I’m brother areas as it was said right in the
my birth certificate says that the
nice if there are 26 years in 1991 but I do not
I know exactly two years will complete
now 19th of this month
It was when I first became a mother.
I had a huge dream of
maternity and I had already achieved is
several things in my life that
I had wanted to pass the entrance exam
I did the course that I wanted to do is casey says
casey is to work companies that I
I wanted to conquer financial status
I had everything but I had no maternity
that was my greatest wish
then I received diagnoses of 4
obstetricians I could not be a mother
so when I was giving up
That part of the part I needed was
suddenly I find myself nauseous and pregnant
In this way, the greatest happiness of the
my life compensation is I got pregnant
from guilherme
in the year of the crisis and in the year of zica,
Because I took so much time, I can
to get pregnant I wanted so much because
came just this year and many times
people think they complain without knowing what
come ahead without knowing of tomorrow,
passed was a very quiet pregnancy
neodi discover guilherme’s pathology
at birth
So I guess the scare is bigger when
we find that the son who
You idealized is not died or will see
another child in a different way
It’s how we plan a trip.
plan a trip from here to rio de
January then we are planning
néca the months approaching us
plan the places you are visiting or
the foods that will experience points
seeing all this then suddenly
You board the plane.
the plane takes off when it is full
randon at her destination was a stewardess
says welcome the maranhão are you
plan a trip to rio de janeiro
What am I doing in Maranhão?
not that Maranhão is less ugly but
It’s not Rio de Janeiro. It was not what it was.
What are you planning on doing then?
You have to adapt to that situation.
that place was right then so came
a son who is the thing that I most
wished the world ‘s first grandchild
first nephew the first child everything
and delivered a son that you did not
plan a different child, and you?
had to walk with that child and
all the needs she brought
But what was it that I tried
to defend myself against my
family I hid the pathology of
I did not talk to him. I talked to his father.
and said look how we discovered
he underwent several examinations
and confirmed there until then no one knew
exactly what was happening all
everyone was taken by surprise
by this outbreak and no one knew what
was happening from the wave that came
that could cause the consequences
so we’ll do the following with
my son he came aesthetically
perfect and does not have that bad training
Ukrainian that visibly you
identifies the pathology in other
children and I could have been the escape
way out to hide
So I decided with his father that
We were leaving the hospital after the addition
of nine days of hospitalization
investigation and we will not
no one
So far so good, I could not see a
journalist I was running after him
to show up because no one could
see me with my son in that situation
Then gradually I got to know
other families I got to know other
people who were in the same situation
that I and I have been identifying myself
next I’m happening
because I’m hiding, either
there is a bad thing about it because they are not
hiding because it’s what I’m like
I can demand a better world for the
my son if I am the first does not give
face to face to do that
the best, right? That’s what happened
three months in those three months was a
immense learning was the victim of
countless prejudices in society
that look of pity that look of
coitadismo that in essence kills
any mother knows why you see
Your perfect son knows he’s so
son then people see in him a
different way then it only hurts
it hurt me
so I saw the strength of other mothers of
other families today I do not need
be equal to them, right then and there
when I started working this
inside me and to identify that
was a monster that consumed me for
inside knows and was the prejudice
then when there is that phrase that
People first need to change people.
to try to change the other and the
world is not a lie that sometimes people
hypocrite we demand from the other that
that neither we nor we are
even offers it right and so I needed
work that within me work
that inside my house
inside my family for later
be able to help other people overcome
initially that when I say overcome
to really wait is to overcome the mold that
When someone talks to you, it will not hurt.
knows someone else acts the same way with
That same prejudice with you does not
hurt you know is trying to show
that person who is not that vision does not
it’s what she’s seeing is that
that it is not the concept that she
has
That’s when my story began.
I started working this inside of me.
I worked at that time with my husband
and work it out in my family
that’s where it hurts the most right because when
comes from the other still to everything but when
comes from within our own house
beef hurts and hurts a lot
Sat I do not accept he has nothing of mine
Grandson, there’s nothing my nephew does not have
nothing and you knowing there’s everything there
one thing or I can not wake me
dawn in hospitals if he does not
had nothing
and we sometimes feed the
hope a false hope that
really would have nothing but always
something new that made me understand
that he had it then so why?
my son he will be less loved him
will be less citizen because he has a
limitation because he has a pathology
He did not ask to be born so I did not
I asked for him like this and I will not fight
Because he will not be my son because of it
This then means that you are a
person with disability is somewhat less than
other people is something that decreases
my son diminishes me as a woman like
mother to say that I am – mother than
another mother who has a child in the same
age me but he has no disability
did not this will change right and changed
with this the third month and brings together the
my family gather all my
friends and I told you it was an hour and 40
minutes counting from the day the
doctor gave me the diagnosis could not
get pregnant until the day I discovered the
pathology of guilherme and everyone there
He has listened because nobody expected and
The only thing I asked everyone was the
do not come with pity with
prejudice for our family because
we do not want we do not deserve it
we only want your respect so it’s so
we had a very big support one
very strong support from our friends and
there began my mission right first and
I identified what caused me bad
I worked
not overcome the point can hurt more
reach anyone with any
attitude will not hurt any more I’ll try
working on that person is not she
proceeding correctly the right way
Sometimes the person thinks he is sick
Beijing is not but it is not sick he had
a pathology he will not be able to
to do is things that other
age range will achieve
usually it will take a while
most everything in your time but not sick
He’s healthier than I am, right?
so this is normal and normal
he has two eyes one mouth nose
It’s super normal, it’s no difference, right?
so that’s when I started to see
how society sees the person with
deficiency then with this in the midst of
pain in suffering amid
numerous negative diagnoses among
to an uncertain future
I decided to transform that pain.
encourage that disease to over-
to face all the obstacles that I
I would find it day by day because from there
I realized it would not be easy, it would not be
easy when you get a
negative diagnosis is not easy when
we get prejudice from within
home and away from home is not easy when
you do not have your rights acquired
there is much law in law but in the
practice is difficult to find
difficulty when I decided to make a
union of mothers a collective of mothers who
lived and lived the same reality that I
I was living to be able to fight, not go
to improve only this is never good here
so we identified that we lived
the same gaps and we wanted to
change because it’s right then right
we did
I founded, I’m president.
founding president of the NGO
mothers of angels with the caring association
of mothers and families of babies with
my race would make it not the correct term
is the congenital syndrome of the virus
né and today there is a collection 399 babies in all
the state gives of reef until the sertão
even today we had three events
happening at the same time reef
caruaru and ouricuri and we arrived
caruaru in that rush but gave everything
right and we coordinating trying
coordinate all this and from one
of this NGO association
I started to help other families
other people have not since the
Why do you think you have a child and you?
do not accept it
It’s the saddest thing the world knows.
so you can help a mother one
family to accept what God gave you
to understand that you were privileged
does not see himself as the
Society sees that you are the woman.
less privileged to have a child with
You are not a woman of
A lot of luck, you’re a very lucky father.
because god he trusted you
The mission of caring for an angel is not
for anyone
if it is not for all the people god it
does not give people who are not trained
He does not give to people who do not go
able to carry the pain carry the
countless nuns we receive on a daily basis
You know and still be a mother.
76 8% of women who are welcomed
For one, I do not see the time.
to run such people here so it’s obvious not to
You’re not running here for me it ‘s 71
and 86 percent of women who
are hosted by one of them are
abandoned by your partner because
man does not bear the weight that the
woman supports I am statistical I am
accompanied here by jaqueline vieira the mother
daniel oma her secretary
statistic then knows this mother
This woman needs to be a mother father.
24 hour physical therapist caretaker
occupational therapist
family psychologist knows and she
need to walk beautiful in high heels
makeup perfect and know it is not so
We are real women.
so we learned in the pain of
what is this operation what is it
You can feel the pain from close
suffering from near rejection and
contempt of life and understand that
would give a good thing is that you can
take all that reality into things
Good things that bring you and me
I say with the certainty of the world and I say
representing more than 400 million
throughout the state of pernambuco that
after the birth of my son was the
Best thing in the world of my life I
I am better as a human being. I am the person.
friendliest I put myself in the
next
I’m a person that I’ve had the pleasure of
to help others and when people
help the next we are helped then
besides fighting for rights
do we work inclusion and
Inclusion is nothing more than respect
that’s what I bring to you
When we respect the next one
we respect and respect
and taking care of us and our
descendants
then practice inclusion to have a
respect
practice a love and if you do encounter
the difficult situation in life understand
just as it did not come to an end
tunnel for you, right?
also today our motto is that the
microsafe would do is not the end to us
declares this to the four corners of the world
and I’m very happy for the opportunity
to share this with you all
thank you and good night
[Applause]
”
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