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Rage, research, and reduction of harm | Monica Ruiz | TEDxFoggyBottom


[Music]

[Music] [Applause]

I’d like to start off by giving you a

I’d like to start off by giving you a little glimpse into my personality in

little glimpse into my personality in

little glimpse into my personality in this first picture you see me as a wee

this first picture you see me as a wee

this first picture you see me as a wee child at Easter being forced into a

child at Easter being forced into a

child at Easter being forced into a ridiculously staged photograph by my

ridiculously staged photograph by my

ridiculously staged photograph by my camera happy father as you can see I am

camera happy father as you can see I am

camera happy father as you can see I am thrilled to be wearing a stupid frilly

thrilled to be wearing a stupid frilly

thrilled to be wearing a stupid frilly dress and rabbit ears in this second

dress and rabbit ears in this second

dress and rabbit ears in this second picture you see me on the sidewalk in

picture you see me on the sidewalk in

picture you see me on the sidewalk in front of our house where all of the

front of our house where all of the

front of our house where all of the neighbors can see my indignity and

neighbors can see my indignity and

neighbors can see my indignity and here’s me having had enough I don’t know

here’s me having had enough I don’t know

here’s me having had enough I don’t know exactly what I was saying during this

exactly what I was saying during this

exactly what I was saying during this moment but it was probably something

moment but it was probably something

moment but it was probably something along the lines of raise that camera one

along the lines of raise that camera one

along the lines of raise that camera one more time and I will end you Ricky you

more time and I will end you Ricky you

more time and I will end you Ricky you can see by this example as I have a

can see by this example as I have a

can see by this example as I have a little bit of an anger problem and the

little bit of an anger problem and the

little bit of an anger problem and the way that I as an introvert yes I am an

way that I as an introvert yes I am an

way that I as an introvert yes I am an introvert dealt with that anger was to

introvert dealt with that anger was to

introvert dealt with that anger was to silently seethed with rage until I could

silently seethed with rage until I could

silently seethed with rage until I could figure out some outlet for that anger

figure out some outlet for that anger

figure out some outlet for that anger that was more productive than say

that was more productive than say

that was more productive than say manslaughter believe me when I tell you

manslaughter believe me when I tell you

manslaughter believe me when I tell you that figuring out these alternate

that figuring out these alternate

that figuring out these alternate outlets has not been easy so how did I

outlets has not been easy so how did I

outlets has not been easy so how did I get from infant rage monster to where I

get from infant rage monster to where I

get from infant rage monster to where I am now well it began in my young

am now well it began in my young

am now well it began in my young adulthood

adulthood

adulthood I studied preventive medicine in

I studied preventive medicine in

I studied preventive medicine in graduate school and this was a time when

graduate school and this was a time when

graduate school and this was a time when the disease that we now know as HIV and

the disease that we now know as HIV and

the disease that we now know as HIV and AIDS was making its mark on the world as

AIDS was making its mark on the world as

AIDS was making its mark on the world as I learned more about this disease I was

I learned more about this disease I was

I learned more about this disease I was also making a wider social network of

also making a wider social network of

also making a wider social network of friends friends who are gay and lesbian

friends friends who are gay and lesbian

friends friends who are gay and lesbian friends who were directly affected by

friends who were directly affected by

friends who were directly affected by this disease because of how many friends

this disease because of how many friends

this disease because of how many friends of theirs had already died from it

of theirs had already died from it

of theirs had already died from it it struck me that the people who had

it struck me that the people who had

it struck me that the people who had died were young they were very young at

died were young they were very young at

died were young they were very young at this time it also struck me that we knew

this time it also struck me that we knew

this time it also struck me that we knew what caused HIV and AIDS and we knew how

what caused HIV and AIDS and we knew how

what caused HIV and AIDS and we knew how it was transmitted and

it was transmitted and

it was transmitted and not transmitted but there were still

not transmitted but there were still

not transmitted but there were still people who didn’t know this information

people who didn’t know this information

people who didn’t know this information there was still people who didn’t have

there was still people who didn’t have

there was still people who didn’t have access to health care there were still

access to health care there were still

access to health care there were still people who couldn’t access the drugs

people who couldn’t access the drugs

people who couldn’t access the drugs that could possibly save their lives

that could possibly save their lives

that could possibly save their lives because the research pipeline was so

because the research pipeline was so

because the research pipeline was so slow and the drugs were so expensive

slow and the drugs were so expensive

slow and the drugs were so expensive there were people who were told that

there were people who were told that

there were people who were told that they deserved to die from this disease

they deserved to die from this disease

they deserved to die from this disease and this made me angry actually it made

and this made me angry actually it made

and this made me angry actually it made me furious I was infuriated that people

me furious I was infuriated that people

me furious I was infuriated that people my age were dying from a completely

my age were dying from a completely

my age were dying from a completely preventable disease I was infuriated

preventable disease I was infuriated

preventable disease I was infuriated that people were dying and the

that people were dying and the

that people were dying and the government in Washington DC was

government in Washington DC was

government in Washington DC was remaining largely silent about this

remaining largely silent about this

remaining largely silent about this epidemic that was when I knew that HIV

epidemic that was when I knew that HIV

epidemic that was when I knew that HIV prevention was my calling and I knew

prevention was my calling and I knew

prevention was my calling and I knew that the people that I needed to focus

that the people that I needed to focus

that the people that I needed to focus on in my work were those who are most

on in my work were those who are most

on in my work were those who are most vulnerable most marginalized in society

vulnerable most marginalized in society

vulnerable most marginalized in society those were my people included in this

those were my people included in this

those were my people included in this new category of my people where

new category of my people where

new category of my people where injection drug users injection drug

injection drug users injection drug

injection drug users injection drug users are often at risk from HIV from

users are often at risk from HIV from

users are often at risk from HIV from sharing their needles and syringes their

sharing their needles and syringes their

sharing their needles and syringes their works their injection equipment often

works their injection equipment often

works their injection equipment often people will share because they don’t

people will share because they don’t

people will share because they don’t have access to clean injection equipment

have access to clean injection equipment

have access to clean injection equipment and are desperate to use to stave off

and are desperate to use to stave off

and are desperate to use to stave off the symptoms of withdrawal by using

the symptoms of withdrawal by using

the symptoms of withdrawal by using clean works every time and not sharing

clean works every time and not sharing

clean works every time and not sharing syringes getting those used syringes out

syringes getting those used syringes out

syringes getting those used syringes out of circulation people could still use

of circulation people could still use

of circulation people could still use but be protected from getting and

but be protected from getting and

but be protected from getting and spreading HIV this is exactly what harm

spreading HIV this is exactly what harm

spreading HIV this is exactly what harm reduction strategies like needle

reduction strategies like needle

reduction strategies like needle exchange do they provide access to clean

exchange do they provide access to clean

exchange do they provide access to clean injection equipment and get those user

injection equipment and get those user

injection equipment and get those user works out of circulation and that’s the

works out of circulation and that’s the

works out of circulation and that’s the elegant and simple beauty of syringe

elegant and simple beauty of syringe

elegant and simple beauty of syringe exchange and harm reduction addiction is

exchange and harm reduction addiction is

exchange and harm reduction addiction is terribly terribly hard not everyone is

terribly terribly hard not everyone is

terribly terribly hard not everyone is ready to quit using that doesn’t mean

ready to quit using that doesn’t mean

ready to quit using that doesn’t mean that drug users don’t care about their

that drug users don’t care about their

that drug users don’t care about their health it just means that they’re not

health it just means that they’re not

health it just means that they’re not ready to take that in really difficult

ready to take that in really difficult

ready to take that in really difficult next step

next step

next step and that’s what harm reduction programs

and that’s what harm reduction programs

and that’s what harm reduction programs do they meet people at where they’re

do they meet people at where they’re

do they meet people at where they’re where they’re at in their addiction

where they’re at in their addiction

where they’re at in their addiction provide them with services that they

provide them with services that they

provide them with services that they need to protect their health while they

need to protect their health while they

need to protect their health while they are still actively using drugs until

are still actively using drugs until

are still actively using drugs until they’re ready to get that next step for

they’re ready to get that next step for

they’re ready to get that next step for help

help

help syringe exchange programs are also

syringe exchange programs are also

syringe exchange programs are also highly effective in the time since

highly effective in the time since

highly effective in the time since syringe exchange programs have been

syringe exchange programs have been

syringe exchange programs have been implemented in the United States the

implemented in the United States the

implemented in the United States the numbers of injection related

numbers of injection related

numbers of injection related transmissions of HIV have dropped by

transmissions of HIV have dropped by

transmissions of HIV have dropped by over 80 percent as a young researcher I

over 80 percent as a young researcher I

over 80 percent as a young researcher I knew about this literature I was excited

knew about this literature I was excited

knew about this literature I was excited about it I was happy to talk about this

about it I was happy to talk about this

about it I was happy to talk about this to anyone who would listen that is until

to anyone who would listen that is until

to anyone who would listen that is until I became a federal employee in a

I became a federal employee in a

I became a federal employee in a conservative administration as a program

conservative administration as a program

conservative administration as a program officer for HIV prevention clinical

officer for HIV prevention clinical

officer for HIV prevention clinical trials for injection drug users I would

trials for injection drug users I would

trials for injection drug users I would travel to various places in the world

travel to various places in the world

travel to various places in the world and meet with our research teams and our

and meet with our research teams and our

and meet with our research teams and our participants and I would talk to

participants and I would talk to

participants and I would talk to community members who were thrilled to

community members who were thrilled to

community members who were thrilled to have these programs in their community

have these programs in their community

have these programs in their community they thought this was great to help keep

they thought this was great to help keep

they thought this was great to help keep the hiv-negative people negative but HIV

the hiv-negative people negative but HIV

the hiv-negative people negative but HIV positive people needed something as well

positive people needed something as well

positive people needed something as well and they knew the literature on syringe

and they knew the literature on syringe

and they knew the literature on syringe exchange they knew about its

exchange they knew about its

exchange they knew about its effectiveness and they thought that this

effectiveness and they thought that this

effectiveness and they thought that this in addition to her program was what they

in addition to her program was what they

in addition to her program was what they needed to help fight their epidemic and

needed to help fight their epidemic and

needed to help fight their epidemic and could I please help them start a syringe

could I please help them start a syringe

could I please help them start a syringe exchange program the problem was that I

exchange program the problem was that I

exchange program the problem was that I couldn’t the administration believed

couldn’t the administration believed

couldn’t the administration believed that syringe exchange was tantamount to

that syringe exchange was tantamount to

that syringe exchange was tantamount to promoting and condoning drug use despite

promoting and condoning drug use despite

promoting and condoning drug use despite the research evidence showing no

the research evidence showing no

the research evidence showing no association between syringe exchange

association between syringe exchange

association between syringe exchange programs and increased drug use or

programs and increased drug use or

programs and increased drug use or increased crime there is also

increased crime there is also

increased crime there is also legislation that forbade the use of

legislation that forbade the use of

legislation that forbade the use of federal funding for such programs and I

federal funding for such programs and I

federal funding for such programs and I as a federal employee could not even say

as a federal employee could not even say

as a federal employee could not even say the words syringe exchange or harm

the words syringe exchange or harm

the words syringe exchange or harm reduction I was a federal employee but I

reduction I was a federal employee but I

reduction I was a federal employee but I was also a scientist and this pissed-off

was also a scientist and this pissed-off

was also a scientist and this pissed-off scientist did not take kindly to being

scientist did not take kindly to being

scientist did not take kindly to being censored so I’d left that job and went

censored so I’d left that job and went

censored so I’d left that job and went into policy and advocacy work I would

into policy and advocacy work I would

into policy and advocacy work I would channel

channel

channel my anger into changing these policies in

my anger into changing these policies in

my anger into changing these policies in addition to the ban on the use of

addition to the ban on the use of

addition to the ban on the use of federal funding for syringe exchange

federal funding for syringe exchange

federal funding for syringe exchange there is also a special situation in the

there is also a special situation in the

there is also a special situation in the District of Columbia you see despite

District of Columbia you see despite

District of Columbia you see despite this federal ban every state city and

this federal ban every state city and

this federal ban every state city and locality had the autonomy to use their

locality had the autonomy to use their

locality had the autonomy to use their own revenue to support syringe exchange

own revenue to support syringe exchange

own revenue to support syringe exchange programs if they so desired every city

programs if they so desired every city

programs if they so desired every city except Washington DC which was subject

except Washington DC which was subject

except Washington DC which was subject to congressional oversight DC which in

to congressional oversight DC which in

to congressional oversight DC which in 2007 had a 3% prevalence rate of HIV in

2007 had a 3% prevalence rate of HIV in

2007 had a 3% prevalence rate of HIV in an area of 68 square miles to put this

an area of 68 square miles to put this

an area of 68 square miles to put this in perspective a generalized epidemic is

in perspective a generalized epidemic is

in perspective a generalized epidemic is one in which there is a greater than 1

one in which there is a greater than 1

one in which there is a greater than 1 percent prevalence rate in the general

percent prevalence rate in the general

percent prevalence rate in the general population Nigeria has a 3.1 percent

population Nigeria has a 3.1 percent

population Nigeria has a 3.1 percent prevalence rate and is ranked 20th in

prevalence rate and is ranked 20th in

prevalence rate and is ranked 20th in the world in terms of HIV prevalence the

the world in terms of HIV prevalence the

the world in terms of HIV prevalence the US has a point 6 percent prevalence rate

US has a point 6 percent prevalence rate

US has a point 6 percent prevalence rate and is ranked 65th in the world in terms

and is ranked 65th in the world in terms

and is ranked 65th in the world in terms of HIV prevalence if the District of

of HIV prevalence if the District of

of HIV prevalence if the District of Columbia were a country it would be

Columbia were a country it would be

Columbia were a country it would be ranked 21st in the world in terms of HIV

ranked 21st in the world in terms of HIV

ranked 21st in the world in terms of HIV prevalence DC in which injection related

prevalence DC in which injection related

prevalence DC in which injection related transmissions accounted for 18 percent

transmissions accounted for 18 percent

transmissions accounted for 18 percent of the living cases of AIDS in the city

of the living cases of AIDS in the city

of the living cases of AIDS in the city DC in which transmission by injecting

DC in which transmission by injecting

DC in which transmission by injecting drug use affected the city’s most

drug use affected the city’s most

drug use affected the city’s most marginalized citizens in the city’s most

marginalized citizens in the city’s most

marginalized citizens in the city’s most disadvantaged neighborhoods DC which was

disadvantaged neighborhoods DC which was

disadvantaged neighborhoods DC which was the only place in the United States that

the only place in the United States that

the only place in the United States that could not use its own revenue to respond

could not use its own revenue to respond

could not use its own revenue to respond to its own epidemic this was a city of

to its own epidemic this was a city of

to its own epidemic this was a city of people being held captive by a law that

people being held captive by a law that

people being held captive by a law that was created by legislators who did not

was created by legislators who did not

was created by legislators who did not represent them and naturally this made

represent them and naturally this made

represent them and naturally this made me angry fortunately I was not alone in

me angry fortunately I was not alone in

me angry fortunately I was not alone in my anger my colleagues and advocacy in

my anger my colleagues and advocacy in

my anger my colleagues and advocacy in policy and I worked hard to try to get

policy and I worked hard to try to get

policy and I worked hard to try to get this language removed so that prevention

this language removed so that prevention

this language removed so that prevention services could be available to injection

services could be available to injection

services could be available to injection drug users in December of 2007 President

drug users in December of 2007 President

drug users in December of 2007 President George W Bush

George W Bush

George W Bush sighs the 2008 financial services bill

sighs the 2008 financial services bill

sighs the 2008 financial services bill into law for the first time in ten years

into law for the first time in ten years

into law for the first time in ten years this legislation did not contain

this legislation did not contain

this legislation did not contain language that prohibited DC from using

language that prohibited DC from using

language that prohibited DC from using its money for syringe exchange that

its money for syringe exchange that

its money for syringe exchange that meant for the first time in ten years

meant for the first time in ten years

meant for the first time in ten years DC cos uses its own money to respond to

DC cos uses its own money to respond to

DC cos uses its own money to respond to its own epidemic in early 2008 mayor

its own epidemic in early 2008 mayor

its own epidemic in early 2008 mayor Adrian Fenty allocated six hundred and

Adrian Fenty allocated six hundred and

Adrian Fenty allocated six hundred and fifty thousand dollars to the DC

fifty thousand dollars to the DC

fifty thousand dollars to the DC Department of Health to expand syringe

Department of Health to expand syringe

Department of Health to expand syringe exchange to reduce infection for

exchange to reduce infection for

exchange to reduce infection for injection drug users the money went to

injection drug users the money went to

injection drug users the money went to four organizations to create a network

four organizations to create a network

four organizations to create a network to provide comprehensive harm reduction

to provide comprehensive harm reduction

to provide comprehensive harm reduction services including syringe exchange to

services including syringe exchange to

services including syringe exchange to the city’s injectors so I thought this

the city’s injectors so I thought this

the city’s injectors so I thought this was amazing

was amazing

was amazing finally we had achieved this victory

finally we had achieved this victory

finally we had achieved this victory this progress but the researcher in me

this progress but the researcher in me

this progress but the researcher in me said we’ve got to evaluate this we’ve

said we’ve got to evaluate this we’ve

said we’ve got to evaluate this we’ve got to see if this change in policy

got to see if this change in policy

got to see if this change in policy really had an impact on the number of

really had an impact on the number of

really had an impact on the number of new infections associated with injection

new infections associated with injection

new infections associated with injection drug use when I left the world of

drug use when I left the world of

drug use when I left the world of advocacy and joined GW as faculty

advocacy and joined GW as faculty

advocacy and joined GW as faculty writing a grant to answer this research

writing a grant to answer this research

writing a grant to answer this research question was my first order of business

question was my first order of business

question was my first order of business to my great delight the proposal was

to my great delight the proposal was

to my great delight the proposal was funded I assembled a team and we began

funded I assembled a team and we began

funded I assembled a team and we began our work and here’s what we found in

our work and here’s what we found in

our work and here’s what we found in this graph the blue line the blue wavy

this graph the blue line the blue wavy

this graph the blue line the blue wavy line represents HIV surveillance data

line represents HIV surveillance data

line represents HIV surveillance data reported by the DC Department of Health

reported by the DC Department of Health

reported by the DC Department of Health these are HIV infections associated with

these are HIV infections associated with

these are HIV infections associated with injection drug use and we looked at the

injection drug use and we looked at the

injection drug use and we looked at the period following the implementation of

period following the implementation of

period following the implementation of that policy change that’s the red

that policy change that’s the red

that policy change that’s the red vertical line you see up there that’s

vertical line you see up there that’s

vertical line you see up there that’s when the policy change actually took

when the policy change actually took

when the policy change actually took effect what the surveillance data show

effect what the surveillance data show

effect what the surveillance data show is that in those two years following the

is that in those two years following the

is that in those two years following the implementation of the policy change

implementation of the policy change

implementation of the policy change we saw 176 HIV infections associated

we saw 176 HIV infections associated

we saw 176 HIV infections associated with injection drug use now our team

with injection drug use now our team

with injection drug use now our team used mathematical modeling and time

used mathematical modeling and time

used mathematical modeling and time series analysis to estimate what would

series analysis to estimate what would

series analysis to estimate what would have happened had that policy not

have happened had that policy not

have happened had that policy not changed had the things remained the same

changed had the things remained the same

changed had the things remained the same our models

our models

our models found or estimated 296 infections would

found or estimated 296 infections would

found or estimated 296 infections would have occurred in that same two-year time

have occurred in that same two-year time

have occurred in that same two-year time period 296 expected infections versus

period 296 expected infections versus

period 296 expected infections versus 176 actual infections this is the

176 actual infections this is the

176 actual infections this is the difference of 120 averted infections due

difference of 120 averted infections due

difference of 120 averted infections due to the fact that DC could use its own

to the fact that DC could use its own

to the fact that DC could use its own money for syringe exchange to respond to

money for syringe exchange to respond to

money for syringe exchange to respond to its own epidemic what does this mean in

its own epidemic what does this mean in

its own epidemic what does this mean in terms of cost savings the majority of DC

terms of cost savings the majority of DC

terms of cost savings the majority of DC residents who are receiving HIV care are

residents who are receiving HIV care are

residents who are receiving HIV care are doing so through publicly funded

doing so through publicly funded

doing so through publicly funded insurance programs that are supported by

insurance programs that are supported by

insurance programs that are supported by taxpayer dollars HIV is a chronic

taxpayer dollars HIV is a chronic

taxpayer dollars HIV is a chronic manageable disease now which is

manageable disease now which is

manageable disease now which is fantastic but it’s not cheap the Centers

fantastic but it’s not cheap the Centers

fantastic but it’s not cheap the Centers for Disease Control and Prevention

for Disease Control and Prevention

for Disease Control and Prevention estimate that it costs approximately

estimate that it costs approximately

estimate that it costs approximately three hundred and eighty thousand

three hundred and eighty thousand

three hundred and eighty thousand dollars for lifetime of HIV care if you

dollars for lifetime of HIV care if you

dollars for lifetime of HIV care if you multiply that $380,000 times one hundred

multiply that $380,000 times one hundred

multiply that $380,000 times one hundred and twenty averted infections what you

and twenty averted infections what you

and twenty averted infections what you get is a cost savings of forty five

get is a cost savings of forty five

get is a cost savings of forty five point six million dollars in two years

point six million dollars in two years

point six million dollars in two years what while this estimate does not take

what while this estimate does not take

what while this estimate does not take into account the treatment of Ko

into account the treatment of Ko

into account the treatment of Ko infections such as Hep C and addiction

infections such as Hep C and addiction

infections such as Hep C and addiction it does attest to the fact that syringe

it does attest to the fact that syringe

it does attest to the fact that syringe exchange not only provides individual

exchange not only provides individual

exchange not only provides individual benefit but it provides community

benefit but it provides community

benefit but it provides community benefit so this is pretty cool right

benefit so this is pretty cool right

benefit so this is pretty cool right I think so you’re probably thinking well

I think so you’re probably thinking well

I think so you’re probably thinking well Monica there’s no need to be angry

Monica there’s no need to be angry

Monica there’s no need to be angry anymore your research has been

anymore your research has been

anymore your research has been successful these findings are cool

successful these findings are cool

successful these findings are cool they’re great it’s all good right wrong

they’re great it’s all good right wrong

they’re great it’s all good right wrong the anger persists the anger persists

the anger persists the anger persists

the anger persists the anger persists because in this fourth decade of this

because in this fourth decade of this

because in this fourth decade of this epidemic and with much better and more

epidemic and with much better and more

epidemic and with much better and more effective HIV prevention and treatment

effective HIV prevention and treatment

effective HIV prevention and treatment options there are still young men and

options there are still young men and

options there are still young men and women being infected with a completely

women being infected with a completely

women being infected with a completely preventable disease the anger persists

preventable disease the anger persists

preventable disease the anger persists because there are still people in this

because there are still people in this

because there are still people in this country of all ages all races

country of all ages all races

country of all ages all races all genders and all political

all genders and all political

all genders and all political affiliations who do not have access to

affiliations who do not have access to

affiliations who do not have access to care or who are at risk of having their

care or who are at risk of having their

care or who are at risk of having their health care be taken away the anger

health care be taken away the anger

health care be taken away the anger persists because in 2017 we are still

persists because in 2017 we are still

persists because in 2017 we are still being told that we deserve negative

being told that we deserve negative

being told that we deserve negative health and social outcomes because of

health and social outcomes because of

health and social outcomes because of who we are who we love how we worship or

who we are who we love how we worship or

who we are who we love how we worship or where we’re from the anger persists

where we’re from the anger persists

where we’re from the anger persists because we are living in an age where

because we are living in an age where

because we are living in an age where science continues to be denied

science continues to be denied

science continues to be denied threatened and censored these are

threatened and censored these are

threatened and censored these are perilous times for social justice so

perilous times for social justice so

perilous times for social justice so what’s my advice to you stay angry my

what’s my advice to you stay angry my

what’s my advice to you stay angry my friends stay angry thank you

friends stay angry thank you

friends stay angry thank you [Applause]

[Music]

[Music] you

”

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