Press "Enter" to skip to content

Powerful Sharing: It Doesn’t Have To Be a Kidney | Sue Volpe | TEDxCollingwood


so when I was 22 I decided to ditch my

so when I was 22 I decided to ditch my plans for Law School and check out the

plans for Law School and check out the

plans for Law School and check out the entertainment industry I just needed to

entertainment industry I just needed to

entertainment industry I just needed to know if it was for me so I left school

know if it was for me so I left school

know if it was for me so I left school said goodbye to my family in small town

said goodbye to my family in small town

said goodbye to my family in small town su st. Marie Canada yes they were having

su st. Marie Canada yes they were having

su st. Marie Canada yes they were having a heart attack and bought a one-way

a heart attack and bought a one-way

a heart attack and bought a one-way ticket to LA I didn’t know anyone but I

ticket to LA I didn’t know anyone but I

ticket to LA I didn’t know anyone but I didn’t care

didn’t care

didn’t care I knew it’s what I needed to do that’s

I knew it’s what I needed to do that’s

I knew it’s what I needed to do that’s where I met the Caesar family I was

where I met the Caesar family I was

where I met the Caesar family I was hired by a nanny agency to do

hired by a nanny agency to do

hired by a nanny agency to do babysitting work for them we clicked

babysitting work for them we clicked

babysitting work for them we clicked immediately I just fell in love with

immediately I just fell in love with

immediately I just fell in love with them they became my la family if I ever

them they became my la family if I ever

them they became my la family if I ever needed anything I called them and trust

needed anything I called them and trust

needed anything I called them and trust me their phone rang I was just a kid

me their phone rang I was just a kid

me their phone rang I was just a kid right and broke and alone fast-forward

right and broke and alone fast-forward

right and broke and alone fast-forward 22 years later I spent 11 of those years

22 years later I spent 11 of those years

22 years later I spent 11 of those years in LA then spent a few years in Victoria

in LA then spent a few years in Victoria

in LA then spent a few years in Victoria BC and then settled into beautiful

BC and then settled into beautiful

BC and then settled into beautiful Collingwood Ontario life has moved on

Collingwood Ontario life has moved on

Collingwood Ontario life has moved on marriage children divorce the scissors

marriage children divorce the scissors

marriage children divorce the scissors and I always kept in touch they were a

and I always kept in touch they were a

and I always kept in touch they were a part of my tribe but you know how it is

part of my tribe but you know how it is

part of my tribe but you know how it is we could go years without seeing each

we could go years without seeing each

we could go years without seeing each other or even talking but no matter what

other or even talking but no matter what

other or even talking but no matter what there was always that connection and I

there was always that connection and I

there was always that connection and I knew we were always there for each other

knew we were always there for each other

knew we were always there for each other last year January 27 2016 I saw a post

last year January 27 2016 I saw a post

last year January 27 2016 I saw a post on Facebook from Andy the husband he was

on Facebook from Andy the husband he was

on Facebook from Andy the husband he was pleading for his wife’s life Randy had a

pleading for his wife’s life Randy had a

pleading for his wife’s life Randy had a genetic kidney disease the very same one

genetic kidney disease the very same one

genetic kidney disease the very same one that kills her father when she was only

that kills her father when she was only

that kills her father when she was only 2 now both of her kidneys were failing

2 now both of her kidneys were failing

2 now both of her kidneys were failing and she needed a new kidney the doctors

and she needed a new kidney the doctors

and she needed a new kidney the doctors at UCLA told her she had one month to a

at UCLA told her she had one month to a

at UCLA told her she had one month to a year to find one that had been three

year to find one that had been three

year to find one that had been three months prior because it was a genetic

months prior because it was a genetic

months prior because it was a genetic disease nobody in her family qualified

disease nobody in her family qualified

disease nobody in her family qualified and her husband was on medication so he

and her husband was on medication so he

and her husband was on medication so he couldn’t help my god like my heart sank

couldn’t help my god like my heart sank

couldn’t help my god like my heart sank I had no idea time was running out and

I had no idea time was running out and

I had no idea time was running out and Randy was dying I needed to help her I

Randy was dying I needed to help her I

Randy was dying I needed to help her I knew I could

knew I could

knew I could in my mind I knew I was the person to do

in my mind I knew I was the person to do

in my mind I knew I was the person to do this I had spent my entire life taking

this I had spent my entire life taking

this I had spent my entire life taking excellent care of my health in my body

excellent care of my health in my body

excellent care of my health in my body what better way to make use of that so

what better way to make use of that so

what better way to make use of that so right away I called up Andy and I’m like

right away I called up Andy and I’m like

right away I called up Andy and I’m like Andy oh my god why didn’t you tell me

Andy oh my god why didn’t you tell me

Andy oh my god why didn’t you tell me why didn’t you ask me and he was like um

why didn’t you ask me and he was like um

why didn’t you ask me and he was like um what like yeah of course I’ve got to she

what like yeah of course I’ve got to she

what like yeah of course I’ve got to she can have one of mine so he referred me

can have one of mine so he referred me

can have one of mine so he referred me to the UCLA website where I had to

to the UCLA website where I had to

to the UCLA website where I had to officially applied to be a donor be

officially applied to be a donor be

officially applied to be a donor be assigned a coordinator and then begin

assigned a coordinator and then begin

assigned a coordinator and then begin the process of determining if I was

the process of determining if I was

the process of determining if I was eligible only 17% of all people who

eligible only 17% of all people who

eligible only 17% of all people who apply to be donors actually get accepted

apply to be donors actually get accepted

apply to be donors actually get accepted so while I was waiting to hear back from

so while I was waiting to hear back from

so while I was waiting to hear back from my coordinator I spent hours and days

my coordinator I spent hours and days

my coordinator I spent hours and days doing as much research and learning as

doing as much research and learning as

doing as much research and learning as much as I could yes I wanted this to

much as I could yes I wanted this to

much as I could yes I wanted this to happen but it also had to be good for me

happen but it also had to be good for me

happen but it also had to be good for me my kids in my life so as I had expected

my kids in my life so as I had expected

my kids in my life so as I had expected if you’re healthy and they only accept

if you’re healthy and they only accept

if you’re healthy and they only accept extraordinarily healthy people you can

extraordinarily healthy people you can

extraordinarily healthy people you can live a very happy healthy and long life

live a very happy healthy and long life

live a very happy healthy and long life with only one kidney as a matter of fact

with only one kidney as a matter of fact

with only one kidney as a matter of fact most kidney donors live longer than the

most kidney donors live longer than the

most kidney donors live longer than the average population maybe it’s because

average population maybe it’s because

average population maybe it’s because we’re healthier in the first place

we’re healthier in the first place

we’re healthier in the first place or maybe it’s because doing something

or maybe it’s because doing something

or maybe it’s because doing something good makes you happier therefore live

good makes you happier therefore live

good makes you happier therefore live longer so I really trusted UCLA they had

longer so I really trusted UCLA they had

longer so I really trusted UCLA they had a great world-renowned reputation I felt

a great world-renowned reputation I felt

a great world-renowned reputation I felt safe with them so my decision was made

safe with them so my decision was made

safe with them so my decision was made up as long as my family was ok with this

up as long as my family was ok with this

up as long as my family was ok with this I was going to do it so I proceeded to

I was going to do it so I proceeded to

I was going to do it so I proceeded to share my decision with the people I love

share my decision with the people I love

share my decision with the people I love you know giving them as much information

you know giving them as much information

you know giving them as much information I could putting them or their minds at

I could putting them or their minds at

I could putting them or their minds at ease making sure I had their support all

ease making sure I had their support all

ease making sure I had their support all the people in my life rock like truly

the people in my life rock like truly

the people in my life rock like truly even if they were afraid they knew I

even if they were afraid they knew I

even if they were afraid they knew I would never make such a big decision on

would never make such a big decision on

would never make such a big decision on gut feeling alone yes my gut may have

gut feeling alone yes my gut may have

gut feeling alone yes my gut may have prompted this but I substantiated that

prompted this but I substantiated that

prompted this but I substantiated that knowing with thorough research caring

knowing with thorough research caring

knowing with thorough research caring and a highly competent team of medical

and a highly competent team of medical

and a highly competent team of medical professionals so the first round of

professionals so the first round of

professionals so the first round of tests came back yes we were a match I

tests came back yes we were a match I

tests came back yes we were a match I couldn’t believe it of course I knew it

couldn’t believe it of course I knew it

couldn’t believe it of course I knew it was gonna happen but I was so excited

was gonna happen but I was so excited

was gonna happen but I was so excited Randy was going to get my kidney and

Randy was going to get my kidney and

Randy was going to get my kidney and then she would be healthy again may be

then she would be healthy again may be

then she would be healthy again may be healthier than ever

healthier than ever

healthier than ever we would be like sisters in fact we were

we would be like sisters in fact we were

we would be like sisters in fact we were such a match as close as sisters the

such a match as close as sisters the

such a match as close as sisters the only way we could have been closer as if

only way we could have been closer as if

only way we could have been closer as if we were twins

we were twins

we were twins I don’t know pretty cool I do want to

I don’t know pretty cool I do want to

I don’t know pretty cool I do want to point out though that I had already

point out though that I had already

point out though that I had already decided that even if I wasn’t a match I

decided that even if I wasn’t a match I

decided that even if I wasn’t a match I would still give one of my kidneys so

would still give one of my kidneys so

would still give one of my kidneys so that Randy would have one they have

that Randy would have one they have

that Randy would have one they have what’s called a paired kidney exchange

what’s called a paired kidney exchange

what’s called a paired kidney exchange program basically it’s like an organ

program basically it’s like an organ

program basically it’s like an organ pool where I give my kidney whoever that

pool where I give my kidney whoever that

pool where I give my kidney whoever that matches they get and then Randy gets one

matches they get and then Randy gets one

matches they get and then Randy gets one so it’s pretty cool okay so enter May 11

so it’s pretty cool okay so enter May 11

so it’s pretty cool okay so enter May 11 2016 5 a.m. UCLA Medical Center two of

2016 5 a.m. UCLA Medical Center two of

2016 5 a.m. UCLA Medical Center two of the strongest and most competent medical

the strongest and most competent medical

the strongest and most competent medical teams in all of North America surgical

teams in all of North America surgical

teams in all of North America surgical teams in all of North America two

teams in all of North America two

teams in all of North America two patients who had travelled a long

patients who had travelled a long

patients who had travelled a long journey of 22 years alongside and apart

journey of 22 years alongside and apart

journey of 22 years alongside and apart from each other soon to be sharing more

from each other soon to be sharing more

from each other soon to be sharing more than an organ side-by-side we were doing

than an organ side-by-side we were doing

than an organ side-by-side we were doing it no part of this day could have

it no part of this day could have

it no part of this day could have happened without every single player

happened without every single player

happened without every single player playing their part I knew I was exactly

playing their part I knew I was exactly

playing their part I knew I was exactly where I needed to be I knew we would ace

where I needed to be I knew we would ace

where I needed to be I knew we would ace this I would go back to my kids in

this I would go back to my kids in

this I would go back to my kids in Canada and Randy would go back to saving

Canada and Randy would go back to saving

Canada and Randy would go back to saving people’s lives as a cardiac critical

people’s lives as a cardiac critical

people’s lives as a cardiac critical care nurse and we did we aced it we were

care nurse and we did we aced it we were

care nurse and we did we aced it we were rock stars as a matter of fact the

rock stars as a matter of fact the

rock stars as a matter of fact the surgeon who put my kidney into Randy

surgeon who put my kidney into Randy

surgeon who put my kidney into Randy came over after the procedure to

came over after the procedure to

came over after the procedure to introduce himself he said I just have to

introduce himself he said I just have to

introduce himself he said I just have to meet the owner of this superstar kidney

meet the owner of this superstar kidney

meet the owner of this superstar kidney no I’m serious listen T it may start at

no I’m serious listen T it may start at

no I’m serious listen T it may start at working before he had even finished

working before he had even finished

working before he had even finished putting it in it was like it just needed

putting it in it was like it just needed

putting it in it was like it just needed to get to work yeah classic zubaba yeah

to get to work yeah classic zubaba yeah

to get to work yeah classic zubaba yeah anyway it’s really cool

anyway it’s really cool

anyway it’s really cool so this is our akin me I asked them to

so this is our akin me I asked them to

so this is our akin me I asked them to video the procedure or to let me watch

video the procedure or to let me watch

video the procedure or to let me watch it live but I had us too late next time

it live but I had us too late next time

it live but I had us too late next time so I got home I was only in the hospital

so I got home I was only in the hospital

so I got home I was only in the hospital for two nights and Randy was there for

for two nights and Randy was there for

for two nights and Randy was there for about six or seven here we are the day

about six or seven here we are the day

about six or seven here we are the day she got home from the hospital less than

she got home from the hospital less than

she got home from the hospital less than three and a half months earlier I heard

three and a half months earlier I heard

three and a half months earlier I heard my friend was going to die but we didn’t

my friend was going to die but we didn’t

my friend was going to die but we didn’t let that happen we all came together and

let that happen we all came together and

let that happen we all came together and made this happen instead now Randy is

made this happen instead now Randy is

made this happen instead now Randy is working long 12-hour shifts as a nurse

working long 12-hour shifts as a nurse

working long 12-hour shifts as a nurse at a hospital walking five miles a day

at a hospital walking five miles a day

at a hospital walking five miles a day and doing yoga truly amazing what I have

and doing yoga truly amazing what I have

and doing yoga truly amazing what I have learned from this entire experience is

learned from this entire experience is

learned from this entire experience is we need each other

we need each other

we need each other Randy needed me her family her friends

Randy needed me her family her friends

Randy needed me her family her friends and the entire surgical team could not

and the entire surgical team could not

and the entire surgical team could not have done this without me I was one

have done this without me I was one

have done this without me I was one small but necessary part of this much

small but necessary part of this much

small but necessary part of this much bigger machine so I’m not here to say

bigger machine so I’m not here to say

bigger machine so I’m not here to say you should go out and donate a kidney of

you should go out and donate a kidney of

you should go out and donate a kidney of course if you can and you want to go for

course if you can and you want to go for

course if you can and you want to go for it like it’ll change your life forever

it like it’ll change your life forever

it like it’ll change your life forever but what I am saying is there are tons

but what I am saying is there are tons

but what I am saying is there are tons of things that we can be doing and we

of things that we can be doing and we

of things that we can be doing and we can be sharing the point is we cannot do

can be sharing the point is we cannot do

can be sharing the point is we cannot do this alone on a micro and a macro level

this alone on a micro and a macro level

this alone on a micro and a macro level we have gone too far on insisting on

we have gone too far on insisting on

we have gone too far on insisting on this independence it’s like this hyper

this independence it’s like this hyper

this independence it’s like this hyper independence from infancy to elderly

independence from infancy to elderly

independence from infancy to elderly we’ve become obsessed with it and it’s a

we’ve become obsessed with it and it’s a

we’ve become obsessed with it and it’s a faulty system even when we try to force

faulty system even when we try to force

faulty system even when we try to force independence our natural need our

independence our natural need our

independence our natural need our natural desire and our natural wiring

natural desire and our natural wiring

natural desire and our natural wiring drives us to come together according to

drives us to come together according to

drives us to come together according to the Smithsonian National Museum of

the Smithsonian National Museum of

the Smithsonian National Museum of Natural History coming together is what

Natural History coming together is what

Natural History coming together is what has supported us over millions of years

has supported us over millions of years

has supported us over millions of years to withstand and survive challenges and

to withstand and survive challenges and

to withstand and survive challenges and life-threatening situations maybe that’s

life-threatening situations maybe that’s

life-threatening situations maybe that’s why I had a second healthy kidney so I

why I had a second healthy kidney so I

why I had a second healthy kidney so I can ensure Randy’s survival and

can ensure Randy’s survival and

can ensure Randy’s survival and therefore ensure the survival of her

therefore ensure the survival of her

therefore ensure the survival of her future patients

future patients

future patients we all have something that someone else

we all have something that someone else

we all have something that someone else does not have something that can support

does not have something that can support

does not have something that can support our tribe if we choose to you know maybe

our tribe if we choose to you know maybe

our tribe if we choose to you know maybe you you live next to an overwhelmed

you you live next to an overwhelmed

you you live next to an overwhelmed single parent and you can offer to mow

single parent and you can offer to mow

single parent and you can offer to mow her lawn for a day or for the season you

her lawn for a day or for the season you

her lawn for a day or for the season you know maybe you can make some homemade

know maybe you can make some homemade

know maybe you can make some homemade meals or share your leftovers with with

meals or share your leftovers with with

meals or share your leftovers with with someone who is elderly or alone you know

someone who is elderly or alone you know

someone who is elderly or alone you know maybe you’ve got an extra room in your

maybe you’ve got an extra room in your

maybe you’ve got an extra room in your house to rent out to accommodate this

house to rent out to accommodate this

house to rent out to accommodate this rental shortage hey if you’d like to

rental shortage hey if you’d like to

rental shortage hey if you’d like to walk dogs offer to walk your friends dog

walk dogs offer to walk your friends dog

walk dogs offer to walk your friends dog you know there are so many things we can

you know there are so many things we can

you know there are so many things we can do these things may not seem like big

do these things may not seem like big

do these things may not seem like big things to you because you have them but

things to you because you have them but

things to you because you have them but for the person who doesn’t they are huge

for the person who doesn’t they are huge

for the person who doesn’t they are huge what do you have two of that maybe you

what do you have two of that maybe you

what do you have two of that maybe you don’t need but someone else does what

don’t need but someone else does what

don’t need but someone else does what can you share starting today if you’re

can you share starting today if you’re

can you share starting today if you’re lucky maybe you too can be one small but

lucky maybe you too can be one small but

lucky maybe you too can be one small but very necessary part of a much bigger

very necessary part of a much bigger

very necessary part of a much bigger magical machine I hope so

magical machine I hope so

magical machine I hope so [Applause]

”

Be First to Comment

Leave a Reply

Your email address will not be published. Required fields are marked *