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Creativity at End of Life | Grisha Krivchenia | TEDxSanJuanIsland


let’s consider quality of life towards

let’s consider quality of life towards the end of life because I’m an artist

the end of life because I’m an artist

the end of life because I’m an artist I’d like to focus on the creative

I’d like to focus on the creative

I’d like to focus on the creative potential that arises as people approach

potential that arises as people approach

potential that arises as people approach their final days we don’t think of

their final days we don’t think of

their final days we don’t think of end-of-life usually as a time for

end-of-life usually as a time for

end-of-life usually as a time for artistic productivity but we should this

artistic productivity but we should this

artistic productivity but we should this is an important time for us to create

is an important time for us to create

is an important time for us to create and to share ourselves facing death that

and to share ourselves facing death that

and to share ourselves facing death that gives an unprecedented perspective a

gives an unprecedented perspective a

gives an unprecedented perspective a perspective that no one can inhabit

perspective that no one can inhabit

perspective that no one can inhabit fully until they approach that door

in our culture life ends in an

in our culture life ends in an institution 90% of Americans say they

institution 90% of Americans say they

institution 90% of Americans say they would prefer to die at home but 75% of

would prefer to die at home but 75% of

would prefer to die at home but 75% of them died in a nursing home or Hospital

them died in a nursing home or Hospital

them died in a nursing home or Hospital these institutions are good at

these institutions are good at

these institutions are good at prolonging and preserving life but they

prolonging and preserving life but they

prolonging and preserving life but they are not designed to nurture the

are not designed to nurture the

are not designed to nurture the creativity of those who live within I’d

creativity of those who live within I’d

creativity of those who live within I’d like to offer a completely different

like to offer a completely different

like to offer a completely different possibility

possibility

possibility what if creativity was the focus of the

what if creativity was the focus of the

what if creativity was the focus of the final months of life not just mere

final months of life not just mere

final months of life not just mere survival but actively sharing the

survival but actively sharing the

survival but actively sharing the accumulated experience of a lifetime

accumulated experience of a lifetime

accumulated experience of a lifetime what would it be to see each person

what would it be to see each person

what would it be to see each person approaching death as a creative being

approaching death as a creative being

approaching death as a creative being which they definitely are what would

which they definitely are what would

which they definitely are what would really like to treat them as an artist

really like to treat them as an artist

really like to treat them as an artist let me show you one way this can be done

let me show you one way this can be done

let me show you one way this can be done I live part of the year in Santa Fe New

I live part of the year in Santa Fe New

I live part of the year in Santa Fe New Mexico where I work as a pianist and

Mexico where I work as a pianist and

Mexico where I work as a pianist and composer for the past two years I’ve had

composer for the past two years I’ve had

composer for the past two years I’ve had the privilege of working with a group

the privilege of working with a group

the privilege of working with a group called life songs an intergenerational

called life songs an intergenerational

called life songs an intergenerational art project that promotes inclusion and

art project that promotes inclusion and

art project that promotes inclusion and dignity for elders life songs is a

dignity for elders life songs is a

dignity for elders life songs is a program of the Academy for the love of

program of the Academy for the love of

program of the Academy for the love of learning an organization envisioned by

learning an organization envisioned by

learning an organization envisioned by the American composers Leonard Bernstein

the American composers Leonard Bernstein

the American composers Leonard Bernstein and Aaron Stern life songs hires

and Aaron Stern life songs hires

and Aaron Stern life songs hires professional artists to create original

professional artists to create original

professional artists to create original work with hospice patients and nursing

work with hospice patients and nursing

work with hospice patients and nursing home residents through artistic

home residents through artistic

home residents through artistic collaboration public concerts and other

collaboration public concerts and other

collaboration public concerts and other community events we reconnect elders

community events we reconnect elders

community events we reconnect elders with their creative capacities this is

with their creative capacities this is

with their creative capacities this is Tony Molina

Tony Molina

Tony Molina one of my collaborators in the life

one of my collaborators in the life

one of my collaborators in the life songs project he loves to laugh tell

songs project he loves to laugh tell

songs project he loves to laugh tell stories sit in the sunshine and eat new

stories sit in the sunshine and eat new

stories sit in the sunshine and eat new Mexican food

Mexican food

Mexican food he’s also blind and unable to stand or

he’s also blind and unable to stand or

he’s also blind and unable to stand or walk he has two children and five

walk he has two children and five

walk he has two children and five grandchildren and lives with his wife

grandchildren and lives with his wife

grandchildren and lives with his wife Mary Lou Tony was a skilled craftsperson

Mary Lou Tony was a skilled craftsperson

Mary Lou Tony was a skilled craftsperson a silversmith and ceramics artists but

a silversmith and ceramics artists but

a silversmith and ceramics artists but he had no previous experience of working

he had no previous experience of working

he had no previous experience of working creatively with music or language so how

creatively with music or language so how

creatively with music or language so how did we get to know each other

did we get to know each other

did we get to know each other in December 2015 I got an email from

in December 2015 I got an email from

in December 2015 I got an email from life songs director with Tony and Mary

life songs director with Tony and Mary

life songs director with Tony and Mary Lou’s phone number their hospice nurse

Lou’s phone number their hospice nurse

Lou’s phone number their hospice nurse had identified Tony as someone who’d be

had identified Tony as someone who’d be

had identified Tony as someone who’d be open to receiving visitors someone who

open to receiving visitors someone who

open to receiving visitors someone who might be willing and eager to share his

might be willing and eager to share his

might be willing and eager to share his story my first meeting with Tony was

story my first meeting with Tony was

story my first meeting with Tony was challenging he was in and out of

challenging he was in and out of

challenging he was in and out of consciousness

he had trouble understanding what I was

he had trouble understanding what I was saying and I had trouble hearing what he

saying and I had trouble hearing what he

saying and I had trouble hearing what he was saying he was confused about who I

was saying he was confused about who I

was saying he was confused about who I was and why I was there but there was

was and why I was there but there was

was and why I was there but there was also a lot of potential when I’m working

also a lot of potential when I’m working

also a lot of potential when I’m working with an elder I listen for the stories

with an elder I listen for the stories

with an elder I listen for the stories that they are most invested in the ones

that they are most invested in the ones

that they are most invested in the ones that draw an emotion I also listen for

that draw an emotion I also listen for

that draw an emotion I also listen for stories with a bit of the unexpected

stories with a bit of the unexpected

stories with a bit of the unexpected stories that offer a fresh take on how

stories that offer a fresh take on how

stories that offer a fresh take on how the world works

the world works

the world works I asked Tony a few questions about his

I asked Tony a few questions about his

I asked Tony a few questions about his military service and he poured in two

military service and he poured in two

military service and he poured in two descriptions of his time in Vietnam I

descriptions of his time in Vietnam I

descriptions of his time in Vietnam I remember him telling me that he slept

remember him telling me that he slept

remember him telling me that he slept poorly for an entire year because the

poorly for an entire year because the

poorly for an entire year because the night ambush was always a possibility

night ambush was always a possibility

night ambush was always a possibility when he finally arrived home he slept

when he finally arrived home he slept

when he finally arrived home he slept for almost 24 hours straight this is us

for almost 24 hours straight this is us

for almost 24 hours straight this is us working together Tony and I met weekly

working together Tony and I met weekly

working together Tony and I met weekly over the course of four months sometimes

over the course of four months sometimes

over the course of four months sometimes twice a week in the first few sessions

twice a week in the first few sessions

twice a week in the first few sessions we got to know each other better in our

we got to know each other better in our

we got to know each other better in our second session

second session

second session Tony became more articulate and started

Tony became more articulate and started

Tony became more articulate and started sharing much more he remembered me and

sharing much more he remembered me and

sharing much more he remembered me and stopped asking why I was there Tony

stopped asking why I was there Tony

stopped asking why I was there Tony always thanked me for my visits gracias

always thanked me for my visits gracias

always thanked me for my visits gracias put easy tighter me IT Tony IT I asked

put easy tighter me IT Tony IT I asked

put easy tighter me IT Tony IT I asked Tony about the music that he loved and

Tony about the music that he loved and

Tony about the music that he loved and we started listening to some of his

we started listening to some of his

we started listening to some of his favorites together it was very clear

favorites together it was very clear

favorites together it was very clear that Tony was deeply moved by music when

that Tony was deeply moved by music when

that Tony was deeply moved by music when I play a song for him on headphones with

I play a song for him on headphones with

I play a song for him on headphones with the volume turned up loud enough that I

the volume turned up loud enough that I

the volume turned up loud enough that I could hear the sound bleeding through he

could hear the sound bleeding through he

could hear the sound bleeding through he would start to cry every time

after a few more sessions we became even

after a few more sessions we became even more comfortable Tony’s wife Mary Lou

more comfortable Tony’s wife Mary Lou

more comfortable Tony’s wife Mary Lou started to invite me to have lunch with

started to invite me to have lunch with

started to invite me to have lunch with them after each session the food was

them after each session the food was

them after each session the food was spicy and unbelievably delicious nothing

spicy and unbelievably delicious nothing

spicy and unbelievably delicious nothing compares to homemade stack of enchiladas

compares to homemade stack of enchiladas

compares to homemade stack of enchiladas or posole made in the southern New

or posole made in the southern New

or posole made in the southern New Mexican style if it was a weekday their

Mexican style if it was a weekday their

Mexican style if it was a weekday their son Marcos would often combine his lunch

son Marcos would often combine his lunch

son Marcos would often combine his lunch break if it was a weekend I would sit

break if it was a weekend I would sit

break if it was a weekend I would sit down with Tony and Mary Lou’s

down with Tony and Mary Lou’s

down with Tony and Mary Lou’s grandchildren

grandchildren

grandchildren Tony stories would continue over lunch

Tony stories would continue over lunch

Tony stories would continue over lunch with family members chiming in about

with family members chiming in about

with family members chiming in about their own experiences eventually I

their own experiences eventually I

their own experiences eventually I suggested to Tony that we write a song

suggested to Tony that we write a song

suggested to Tony that we write a song together I had this in mind all along

together I had this in mind all along

together I had this in mind all along fortunately Tony agreed he had an Apple

fortunately Tony agreed he had an Apple

fortunately Tony agreed he had an Apple way of saying sure to most of the things

way of saying sure to most of the things

way of saying sure to most of the things I suggested that said writing a song was

I suggested that said writing a song was

I suggested that said writing a song was something Tony had never tried before I

something Tony had never tried before I

something Tony had never tried before I admired the courage he showed and

admired the courage he showed and

admired the courage he showed and accepting my request I started bringing

accepting my request I started bringing

accepting my request I started bringing my keyboard into his living room playing

my keyboard into his living room playing

my keyboard into his living room playing little snippets of music to accompany

little snippets of music to accompany

little snippets of music to accompany the words that he had shared with me the

the words that he had shared with me the

the words that he had shared with me the first song we wrote together was a

first song we wrote together was a

first song we wrote together was a ballad about Tony’s boyhood dog Viejo

ballad about Tony’s boyhood dog Viejo

ballad about Tony’s boyhood dog Viejo Viejo was Tony’s teenage sidekick and

Viejo was Tony’s teenage sidekick and

Viejo was Tony’s teenage sidekick and also his teenage drinking buddy the two

also his teenage drinking buddy the two

also his teenage drinking buddy the two of them would share beer together and

of them would share beer together and

of them would share beer together and then find themselves in all sorts of

then find themselves in all sorts of

then find themselves in all sorts of trouble with the law and worse with

trouble with the law and worse with

trouble with the law and worse with Tony’s grandmother later on we started

Tony’s grandmother later on we started

Tony’s grandmother later on we started writing a song about the day he returned

writing a song about the day he returned

writing a song about the day he returned from Vietnam at the age of 23 Tony was

from Vietnam at the age of 23 Tony was

from Vietnam at the age of 23 Tony was drafted into the Army and the year he

drafted into the Army and the year he

drafted into the Army and the year he spent in combat was the most difficult

spent in combat was the most difficult

spent in combat was the most difficult of his life

Tony found that by telling his story he

Tony found that by telling his story he learned more about his military service

learned more about his military service

learned more about his military service bringing up traumatic memories was

bringing up traumatic memories was

bringing up traumatic memories was difficult but it also brought him to new

difficult but it also brought him to new

difficult but it also brought him to new depths of self-knowledge he said I

depths of self-knowledge he said I

depths of self-knowledge he said I learned how to talk about Vietnam before

learned how to talk about Vietnam before

learned how to talk about Vietnam before I would just shut up at end of life

I would just shut up at end of life

I would just shut up at end of life people sometimes feel the need to review

people sometimes feel the need to review

people sometimes feel the need to review certain experiences especially the ones

certain experiences especially the ones

certain experiences especially the ones they’ve not had a chance to process

they’ve not had a chance to process

they’ve not had a chance to process completely mary lou said that tony

completely mary lou said that tony

completely mary lou said that tony shared stories in our session that even

shared stories in our session that even

shared stories in our session that even she had never heard before giving our

she had never heard before giving our

she had never heard before giving our elders that space to process and express

elders that space to process and express

elders that space to process and express their experience is immensely valuable

working with tony also changed me i

working with tony also changed me i softened immensely in the presence of

softened immensely in the presence of

softened immensely in the presence of that sweet man his life had ripened him

that sweet man his life had ripened him

that sweet man his life had ripened him beautifully though his body was decaying

beautifully though his body was decaying

beautifully though his body was decaying his loving character remained fully

his loving character remained fully

his loving character remained fully intact I want to emphasize that Tony was

intact I want to emphasize that Tony was

intact I want to emphasize that Tony was a full creative partner in this process

a full creative partner in this process

a full creative partner in this process most of our song lyrics quote him

most of our song lyrics quote him

most of our song lyrics quote him directly or indirectly Tony also took an

directly or indirectly Tony also took an

directly or indirectly Tony also took an active role in create decision-making I

active role in create decision-making I

active role in create decision-making I would approach him with two or three

would approach him with two or three

would approach him with two or three directions that a song might take and

directions that a song might take and

directions that a song might take and then give him the executive power does

then give him the executive power does

then give him the executive power does the melody go up here or head back down

the melody go up here or head back down

the melody go up here or head back down do we want a dark chord or an optimistic

do we want a dark chord or an optimistic

do we want a dark chord or an optimistic one on the word again opening up

one on the word again opening up

one on the word again opening up creative control to Tony meant that I

creative control to Tony meant that I

creative control to Tony meant that I could authentically go far beyond my own

could authentically go far beyond my own

could authentically go far beyond my own experience together we create something

experience together we create something

experience together we create something that neither of us could have done alone

that neither of us could have done alone

that neither of us could have done alone the process and the results were deeply

the process and the results were deeply

the process and the results were deeply satisfying let me share Tony song with

satisfying let me share Tony song with

satisfying let me share Tony song with you now

today I came home from Vietnam I started

today I came home from Vietnam I started off on a plane the Greyhound bus brought

off on a plane the Greyhound bus brought

off on a plane the Greyhound bus brought me closer to home through cliffs sky a

me closer to home through cliffs sky a

me closer to home through cliffs sky a desert terrain saw ray at the station

desert terrain saw ray at the station

desert terrain saw ray at the station brought me home

brought me home

brought me home when I saw the tears on my mama’s face I

when I saw the tears on my mama’s face I

when I saw the tears on my mama’s face I just couldn’t hold it in walks with my

just couldn’t hold it in walks with my

just couldn’t hold it in walks with my mama’s hand and mind drinking up the

mama’s hand and mind drinking up the

mama’s hand and mind drinking up the Morning Sun took me down the Old Pueblo

Morning Sun took me down the Old Pueblo

Morning Sun took me down the Old Pueblo Road where this little ball used to run

Road where this little ball used to run

Road where this little ball used to run walked up to the it’s open for channa

walked up to the it’s open for channa

walked up to the it’s open for channa where my Papa steps

where my Papa steps

where my Papa steps donde esta la people

donde esta la people

donde esta la people man we were

man we were

man we were [Music]

they asked about the war said I don’t

they asked about the war said I don’t want to talk mama said a dog how for you

want to talk mama said a dog how for you

want to talk mama said a dog how for you every day

I couldn’t wait to see my little dog

I couldn’t wait to see my little dog again but huh he’s broken heart and

again but huh he’s broken heart and

again but huh he’s broken heart and passed away I went out to my 63 Chevy

passed away I went out to my 63 Chevy

passed away I went out to my 63 Chevy drove over to Mary Lou Papa offered me a

drove over to Mary Lou Papa offered me a

drove over to Mary Lou Papa offered me a cold beer I said thank you I’ll take two

cold beer I said thank you I’ll take two

cold beer I said thank you I’ll take two but before I drink a single drop I have

but before I drink a single drop I have

but before I drink a single drop I have to see a face

to see a face

to see a face after one long there

after one long there

after one long there [Music]

[Music]

[Music] my heart is out

my heart is out

my heart is out [Music]

[Music]

[Music] Mary the way to be to cat my lettuce to

Mary the way to be to cat my lettuce to

Mary the way to be to cat my lettuce to I dreamt often of her brown eyes

and when I hit the dark

and when I hit the dark from cannon fire

from cannon fire

from cannon fire [Music]

[Music]

[Music] she was Mary’s not sad I

she was my reason not to time

she was my reason not to time [Music]

people call me a hero some people called

people call me a hero some people called me names we didn’t know where we were

me names we didn’t know where we were

me names we didn’t know where we were fighting for but we fought hard just

fighting for but we fought hard just

fighting for but we fought hard just sing

sing

sing through muddy jungles we ran to survive

through muddy jungles we ran to survive

through muddy jungles we ran to survive I don’t know if I did good there but I

I don’t know if I did good there but I

I don’t know if I did good there but I made it home

made it home

made it home [Music]

I still dream of Marylou the kindness

I still dream of Marylou the kindness makes me grin when I use sound of eleven

makes me grin when I use sound of eleven

makes me grin when I use sound of eleven voice I know I’m home again

[Applause]

[Applause] life songs presented the day I came home

life songs presented the day I came home

life songs presented the day I came home for about a thousand people at the lens

for about a thousand people at the lens

for about a thousand people at the lens ik Theatre in Santa Fe along with ten

ik Theatre in Santa Fe along with ten

ik Theatre in Santa Fe along with ten other works compose with our elders we

other works compose with our elders we

other works compose with our elders we hired a band two professional musicians

hired a band two professional musicians

hired a band two professional musicians and produce these pieces at the highest

and produce these pieces at the highest

and produce these pieces at the highest level possible Tony was able to make it

level possible Tony was able to make it

level possible Tony was able to make it to that concert and 16 of his family

to that concert and 16 of his family

to that concert and 16 of his family members came to listen to witness what

members came to listen to witness what

members came to listen to witness what Tony had created

Tony had created

Tony had created they now have a singable legacy from

they now have a singable legacy from

they now have a singable legacy from tony and new memories to share with him

this kind of work is also inspiring for

this kind of work is also inspiring for the broader community everyone who

the broader community everyone who

the broader community everyone who attended that concert saw the

attended that concert saw the

attended that concert saw the possibility of a deeper relationship

possibility of a deeper relationship

possibility of a deeper relationship with the elders in their lives and we

with the elders in their lives and we

with the elders in their lives and we witnessed an expanded vision of the

witnessed an expanded vision of the

witnessed an expanded vision of the creativity in all of us art is not just

creativity in all of us art is not just

creativity in all of us art is not just for artists or for any particular kind

for artists or for any particular kind

for artists or for any particular kind of person it is the ancient mark of our

of person it is the ancient mark of our

of person it is the ancient mark of our shared humanity all of us have the

shared humanity all of us have the

shared humanity all of us have the capacity to create and collaborations

capacity to create and collaborations

capacity to create and collaborations between professional artists and

between professional artists and

between professional artists and laypeople Canon Earth a vast spring of

laypeople Canon Earth a vast spring of

laypeople Canon Earth a vast spring of creativity that usually goes untapped so

creativity that usually goes untapped so

creativity that usually goes untapped so let’s get together and get creative at

let’s get together and get creative at

let’s get together and get creative at any time in our lives but particularly

any time in our lives but particularly

any time in our lives but particularly at the end of life we need to bring

at the end of life we need to bring

at the end of life we need to bring death and dying out of the closet and

death and dying out of the closet and

death and dying out of the closet and our culture needs to reconnect with the

our culture needs to reconnect with the

our culture needs to reconnect with the wisdom of its elders we have layers of

wisdom of its elders we have layers of

wisdom of its elders we have layers of stigma surrounding aging and death that

stigma surrounding aging and death that

stigma surrounding aging and death that need to be lifted and overturned we also

need to be lifted and overturned we also

need to be lifted and overturned we also have wisdom acquired over lifetimes

have wisdom acquired over lifetimes

have wisdom acquired over lifetimes available to those who would simply

available to those who would simply

available to those who would simply listen and we have elders yearning to

listen and we have elders yearning to

listen and we have elders yearning to connect and create during these final

connect and create during these final

connect and create during these final pivotal moments what better way to do it

pivotal moments what better way to do it

pivotal moments what better way to do it than with a song thank you

than with a song thank you

than with a song thank you you

”

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