a few months ago at an event that I was hosting I met a woman named Lisa she was
hosting I met a woman named Lisa she was
hosting I met a woman named Lisa she was brave enough to share her story about
brave enough to share her story about
brave enough to share her story about how she was infected with HIV at an
how she was infected with HIV at an
how she was infected with HIV at an early age in the early 1990s by her
early age in the early 1990s by her
early age in the early 1990s by her husband and at that time she explained
husband and at that time she explained
husband and at that time she explained that HIV was highly stigmatized and she
that HIV was highly stigmatized and she
that HIV was highly stigmatized and she often would hear negative comments from
often would hear negative comments from
often would hear negative comments from her family and friends about people
her family and friends about people
her family and friends about people living with HIV things like oh people
living with HIV things like oh people
living with HIV things like oh people were living it with HIV they have they
were living it with HIV they have they
were living it with HIV they have they got that juice they got that kool-aid I
got that juice they got that kool-aid I
got that juice they got that kool-aid I don’t want to even eat the food that
don’t want to even eat the food that
don’t want to even eat the food that they prepare and so naturally that made
they prepare and so naturally that made
they prepare and so naturally that made her feel very uncomfortable even sharing
her feel very uncomfortable even sharing
her feel very uncomfortable even sharing her status with her children but what
her status with her children but what
her status with her children but what stuck out to me was about her story was
stuck out to me was about her story was
stuck out to me was about her story was the fact that when she went to the
the fact that when she went to the
the fact that when she went to the health department
health department
health department she was seeking treatment for HIV and
she was seeking treatment for HIV and
she was seeking treatment for HIV and the officials told her that she needed
the officials told her that she needed
the officials told her that she needed to go back outside and walk around the
to go back outside and walk around the
to go back outside and walk around the building and go to the side entrance now
building and go to the side entrance now
building and go to the side entrance now when you hear about somebody telling you
when you hear about somebody telling you
when you hear about somebody telling you to go outside and go to a side entrance
to go outside and go to a side entrance
to go outside and go to a side entrance what immediately comes to mind so
what immediately comes to mind so
what immediately comes to mind so ironically at that same event there was
ironically at that same event there was
ironically at that same event there was a woman there who worked at the health
a woman there who worked at the health
a woman there who worked at the health department around the same time that she
department around the same time that she
department around the same time that she was seeking treatment and she said while
was seeking treatment and she said while
was seeking treatment and she said while the officials we were trying to come up
the officials we were trying to come up
the officials we were trying to come up with a solution that was sensitive to
with a solution that was sensitive to
with a solution that was sensitive to the stigma of HIV and we were trying to
the stigma of HIV and we were trying to
the stigma of HIV and we were trying to protect people’s confidentiality by
protect people’s confidentiality by
protect people’s confidentiality by coming up with a separate entrance but
coming up with a separate entrance but
coming up with a separate entrance but the problem with this solution is that
the problem with this solution is that
the problem with this solution is that it ended up exacerbating the stigma and
it ended up exacerbating the stigma and
it ended up exacerbating the stigma and probably made other people living with
probably made other people living with
probably made other people living with HIV not to want to go to the health
HIV not to want to go to the health
HIV not to want to go to the health department to seek treatment and it was
department to seek treatment and it was
department to seek treatment and it was developed from a top down by people who
developed from a top down by people who
developed from a top down by people who knew a lot about HIV treatment and how
knew a lot about HIV treatment and how
knew a lot about HIV treatment and how to treat the disease and but not a lot
to treat the disease and but not a lot
to treat the disease and but not a lot about what the community wanted and
about what the community wanted and
about what the community wanted and needed and this actually happens quite
needed and this actually happens quite
needed and this actually happens quite often among researchers who have a lot
often among researchers who have a lot
often among researchers who have a lot of knowledge about how to treat
of knowledge about how to treat
of knowledge about how to treat particular issues social issues and
particular issues social issues and
particular issues social issues and diseases but and they come up with these
diseases but and they come up with these
diseases but and they come up with these ideas to test them
ideas to test them
ideas to test them and see if they work but they’re never
and see if they work but they’re never
and see if they work but they’re never actually consulting the community and so
actually consulting the community and so
actually consulting the community and so we end up with this problem of having an
we end up with this problem of having an
we end up with this problem of having an abundance of resources but very slow and
abundance of resources but very slow and
abundance of resources but very slow and ineffective results what might have
ineffective results what might have
ineffective results what might have happened if we had used crowdsourcing
happened if we had used crowdsourcing
happened if we had used crowdsourcing instead crowdsourcing is this bottom-up
instead crowdsourcing is this bottom-up
instead crowdsourcing is this bottom-up approach that’s gaining traction this is
approach that’s gaining traction this is
approach that’s gaining traction this is it’s a way that you can have the public
it’s a way that you can have the public
it’s a way that you can have the public contribute their ideas and work together
contribute their ideas and work together
contribute their ideas and work together to solve problems and one way you can do
to solve problems and one way you can do
to solve problems and one way you can do crowdsourcing is through contests where
crowdsourcing is through contests where
crowdsourcing is through contests where the public contributes their ideas to
the public contributes their ideas to
the public contributes their ideas to solve a particular issue some examples
solve a particular issue some examples
solve a particular issue some examples in popular culture are the Wikipedia and
in popular culture are the Wikipedia and
in popular culture are the Wikipedia and Kickstarter campaigns so I was tasked
Kickstarter campaigns so I was tasked
Kickstarter campaigns so I was tasked with developing a project that used
with developing a project that used
with developing a project that used crowdsourcing to improve community
crowdsourcing to improve community
crowdsourcing to improve community engagement for HIV cure research now
engagement for HIV cure research now
engagement for HIV cure research now when you think about HIV research you
when you think about HIV research you
when you think about HIV research you normally think about studies that are
normally think about studies that are
normally think about studies that are trying to develop medications to improve
trying to develop medications to improve
trying to develop medications to improve the disease and its symptoms but HIV
the disease and its symptoms but HIV
the disease and its symptoms but HIV cure research is trying to eradicate the
cure research is trying to eradicate the
cure research is trying to eradicate the virus from the body altogether or at
virus from the body altogether or at
virus from the body altogether or at least get to the point where people can
least get to the point where people can
least get to the point where people can go into remission and no longer have to
go into remission and no longer have to
go into remission and no longer have to rely on taking medication but beyond it
rely on taking medication but beyond it
rely on taking medication but beyond it some medication we also have to think
some medication we also have to think
some medication we also have to think about the social issues that might shape
about the social issues that might shape
about the social issues that might shape the future of HIV cure research in order
the future of HIV cure research in order
the future of HIV cure research in order to really address those social issues we
to really address those social issues we
to really address those social issues we have to ask tough questions like who is
have to ask tough questions like who is
have to ask tough questions like who is the community that needs to be engaged
the community that needs to be engaged
the community that needs to be engaged what would make them want to talk about
what would make them want to talk about
what would make them want to talk about a stigmatized topic like HIV or even
a stigmatized topic like HIV or even
a stigmatized topic like HIV or even participate in crowdsourcing contests
participate in crowdsourcing contests
participate in crowdsourcing contests what’s unique about Durham as a local
what’s unique about Durham as a local
what’s unique about Durham as a local context and finally how does the
context and finally how does the
context and finally how does the community want to be engaged so we
community want to be engaged so we
community want to be engaged so we started off with the who we know that
started off with the who we know that
started off with the who we know that African Americans between the ages of 18
African Americans between the ages of 18
African Americans between the ages of 18 and 35 are at the highest risk for HIV
and 35 are at the highest risk for HIV
and 35 are at the highest risk for HIV in the United States they represent 45
in the United States they represent 45
in the United States they represent 45 percent of AIDS cases but there are some
percent of AIDS cases but there are some
percent of AIDS cases but there are some groups within that population that are
groups within that population that are
groups within that population that are also at the highest risk including
also at the highest risk including
also at the highest risk including transgender women
transgender women
transgender women men who have sex with men and also
men who have sex with men and also
men who have sex with men and also heterosexual women and men who are in
heterosexual women and men who are in
heterosexual women and men who are in non-monogamous relationships we also
non-monogamous relationships we also
non-monogamous relationships we also have to think about Durham as a local
have to think about Durham as a local
have to think about Durham as a local context so Durham is the third highest
context so Durham is the third highest
context so Durham is the third highest county in North Carolina for HIV
county in North Carolina for HIV
county in North Carolina for HIV infection rates and number nine in the
infection rates and number nine in the
infection rates and number nine in the country for AIDS related deaths but at
country for AIDS related deaths but at
country for AIDS related deaths but at the same time we are known as the city
the same time we are known as the city
the same time we are known as the city of medicine we have the technological
of medicine we have the technological
of medicine we have the technological innovation and entrepreneurship and we
innovation and entrepreneurship and we
innovation and entrepreneurship and we are a global hub for HIV research and
are a global hub for HIV research and
are a global hub for HIV research and clinical trials and also HIV cure
clinical trials and also HIV cure
clinical trials and also HIV cure research so we have the resources that
research so we have the resources that
research so we have the resources that are necessary to actually eradicate this
are necessary to actually eradicate this
are necessary to actually eradicate this epidemic but there are some barriers to
epidemic but there are some barriers to
epidemic but there are some barriers to participating in HIV research as we were
participating in HIV research as we were
participating in HIV research as we were talking to community members a lot of
talking to community members a lot of
talking to community members a lot of times they would tell us that there was
times they would tell us that there was
times they would tell us that there was fear and apathy and feeling disconnected
fear and apathy and feeling disconnected
fear and apathy and feeling disconnected from researchers and research and they
from researchers and research and they
from researchers and research and they also felt like they needed to have a
also felt like they needed to have a
also felt like they needed to have a certain level of intelligence or
certain level of intelligence or
certain level of intelligence or knowledge about HIV in order to feel
knowledge about HIV in order to feel
knowledge about HIV in order to feel like they could contribute to a
like they could contribute to a
like they could contribute to a crowdsourcing content but there were
crowdsourcing content but there were
crowdsourcing content but there were also motivators to wanted to be a part
also motivators to wanted to be a part
also motivators to wanted to be a part of a project like this they said that
of a project like this they said that
of a project like this they said that they wanted to help the community
they wanted to help the community
they wanted to help the community altruism was one of the biggest
altruism was one of the biggest
altruism was one of the biggest motivators they wanted to find a cure
motivators they wanted to find a cure
motivators they wanted to find a cure for HIV and so when we asked people what
for HIV and so when we asked people what
for HIV and so when we asked people what is a cure for HIV mean to them this
is a cure for HIV mean to them this
is a cure for HIV mean to them this quote really kind of sums up this
quote really kind of sums up this
quote really kind of sums up this sentiment a cure is involved shifting
sentiment a cure is involved shifting
sentiment a cure is involved shifting the underlying challenges of stable
the underlying challenges of stable
the underlying challenges of stable relationships and communities that has
relationships and communities that has
relationships and communities that has made this problem of HIV ravaged the
made this problem of HIV ravaged the
made this problem of HIV ravaged the african-american community a cure is not
african-american community a cure is not
african-american community a cure is not just about medication but it’s about
just about medication but it’s about
just about medication but it’s about social justice equity and making sure
social justice equity and making sure
social justice equity and making sure black life is protected that’s my
black life is protected that’s my
black life is protected that’s my favorite part a cure is not just about
favorite part a cure is not just about
favorite part a cure is not just about medication but it’s about social justice
medication but it’s about social justice
medication but it’s about social justice equity and making sure black life is
equity and making sure black life is
equity and making sure black life is protected so that’s where we started so
protected so that’s where we started so
protected so that’s where we started so I started to reach out to people in the
I started to reach out to people in the
I started to reach out to people in the community who I thought might be
community who I thought might be
community who I thought might be interested in participating in this
interested in participating in this
interested in participating in this project and we decided to host focus
project and we decided to host focus
project and we decided to host focus groups to get feedback on every aspect
groups to get feedback on every aspect
groups to get feedback on every aspect of the project what’s the name what
of the project what’s the name what
of the project what’s the name what should be the hashtag and the colors
should be the hashtag and the colors
should be the hashtag and the colors that we use and how should we market it
that we use and how should we market it
that we use and how should we market it to African Americans between 18 and 35 I
to African Americans between 18 and 35 I
to African Americans between 18 and 35 I was really excited about this and I was
was really excited about this and I was
was really excited about this and I was like okay this is a great idea people
like okay this is a great idea people
like okay this is a great idea people are going to come where everybody’s
are going to come where everybody’s
are going to come where everybody’s gonna be on board the first focus where
gonna be on board the first focus where
gonna be on board the first focus where we have five people show up so but I
we have five people show up so but I
we have five people show up so but I couldn’t let that discourage me and we
couldn’t let that discourage me and we
couldn’t let that discourage me and we use that opportunity to really get some
use that opportunity to really get some
use that opportunity to really get some some in depth and positive feedback and
some in depth and positive feedback and
some in depth and positive feedback and so we started to talk about how hip-hop
so we started to talk about how hip-hop
so we started to talk about how hip-hop and music and art and social media could
and music and art and social media could
and music and art and social media could be great ways to get this demographic
be great ways to get this demographic
be great ways to get this demographic involved in an hiv-related project and
involved in an hiv-related project and
involved in an hiv-related project and so on the bottom of the screen you can
so on the bottom of the screen you can
so on the bottom of the screen you can see the logo that we came up with based
see the logo that we came up with based
see the logo that we came up with based on the feedback and the logo represents
on the feedback and the logo represents
on the feedback and the logo represents multiple things it’s a target because we
multiple things it’s a target because we
multiple things it’s a target because we have a goal we want to cure HIV it’s
have a goal we want to cure HIV it’s
have a goal we want to cure HIV it’s having a piece of the pie so you can
having a piece of the pie so you can
having a piece of the pie so you can have ownership over this project and
have ownership over this project and
have ownership over this project and finding a cure and it also kind of looks
finding a cure and it also kind of looks
finding a cure and it also kind of looks like a record which it has a reference
like a record which it has a reference
like a record which it has a reference to hip-hop but I also had to take a step
to hip-hop but I also had to take a step
to hip-hop but I also had to take a step back given the fact that there wasn’t a
back given the fact that there wasn’t a
back given the fact that there wasn’t a lot of people who came to the first few
lot of people who came to the first few
lot of people who came to the first few sessions I had to take a step back and
sessions I had to take a step back and
sessions I had to take a step back and think about how could I better reach
think about how could I better reach
think about how could I better reach people and get to get the community on
people and get to get the community on
people and get to get the community on board for this project so I set up a
board for this project so I set up a
board for this project so I set up a meeting with a friend of mine who was
meeting with a friend of mine who was
meeting with a friend of mine who was doing another community engagement
doing another community engagement
doing another community engagement project in the area and asked him how he
project in the area and asked him how he
project in the area and asked him how he built his project from the ground up and
built his project from the ground up and
built his project from the ground up and he said you literally sit one-on-one
he said you literally sit one-on-one
he said you literally sit one-on-one with people in their houses and at cafes
with people in their houses and at cafes
with people in their houses and at cafes and you asked them about their day you
and you asked them about their day you
and you asked them about their day you asked them what’s going on how are you
asked them what’s going on how are you
asked them what’s going on how are you feeling and what are you interested in
feeling and what are you interested in
feeling and what are you interested in what are your goals and then through
what are your goals and then through
what are your goals and then through that conversation we started to see that
that conversation we started to see that
that conversation we started to see that there was overlap and interest and we
there was overlap and interest and we
there was overlap and interest and we started to try to figure out how we
started to try to figure out how we
started to try to figure out how we could collaborate to partner together to
could collaborate to partner together to
could collaborate to partner together to build this project so that’s what I did
build this project so that’s what I did
build this project so that’s what I did I created a list of people that I knew
I created a list of people that I knew
I created a list of people that I knew who were in charge of community-based
who were in charge of community-based
who were in charge of community-based organizations local businesses and
organizations local businesses and
organizations local businesses and community leaders and we met and we
community leaders and we met and we
community leaders and we met and we talked when we figured out how we could
talked when we figured out how we could
talked when we figured out how we could work together to build up this project
work together to build up this project
work together to build up this project and so over the course of ten months we
and so over the course of ten months we
and so over the course of ten months we developed partnerships with over 25 HIV
developed partnerships with over 25 HIV
developed partnerships with over 25 HIV related community-based organizations
related community-based organizations
related community-based organizations local businesses and community leaders
local businesses and community leaders
local businesses and community leaders and the community partnerships ended up
and the community partnerships ended up
and the community partnerships ended up being one of the most important parts of
being one of the most important parts of
being one of the most important parts of this project because they had access to
this project because they had access to
this project because they had access to the community in a way that I couldn’t
the community in a way that I couldn’t
the community in a way that I couldn’t reach on my own and at this community
reach on my own and at this community
reach on my own and at this community partner retreat that we had some of the
partner retreat that we had some of the
partner retreat that we had some of the feedback that we got from the people who
feedback that we got from the people who
feedback that we got from the people who were attending said that this was one of
were attending said that this was one of
were attending said that this was one of the first times they had ever been in
the first times they had ever been in
the first times they had ever been in the same room with HIV prevention
the same room with HIV prevention
the same room with HIV prevention treatment and cure researchers cure
treatment and cure researchers cure
treatment and cure researchers cure scientists community leaders and local
scientists community leaders and local
scientists community leaders and local businesses all in the same room
businesses all in the same room
businesses all in the same room strategizing working together to talk
strategizing working together to talk
strategizing working together to talk about how they could collaborate to
about how they could collaborate to
about how they could collaborate to reach and find a cure because most of
reach and find a cure because most of
reach and find a cure because most of the time we work in silos we don’t know
the time we work in silos we don’t know
the time we work in silos we don’t know each other and oftentimes our efforts
each other and oftentimes our efforts
each other and oftentimes our efforts are not coordinated and so this project
are not coordinated and so this project
are not coordinated and so this project served as a connector between these
served as a connector between these
served as a connector between these groups and crowdsourcing served as a
groups and crowdsourcing served as a
groups and crowdsourcing served as a connector between these groups in an
connector between these groups in an
connector between these groups in an effort to collaborate with the
effort to collaborate with the
effort to collaborate with the organizations we set up times to figure
organizations we set up times to figure
organizations we set up times to figure out how we could do events together
out how we could do events together
out how we could do events together community engagement events and these
community engagement events and these
community engagement events and these community engagement events this is one
community engagement events this is one
community engagement events this is one example a set down and a with the first
example a set down and a with the first
example a set down and a with the first event that we did was with a woman who
event that we did was with a woman who
event that we did was with a woman who was trying to start her own business and
was trying to start her own business and
was trying to start her own business and she was trying to start a business that
she was trying to start a business that
she was trying to start a business that use education and African centered
use education and African centered
use education and African centered philosophy and combine it with music so
philosophy and combine it with music so
philosophy and combine it with music so she had access to hip-hop artists and we
she had access to hip-hop artists and we
she had access to hip-hop artists and we pulled together an event that talked
pulled together an event that talked
pulled together an event that talked about conspiracy theories about HIV cure
about conspiracy theories about HIV cure
about conspiracy theories about HIV cure and and how that tied into the community
and and how that tied into the community
and and how that tied into the community and so at that event we had that the
and so at that event we had that the
and so at that event we had that the audience ask their questions and
audience ask their questions and
audience ask their questions and concerns about the conspiracy theories
concerns about the conspiracy theories
concerns about the conspiracy theories about HIV and HIV cure and then we
about HIV and HIV cure and then we
about HIV and HIV cure and then we worked with the hip-hop artists to
worked with the hip-hop artists to
worked with the hip-hop artists to create a song together and then they
create a song together and then they
create a song together and then they moved into freestyle and cypher and so
moved into freestyle and cypher and so
moved into freestyle and cypher and so also based on the themes from that
also based on the themes from that
also based on the themes from that conversation we then also developed the
conversation we then also developed the
conversation we then also developed the HIV the fact first is fiction HIV cure
HIV the fact first is fiction HIV cure
HIV the fact first is fiction HIV cure handout that you see above and that was
handout that you see above and that was
handout that you see above and that was developed based on the conversation is
developed based on the conversation is
developed based on the conversation is developed by the community and we then
developed by the community and we then
developed by the community and we then use that to disseminate at future events
use that to disseminate at future events
use that to disseminate at future events some other types of events that we
some other types of events that we
some other types of events that we hosted were an open mic for HIV
hosted were an open mic for HIV
hosted were an open mic for HIV awareness we did a transgender woman’s
awareness we did a transgender woman’s
awareness we did a transgender woman’s day of empowerment we did a pain
day of empowerment we did a pain
day of empowerment we did a pain conversation with led by a local teen
conversation with led by a local teen
conversation with led by a local teen artist and we also hosted an
artist and we also hosted an
artist and we also hosted an award-winning forum on the issues that
award-winning forum on the issues that
award-winning forum on the issues that black women face and how that
black women face and how that
black women face and how that particularly pertains to HIV cure
particularly pertains to HIV cure
particularly pertains to HIV cure research our first contest one of the
research our first contest one of the
research our first contest one of the challenges that we faced was that people
challenges that we faced was that people
challenges that we faced was that people didn’t know about HIV cure research and
didn’t know about HIV cure research and
didn’t know about HIV cure research and they didn’t know what crowdsourcing was
they didn’t know what crowdsourcing was
they didn’t know what crowdsourcing was and so a lot of times we had to use
and so a lot of times we had to use
and so a lot of times we had to use those events as a way to educate people
those events as a way to educate people
those events as a way to educate people about those particular topics but we
about those particular topics but we
about those particular topics but we also use the crowdsourcing contest as a
also use the crowdsourcing contest as a
also use the crowdsourcing contest as a way to get community feedback and
way to get community feedback and
way to get community feedback and submissions creative submissions art
submissions creative submissions art
submissions creative submissions art music poetry and songs and whatever they
music poetry and songs and whatever they
music poetry and songs and whatever they could come up with reflecting on the
could come up with reflecting on the
could come up with reflecting on the theme what does HIV cure mean to you and
theme what does HIV cure mean to you and
theme what does HIV cure mean to you and that contest was used as a way to then
that contest was used as a way to then
that contest was used as a way to then create a campaign that raised awareness
create a campaign that raised awareness
create a campaign that raised awareness about HIV cure research and so you can
about HIV cure research and so you can
about HIV cure research and so you can see some of the examples from the
see some of the examples from the
see some of the examples from the submissions that we got and it it also
submissions that we got and it it also
submissions that we got and it it also kind of showed this direct connection
kind of showed this direct connection
kind of showed this direct connection for community members who submitted
for community members who submitted
for community members who submitted these ideas it show the direct
these ideas it show the direct
these ideas it show the direct connection from their ideas to then
connection from their ideas to then
connection from their ideas to then turning into a marketing campaign right
turning into a marketing campaign right
turning into a marketing campaign right so they saw the direct result of their
so they saw the direct result of their
so they saw the direct result of their work and their ideas being celebrated we
work and their ideas being celebrated we
work and their ideas being celebrated we also had to pay attention to the
also had to pay attention to the
also had to pay attention to the feedback that we were getting from
feedback that we were getting from
feedback that we were getting from people saying that they wanted to know
people saying that they wanted to know
people saying that they wanted to know how to better use technology to improve
how to better use technology to improve
how to better use technology to improve HIV HIV work and HIV and now
HIV HIV work and HIV and now
HIV HIV work and HIV and now about HIV so the second contest that we
about HIV so the second contest that we
about HIV so the second contest that we did was a crowdsourcing contest that
did was a crowdsourcing contest that
did was a crowdsourcing contest that asked groups to come up with a
asked groups to come up with a
asked groups to come up with a sustainable business model that use
sustainable business model that use
sustainable business model that use technology to improve community
technology to improve community
technology to improve community engagement for HIV and so the winners
engagement for HIV and so the winners
engagement for HIV and so the winners came up with an idea for an app and so
came up with an idea for an app and so
came up with an idea for an app and so now we’re currently working with them to
now we’re currently working with them to
now we’re currently working with them to turn that idea for an app into reality
turn that idea for an app into reality
turn that idea for an app into reality by connecting them with networks and
by connecting them with networks and
by connecting them with networks and resources but beyond just the
resources but beyond just the
resources but beyond just the crowdsourcing contest we also had to pay
crowdsourcing contest we also had to pay
crowdsourcing contest we also had to pay attention to some of the social
attention to some of the social
attention to some of the social political and economic conditions that
political and economic conditions that
political and economic conditions that put people at risk for HIV in the first
put people at risk for HIV in the first
put people at risk for HIV in the first place some of the things that I really
place some of the things that I really
place some of the things that I really had to take a step back and learn was
had to take a step back and learn was
had to take a step back and learn was and swallow a pill is that is the
and swallow a pill is that is the
and swallow a pill is that is the feedback that we got from people living
feedback that we got from people living
feedback that we got from people living with HIV
with HIV
with HIV miss miss Lisa and her friends told me
miss miss Lisa and her friends told me
miss miss Lisa and her friends told me they were actually coming at that event
they were actually coming at that event
they were actually coming at that event that I was talking about they were
that I was talking about they were
that I was talking about they were coming to the event they had to take the
coming to the event they had to take the
coming to the event they had to take the bus from North Durham down to Chapel
bus from North Durham down to Chapel
bus from North Durham down to Chapel Hill and that bus that they took didn’t
Hill and that bus that they took didn’t
Hill and that bus that they took didn’t take them to the venue where we were
take them to the venue where we were
take them to the venue where we were hosting the event so I had to go pick
hosting the event so I had to go pick
hosting the event so I had to go pick them up and then take them to the event
them up and then take them to the event
them up and then take them to the event and that issue of lack of access to
and that issue of lack of access to
and that issue of lack of access to transportation and the transportation
transportation and the transportation
transportation and the transportation system not being effective for them to
system not being effective for them to
system not being effective for them to be able to reach an event that’s hosted
be able to reach an event that’s hosted
be able to reach an event that’s hosted for them is one example of a challenge
for them is one example of a challenge
for them is one example of a challenge that we have to pay attention to and so
that we have to pay attention to and so
that we have to pay attention to and so they gave me feedback and said that we
they gave me feedback and said that we
they gave me feedback and said that we need to find venues that are easily
need to find venues that are easily
need to find venues that are easily accessible to the community and in their
accessible to the community and in their
accessible to the community and in their communities and miss Lisa also told me
communities and miss Lisa also told me
communities and miss Lisa also told me that we need to have people living with
that we need to have people living with
that we need to have people living with HIV talking about their experiences and
HIV talking about their experiences and
HIV talking about their experiences and not just relying on researchers to talk
not just relying on researchers to talk
not just relying on researchers to talk about issues so at that very at the very
about issues so at that very at the very
about issues so at that very at the very next event that we hosted we have miss
next event that we hosted we have miss
next event that we hosted we have miss Lisa and her friends go up on stage and
Lisa and her friends go up on stage and
Lisa and her friends go up on stage and talk about their experiences and now
talk about their experiences and now
talk about their experiences and now we’re working with them to develop the
we’re working with them to develop the
we’re working with them to develop the next crowdsourcing contest and the next
next crowdsourcing contest and the next
next crowdsourcing contest and the next community engagement events so this
community engagement events so this
community engagement events so this project is gaining national attention
project is gaining national attention
project is gaining national attention and we’ve we’ve over the course of the
and we’ve we’ve over the course of the
and we’ve we’ve over the course of the Tim past in month
Tim past in month
Tim past in month we have collected over 40 contest
we have collected over 40 contest
we have collected over 40 contest submissions we’ve reached over 700
submissions we’ve reached over 700
submissions we’ve reached over 700 people at in person events and we’ve
people at in person events and we’ve
people at in person events and we’ve reached over 200,000 people online we’ve
reached over 200,000 people online we’ve
reached over 200,000 people online we’ve had nasha we’ve had celebrities who’ve
had nasha we’ve had celebrities who’ve
had nasha we’ve had celebrities who’ve reached out to us on social media and
reached out to us on social media and
reached out to us on social media and volunteered to endorse our project and
volunteered to endorse our project and
volunteered to endorse our project and endorsed the idea of community members
endorsed the idea of community members
endorsed the idea of community members being involved in HIV care research and
being involved in HIV care research and
being involved in HIV care research and even though our project has a local
even though our project has a local
even though our project has a local focus it has a global impact we are a
focus it has a global impact we are a
focus it has a global impact we are a pilot project to be implemented in Cape
pilot project to be implemented in Cape
pilot project to be implemented in Cape Town South Africa in Guangzhou China and
Town South Africa in Guangzhou China and
Town South Africa in Guangzhou China and we’re also working with HIV cure
we’re also working with HIV cure
we’re also working with HIV cure scientists in Bangkok Thailand so this
scientists in Bangkok Thailand so this
scientists in Bangkok Thailand so this project the idea behind crowdsourcing
project the idea behind crowdsourcing
project the idea behind crowdsourcing harnesses the strengths of the ideas in
harnesses the strengths of the ideas in
harnesses the strengths of the ideas in the community people from different
the community people from different
the community people from different walks of life from different educational
walks of life from different educational
walks of life from different educational levels from income levels from
levels from income levels from
levels from income levels from socio-economic background from different
socio-economic background from different
socio-economic background from different races and sexualities and genders to
races and sexualities and genders to
races and sexualities and genders to work together to come up with ideas that
work together to come up with ideas that
work together to come up with ideas that work for their community now once you
work for their community now once you
work for their community now once you can close your eyes and I want you to
can close your eyes and I want you to
can close your eyes and I want you to think about a world without HIV
think about a world without HIV
think about a world without HIV infection what does it look like and how
infection what does it look like and how
infection what does it look like and how does crowdsourcing help us get there
does crowdsourcing help us get there
does crowdsourcing help us get there thank you
thank you
thank you [Applause]
”
Be First to Comment