with you and share a topic that will
which is very dear to me so a pathology
which affects a lot of patients in
France but I will already tell you
a little bit my story so like
said melissa I’m at the top and say
you are an orthotist it is a profession
which is little known yet of the great
public
so I have the chance to practice this job
which is exciting because we work
with the head and we work with the
hands so it’s absolutely awesome
so I make I design I invent
I create and especially ged
I help people in their pain in
their lack of autonomy and also in
their daily lives
so that’s all it started
now a good ten years
so I had just started
this profession because I did
others before I did other things
but this one is here it is the
good anyway so I was charged
therefore from the Ministry of Health
to work on a state diploma
to write
and then I met a gentleman a
sir who who is teachers
medical academics that is
anthropologist and then and then we chat
obviously around a table
round with lots of people and then he’s me
said but what are you doing
so I say but I ‘m doing their thesis
I create I make and ben it is you
it’s you I need
so I’m shooting ok ok we ‘re going in
discuss
said here I am taking care of an illness
a disease that is not common that is
complicated and their theses
but their thesis is the treatment the
treatment at the heart of this pathology
so this pathology of the air in
water is what it tells you about
the air in the water without name ben me no
more
because there is no airbus
on the other hand the syndrome of ehlers danlos 1
there is a pathology
connective tissue then the tissue
Connective what’s this is a big word
which means a lot of things
connective tissue and collagen the
collagen end it’s a part of
college there is not only collagen
in the connective tissue but the
collagen it’s the glue it’s the
support tissues
so this is a pathology of the tissues of
connective tissue support then
imagine that our bodies we beings
human indeed 80% connective tissue
so imagined a little brothel
in there anyway to say it 80%
so it’s a pathology that is multi
systemic and with symptomatology
which is vast complicated to
to diagnose precisely since
extensive symptomatology his touch every
organs so today I ‘m going to you
talk mostly about ehlers syndrome
danlos but hyper mobile type since
we have several types
to date there is a classification that
exist the scientists the
geneticists the doctors
rehabilitators finally for the
scientists have a classification
for diagnosis
then there is the classic type to the type
hyper vascular mobility the type six
coolio pits tic but the one I
know the best
this is the type iii the hyper mobile type
then the hyper mobile type as his name
the indicated hyper mobility hyper
elasticity we can say that too
joints but ultimately body
of the body then example the fingers that
are very ip relaxes the thumb very ip
relax your knees elbows so
sprain with repetition subluxation
dislocation and
for any pain pain there is even
worries at the functional level
situational when I talk about
situational it is for example
to wash take a shower to wash the
hair raise hands to rub
the hair simply
and then the market function goes up a
staircase all that is complicated and the
worse, it’s a pathology that
and disabling
you understood it but especially who and
it shows by the people they are they
look great, everything is fine
they look good
so in addition we have trouble believing them
still so
so that’s for those for
symptoms then obviously there are
other symptoms that will be added
there is asthenia fatigue
visceral troubles finally all that
is visceral heart lung finally all
that’s it and then practically every
patients are painful but
painful chronic
so they live in pain
constantly and then another symptom
which is not known and besides in
medicine we talk about it we start at
speak a little bit even in the
universities but it’s not it’s not
still in the mores
it’s the proprioceptive disorder the
proprioception disorder does that
according to you speaks proprioception not the
all so proprioception for me in
anyway it’s the sixth sense it’s the
body image
when we move we know where
is our body we know that’s it
here is my foot he is like that good ben
I know it’s like that there are
people they do not know then I’m going to you
tell a little anecdote
so I was in consultation at
the hospital
and so I see a patient means he
a long time ago six years ago
now and so the patient sits
and I ask him go listen now
so it will take those allies I
will you carve I’m going to the exam
clinic and I ask him to get up
bell got up but she fell
when this lady had legs
cross
but she had forgotten that she had
crossed legs and she had
especially forget that her leg she was
there and not next to the other
the image that it can do you the
proprioceptive disorder do I
feins I hope anyway I have
managed to make me understand that
it was knowing where and dark to know
where is his leg
so they are sick people who have trouble
to find your bearings in space but
especially when it works well it works
but he staggers
or we can even sell them for
alcohols to his because in
street they can flicker because
precisely the proprioceptive system the
postural system is not in good
form
simply then there are small
images to show you too that there are
dislocations sprains but also
bruises but bruises
spontaneous, ie without trauma
that’s because it also affects the
cap tissue there are the capillaries the tissue
connective so there are little blues
that can appear on the body and
then we also have a very skin
fine or else we can see there on
the picture the venous network the network
venous superficial disorders of the
healing also then the little
cat doing dodo here it was just
to show you that there was a
great fatigability of his patients
proprioceptive disorders with the small
drawing of a child who is dyspraxic
this is the dce proprioception so good
all that is not cool huh when
even if even rather annoying then
Well, we still have to treat them
these people there and then ben figure you
that this famous doctor set up he
few years ago treatments
but non-drug treatments
treatment of orthez treatments
orthez tic to put people right
atypical treatment one there in
case
so on the picture you see there a little
boy with blue underwear
and the small the optima and black so this
are proprioception clothes
his underwear
and yes then the purpose of these treatments
is to compress the body so if
we compress the body we will remove
tighten the tissues our skin ok and
so we’re going to have a better
perception of his body we will contain
the body without immobilizing it well
do you figure that it works
it’s crazy but it works so we
not treat all our patients I do not have
thought we were 100% successful with
all this but in any case we find on
can give back autonomy is also
a little hope to our donkeys to the sick 1
that’s because that’s also what
they need it’s listening and
encourage them to get better so
ethical hate treatments
this is my job I am
orthopedic and orthotist so I
do a multitude of orthez and especially
this one here and then we invented a
glove so I think there is even
no need to be in a situation of
handicap by the way because when we have
Difficulties opening jars
bottles of water cans of
coca finally cut off the brush all that
is very functional to life
daily
so we invented a glove e jeanne that
I take men the grip glove
so it’s a glove with a silicone in
face palmer to be able to help people
with reduced mobility to be autonomous
that’s what it’s about making people
autonomous in their lives
so she comes from where this idea this
great idea of clothes from
compression
it’s a basic generic of
compression garments for people
who were burned ok and then
then we said to ourselves but the people who
play sports you m
restraints and the people who
are diving they are dressed
in complete combi we intend to send our
patients a little bit like that a little
twisted says but if it is straightened by
this kind of schemes may be that
it’s going to work
and yes it worked so we did
a small prospective study had then
it worked then the efficiency
effective why because in our
tissue in your connective tissue in
your skin in your time so in your
muscles in your lives serves everywhere there is
sensors and receivers new
do what these sensors and its
receivers and well they will go
inform the cerebellum of the position of
your body from what you see from this
that you also chew us how do you
go swallow it will inform the
brain of the body position and
especially it will also inhibit the pain
why do we call it the gate
control 1 I’m sure that in the
in the room there are already people who
used electro stimulation
advised antalgic you have small
electrodes that are placed on a segment
to inhibit pain and well that’s
that is to say that by touching or
compressing a segment where a limb
we will give back we will give another
sensor information that are # 6
70 to the cerebellum so the pain she’s going
recede
it comes back anyway but we have a
a moment of tranquility
I think in any case it’s I think that
it’s human when we’re in pain when we
burn what we do we rub it
touches
that’s okay if it was done there
compresses to inhibit pain so at
departure we did not know it was going to play
on the pain and finally with them
those years that have passed
finally it plays even more on the
pain than anything else so that’s when
even awesome
and then there is not that
it’s not just the clothes of
proprioception or finally said of
compression there are the orthotics
plantar so the soles said
orthopedic
then there are not soles
orthopedic that will put right
the ankle that will correct a
static bad static no it’s
more given back from proprioception to
foot me I say that the foot is the
second retina of the body but at the same
time is a little logical when we
walk is still the foot
give us the information here and then
to treat so the other types of
pain but more locally we will
create we will always make on
measure of others orthez orthoses
tomorrow orthotics function of
grasping orthoses
immobilization not too much anyway
for this pathology not too much in order
general so all that to tell you
that disability the handicap that is that
we do not see the invisible handicap
it exists there are plenty of people around
you who have an invisible disability the
difference does not kill the difference
on the contrary the difference it raises
a person and when one can and is a
different person
necessarily you will also if you
accomplish in your life of all
days
because doing good is good
so try
try to have the handicap
differently and not to see the
disability in a negative way but at
otherwise positive we had a very nice
example during Paralympic Games
you saw it was just fabulous this
what happened so all that to say
the difference is fabulous
thank you
[Applause]
[Music]
”
Be First to Comment