so are you looking at my tics pun intended
yes I said I yes I did say T ICS tics
yes I said I yes I did say T ICS tics I’m going so I’m Hannah and I have
I’m going so I’m Hannah and I have
I’m going so I’m Hannah and I have Tourette syndrome I’m going to share my
Tourette syndrome I’m going to share my
Tourette syndrome I’m going to share my experience of living with the complex
experience of living with the complex
experience of living with the complex condition called Tourette syndrome so
condition called Tourette syndrome so
condition called Tourette syndrome so I’m going to go straight into an
I’m going to go straight into an
I’m going to go straight into an activity with you so if you can stand or
activity with you so if you can stand or
activity with you so if you can stand or sit you can do this either way Stan
sit you can do this either way Stan
sit you can do this either way Stan you’re not seen so I’m going to give you
you’re not seen so I’m going to give you
you’re not seen so I’m going to give you three actions and you’ll have to join in
three actions and you’ll have to join in
three actions and you’ll have to join in if you feel embarrassed I’m not gonna
if you feel embarrassed I’m not gonna
if you feel embarrassed I’m not gonna pressure you but it’s a lot of fun so so
pressure you but it’s a lot of fun so so
pressure you but it’s a lot of fun so so I’m gonna give three actions so the
I’m gonna give three actions so the
I’m gonna give three actions so the first one is pump your arms so do this
first one is pump your arms so do this
first one is pump your arms so do this for me
for me
for me number two number two you stomp your
number two number two you stomp your
number two number two you stomp your feet and three is a small yo-yo-yo-yo
feet and three is a small yo-yo-yo-yo
feet and three is a small yo-yo-yo-yo hundred okay and stop okay you got that
hundred okay and stop okay you got that
hundred okay and stop okay you got that okay so we’re gonna do a few round to
okay so we’re gonna do a few round to
okay so we’re gonna do a few round to this so that you understand or sit
this so that you understand or sit
this so that you understand or sit whatever is coming so ready folks
whatever is coming so ready folks
whatever is coming so ready folks cool so put your arms like you’re at the
cool so put your arms like you’re at the
cool so put your arms like you’re at the gym or milking a cow and it’s done
I’m sorry
I’m sorry three yeah and again or to get that one
three yeah and again or to get that one
three yeah and again or to get that one two three one one carry on and stop you
two three one one carry on and stop you
two three one one carry on and stop you can sit down now how do some raise of
can sit down now how do some raise of
can sit down now how do some raise of hands how that makes you feel sorry so a
hands how that makes you feel sorry so a
hands how that makes you feel sorry so a list of things of how that makes you
list of things of how that makes you
list of things of how that makes you feel of things I feel every day so tired
embarrassed or self-conscious yeah I go
embarrassed or self-conscious yeah I go through them things most days but can
through them things most days but can
through them things most days but can you imagine doing this a cinema watch
you imagine doing this a cinema watch
you imagine doing this a cinema watch trying to watch film imagine doing this
trying to watch film imagine doing this
trying to watch film imagine doing this a crowded bus stop waiting to go about
a crowded bus stop waiting to go about
a crowded bus stop waiting to go about your day imagine doing this on a in a
your day imagine doing this on a in a
your day imagine doing this on a in a classroom environment we ticked the
classroom environment we ticked the
classroom environment we ticked the locker sneeze so for everyone you can’t
locker sneeze so for everyone you can’t
locker sneeze so for everyone you can’t have this nice it comes and you have to
have this nice it comes and you have to
have this nice it comes and you have to sneeze that’s not the tics I can’t
sneeze that’s not the tics I can’t
sneeze that’s not the tics I can’t control them so different reactions I’ve
control them so different reactions I’ve
control them so different reactions I’ve had from people are either shocked or
had from people are either shocked or
had from people are either shocked or scared but positive reactions I’ve had
scared but positive reactions I’ve had
scared but positive reactions I’ve had from people they’ve asked me am i okay
from people they’ve asked me am i okay
from people they’ve asked me am i okay this hasn’t been the boss in the shop in
this hasn’t been the boss in the shop in
this hasn’t been the boss in the shop in the street and that makes me feel so
the street and that makes me feel so
the street and that makes me feel so much better that someone took the time
much better that someone took the time
much better that someone took the time out they don’t have to but it’s just
out they don’t have to but it’s just
out they don’t have to but it’s just nice to know that someone’s aware of
nice to know that someone’s aware of
nice to know that someone’s aware of what I have and they’ve also told their
what I have and they’ve also told their
what I have and they’ve also told their stories about their friends who have
stories about their friends who have
stories about their friends who have torts and shared it with me
I’m going to share a small anecdote with
I’m going to share a small anecdote with you so I’ll travel quite a lot I got to
you so I’ll travel quite a lot I got to
you so I’ll travel quite a lot I got to London a few years ago I got to London
London a few years ago I got to London
London a few years ago I got to London I’ve recently travelled France Paris on
I’ve recently travelled France Paris on
I’ve recently travelled France Paris on my own with a friend which is the first
my own with a friend which is the first
my own with a friend which is the first time abroad a few years ago I went the
time abroad a few years ago I went the
time abroad a few years ago I went the Isle of Wight I met a family called the
Isle of Wight I met a family called the
Isle of Wight I met a family called the small ones who I did a crate
small ones who I did a crate
small ones who I did a crate Tourette’s creative project with and met
Tourette’s creative project with and met
Tourette’s creative project with and met them a few years ago so I asked them
them a few years ago so I asked them
them a few years ago so I asked them could I pop down to the Ottawa to visit
could I pop down to the Ottawa to visit
could I pop down to the Ottawa to visit them so I stayed with them for a week
them so I stayed with them for a week
them so I stayed with them for a week it was lovely but I tried so I traveled
it was lovely but I tried so I traveled
it was lovely but I tried so I traveled from coming back or travel from the Isle
from coming back or travel from the Isle
from coming back or travel from the Isle of Wight to Birmingham two and a half
of Wight to Birmingham two and a half
of Wight to Birmingham two and a half hour train journey I imagine I read
hour train journey I imagine I read
hour train journey I imagine I read nothing on the train because Tourette’s
nothing on the train because Tourette’s
nothing on the train because Tourette’s can beast so Landon I didn’t get on the
can beast so Landon I didn’t get on the
can beast so Landon I didn’t get on the train because I was sat next to a
train because I was sat next to a
train because I was sat next to a gentleman who’s clearly on his laptop
gentleman who’s clearly on his laptop
gentleman who’s clearly on his laptop trying to work and my tics were trying
trying to work and my tics were trying
trying to work and my tics were trying to touch his nose you know and I didn’t
to touch his nose you know and I didn’t
to touch his nose you know and I didn’t want to invade his personal space and
want to invade his personal space and
want to invade his personal space and because I can’t help it
because I can’t help it
because I can’t help it I had to fold up and stay like that for
I had to fold up and stay like that for
I had to fold up and stay like that for two and a half hours and that he’s so
two and a half hours and that he’s so
two and a half hours and that he’s so going to war and that’s the only time my
going to war and that’s the only time my
going to war and that’s the only time my body hurts because I can’t tip and I
body hurts because I can’t tip and I
body hurts because I can’t tip and I don’t have the space to tick so imagine
don’t have the space to tick so imagine
don’t have the space to tick so imagine I didn’t travel down to the Isle of
I didn’t travel down to the Isle of
I didn’t travel down to the Isle of Wight to see that family it clawed the
Wight to see that family it clawed the
Wight to see that family it clawed the beach and explored your height new
beach and explored your height new
beach and explored your height new places
so I still do what I do
so I still do what I do I still socialize I still travel still
I still socialize I still travel still
I still socialize I still travel still go to the cinema I also still do work
go to the cinema I also still do work
go to the cinema I also still do work tick workshops for places of work
tick workshops for places of work
tick workshops for places of work education and creativity Eve so stay
education and creativity Eve so stay
education and creativity Eve so stay visible even when it’s painful thank you
visible even when it’s painful thank you
visible even when it’s painful thank you [Applause]
[Music]
[Music] you
”
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