everybody wants to look at cannabis as another medicine and we have to remember
another medicine and we have to remember
another medicine and we have to remember though that most medicines are one
though that most medicines are one
though that most medicines are one ingredient cannabis is not one
ingredient cannabis is not one
ingredient cannabis is not one ingredient if you take aspirin you’re
ingredient if you take aspirin you’re
ingredient if you take aspirin you’re getting salicylic acid you know what
getting salicylic acid you know what
getting salicylic acid you know what that does we know what it is but when
that does we know what it is but when
that does we know what it is but when you’re using cannabis you’re getting 400
you’re using cannabis you’re getting 400
you’re using cannabis you’re getting 400 different compounds that are interacting
different compounds that are interacting
different compounds that are interacting and playing differently in your system
most people it’s trial and error it’s
most people it’s trial and error it’s experimentation and there has to be a
experimentation and there has to be a
experimentation and there has to be a comfort level with that because that is
comfort level with that because that is
comfort level with that because that is what it is there’s no one answer so we
what it is there’s no one answer so we
what it is there’s no one answer so we can say Charlotte’s Web and you know
can say Charlotte’s Web and you know
can say Charlotte’s Web and you know there’s a lot of hype it’s an excellent
there’s a lot of hype it’s an excellent
there’s a lot of hype it’s an excellent strain but only if it works for you
strain but only if it works for you
strain but only if it works for you sometimes you have to try ten different
sometimes you have to try ten different
sometimes you have to try ten different things to be able to find what will work
things to be able to find what will work
things to be able to find what will work either the first term that we need more
either the first term that we need more
either the first term that we need more research we need to get it off a
research we need to get it off a
research we need to get it off a Schedule one drug so we can get the
Schedule one drug so we can get the
Schedule one drug so we can get the research done so that I can tell a
research done so that I can tell a
research done so that I can tell a parent well it looks like there is no
parent well it looks like there is no
parent well it looks like there is no long-term damage but you can’t do
long-term damage but you can’t do
long-term damage but you can’t do studies long-term if you’re not allowed
studies long-term if you’re not allowed
studies long-term if you’re not allowed to do studies at all
[Music]
[Music] I always thought I was invincible you
I always thought I was invincible you
I always thought I was invincible you know I always thought that this would
know I always thought that this would
know I always thought that this would never happen to me and the fact is is
never happen to me and the fact is is
never happen to me and the fact is is that no one is invincible this disease
that no one is invincible this disease
that no one is invincible this disease knows no bounds
knows no bounds
knows no bounds I had natural birth and she came out
I had natural birth and she came out
I had natural birth and she came out perfect she was absolutely stunning like
perfect she was absolutely stunning like
perfect she was absolutely stunning like literally was ready for a pampers
literally was ready for a pampers
literally was ready for a pampers commercial it was when she was eight and
commercial it was when she was eight and
commercial it was when she was eight and a half months old it was you know I
a half months old it was you know I
a half months old it was you know I remember the day like it was yesterday
remember the day like it was yesterday
remember the day like it was yesterday Sophie’s little eyeball starting to
Sophie’s little eyeball starting to
Sophie’s little eyeball starting to shake and that Friday we were in at 6
shake and that Friday we were in at 6
shake and that Friday we were in at 6 a.m. to get an MRI life was exactly what
a.m. to get an MRI life was exactly what
a.m. to get an MRI life was exactly what I had envisioned it and then the phone
I had envisioned it and then the phone
I had envisioned it and then the phone rang it was that pivotal moment that
rang it was that pivotal moment that
rang it was that pivotal moment that changed the course of my life forever
changed the course of my life forever
changed the course of my life forever and my families she has what’s called an
and my families she has what’s called an
and my families she has what’s called an optic pathway glioma brain tumor and I
optic pathway glioma brain tumor and I
optic pathway glioma brain tumor and I remember asking the doctor I was like
remember asking the doctor I was like
remember asking the doctor I was like what is this you think a brain tumor and
what is this you think a brain tumor and
what is this you think a brain tumor and you immediately think death and I was
you immediately think death and I was
you immediately think death and I was like well what do we do I mean how do we
like well what do we do I mean how do we
like well what do we do I mean how do we treat this and he goes well there’s only
treat this and he goes well there’s only
treat this and he goes well there’s only really one method of treatment because
really one method of treatment because
really one method of treatment because Sophie is so young and that’s
Sophie is so young and that’s
Sophie is so young and that’s chemotherapy and best case scenario we
chemotherapy and best case scenario we
chemotherapy and best case scenario we would see some minimal shrinkage 13
would see some minimal shrinkage 13
would see some minimal shrinkage 13 months of chemotherapy being pumped into
months of chemotherapy being pumped into
months of chemotherapy being pumped into my kid and that’s all we got she was
my kid and that’s all we got she was
my kid and that’s all we got she was gonna have to live with this mass in her
gonna have to live with this mass in her
gonna have to live with this mass in her brain for the rest of her life and all
brain for the rest of her life and all
brain for the rest of her life and all he did was research and research and
he did was research and research and
he did was research and research and research because I just could not wrap
research because I just could not wrap
research because I just could not wrap my head around the fact that there
my head around the fact that there
my head around the fact that there weren’t more options for my child
weren’t more options for my child
weren’t more options for my child at this point literally like 20 people
at this point literally like 20 people
at this point literally like 20 people had told us about cannabis oil but they
had told us about cannabis oil but they
had told us about cannabis oil but they were all from overseas and they kept
were all from overseas and they kept
were all from overseas and they kept saying you guys should look into this
saying you guys should look into this
saying you guys should look into this you should look into this and the first
you should look into this and the first
you should look into this and the first thought I was like there is absolutely
thought I was like there is absolutely
thought I was like there is absolutely no way I’m giving my child weed we
no way I’m giving my child weed we
no way I’m giving my child weed we talked to our doctor and he was like
talked to our doctor and he was like
talked to our doctor and he was like listen I don’t know anything about it
listen I don’t know anything about it
listen I don’t know anything about it but if you guys have done the research
but if you guys have done the research
but if you guys have done the research you guys go and do what you need to do
you guys go and do what you need to do
you guys go and do what you need to do [Music]
[Music]
[Music] so we got started on the oils and so if
so we got started on the oils and so if
so we got started on the oils and so if you did fantastic
you did fantastic
you did fantastic she was sleepy which is the only side
she was sleepy which is the only side
she was sleepy which is the only side effect that she had from it because you
effect that she had from it because you
effect that she had from it because you know there’s there’s some psycho
know there’s there’s some psycho
know there’s there’s some psycho activity the THC but she did phenomenal
activity the THC but she did phenomenal
activity the THC but she did phenomenal she’s a little tank I mean that child I
she’s a little tank I mean that child I
she’s a little tank I mean that child I swear she must have been like a Navy
swear she must have been like a Navy
swear she must have been like a Navy SEAL on her past life because she she’s
SEAL on her past life because she she’s
SEAL on her past life because she she’s I mean the kids bulletproof we’ve worked
I mean the kids bulletproof we’ve worked
I mean the kids bulletproof we’ve worked her up only to a tenth of a gram because
her up only to a tenth of a gram because
her up only to a tenth of a gram because there’s so much unknown about dosing
there’s so much unknown about dosing
there’s so much unknown about dosing Janina may change it I’ve got a I’ve got
Janina may change it I’ve got a I’ve got
Janina may change it I’ve got a I’ve got a couple more specialist I need to talk
a couple more specialist I need to talk
a couple more specialist I need to talk to you we may go to four times a day TC
to you we may go to four times a day TC
to you we may go to four times a day TC in four times a day CPD so you’re gonna
in four times a day CPD so you’re gonna
in four times a day CPD so you’re gonna do TC TC TC TC and then 30 minutes later
do TC TC TC TC and then 30 minutes later
do TC TC TC TC and then 30 minutes later you’re going to do CBD CBD CBD CBD every
you’re going to do CBD CBD CBD CBD every
you’re going to do CBD CBD CBD CBD every single scan was getting smaller and
single scan was getting smaller and
single scan was getting smaller and smaller and smaller there was more and
smaller and smaller there was more and
smaller and smaller there was more and more and more necrosis which is not
more and more necrosis which is not
more and more necrosis which is not characteristic at all for these tumors
characteristic at all for these tumors
characteristic at all for these tumors she stopped chemo in November on
she stopped chemo in November on
she stopped chemo in November on November the 20th of 2014 now you know
November the 20th of 2014 now you know
November the 20th of 2014 now you know we have found ourselves in another
we have found ourselves in another
we have found ourselves in another predicament unfortunately because like
predicament unfortunately because like
predicament unfortunately because like today’s you know
today’s you know
today’s you know this is gonna kind of determine
this is gonna kind of determine
this is gonna kind of determine everything the kind of tumors that
everything the kind of tumors that
everything the kind of tumors that Sophie have are like 65 to 70 percent
Sophie have are like 65 to 70 percent
Sophie have are like 65 to 70 percent relapse rate when we got her first scan
relapse rate when we got her first scan
relapse rate when we got her first scan post treatment there was these tiny
post treatment there was these tiny
post treatment there was these tiny little spots in an area where there used
little spots in an area where there used
little spots in an area where there used to be absolutely nothing we have made
to be absolutely nothing we have made
to be absolutely nothing we have made the conscious decision because of what
the conscious decision because of what
the conscious decision because of what we feel is best for our child starts
we feel is best for our child starts
we feel is best for our child starts with a therapy again
it’s one of those things where it’s
it’s one of those things where it’s super frustrating because it’s it’s
super frustrating because it’s it’s
super frustrating because it’s it’s parents like myself and my husband that
parents like myself and my husband that
parents like myself and my husband that our kids have to keep any pigs we’re the
our kids have to keep any pigs we’re the
our kids have to keep any pigs we’re the ones that have to try all these
ones that have to try all these
ones that have to try all these different approaches and try different
different approaches and try different
different approaches and try different strains and try different extraction
strains and try different extraction
strains and try different extraction processes and see what works because the
processes and see what works because the
processes and see what works because the government won’t legalize it so that we
government won’t legalize it so that we
government won’t legalize it so that we can do federally funded trials and now
can do federally funded trials and now
can do federally funded trials and now we’re in the throes of it we are in the
we’re in the throes of it we are in the
we’re in the throes of it we are in the cutting edge of changing medical history
cutting edge of changing medical history
cutting edge of changing medical history and to think about what this means for
and to think about what this means for
and to think about what this means for my daughter and for her daughter and and
my daughter and for her daughter and and
my daughter and for her daughter and and her son and for their kids it’s really
her son and for their kids it’s really
her son and for their kids it’s really incredible no matter what she does with
incredible no matter what she does with
incredible no matter what she does with her life no matter who she becomes that
her life no matter who she becomes that
her life no matter who she becomes that my greatest achievement has been
my greatest achievement has been
my greatest achievement has been creating that little that little person
creating that little that little person
creating that little that little person she’s just amazing
she’s just amazing
she’s just amazing I’m still smiling I haven’t lost hope
I’m still smiling I haven’t lost hope
I’m still smiling I haven’t lost hope and we’ve had a setback but by no means
and we’ve had a setback but by no means
and we’ve had a setback but by no means is this the end of her story bad things
is this the end of her story bad things
is this the end of her story bad things happen so do good things and I know and
happen so do good things and I know and
happen so do good things and I know and I truly believe in my heart of hearts
I truly believe in my heart of hearts
I truly believe in my heart of hearts that we won’t have to go through this
that we won’t have to go through this
that we won’t have to go through this anymore I think she’s gonna be just fine
”
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