[Music]
[Music]
[Applause]
720 seems to me a date already
held by this moment flew e
ate a little turnà to send to
give me a good effort eats all that
that you loved and eat oil flushes
We have to go
one winter evening just came home mine
mother realizing that I was cold me
he proposed to take against mine
habit, I refused the first
then I do not know why I changed opinion I send to
take one of those short cakes and
chubby called madeleine that looks like it
mold of the valbasca nave of one
conchiglia di san giacomo and shortly thereafter
feeling sad for the gloomy day
the prospect of a painful tomorrow
I mechanically brought my lips together
teaspoon of the tea in which I had
left to soak a piece of the
mother but just the mixed sip
to the crumbs of the pastry I touch the
my palate winced I await the phenomenon
extraordinary that there was one in me
delicious pleasure but had invaded
isolated without cause and immediately
but he had made them indifferent
reversed harmless vicissitudes
illusory the brevity of life does not me
I felt more mediocre mute contingent
this passage taken from a work by
marcel proust in some way, the paul
see his story as a bit
as it can sometimes be important
contact that we have with food is
what food manages to move
as an emotion not just like that a
pleasure
in the food paolo he made one
very precise question what is there at
what would be our life if in
this moment was characterized by the
loss of the possibility of being able to
enjoying food is a very question
important that I understand well almost not
normal to feel different in saying
to say is the same question that they ask themselves
almost two million people in Italy
who find themselves without wanting it has
suddenly you can not take it anymore
blue pulls is what we call
dysphagia
I am the doctor who follows paolo and that
he is accompanying him in this
path of care and unfortunately often and
gladly we are faced with the
stories like that in which in some
so the body starts to lose with the
its efficiency what we call
health and unfortunately in the case of
dysphagia but to undermine a function that
extremely delicate a function that
when altered it can even lead
not just the mail to lose it
possibility to taste food but also
the risk of suffocating many people
they must give up eating or drinking
just because many times they do it
this is the risk of dying
which characterizes one of the pathologies
more serious than we say that al
world is known that precisely the sla la
Trichic lateral sclerosis disease in
So without even a clear-cut cause
we are still studying
there is a degeneration of the motor neurons
which progressively leads to loss
of the command of every voluntary movement
try to imagine the inability of
make the simplest gestures in this
case is an image taken from
association of patients where it contains
a bit the example that is even alone
approach a glass or take a glass
glass represents an act
absolutely impossible and paolo is one
person up to 17 years
surely he was living another vitality
of the boys’ gods as we know them with
their joys, passions, mistakes
everything we are used to
know but on the other side also one
great passion
he wanted and wants to carry on his
the idea of becoming a chef in the family
they already had an example that was the Pope
and he too left school for di
hidden learning from another
chef the first techniques for cooking
until the ambitious dream of
enter the gualtiero school
marquesses is right there
destiny has decided
to intervene even before them
brandis set foot inside
that school
Paolo’s arm starts to become
weak initially think it was
a trauma that was a casual thing
as happens to everyone in reality
this problem will go slowly
getting worse will go inexorably
changing is the day I have them
known remember this scene all
surgery with a family
absolutely terrified of the thing
it could be the cause of this
Absolutely, he is a problem
ready to understand how to fight
against whatever it was his
pathology and shots a lot too
because at that moment I wanted to
do another job because the area
of the diagnoses of a certain type e
more reason when you find a
19 year old eighteen year old boy
reality is not the best
that’s why I suggested to Paolo to come to
make one of the investigations in our
our hospital and there paolo
other new surprise you is immersed
in a department where they are patients who
I’m already a little bit ahead of
he usually something traumatizing
because you see in others what you
It could happen
he instead from this point of view
started to want to get in a bit
stories of other patients is one of
these in particular that of antonio
boy who had been with this for years
pathology now with no movement
the only wind he had by himself moving
Eye that allowed him to be able to
communicate with a computer he has
approached him and asked him what
he was missing more than life to which
simplest question will make a person
and antonio if you are not that much
in fact he replied without him
no problem saying that what
he lacked reality was the taste for
then be able to experience it
taste something
it was ten years since he touched nothing
for boc
and then he is not traumatized by this
from this answer that he would leave
anyone
let’s say a bit of stucco at some point
he asks but what is it that you missed most
and he was born the idea of drawing one
what I most want is risotto
risotto with prosecco and who knows what it hides
behind this resolved to prosecco us
often we also tie food what
a meeting of us happens in life
I work maybe the first exit with the
our girlfriend rather than the event
of the birth of one of ours the
our son
behind who knows what this was
prosecco, however, gave the idea to Paolo
not so much worrying about his
pathology he received the diagnosis in
that hospitalization but returns to substance
he convinced his family to do
something for antonio initially the
easiest thing they could do is
was to say well we know
cook all together well too
let’s start making a list of possible ones
recipes with ideas that can
help the people who assist i
patients with dysphagia
cook something tasty but in the
same time safer to send down
but just because I’m going to study
the consistencies the most appropriate ones from
this fat point of view was born
the idea of the book but Paul who has
always investigated on the disease and has
always wanted to share with patients
every single detail rightly yes
it poses another problem well it’s fine if
I can swallow my
book also goes well but if the disease is
It was so terrible that it took me too
the possibility of bringing food closer together
mouth as I can give to antonio e
then how can I fulfill the desire
of antonio
and from there the idea of creating a tampon a
buffer that encloses the essences in
faithful way of any dish with
but not a mixture of such in form
of tastes but that could give the
possibility to warn every single person
component of a dish and like when
we put a mouthful of food in
mouth
and of course there will be tastes that
will arrive soon there will be tastes
that will arrive at a later time e
this is what gives us pleasure
to taste a dish is the challenge it was
be able to recreate this same
path inside a tampon is
a difficult challenge because in some
way to technique because it is undeniably
necessary to know a series of
dictates of the so-called kitchen
molecular that allow it to be able to
extract the essences in a faithful way
on the other hand ensure that the
buffer was not an instrument
risky
we must always certainly offer to
patients of the solutions but of the
solutions that are not risky third
then check how much this this idea
may reality in the part be appreciated
of patients of interest to patients e
on the other hand how much it can really
will affect your quality of the
life from there the idea of creating one
experimentation experimentation
clinic with all the canons on the rigors of
an experimentation that would allow to
to answer these questions that was
necessary to clarify this was
possible thanks to the fact of working in
a center like the clinical center
nemo a reality born of patients
as an idea of patients and for patients
where every single professional every
single discipline was chosen for
try to meet needs
the liguria is one of the seats it hosts
one of the centers ariano right
so in some ways it is already a land
that he had the chance to experience
what is the center nemo succeeds in
to do and thanks to this union between
energy the idea of paolo is a team
multidisciplinary that he could achieve
the desire of Paul we gave life
to this study to this first
experimentation that taught us
something
initially all of us were
fearful timid because we did not know
what could be the reactions of
a person who maybe from 5 6 7 10 years
he no longer has the chance to hear
no taste are people who unfortunately
precisely because they do not use their mouths
to eat they start experimenting with gods
flavors of metallic flavors
absolutely disgusting pro because the
our palate needs to be
continent has stimulated but when for
years and years this function is good
stimulated determines reactions
absolutely unpleasant and then that
who knows that what struck us is that he has us
really given energy because this
project I have to carry it forward was the
reaction all patients like
he described proust and in the verse now
written they started having one
visual physical reaction a smile who
wide open that somehow there
they said we were finally offering
something that was not related to one’s own
illness but we were finally offering
a moment of dignity in which they could
return to recovery could
recover that pleasure that there
that is, it characterizes the pleasure of being able to
enjoy what we like best
and that’s why thanks to this
initiative
Paolo managed to test and prove
that the tampon was a useful tool e
an instrument that gave a moment of
joy, the memory
I was talking to one of the patients with David
that particulate to the experimentation that
it had by now arrived at the end it is anyway
he had agreed to participate in
and to experiment the family members later
some days that was dead though
they maintain the image of their loved one
who smiled at every dish and at each
at every taste with it begins to perceive
and I say that only this has already been worth it
punishment
for what we did together with
paolo ma paolo wants to transform this
buffer not only in a tool for
say ok
we give dignity to those who lose every day
the possibility of being able to eat but
we transform into an instrument that can
also help the search find one
solution to find something that was
one day transform the life of these
people in a day a little happier
one day certainly more joyful and
thanks to Paul we are carrying on
a series of projects and ideas that
I hope as for the swab can be
realize and maybe get to what
he wishes he wants to take back the
force his arms to take it perhaps
his legs stand in front
his kitchen and start him with his
arms and with his legs to prepare
foods for his family is not accidental
the picture because I find out that
just robbie williams was one
of the people they’ve had
the honor of being able to cook
well, this sentence reborn a little
the emblem
each of us has a battle that is
living each one and we do not know it often
and willingly when we meet
the one of Paolo slowly we are
discovering and from this point of view us
let’s try to be his soldiers
those that can somehow
allow the general Paul to be able to
get one day to defeat one
of the most serious and difficult pathologies
that the story of the new is to be known
thank you
[Applause]
[Music]
we
[Applause]
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