hello as some of you know my name is Ellie Madeira and I’m here to talk to
Ellie Madeira and I’m here to talk to
Ellie Madeira and I’m here to talk to you about dyspraxia and how it affects
you about dyspraxia and how it affects
you about dyspraxia and how it affects my life so what is dyspraxia dyspraxia
my life so what is dyspraxia dyspraxia
my life so what is dyspraxia dyspraxia is a form of developmental coordination
is a form of developmental coordination
is a form of developmental coordination disorder affects gross and fine motor
disorder affects gross and fine motor
disorder affects gross and fine motor coordination and it can also affect
coordination and it can also affect
coordination and it can also affect speech in some people individuals may
speech in some people individuals may
speech in some people individuals may vary in how their difficulties present
vary in how their difficulties present
vary in how their difficulties present an analogy I have for you today
an analogy I have for you today
an analogy I have for you today dyspraxia is like your brain’s wires
dyspraxia is like your brain’s wires
dyspraxia is like your brain’s wires have been all jumbled up so say if you
have been all jumbled up so say if you
have been all jumbled up so say if you were playing football your brain would
were playing football your brain would
were playing football your brain would go from 1 to 2 to 3 to 4 to 5 and get 6
go from 1 to 2 to 3 to 4 to 5 and get 6
go from 1 to 2 to 3 to 4 to 5 and get 6 and you would catch the ball my brain
and you would catch the ball my brain
and you would catch the ball my brain goes from 1 to 2 to 3 to 42 back to a b
goes from 1 to 2 to 3 to 42 back to a b
goes from 1 to 2 to 3 to 42 back to a b c d e v 1 and by the time it’s gone in a
c d e v 1 and by the time it’s gone in a
c d e v 1 and by the time it’s gone in a full circle the ball has already hit me
full circle the ball has already hit me
full circle the ball has already hit me in the forehead dyspraxia is such a
in the forehead dyspraxia is such a
in the forehead dyspraxia is such a diverse condition that it links with all
diverse condition that it links with all
diverse condition that it links with all of these are the neurological disorders
of these are the neurological disorders
of these are the neurological disorders so OD d specific learning difficulties
so OD d specific learning difficulties
so OD d specific learning difficulties ADHD anxiety and all of the rest of them
the best way for me to explain to you
the best way for me to explain to you what dyspraxia was like in my early
what dyspraxia was like in my early
what dyspraxia was like in my early childhood is for me to show you me age 9
childhood is for me to show you me age 9
childhood is for me to show you me age 9 talking about my dyspraxia okay I know
talking about my dyspraxia okay I know
talking about my dyspraxia okay I know I’ve got dyspraxia I first found out I
I’ve got dyspraxia I first found out I
I’ve got dyspraxia I first found out I was just practic a new one when I went
was just practic a new one when I went
was just practic a new one when I went home I went to vow
home I went to vow
home I went to vow [Music]
Roxie’s a bit like um bit like when your
Roxie’s a bit like um bit like when your brains wired up in a different way
brains wired up in a different way
brains wired up in a different way sometimes you might get told off being
sometimes you might get told off being
sometimes you might get told off being ripped off talkative
ripped off talkative
ripped off talkative well really but really you’re just
well really but really you’re just
well really but really you’re just forgetting to be quiet I’m sometimes a
forgetting to be quiet I’m sometimes a
forgetting to be quiet I’m sometimes a bit shy with my work as well I um it
bit shy with my work as well I um it
bit shy with my work as well I um it took me two years to learn to ride a
took me two years to learn to ride a
took me two years to learn to ride a bike and I used to do ballet as well but
bike and I used to do ballet as well but
bike and I used to do ballet as well but I found that very hard and difficult now
I found that very hard and difficult now
I found that very hard and difficult now I do brownies which which really works
I do brownies which which really works
I do brownies which which really works and it’s really the club for me I think
and it’s really the club for me I think
and it’s really the club for me I think I think I’m going to stick with the
I think I’m going to stick with the
I think I’m going to stick with the brownies for a very long time I’ve
brownies for a very long time I’ve
brownies for a very long time I’ve expanded and I’ve fantastic so things
expanded and I’ve fantastic so things
expanded and I’ve fantastic so things that are really important to remember
that are really important to remember
that are really important to remember about dyspraxia and dyspraxia people
about dyspraxia and dyspraxia people
about dyspraxia and dyspraxia people children who’s dyspraxia is identified
children who’s dyspraxia is identified
children who’s dyspraxia is identified at an early age are less likely to have
at an early age are less likely to have
at an early age are less likely to have problems with acceptance by their peers
problems with acceptance by their peers
problems with acceptance by their peers and with a lower self esteem so like I
and with a lower self esteem so like I
and with a lower self esteem so like I said in the video being diagnosed with
said in the video being diagnosed with
said in the video being diagnosed with dyspraxia and I didn’t blame myself for
dyspraxia and I didn’t blame myself for
dyspraxia and I didn’t blame myself for how I was different I felt how different
how I was different I felt how different
how I was different I felt how different and how I felt and acted instead I had a
and how I felt and acted instead I had a
and how I felt and acted instead I had a way to explain to others and had a
way to explain to others and had a
way to explain to others and had a reason in myself so that I didn’t feel
reason in myself so that I didn’t feel
reason in myself so that I didn’t feel isolated from my peer group early
isolated from my peer group early
isolated from my peer group early recognition can make the difference
recognition can make the difference
recognition can make the difference between success and failure
between success and failure
between success and failure the father was recognized early meant
the father was recognized early meant
the father was recognized early meant that I got physio like I said in the
that I got physio like I said in the
that I got physio like I said in the video in the physio I learned how to
video in the physio I learned how to
video in the physio I learned how to ride a bike
ride a bike
ride a bike I learned how to balance on beams I even
I learned how to balance on beams I even
I learned how to balance on beams I even learned how to hand write it is a
learned how to hand write it is a
learned how to hand write it is a lifelong condition I am going to have it
lifelong condition I am going to have it
lifelong condition I am going to have it for the rest of my life it’s never ever
for the rest of my life it’s never ever
for the rest of my life it’s never ever going to go away unless they come up
going to go away unless they come up
going to go away unless they come up with some miracle cure but I can try and
with some miracle cure but I can try and
with some miracle cure but I can try and adapt and find ways to deal with my
adapt and find ways to deal with my
adapt and find ways to deal with my problems and it might take me longer
problems and it might take me longer
problems and it might take me longer than all of the rest of you but I will
than all of the rest of you but I will
than all of the rest of you but I will always find a way there
always find a way there
always find a way there six main categories of dyspraxia the
six main categories of dyspraxia the
six main categories of dyspraxia the first is organization I find planning
first is organization I find planning
first is organization I find planning things incredibly tricky just planning
things incredibly tricky just planning
things incredibly tricky just planning this entire talk took hours and hours in
this entire talk took hours and hours in
this entire talk took hours and hours in my brain trying to sort out all the tiny
my brain trying to sort out all the tiny
my brain trying to sort out all the tiny different things I had to connect just a
different things I had to connect just a
different things I had to connect just a plan miss my memory organizing my memory
plan miss my memory organizing my memory
plan miss my memory organizing my memory again with this talk my schoolbag notes
again with this talk my schoolbag notes
again with this talk my schoolbag notes so from year seven probably up until now
so from year seven probably up until now
so from year seven probably up until now all of my notes in my bag were crumpled
all of my notes in my bag were crumpled
all of my notes in my bag were crumpled putting there’s all just at the bottom
putting there’s all just at the bottom
putting there’s all just at the bottom of my bag gross motor so coordinating my
of my bag gross motor so coordinating my
of my bag gross motor so coordinating my staff was always something that I found
staff was always something that I found
staff was always something that I found incredibly anxiety-inducing because my
incredibly anxiety-inducing because my
incredibly anxiety-inducing because my brain connecting to my muscles didn’t
brain connecting to my muscles didn’t
brain connecting to my muscles didn’t always work quite right so it’s the
always work quite right so it’s the
always work quite right so it’s the classic dis praxic arm you would put
classic dis praxic arm you would put
classic dis praxic arm you would put your arm like this my arm would sort of
your arm like this my arm would sort of
your arm like this my arm would sort of go like that it never could it didn’t
go like that it never could it didn’t
go like that it never could it didn’t quite connect and this obviously goes
quite connect and this obviously goes
quite connect and this obviously goes into sports and sports was something I
into sports and sports was something I
into sports and sports was something I also really struggled with of the child
also really struggled with of the child
also really struggled with of the child and I never felt like I could quite do
and I never felt like I could quite do
and I never felt like I could quite do it which was the reason I quit ballet
it which was the reason I quit ballet
it which was the reason I quit ballet when I was younger even though I enjoyed
when I was younger even though I enjoyed
when I was younger even though I enjoyed it fine motor so handwriting I went to
it fine motor so handwriting I went to
it fine motor so handwriting I went to the physio and occupational therapist to
the physio and occupational therapist to
the physio and occupational therapist to help me tie my shoelaces properly which
help me tie my shoelaces properly which
help me tie my shoelaces properly which is still a bit questionable whether I
is still a bit questionable whether I
is still a bit questionable whether I can do and do buttons concentration I
can do and do buttons concentration I
can do and do buttons concentration I find it incredibly difficult to stay in
find it incredibly difficult to stay in
find it incredibly difficult to stay in one space if you’ve ever seen me in the
one space if you’ve ever seen me in the
one space if you’ve ever seen me in the sick form common room trying to do work
sick form common room trying to do work
sick form common room trying to do work one minute I’ll be sitting on the chair
one minute I’ll be sitting on the chair
one minute I’ll be sitting on the chair like a normal person the next minute
like a normal person the next minute
like a normal person the next minute I’ll be backwards on the chair with my
I’ll be backwards on the chair with my
I’ll be backwards on the chair with my leg on the back then I’ll be on the
leg on the back then I’ll be on the
leg on the back then I’ll be on the floor writing on the table then I’ll be
floor writing on the table then I’ll be
floor writing on the table then I’ll be back on the chair again and I can’t sit
back on the chair again and I can’t sit
back on the chair again and I can’t sit still or sound still standing on this
still or sound still standing on this
still or sound still standing on this little cross is actually quite difficult
little cross is actually quite difficult
little cross is actually quite difficult all I want to do is pace up and down and
all I want to do is pace up and down and
all I want to do is pace up and down and classroom difficulties copying from the
classroom difficulties copying from the
classroom difficulties copying from the board I’ll look up at the board I’ll
board I’ll look up at the board I’ll
board I’ll look up at the board I’ll register what’s on the board I’ll look
register what’s on the board I’ll look
register what’s on the board I’ll look down and my brain’s lost it and I look
down and my brain’s lost it and I look
down and my brain’s lost it and I look back up and I read the board and my
back up and I read the board and my
back up and I read the board and my brain’s lost it again
brain’s lost it again
brain’s lost it again and that process will come for ages
and that process will come for ages
and that process will come for ages but dyspraxia is really not just general
but dyspraxia is really not just general
but dyspraxia is really not just general clumsiness I know that a lot of you may
clumsiness I know that a lot of you may
clumsiness I know that a lot of you may think that because that is all that you
think that because that is all that you
think that because that is all that you may perceive but it’s so much
may perceive but it’s so much
may perceive but it’s so much neurological problems as well but
neurological problems as well but
neurological problems as well but dyspraxia is not all doom and gloom
dyspraxia is not all doom and gloom
dyspraxia is not all doom and gloom there are positives dyspraxia people are
there are positives dyspraxia people are
there are positives dyspraxia people are incredibly creative my mother always
incredibly creative my mother always
incredibly creative my mother always told me you know when people think
told me you know when people think
told me you know when people think outside the box well I’ve lost the box
outside the box well I’ve lost the box
outside the box well I’ve lost the box the box is gone I’m so far outside of
the box is gone I’m so far outside of
the box is gone I’m so far outside of the box I’m very good at adapting and
the box I’m very good at adapting and
the box I’m very good at adapting and finding alternatives I’d like to say
finding alternatives I’d like to say
finding alternatives I’d like to say I’ve developed a sense of humor I can
I’ve developed a sense of humor I can
I’ve developed a sense of humor I can laugh at myself and the one thing I
laugh at myself and the one thing I
laugh at myself and the one thing I think is truly a gift for dyspraxia
think is truly a gift for dyspraxia
think is truly a gift for dyspraxia people is their empathy I can feel like
people is their empathy I can feel like
people is their empathy I can feel like I really really connect to other people
I really really connect to other people
I really really connect to other people and I always like to see the good in
and I always like to see the good in
and I always like to see the good in everyone so now in the future now I’m
everyone so now in the future now I’m
everyone so now in the future now I’m taking four subjects to a two level two
taking four subjects to a two level two
taking four subjects to a two level two Sciences and two creatives I’m not
Sciences and two creatives I’m not
Sciences and two creatives I’m not learning to drive yet I feel like there
learning to drive yet I feel like there
learning to drive yet I feel like there should be one less this praxic person
should be one less this praxic person
should be one less this praxic person behind the wheel for now I never know
behind the wheel for now I never know
behind the wheel for now I never know what it’s like to have a normal brain
what it’s like to have a normal brain
what it’s like to have a normal brain and if someone gave me a pill to change
and if someone gave me a pill to change
and if someone gave me a pill to change my brain and be normal I don’t think I
my brain and be normal I don’t think I
my brain and be normal I don’t think I take it
take it
take it I finally learnt to love and understand
I finally learnt to love and understand
I finally learnt to love and understand my flaws and my little quirks but I am
my flaws and my little quirks but I am
my flaws and my little quirks but I am thriving and I’m surviving my name is
thriving and I’m surviving my name is
thriving and I’m surviving my name is Ellie Madeira I’m distracted ick and I’m
Ellie Madeira I’m distracted ick and I’m
Ellie Madeira I’m distracted ick and I’m fantastic
fantastic
fantastic [Applause]
”
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