the story of which one comes here to
defend is humanity and freedom
freedom above all things and
I come to defend thousands of people who
suffer their last days or years that the
suffering if it is maximally
unbearable to those people like san pedros
carlos montserrat volta ruiz de marcos y
so many that still can not
decide how to end your life or
end the suffering that is done
totally unbearable to understand
that is the human dilemma is almost
impossible until one lives it and is what
that I want to transmit and try
for a moment think in a moment
what would happen if any of us
when leaving a medical consultation we
report a serious illness or
terminal without exit and that we are not going to
die a cancer that is incurable that does not
you can operate that has no way of
solution a neurological disease
chronic degenerative that will not go
retiring little by little we go virtus that
it almost falls into the same category
I would like you not to think in a moment
nothing else they could feel before
such news a moment nothing more
and surely no one would get to
understand it
nobody could come to understand the
magnitude of such news
what is clear is that from the
moment of the news has changed everything
my life changed in a second
exactly appeared as if there
seriously ill it was no longer
the same
what we were looking at did not have the same
colors to our children we can not
look alike everything was uncertainty
absolute but I was not going to die
imagine for a moment that we have
amyotrophic lateral sclerosis that is
the disease that unfortunately today
advocate those patients who look
deteriorated continuously
imagine for a moment that from the
be well, we happen to be more and more
of emigrants with ourselves who do not
we can raise a hand what is it
that we had been doing for 24 hours,
we can do that we will not walk that
we can feed ourselves
that we do not know what we are
we will forget about losing
we will lose little by little the notion of the
reality that we can not even talk about
they were not a spoon the food that did not
They will clean diapers up to stiffness
more extreme and this in a long period
of time
this is unworthiness if someone requests
what is suffering most
unbearable is finished is not that today
how dying people knew this
doctor
the vast majority of people die
intubated in the usi and apparently in the
better of death because we’re fine
care
someone can tell those patients
that today die in hospitals not
you have no memory so what for
suffer someone can decide for that
patient who wants to fight until the
final does not matter the consequences and its
been we can say no to that
people we do not do they have their right to
die worthily
that way the patient who really
can not anymore
the patient they really say do not give
more listen to me help me
my forces are finished is supported
edurado and tried to get ahead
I can not I can not look at myself not
I can talk to the people I want not
humiliate me more because it is the
definition of dignity is
take responsibility for the same
value yourself without reaching the
humiliation and totally to the
denigration as said savior pániker
I do not want to reach decrepitude
lack of decrepitude so that the
he is convinced that it is not to see your
progressive deterioration
someone can deny that human request
that freedom to be able to choose to decide
not suffer the same and not see suffer at
that one loves
what is the argument against this
there are and you have to accept it because
fact exists and the rights of these
people who do not think he respects the
decision to end suffering
unbearable human is something that is not
should do and this is a right and the
we have to achieve it all
who are in favor of a dignified death to
through a doctor’s help and the
that are not in favor because for that
we fight everything so that the world is
better to really be a
more just society so that it does not
privileges so many and even one
person who asks please die for not
suffer not to be heard and we look at another
Side me with Carmen does not look on the other side
I heard his pain and he has me
I got in because I felt son I felt
father I felt brother
I was there although medically not
there was nothing else to do after
have fought my humanity in that
moment he could not look away and
I am sorry many times I have
I asked if I regretted the fact
I never regret the conviction of
to have made the best human gesture
my whole life never the damage caused and
later if mine of my family and of
my children
dignity is something that depends on one and
for that we have to fight all the
rights
arise from the indignations of others
because this is a right that would have
to be within human rights
universal and they do not exist against
nothing and the arguments that are against
that exist as for example the
Hippocratic Oath
they say that doctors only have
that save lives
the doctors to the move plus the best
we have to heal
we do not always save life not always
let’s try to save lives and
resuscitate cardiorespiratory arrest
there is the most just because his son
has a fever a broken finger
after hitting a city no longer
we are the same
we are also for that and in the end
of life if someone asks you please
help me doctor because I can not
endure more this pain
we are saving a life of suffering
a life that is no longer life if one lives
with continuous pain
that is to live if there is someone who for him
it’s not living and that can not take it anymore
how can it be that they are not heard
how can it be tilde to a
killer human doctor
how can it be that justice does not
act and be so unfair
even in death how can it be that
an act of absolute and total love
commitment to the sufferer is punished
sector I had I left it in misery and
your name is crossed out for the rest of
his life, since José was the best
I did in my life
instead of waiting for hearts to observe
people on the street I felt one more of
a patient that was not a number
it was not a bed it was not a pathology
He was a human being who solidarized me and
the best they really say that I
it cost twelve years of suffering
the message is not to be against or to
please this much more message
simple is to listen to the other respecting it is
Do not denigrate it, please do not ask
you died when we decide
when the system tells you when not
when you no longer want more fighting
for life
we say it the system is going to
say when the system exists I have already
said before the system exists people
dies in intensive therapy and if the
euthanasia that good death is a
crime
what a paradox it is for the others
medical issues
some will understand that going for everything in
medicine is useful and probably is if
the patient accepts it
If the patient understands what is done
if you listen to him you are asked
explains this more difficult everything die
with 20 bombs but they do not know what is
happening he did not ask anybody he wants
nobody asked him absolutely nothing
they will die as medicine always says
a tablet and in those patients who
out of respect for themselves they ask for
please I do not want to suffer anymore that is a
disease that is deteriorating little to
little that humbles you little by little that the
denigrate tea
we do not need to listen to them there is no
answer for this
this has to be a right this
it implies a risk for society
this implies that suddenly all the
mortality will increase not someone from this
ward wants to die
someone thinks about death something
important said this gentleman
there is a way that we understand all that
this one has to get ahead is
talking about it you have to talk about the
death
you have to sit at home and talk to
dad and mom and ask how he wants
die we do not speak this is one of the
better ways to prevent those who
we stay in life we do not have a
limbo of decisions that we do not stay
in a vacuum without really knowing what
our parents wanted us to do in their
final day is my father’s love I saw her
very bad the death of descending
the death of the agent that one loves is a
critical moment of life but the worst
is to see impairment the disability
my father died of a stroke during
two years
the detainee was tremendous the destruction
as a son he was tremendous
I not wish anyone does not hurt to
that if they want the person who is
seriously ill before an illness
incurable
in a medically situation
irreversible please ask him
listen to how they want to finish that and
all together all together without any
doubt
slowly because slow because 25 ago
years poured san pedro
we are getting closer they were more
close to listening to those people and that’s why
my story is one more grain in the
human suffering
you do not have to suffer another minute
of the necessary and again before a
irreversible medical situation
where there is no hope of
treatment and before an explicit request
to end human suffering
this ability to
decide to choose not to be afraid of
death
let’s understand bad life because
if we understand life
we will understand death more and not
we are afraid of death is something that is
part of life and the level of
doctors we must act in it
it is not a failure the death of a
patient in life that ends
because the only truth that we’re going to
die all and nobody wants to die with
law of euthanasia or without euthanasia law
nobody wants to die we all love life
to call life means to understand
death and take out that fear that is that
do not be an obstacle to us
very much more free to really
look at the face of truth life must
give it front and not be afraid of not
be afraid of death because there is no
that being afraid of life does not have to be
to be afraid to fight to get out
ahead
you do not have to be afraid of anything because
this what will not be strong and if
we come to this conclusion that it seems
something so easy that it is not
absolutely is not without any doubt
is the first step the previous step
understand if today what frames is here
defending a position when I
I got sick who guaranteed me that when
tell me what I have in the do not want
alternation and fight until the last
second of my life before dying and to
reverse
who can say those who do not
are in favor of a dignified death
when it’s time for them to have
a ferocious amyotrophic lateral and during
the course of the disease sits
so humiliated with the same one who asks for
please end your suffering there is no
black and white here even if they want it
paint black and white
this is life and understanding life is
understand death and fear
with this
to end the fear is a
obstacle have in life and you have to
avoid it
the fear is paralyzing it does not let move and
it’s something that without a doubt all
We are afraid to die, nobody to die
but if really in the course of
our lives
we try to live better to be
better people give a hand that
therapy to fight for the things that are
more just to defend the dignity of the
human being in life and in death
we will arrive network really I am very
convinced of it
after something really inside of
inner work to take out that taboo of
that we are going to die when he is
We finish really fear you
let’s lose this fear that one day
we will die and how to die I am
convinced very convinced that that day
that we lose the fear of dying
we will be really free thank you very much
[Applause]
”
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