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Challenges of refugees living with a chronic disease | Katarina Braune | TEDxUniHalle


you

you [Applause]

[Applause]

[Applause] hi there my name is Katrina I’m a

hi there my name is Katrina I’m a

hi there my name is Katrina I’m a pediatrician specialized in

pediatrician specialized in

pediatrician specialized in endocrinology and diabetes and for one

endocrinology and diabetes and for one

endocrinology and diabetes and for one year I worked with Berlin’s refugee

year I worked with Berlin’s refugee

year I worked with Berlin’s refugee Health Unit I’m a doctor and a patient

Health Unit I’m a doctor and a patient

Health Unit I’m a doctor and a patient when I was a kid my immune system had

when I was a kid my immune system had

when I was a kid my immune system had one of my vital organs down and I was

one of my vital organs down and I was

one of my vital organs down and I was diagnosed with type 1 diabetes type 1

diagnosed with type 1 diabetes type 1

diagnosed with type 1 diabetes type 1 diabetes means multiple blood sugar

diabetes means multiple blood sugar

diabetes means multiple blood sugar tests and insulin injections everyday

tests and insulin injections everyday

tests and insulin injections everyday and regular visits at a specialist

and regular visits at a specialist

and regular visits at a specialist doctor and the pharmacy in daily life it

doctor and the pharmacy in daily life it

doctor and the pharmacy in daily life it is quite difficult to keep your blood

is quite difficult to keep your blood

is quite difficult to keep your blood sugar levels in range

sugar levels in range

sugar levels in range whatever you do impacts it what you eat

whatever you do impacts it what you eat

whatever you do impacts it what you eat when you’re sick

when you’re sick

when you’re sick physical activity whether you’re nervous

physical activity whether you’re nervous

physical activity whether you’re nervous or excited

or excited

or excited everything can potentially make your

everything can potentially make your

everything can potentially make your blood sugar go up or down too little

blood sugar go up or down too little

blood sugar go up or down too little insulin will result in a high blood

insulin will result in a high blood

insulin will result in a high blood sugar and too much insulin will result

sugar and too much insulin will result

sugar and too much insulin will result on a low blood sugar both can be

on a low blood sugar both can be

on a low blood sugar both can be life-threatening acute events in this

life-threatening acute events in this

life-threatening acute events in this room 100 people at least 20 more of us

room 100 people at least 20 more of us

room 100 people at least 20 more of us have a chronic condition I’m sure there

have a chronic condition I’m sure there

have a chronic condition I’m sure there are people sitting here amongst us who

are people sitting here amongst us who

are people sitting here amongst us who are affected or have a friend or a

are affected or have a friend or a

are affected or have a friend or a family member if you want to show

family member if you want to show

family member if you want to show yourself feel free to do so

I’m here today to talk about a neglected

I’m here today to talk about a neglected group of refugees those with chronic

group of refugees those with chronic

group of refugees those with chronic conditions there are missing people

conditions there are missing people

conditions there are missing people while some arrived most don’t amongst

while some arrived most don’t amongst

while some arrived most don’t amongst the people migrating across borders

the people migrating across borders

the people migrating across borders there is the same occurrence of chronic

there is the same occurrence of chronic

there is the same occurrence of chronic disease as in any population refugees

disease as in any population refugees

disease as in any population refugees face many challenges every day even if

face many challenges every day even if

face many challenges every day even if they do not need medical service but for

they do not need medical service but for

they do not need medical service but for those who do finding access to medical

those who do finding access to medical

those who do finding access to medical care becomes a major challenge without

care becomes a major challenge without

care becomes a major challenge without health insurance many of them have to

health insurance many of them have to

health insurance many of them have to rely on volunteer doctors like my

rely on volunteer doctors like my

rely on volunteer doctors like my colleagues and myself in conflict areas

colleagues and myself in conflict areas

colleagues and myself in conflict areas like war-torn Syria there are only a

like war-torn Syria there are only a

like war-torn Syria there are only a small number of operational hospitals

small number of operational hospitals

small number of operational hospitals left many of them are working

left many of them are working

left many of them are working underground usually civilians and places

underground usually civilians and places

underground usually civilians and places like hospitals are protected by

like hospitals are protected by

like hospitals are protected by international humanitarian law and

international humanitarian law and

international humanitarian law and violation of these laws is considered as

violation of these laws is considered as

violation of these laws is considered as a war crime but in Syria they have

a war crime but in Syria they have

a war crime but in Syria they have become main targets of airstrikes and

become main targets of airstrikes and

become main targets of airstrikes and the hospitals we see on the news today

the hospitals we see on the news today

the hospitals we see on the news today likely won’t be there tomorrow in our

likely won’t be there tomorrow in our

likely won’t be there tomorrow in our refugee health unit we have helped more

refugee health unit we have helped more

refugee health unit we have helped more than 60,000 people since the war in

than 60,000 people since the war in

than 60,000 people since the war in Syria started that is more than two

Syria started that is more than two

Syria started that is more than two hundred people per day half of them are

hundred people per day half of them are

hundred people per day half of them are children amongst these children we have

children amongst these children we have

children amongst these children we have seen many infections one nutrition

seen many infections one nutrition

seen many infections one nutrition psychological trauma but only a few with

psychological trauma but only a few with

psychological trauma but only a few with chronic conditions those that we see in

chronic conditions those that we see in

chronic conditions those that we see in the hospitals of our country every day

diabetes or cancer doesn’t care how old

diabetes or cancer doesn’t care how old you are or if your country is at war

you are or if your country is at war

you are or if your country is at war it just happens also when it will happen

it just happens also when it will happen

it just happens also when it will happen to a child is totally unpredictable

to a child is totally unpredictable

to a child is totally unpredictable working with the refugee health unit we

working with the refugee health unit we

working with the refugee health unit we have received three children with type 1

have received three children with type 1

have received three children with type 1 diabetes among the 60,000 people we

diabetes among the 60,000 people we

diabetes among the 60,000 people we treated

treated

treated there should have been 250 children with

there should have been 250 children with

there should have been 250 children with diabetes

diabetes

diabetes we’re wondering where are those 247

we’re wondering where are those 247

we’re wondering where are those 247 children that should have arrived today

children that should have arrived today

children that should have arrived today I’ll tell you about one of the three

I’ll tell you about one of the three

I’ll tell you about one of the three that did Muhammad who was with us in

that did Muhammad who was with us in

that did Muhammad who was with us in burden now where his chronic condition

burden now where his chronic condition

burden now where his chronic condition can be cared for Muhammad was a

can be cared for Muhammad was a

can be cared for Muhammad was a ten-year-old boy who arrived in Europe

ten-year-old boy who arrived in Europe

ten-year-old boy who arrived in Europe just last month here he’s sitting in his

just last month here he’s sitting in his

just last month here he’s sitting in his hospital bed with his mother and father

hospital bed with his mother and father

hospital bed with his mother and father he is my patient and I’m his doctor and

he is my patient and I’m his doctor and

he is my patient and I’m his doctor and our life stories couldn’t be more

our life stories couldn’t be more

our life stories couldn’t be more different but there’s one thing that we

different but there’s one thing that we

different but there’s one thing that we have in common we both live with type 1

have in common we both live with type 1

have in common we both live with type 1 diabetes every day in both of our lives

diabetes every day in both of our lives

diabetes every day in both of our lives there was a day when our parents got

there was a day when our parents got

there was a day when our parents got extremely worried we were always thirsty

extremely worried we were always thirsty

extremely worried we were always thirsty despite drinking enough we were we

despite drinking enough we were we

despite drinking enough we were we rapidly lost weight despite eating

rapidly lost weight despite eating

rapidly lost weight despite eating enough we were irritable and short of

enough we were irritable and short of

enough we were irritable and short of breath and something was definitely

breath and something was definitely

breath and something was definitely wrong so both of our parents decided to

wrong so both of our parents decided to

wrong so both of our parents decided to take us to the doctor and the doctor

take us to the doctor and the doctor

take us to the doctor and the doctor told our parents your child has diabetes

told our parents your child has diabetes

told our parents your child has diabetes the good news is your child is going to

the good news is your child is going to

the good news is your child is going to live but there is no cure and your child

live but there is no cure and your child

live but there is no cure and your child will have to inject insulin every day

will have to inject insulin every day

will have to inject insulin every day without insulin a small child with type

without insulin a small child with type

without insulin a small child with type 1 diabetes can only survive for up to

1 diabetes can only survive for up to

1 diabetes can only survive for up to two days in my case this was the 14th of

two days in my case this was the 14th of

two days in my case this was the 14th of June in 2001 and for Muhammad it was the

June in 2001 and for Muhammad it was the

June in 2001 and for Muhammad it was the 14th of November in 2015 which was also

14th of November in 2015 which was also

14th of November in 2015 which was also the day when their home town Aleppo was

the day when their home town Aleppo was

the day when their home town Aleppo was hit by severe air strike and ironically

hit by severe air strike and ironically

hit by severe air strike and ironically was also were Diabetes Day after their

was also were Diabetes Day after their

was also were Diabetes Day after their home was bombed Muhammad’s family had no

home was bombed Muhammad’s family had no

home was bombed Muhammad’s family had no choice but to leave and find a new

choice but to leave and find a new

choice but to leave and find a new insulin supply at first they were able

insulin supply at first they were able

insulin supply at first they were able to find it on the black market they

to find it on the black market they

to find it on the black market they could only find it there

could only find it there

could only find it there because the only insulin producing

because the only insulin producing

because the only insulin producing facility in Syria was borned in 2015 so

facility in Syria was borned in 2015 so

facility in Syria was borned in 2015 so insulin had to be brought in from

insulin had to be brought in from

insulin had to be brought in from neighbor

neighbor

neighbor countries such as turkey or the Lebanon

countries such as turkey or the Lebanon

countries such as turkey or the Lebanon and it was of course heavily overpriced

and it was of course heavily overpriced

and it was of course heavily overpriced but diabetes management requires more

but diabetes management requires more

but diabetes management requires more than just access to insulin even in a

than just access to insulin even in a

than just access to insulin even in a hospital setting with diabetes

hospital setting with diabetes

hospital setting with diabetes specialists on hand it usually takes a

specialists on hand it usually takes a

specialists on hand it usually takes a few weeks to get the dosage right

few weeks to get the dosage right

few weeks to get the dosage right Muhammad’s family knew nearly nothing

Muhammad’s family knew nearly nothing

Muhammad’s family knew nearly nothing about how to use insulin but his father

about how to use insulin but his father

about how to use insulin but his father suffers from type 2 diabetes which may

suffers from type 2 diabetes which may

suffers from type 2 diabetes which may have saved Mohammed’s life although type

have saved Mohammed’s life although type

have saved Mohammed’s life although type 2 is quite different from type one

2 is quite different from type one

2 is quite different from type one diabetes and does not require insulin in

diabetes and does not require insulin in

diabetes and does not require insulin in every case

every case

every case Mohammed’s father at least knew how to

Mohammed’s father at least knew how to

Mohammed’s father at least knew how to perform a blood sugar test on his son’s

perform a blood sugar test on his son’s

perform a blood sugar test on his son’s finger and at least what the numbers

finger and at least what the numbers

finger and at least what the numbers meant after some time they were unable

meant after some time they were unable

meant after some time they were unable to find insulin anywhere in Syria’s so

to find insulin anywhere in Syria’s so

to find insulin anywhere in Syria’s so they tried to feed to Europe and took

they tried to feed to Europe and took

they tried to feed to Europe and took the risk to travel overseas which was

the risk to travel overseas which was

the risk to travel overseas which was the next big challenge for Mohammed’s

the next big challenge for Mohammed’s

the next big challenge for Mohammed’s family the decision to leave is already

family the decision to leave is already

family the decision to leave is already a challenge but their journey itself is

a challenge but their journey itself is

a challenge but their journey itself is risky and without support along the way

risky and without support along the way

risky and without support along the way when refugees fleeing towards Europe

when refugees fleeing towards Europe

when refugees fleeing towards Europe need medical aid there’s no guarantee

need medical aid there’s no guarantee

need medical aid there’s no guarantee that a doctor or hospital will take them

that a doctor or hospital will take them

that a doctor or hospital will take them in without being integrated into the

in without being integrated into the

in without being integrated into the local hospital systems they might be

local hospital systems they might be

local hospital systems they might be unable to afford or request medical

unable to afford or request medical

unable to afford or request medical attention

attention

attention Mohammed’s family fled to Turkey over

Mohammed’s family fled to Turkey over

Mohammed’s family fled to Turkey over the border and then paid smugglers for

the border and then paid smugglers for

the border and then paid smugglers for passage to Greece and into Europe most

passage to Greece and into Europe most

passage to Greece and into Europe most Mugler’s who take people over the

Mugler’s who take people over the

Mugler’s who take people over the Mediterranean Sea forced them to leave

Mediterranean Sea forced them to leave

Mediterranean Sea forced them to leave everything behind so they don’t sink

everything behind so they don’t sink

everything behind so they don’t sink Muhammad’s father secretly kept one

Muhammad’s father secretly kept one

Muhammad’s father secretly kept one thing the insulin and saved his son’s

thing the insulin and saved his son’s

thing the insulin and saved his son’s life Mohammed’s parents like all parents

life Mohammed’s parents like all parents

life Mohammed’s parents like all parents in and outside this room were willing to

in and outside this room were willing to

in and outside this room were willing to do absolutely everything to save their

do absolutely everything to save their

do absolutely everything to save their child’s life

child’s life

child’s life what would you do if there was no way to

what would you do if there was no way to

what would you do if there was no way to survive a few more days in this country

unfortunately not every family wins this

unfortunately not every family wins this fight and in some cases weiter

fight and in some cases weiter

fight and in some cases weiter medication gets thrown overboard

medication gets thrown overboard

medication gets thrown overboard so this story is also for them when

so this story is also for them when

so this story is also for them when Muhammad’s family left Syria they had no

Muhammad’s family left Syria they had no

Muhammad’s family left Syria they had no idea what would be waiting for them

idea what would be waiting for them

idea what would be waiting for them they were hoping to find a safe place

they were hoping to find a safe place

they were hoping to find a safe place where Muhammad could survive but they

where Muhammad could survive but they

where Muhammad could survive but they didn’t know the camps in Greece would be

didn’t know the camps in Greece would be

didn’t know the camps in Greece would be just as overcrowded as those in Syria

just as overcrowded as those in Syria

just as overcrowded as those in Syria and the neighboring countries with

and the neighboring countries with

and the neighboring countries with terrible hygienic conditions and that a

terrible hygienic conditions and that a

terrible hygienic conditions and that a long episode of hardship and monotony

long episode of hardship and monotony

long episode of hardship and monotony was waiting for them even after arriving

was waiting for them even after arriving

was waiting for them even after arriving a Europe the time it took for

a Europe the time it took for

a Europe the time it took for integration and acceptance became a

integration and acceptance became a

integration and acceptance became a burden the family split up in Greece

burden the family split up in Greece

burden the family split up in Greece Muhammad’s mother went ahead to Germany

Muhammad’s mother went ahead to Germany

Muhammad’s mother went ahead to Germany with their two younger siblings

with their two younger siblings

with their two younger siblings immediately applied for asylum and the

immediately applied for asylum and the

immediately applied for asylum and the application process for the family to be

application process for the family to be

application process for the family to be reunited and safety but it would take

reunited and safety but it would take

reunited and safety but it would take another one and a half years from 2015

another one and a half years from 2015

another one and a half years from 2015 to this year for Muhammad to brought in

to this year for Muhammad to brought in

to this year for Muhammad to brought in to his mother and that was also the

to his mother and that was also the

to his mother and that was also the first chance to see a pediatric diabetes

first chance to see a pediatric diabetes

first chance to see a pediatric diabetes specialist he had arrived in Europe and

specialist he had arrived in Europe and

specialist he had arrived in Europe and survived without any real support from

survived without any real support from

survived without any real support from any European medical system the patients

any European medical system the patients

any European medical system the patients we treated have all suffered hardship

we treated have all suffered hardship

we treated have all suffered hardship first the situation in their home

first the situation in their home

first the situation in their home country that forced them to leave then

country that forced them to leave then

country that forced them to leave then the long journey and finally even

the long journey and finally even

the long journey and finally even logistical and administrative challenges

logistical and administrative challenges

logistical and administrative challenges upon arrival the health check-up on

upon arrival the health check-up on

upon arrival the health check-up on arrival in Europe is sometimes the first

arrival in Europe is sometimes the first

arrival in Europe is sometimes the first opportunity to see a doctor in weeks

opportunity to see a doctor in weeks

opportunity to see a doctor in weeks months and sometimes even years in

months and sometimes even years in

months and sometimes even years in Greece all Muhammad’s family hype was

Greece all Muhammad’s family hype was

Greece all Muhammad’s family hype was only one type of insulin in the form of

only one type of insulin in the form of

only one type of insulin in the form of a drug we mostly don’t use in Europe

a drug we mostly don’t use in Europe

a drug we mostly don’t use in Europe anymore and no specialist to support

anymore and no specialist to support

anymore and no specialist to support them under these conditions Mohammad

them under these conditions Mohammad

them under these conditions Mohammad only survived by luck and thanks to the

only survived by luck and thanks to the

only survived by luck and thanks to the support of his family

support of his family

support of his family can we really claim to be taking proper

can we really claim to be taking proper

can we really claim to be taking proper care of those in need even after they

care of those in need even after they

care of those in need even after they have arrived mm that’s what type one

have arrived mm that’s what type one

have arrived mm that’s what type one international

international

international diabetes activist group estimates as the

diabetes activist group estimates as the

diabetes activist group estimates as the number of Syrians in dire need of

number of Syrians in dire need of

number of Syrians in dire need of insulin before the war diabetes like

insulin before the war diabetes like

insulin before the war diabetes like most chronic health conditions was a

most chronic health conditions was a

most chronic health conditions was a manageable disease in Syria yet suddenly

manageable disease in Syria yet suddenly

manageable disease in Syria yet suddenly it has become a death sentence not only

it has become a death sentence not only

it has become a death sentence not only in Syria but around the globe today

in Syria but around the globe today

in Syria but around the globe today people with type 1 diabetes and

people with type 1 diabetes and

people with type 1 diabetes and humanitarian crises are dying for those

humanitarian crises are dying for those

humanitarian crises are dying for those who stay the economic situation is often

who stay the economic situation is often

who stay the economic situation is often so bad that they cannot afford to eat or

so bad that they cannot afford to eat or

so bad that they cannot afford to eat or drink

drink

drink so how would anyone be able to buy

so how would anyone be able to buy

so how would anyone be able to buy medication for those who leave finding

medication for those who leave finding

medication for those who leave finding access to medication and doctors is even

access to medication and doctors is even

access to medication and doctors is even more complicated when they get stuck at

more complicated when they get stuck at

more complicated when they get stuck at refugee camps or at closed borders today

refugee camps or at closed borders today

refugee camps or at closed borders today there are over 50 million people

there are over 50 million people

there are over 50 million people violently uprooted from their homes that

violently uprooted from their homes that

violently uprooted from their homes that is about 250,000 people with type 1

is about 250,000 people with type 1

is about 250,000 people with type 1 diabetes without structure and safety

diabetes without structure and safety

diabetes without structure and safety without access to insulin and diabetes

without access to insulin and diabetes

without access to insulin and diabetes education that is as many as the

education that is as many as the

education that is as many as the population of this city living in a dire

population of this city living in a dire

population of this city living in a dire life-threatening reality this is a

life-threatening reality this is a

life-threatening reality this is a terrifying number but numbers and

terrifying number but numbers and

terrifying number but numbers and statistics don’t always tell us enough

statistics don’t always tell us enough

statistics don’t always tell us enough about who these people actually are

Mohammed is a story about the individual

Mohammed is a story about the individual person behind those numbers it is a

person behind those numbers it is a

person behind those numbers it is a story about that everybody has a name

story about that everybody has a name

story about that everybody has a name that everybody is somebody that

that everybody is somebody that

that everybody is somebody that everybody has a story and a medical

everybody has a story and a medical

everybody has a story and a medical history during war bombs and guns are

history during war bombs and guns are

history during war bombs and guns are not the only things that kill people for

not the only things that kill people for

not the only things that kill people for many it is the lack of infrastructure

many it is the lack of infrastructure

many it is the lack of infrastructure that is their death sentence a skilled

that is their death sentence a skilled

that is their death sentence a skilled person or a helping hand and their daily

person or a helping hand and their daily

person or a helping hand and their daily challenges can save lives and access to

challenges can save lives and access to

challenges can save lives and access to the systems of care that we are so proud

the systems of care that we are so proud

the systems of care that we are so proud of can be the difference between

of can be the difference between

of can be the difference between survival and death for the 247 missing

survival and death for the 247 missing

survival and death for the 247 missing children we can support organizations

children we can support organizations

children we can support organizations like type 1 international or Doctors

like type 1 international or Doctors

like type 1 international or Doctors Without Borders

Without Borders

Without Borders that are going beyond our national

that are going beyond our national

that are going beyond our national borders to help for those who arrive and

borders to help for those who arrive and

borders to help for those who arrive and live in the refugee camps next door each

live in the refugee camps next door each

live in the refugee camps next door each one of you can contribute by making our

one of you can contribute by making our

one of you can contribute by making our own neighborhoods a safe place for them

own neighborhoods a safe place for them

own neighborhoods a safe place for them so they can live a life in safety in

so they can live a life in safety in

so they can live a life in safety in peace and in dignity thank you

peace and in dignity thank you

peace and in dignity thank you [Applause]

[Applause]

[Applause] [Music]

”

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