[Applause]
in 2014
three years ago
the topic of cannabis and epilepsy
found unsuspecting in a meeting
casual on the sidewalk the place where I
I work with another school
specialty in a brief talk tells me
that I recommended to the mother of a
girl you know with epilepsy
refractory that will prove with the use of
cannabis at that moment before the surprise
of the proposal the toxic thing that
he was talking about cannabis or illegal
substance but above all I think that
by my own prejudices
I got really angry today is what
I remember and I am ashamed of that anger
because because months later it comes to me
query brought another city
an eight-month-old baby with a way to
epilepsy known the attacker known
like west syndrome that despite
have been treated since the
four months there was no improvement
the mother had read on the internet that
the
possibility of using oil with cannabis
and that some guys were using it
some friends proposed that
do your own cultivation to get
his own oil but the mother for him
to not take risks for issues
legal and for a matter of space
at home he decided not to do it
She came here instead of importing the
United States for which I needed
fill out some treatment sheets
compassionate and dietary supplements
that the national agency of
Anmat medicines no doctor of your
city
had to fill it and there it is
low in front of me asking not only my
opinion if not what interested him most
was that will accompany you in the process
I remind you that our country the plant
of cannabis is totally prohibited
both cultivation and consumption their
natural derivatives are not and not voice and in
the guys can be potentially
toxic and started like that was called the
baby presented since he woke up
and for 30 minutes 10 to 15 seizures
every day three or four times per
day after each appointment he made and
this despite receiving a combination
of medication is at high doses and that
tolerates 10 to 15 conclusions very well 4 5
times per day or imagine despair
epilepsy is the disease
most frequent neurological taken
any age and is the third cause in
Adults
after the acb and the dementias the
seizures known as
convulsions are the manifestation
visible from an electric shock
excessive and abnormal networks
Neuronal brain 70% of the crisis
you will also find the
usual medication and the trend
The natural disease is access to
seen over the years without
However, there is 30 percent of
cases that do not respond to
usual treatments to remedies
combined up to three or more per day and
are what we know as epilepsies
refractory to treatment
pharmacological and that will require a
additional non-pharmacological treatment
like neurosurgery surgery
epilepsy the implantation of
brain stimulators to a diet
special as the case of diet
ketogenic and lately blogs
where the use of marijuana cannabis or
cannabis is a plant that has more than
70 components of which two of
they are the most studied one the
called thc which is preferred for the
high the car by auto recreational cultivation
while it has a psychoactive effect
stimulates the senses improves the
creativity and emotional state the
usual form of consumption vanished
vaporized and as I said is the preferred
by the for their recreational consumption the
[Applause]
listen to the second substance
studied is the cb that this one does
has in action in the whole body
including the brain and that is the one that
has approved as medicinal for its
medicinal effects and many ailments
neurological but particularly in the
epilepsy in the natural state are
inseparable the thc and the cb and this
concentration depends a lot on the
seed that has been used to
cultivate there are also prepared
commercial cannabinoids that
they generally call these substances
synthetic cannabinoids
but that have not yielded any results
in epilepsy instead yes as
symptomatic treatment of the effects
undesirable effects of chemotherapy in the
cancer and some symptoms of
multiple sclerosis the case that the
Benicio’s mom had read neither have
large to the office and for which the
oil to import takes its name
the procedure was not simple in front of the
national medicines agency a little
for the time it takes and another little
because I had filled the
spreadsheets with many errors will be the
the first time I did it
the truth that a month and a half later
finally have the oil
Benicio starts with the intake of
boots and after a few days he stops having
seizures not only stop having
seizures for a long time but that
greatly improves your emotional state
he is more attentive so much that he smiles
in front of the presence of his mother
as I did not since four months
when it started with seizures the
General situation is given because
how to make the boys have
access to this a short time ago in March
specifically this year it was approved by
unanimously in the national congress the
law that enables the medicinal use of
cannabis its regulation has less
48 hours were approved by the majority
of the ancient development of the
all the items that it consigned
15 did not leave were not regulated
one of them the number 5 the most
important and that is the axis of the
discussion of regulation happens
for allowing the self-cultivation or just
allow production by the
been either through third parties or
its intermediate organisms like the inta
conicet universities etc.
the most important situation was that
after so much time since 2004
To date I have gathered a lot of
experiences of families everywhere
and from colleagues across the country
all commenting on the good result of
oil is imported but also from
oils or homemade products
derivatives of law called self-cultivation
everyone gets much better said
they get good control of the
convulsions but almost all by
unanimously they refer the same improvement
notably the emotional state the
contact and attention of these children
and persistently
although start after a few months
his state again had convulsions
current is very good still attentive if those
customers and progressing every day the subject
of the regulation and the
Self-cultivation discussion has an axis
important central is and allow it
or not allow it
it seems to me that the self-cultivation has
a series of risks and the most
important today is the amount of
plants needed to hold for
initiate and sustain a treatment in
uninterrupted form
I remind you to interrupt a
treatment in this form of epilepsy
means not to reset if it’s not going to -10
start again from below so
that the interruption is not a one
minor issue
so it is so and so that they have a
idea and one if we use a variety of
cannabis than cannabis sativa which is
the plant of greater volume and that the
we manage to grow in an environment
adequate with adequate climate produces
between 60 and 70 grams of flowers of
which we are going to obtain between 4,5 and 6
grams of resin there the oil
let’s get between 30 and 50 thousand liters
of oil a standard treatment for
Seizures require between 30 and 60
thousand liters per month which means that
for a common family with a house
Normal should have to be at
care of 60 plants at least for
be able to sustain a standard treatment
and for a year for most like
top you will imagine this is impossible
the other factor is that our our
region
the only possibility is the so-called auto
cultivation by indoor and this implies
assign to the house designated in have
in the milking space a place
totally restricted for access by
children also why do I say this
in france he carried out a study that
publishes now in August of this year and
stripe is also prohibited its consumption
and what counts relieves the consultations in
guards that increased by 150
hundred for accidental poisonings
in children under six years of age
had inhaled or ingested the
marijuana derivatives that your house has
cultivated for recreational reasons or
medicinal
I think the best regulation
would allow the crop to allow
the growers in the form of
grouped cooperatives and and the
marketed through
dispensaries duly supervised and
regulated by the state that ensures no
only uninterrupted access but
respect the rules of good practice
and ensure that the final product does not have
contaminants
meanwhile doing this is the
regulation discussion of does
two days
meanwhile that would allow the
self – cultivation of families already
they are doing and that their children are
in treatment
The problem is that all the
plants that you get and all the
derivatives are exactly the same as
that the child who is in
treatment is a very difficult task
allow self-cultivation also means
not deprive families with anguish
of having their children who do not respond to
the usual treatments of a
therapeutic alternative for scope of
everybody
Finally I invite you to remember
image of Benicio smiling and they
I ask you want you not
would raise your hand to favor the
access to all children that still
today he did not recover smile
thank you very much
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