supposedly just black and white

supposedly just black and white either way death either were not high

either way death either were not high

either way death either were not high they were walking either were not but

they were walking either were not but

they were walking either were not but that’s not the case sometimes it seems

that’s not the case sometimes it seems

that’s not the case sometimes it seems to mean that people aren’t away and

to mean that people aren’t away and

to mean that people aren’t away and people just have different perceptions

people just have different perceptions

people just have different perceptions about disabilities and just to make us

about disabilities and just to make us

about disabilities and just to make us feel better and to spare our feelings we

feel better and to spare our feelings we

feel better and to spare our feelings we have all of these different terms and

have all of these different terms and

have all of these different terms and labels live young specially abled

labels live young specially abled

labels live young specially abled differently abled handicapped etc how am

differently abled handicapped etc how am

differently abled handicapped etc how am i different you use the stairs I use the

i different you use the stairs I use the

i different you use the stairs I use the elevator and that’s about it if you

elevator and that’s about it if you

elevator and that’s about it if you really need a term then please

really need a term then please

really need a term then please acknowledge the elephant in the room

acknowledge the elephant in the room

acknowledge the elephant in the room because according to the dictionary I am

because according to the dictionary I am

because according to the dictionary I am disabled but only physically and only

disabled but only physically and only

disabled but only physically and only because you need a term in my mind I am

because you need a term in my mind I am

because you need a term in my mind I am still the same verily that I was before

still the same verily that I was before

still the same verily that I was before I became a wheelchair user now

I became a wheelchair user now

I became a wheelchair user now I to be very honest I consider myself to

I to be very honest I consider myself to

I to be very honest I consider myself to be unique why because this wheelchair is

be unique why because this wheelchair is

be unique why because this wheelchair is my throne and I am a queen now how many

my throne and I am a queen now how many

my throne and I am a queen now how many of you can say that you have your own

of you can say that you have your own

of you can say that you have your own personalized throne not many I’m sure

personalized throne not many I’m sure

personalized throne not many I’m sure even though people have considered my

even though people have considered my

even though people have considered my legs before they’ve considered me I

legs before they’ve considered me I

legs before they’ve considered me I still consider myself to be a queen and

still consider myself to be a queen and

still consider myself to be a queen and to be honest I am not really disabled

to be honest I am not really disabled

to be honest I am not really disabled disabled’ are those that like empathy

disabled’ are those that like empathy

disabled’ are those that like empathy those that are rapists murderers and

those that are rapists murderers and

those that are rapists murderers and Psychopaths those are the ones that are

Psychopaths those are the ones that are

Psychopaths those are the ones that are truly disabled but to be very honest

truly disabled but to be very honest

truly disabled but to be very honest these terms we need to eliminate these

these terms we need to eliminate these

these terms we need to eliminate these terms of our vocabulary able-bodied

terms of our vocabulary able-bodied

terms of our vocabulary able-bodied disabled they divide us nothing more

disabled they divide us nothing more

disabled they divide us nothing more when I say to say when I say the word

when I say to say when I say the word

when I say to say when I say the word disability you automatically think of

disability you automatically think of

disability you automatically think of someone in a wheelchair but think about

someone in a wheelchair but think about

someone in a wheelchair but think about it for a second

it for a second

it for a second am i charlie disabled are we truly

am i charlie disabled are we truly

am i charlie disabled are we truly disabled sure we may be less able than

disabled sure we may be less able than

disabled sure we may be less able than some of you but you may be less able

some of you but you may be less able

some of you but you may be less able than some of us so does that mean I

than some of us so does that mean I

than some of us so does that mean I surely have a disability does that mean

surely have a disability does that mean

surely have a disability does that mean that you have a disability but what

that you have a disability but what

that you have a disability but what about those with invisible disabilities

about those with invisible disabilities

about those with invisible disabilities will you call them disabled sure you can

will you call them disabled sure you can

will you call them disabled sure you can categorize me as having a disability

categorize me as having a disability

categorize me as having a disability because it’s physical and it’s visible

because it’s physical and it’s visible

because it’s physical and it’s visible but what about those that are dealing

but what about those that are dealing

but what about those that are dealing with some other issues like say a

with some other issues like say a

with some other issues like say a learning disability would you call them

learning disability would you call them

learning disability would you call them disabled I’ve said this many many times

disabled I’ve said this many many times

disabled I’ve said this many many times and I will repeat myself

and I will repeat myself

and I will repeat myself stop using terms and labels that

stop using terms and labels that

stop using terms and labels that indirectly or directly mean abnormal

indirectly or directly mean abnormal

indirectly or directly mean abnormal because normalcy is subjective what may

because normalcy is subjective what may

because normalcy is subjective what may be normal to me may be viewed as an

be normal to me may be viewed as an

be normal to me may be viewed as an abnormality to you so who are we to

abnormality to you so who are we to

abnormality to you so who are we to decide what’s normal

decide what’s normal

decide what’s normal I don’t think we’re not anyone to decide

I don’t think we’re not anyone to decide

I don’t think we’re not anyone to decide I just think we just need to accept

I just think we just need to accept

I just think we just need to accept ourselves we need to stop labeling

ourselves we need to stop labeling

ourselves we need to stop labeling ourselves and I’m telling you the day

ourselves and I’m telling you the day

ourselves and I’m telling you the day that we eliminate these terms of our

that we eliminate these terms of our

that we eliminate these terms of our vocabulary the day that we change our

vocabulary the day that we change our

vocabulary the day that we change our perception that’s the day when we’ll

perception that’s the day when we’ll

perception that’s the day when we’ll achieve equality and that’s the day when

achieve equality and that’s the day when

achieve equality and that’s the day when the stigma around disability will be

the stigma around disability will be

the stigma around disability will be abolished thank you

abolished thank you

abolished thank you [Applause]

”

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