so first the meaning of title or it’s not pronounced keep a or pypy okay it’s
not pronounced keep a or pypy okay it’s
not pronounced keep a or pypy okay it’s tight we derived it from a Scottish word
tight we derived it from a Scottish word
tight we derived it from a Scottish word which means to manifest oneself and we
which means to manifest oneself and we
which means to manifest oneself and we manifest our doubt for the children and
manifest our doubt for the children and
manifest our doubt for the children and the families through simple sharing and
the families through simple sharing and
the families through simple sharing and togetherness it rhymes with right and
togetherness it rhymes with right and
togetherness it rhymes with right and that’s what we do we have lived the
that’s what we do we have lived the
that’s what we do we have lived the lives of experience and the spirits of
lives of experience and the spirits of
lives of experience and the spirits of the children and their families eh so er
the children and their families eh so er
the children and their families eh so er Castro and myself we co-founded kind
Castro and myself we co-founded kind
Castro and myself we co-founded kind ekari multiple again okay so the Clovis
ekari multiple again okay so the Clovis
ekari multiple again okay so the Clovis public type and you were doing our of
public type and you were doing our of
public type and you were doing our of course work in psychology at the Ateneo
course work in psychology at the Ateneo
course work in psychology at the Ateneo de Manila University and he had to
de Manila University and he had to
de Manila University and he had to interact with a special population and
interact with a special population and
interact with a special population and we ended up interacting with children
we ended up interacting with children
we ended up interacting with children with cancer and when we were about to
with cancer and when we were about to
with cancer and when we were about to graduate
graduate
graduate we said that we couldn’t leave the
we said that we couldn’t leave the
we said that we couldn’t leave the children behind we thought and we saw
children behind we thought and we saw
children behind we thought and we saw that it takes more than medicine to get
that it takes more than medicine to get
that it takes more than medicine to get well so what we did was we put up a
well so what we did was we put up a
well so what we did was we put up a sign-up sheet about any of the vanilla
sign-up sheet about any of the vanilla
sign-up sheet about any of the vanilla the bellowing hall band at the psych
the bellowing hall band at the psych
the bellowing hall band at the psych department and we recruited volunteers
department and we recruited volunteers
department and we recruited volunteers and about 20 to 30 undergrad and grad
and about 20 to 30 undergrad and grad
and about 20 to 30 undergrad and grad students signed up and from there we had
students signed up and from there we had
students signed up and from there we had to train them and then we grew and we
to train them and then we grew and we
to train them and then we grew and we grew and now we’re more than about 500
grew and now we’re more than about 500
grew and now we’re more than about 500 volunteers nationwide and we’re not just
volunteers nationwide and we’re not just
volunteers nationwide and we’re not just in one hospital now we’re in eight
in one hospital now we’re in eight
in one hospital now we’re in eight hospitals
hospitals
hospitals okay but on a more personal note I
okay but on a more personal note I
okay but on a more personal note I wanted to be more always one of the
wanted to be more always one of the
wanted to be more always one of the first children
I’d be being close to Paul because he’s
I’d be being close to Paul because he’s a top young boy so yes what we called
a top young boy so yes what we called
a top young boy so yes what we called retinoblastoma cancer of the high you
retinoblastoma cancer of the high you
retinoblastoma cancer of the high you know what you would want as a tumor
know what you would want as a tumor
know what you would want as a tumor clinic could walk like Robin for me yeah
clinic could walk like Robin for me yeah
clinic could walk like Robin for me yeah even with that tumor clinic I women
even with that tumor clinic I women
even with that tumor clinic I women without retinal blastoma and then when
without retinal blastoma and then when
without retinal blastoma and then when you actually hold one ball and socket
you actually hold one ball and socket
you actually hold one ball and socket long and it will take time Sam Puckett
long and it will take time Sam Puckett
long and it will take time Sam Puckett the school VNA ideally close to me like
the school VNA ideally close to me like
the school VNA ideally close to me like really play with him and all that you
really play with him and all that you
really play with him and all that you know actually the first ever fundraising
know actually the first ever fundraising
know actually the first ever fundraising app I was doing my birthday you just
app I was doing my birthday you just
app I was doing my birthday you just February to instead of asking gifts from
February to instead of asking gifts from
February to instead of asking gifts from my friends I act in you look gift and
my friends I act in you look gift and
my friends I act in you look gift and you please the name or the chemotherapy
you please the name or the chemotherapy
you please the name or the chemotherapy of bone so we had look online Amy we
of bone so we had look online Amy we
of bone so we had look online Amy we have to gala in our parish and then I
have to gala in our parish and then I
have to gala in our parish and then I was able to raise about sixty to eighty
was able to raise about sixty to eighty
was able to raise about sixty to eighty thousand and we were able to shrink it’s
thousand and we were able to shrink it’s
thousand and we were able to shrink it’s more but unfortunately let it go home to
more but unfortunately let it go home to
more but unfortunately let it go home to move somewhere to be with his family
move somewhere to be with his family
move somewhere to be with his family because his mom had to go back home but
because his mom had to go back home but
because his mom had to go back home but then a month later he came back to the
then a month later he came back to the
then a month later he came back to the tumor clinic but unfortunately I didn’t
tumor clinic but unfortunately I didn’t
tumor clinic but unfortunately I didn’t see the puffy all anymore when you would
see the puffy all anymore when you would
see the puffy all anymore when you would go to chemotherapy when he would give
go to chemotherapy when he would give
go to chemotherapy when he would give his hand you already start crying so
his hand you already start crying so
his hand you already start crying so about two weeks after that I have all my
about two weeks after that I have all my
about two weeks after that I have all my snakes and ladders board games and all
snakes and ladders board games and all
snakes and ladders board games and all my
my
my patter for daily effort me and when I
patter for daily effort me and when I
patter for daily effort me and when I like to determine penny I asked first
like to determine penny I asked first
like to determine penny I asked first all you notice our regular Wednesday
all you notice our regular Wednesday
all you notice our regular Wednesday date and then the doctor said all died
date and then the doctor said all died
date and then the doctor said all died so I said okay I went home crying I went
so I said okay I went home crying I went
so I said okay I went home crying I went home from heaven see the arrow the boss
home from heaven see the arrow the boss
home from heaven see the arrow the boss of the ways of Makati where I did and I
of the ways of Makati where I did and I
of the ways of Makati where I did and I was asked riding in the Lhasa and I said
was asked riding in the Lhasa and I said
was asked riding in the Lhasa and I said I don’t want to go back to the tumor
I don’t want to go back to the tumor
I don’t want to go back to the tumor clinic anymore
clinic anymore
clinic anymore why will I subject myself to hurt I’m
why will I subject myself to hurt I’m
why will I subject myself to hurt I’m not a masochist you know what a
not a masochist you know what a
not a masochist you know what a masterpiece so I said I’m not a
masterpiece so I said I’m not a
masterpiece so I said I’m not a masochist I don’t want to get hurt and
masochist I don’t want to get hurt and
masochist I don’t want to get hurt and hurt again these are even my relative
hurt again these are even my relative
hurt again these are even my relative why would I spend while you’re impressed
why would I spend while you’re impressed
why would I spend while you’re impressed I need someone who will just die anyway
I need someone who will just die anyway
I need someone who will just die anyway but you know as I was going down of
but you know as I was going down of
but you know as I was going down of about there down from the bus there’s an
about there down from the bus there’s an
about there down from the bus there’s an inner voice that told me early if you
inner voice that told me early if you
inner voice that told me early if you don’t go back home take care of the
don’t go back home take care of the
don’t go back home take care of the other children over here of Beckwith of
other children over here of Beckwith of
other children over here of Beckwith of Junction you would have this way of
Junction you would have this way of
Junction you would have this way of repeating your names
so I found myself going back next
so I found myself going back next Wednesday then next Wednesday so the
Wednesday then next Wednesday so the
Wednesday then next Wednesday so the week’s turned into months the months
week’s turned into months the months
week’s turned into months the months turned into years and I’ve been doing
turned into years and I’ve been doing
turned into years and I’ve been doing this for 25 years
this for 25 years
this for 25 years oh okay so what can we do in hi we have
oh okay so what can we do in hi we have
oh okay so what can we do in hi we have a bit of a Child Life program and these
a bit of a Child Life program and these
a bit of a Child Life program and these are our services we have an acronym for
are our services we have an acronym for
are our services we have an acronym for it it’s that box let me draw your
it it’s that box let me draw your
it it’s that box let me draw your attention on educate everywhere children
attention on educate everywhere children
attention on educate everywhere children you know what we do is when a child has
you know what we do is when a child has
you know what we do is when a child has to go for x-ray we explain to them what
to go for x-ray we explain to them what
to go for x-ray we explain to them what x-ray is let me ask you what is actually
x-ray is let me ask you what is actually
x-ray is let me ask you what is actually what is x-ray like if you were to given
what is x-ray like if you were to given
what is x-ray like if you were to given what is an x-ray it’s similar to a a
camera okay so when we tell when the
camera okay so when we tell when the child has to go for x-ray what do you
child has to go for x-ray what do you
child has to go for x-ray what do you tell the child what when he goes for a
tell the child what when he goes for a
tell the child what when he goes for a picture what should he or she do you do
picture what should he or she do you do
picture what should he or she do you do that mean it no x-ray you have to stay
that mean it no x-ray you have to stay
that mean it no x-ray you have to stay still
still
still [Music]
x-ray right yeah okay because otherwise
x-ray right yeah okay because otherwise the picture will become dirty yes how
the picture will become dirty yes how
the picture will become dirty yes how explain Mexico to teachers to children
explain Mexico to teachers to children
explain Mexico to teachers to children okay and you can use that for your
okay and you can use that for your
okay and you can use that for your nieces and for your nephews okay so we
nieces and for your nephews okay so we
nieces and for your nephews okay so we have red balls okay okay and these are
have red balls okay okay and these are
have red balls okay okay and these are our partner hospitals so if you want to
our partner hospitals so if you want to
our partner hospitals so if you want to volunteer without you can go to any of
volunteer without you can go to any of
volunteer without you can go to any of these hospitals you can go as far
these hospitals you can go as far
these hospitals you can go as far somehow if you want okay next slide
somehow if you want okay next slide
somehow if you want okay next slide please and we have embarked on
please and we have embarked on
please and we have embarked on evidence-based practice okay so this is
evidence-based practice okay so this is
evidence-based practice okay so this is to validate that what we are doing is
to validate that what we are doing is
to validate that what we are doing is correct and it’s had an impact
correct and it’s had an impact
correct and it’s had an impact so it’s called addressing the
so it’s called addressing the
so it’s called addressing the psychosocial needs the most good child
psychosocial needs the most good child
psychosocial needs the most good child the role of the Child Life program hey
the role of the Child Life program hey
the role of the Child Life program hey oh oh no doesn’t work with me okay so we
oh oh no doesn’t work with me okay so we
oh oh no doesn’t work with me okay so we do see the age child drop child drawing
do see the age child drop child drawing
do see the age child drop child drawing in hospital so what we did this before
in hospital so what we did this before
in hospital so what we did this before we implemented the program at the
we implemented the program at the
we implemented the program at the Philippine Children’s Medical Center we
Philippine Children’s Medical Center we
Philippine Children’s Medical Center we asked the children to draw okay and what
asked the children to draw okay and what
asked the children to draw okay and what is super section of the hospital and
is super section of the hospital and
is super section of the hospital and then six months into the program we
then six months into the program we
then six months into the program we asked them to draw again so it’s what
asked them to draw again so it’s what
asked them to draw again so it’s what you call a pretest and a post-test it so
you call a pretest and a post-test it so
you call a pretest and a post-test it so it’s next one piece okay next slide so
it’s next one piece okay next slide so
it’s next one piece okay next slide so this is an example of a pretest since 16
this is an example of a pretest since 16
this is an example of a pretest since 16 years old has new rubber gloves syndrome
years old has new rubber gloves syndrome
years old has new rubber gloves syndrome she has boiled all over her body
she has boiled all over her body
she has boiled all over her body in so she needs blood transfusion almost
in so she needs blood transfusion almost
in so she needs blood transfusion almost every other day so that is her reality
every other day so that is her reality
every other day so that is her reality chance in that reporting she has much
chance in that reporting she has much
chance in that reporting she has much institution every other day six months
institution every other day six months
institution every other day six months into the program of providing
into the program of providing
into the program of providing type of social support which had five
type of social support which had five
type of social support which had five services to see this is her drawing
services to see this is her drawing
services to see this is her drawing there so you will see her world exchange
there so you will see her world exchange
there so you will see her world exchange I don’t think you need a psychology
I don’t think you need a psychology
I don’t think you need a psychology degree to understand that her perception
degree to understand that her perception
degree to understand that her perception with the hospital has changed next time
with the hospital has changed next time
with the hospital has changed next time this is Joshua has acute lymphocytic
this is Joshua has acute lymphocytic
this is Joshua has acute lymphocytic leukemia al del Sol six months into the
leukemia al del Sol six months into the
leukemia al del Sol six months into the program this it is drawing the lady on
program this it is drawing the lady on
program this it is drawing the lady on the right is our part-time wife or the
the right is our part-time wife or the
the right is our part-time wife or the intern who stays with a child every
intern who stays with a child every
intern who stays with a child every weekday okay so we Randall the results
weekday okay so we Randall the results
weekday okay so we Randall the results through statistics but they fix and this
through statistics but they fix and this
through statistics but they fix and this is what we found out that we were able
is what we found out that we were able
is what we found out that we were able to decrease anxiety of the child at the
to decrease anxiety of the child at the
to decrease anxiety of the child at the hospital and more importantly next slide
hospital and more importantly next slide
hospital and more importantly next slide we saw the value of the Child Life
we saw the value of the Child Life
we saw the value of the Child Life coordinator and the volunteers like you
coordinator and the volunteers like you
coordinator and the volunteers like you guys maybe in the future you make an
guys maybe in the future you make an
guys maybe in the future you make an impact in the lives of this children by
impact in the lives of this children by
impact in the lives of this children by just playing with them just being with
just playing with them just being with
just playing with them just being with them for two hours a week next time more
them for two hours a week next time more
them for two hours a week next time more importantly – we found out that we
importantly – we found out that we
importantly – we found out that we increase the chances of survival because
increase the chances of survival because
increase the chances of survival because we make the hospital of the happy place
we make the hospital of the happy place
we make the hospital of the happy place to be the children keep coming back keep
to be the children keep coming back keep
to be the children keep coming back keep coming back and they are compliant with
coming back and they are compliant with
coming back and they are compliant with their medical procedures and because
their medical procedures and because
their medical procedures and because they’re compliant then they survive they
they’re compliant then they survive they
they’re compliant then they survive they get well and that’s why we have
get well and that’s why we have
get well and that’s why we have survivors we already have survivors so
survivors we already have survivors so
survivors we already have survivors so these are the survivors and that is very
these are the survivors and that is very
these are the survivors and that is very bad line they weren’t want to make that
bad line they weren’t want to make that
bad line they weren’t want to make that a battle survive and life free time and
a battle survive and life free time and
a battle survive and life free time and it is now our survivors who are helping
it is now our survivors who are helping
it is now our survivors who are helping other volunteers are assisting the other
other volunteers are assisting the other
other volunteers are assisting the other one
one
one they’re in the posture that they’re
they’re in the posture that they’re
they’re in the posture that they’re being for work that way hey so what are
being for work that way hey so what are
being for work that way hey so what are the lessons that I learned a each
the lessons that I learned a each
the lessons that I learned a each encounter with a child is an opportunity
encounter with a child is an opportunity
encounter with a child is an opportunity to learn more about myself
to learn more about myself
to learn more about myself hey 1 sorry you said that you know I
hey 1 sorry you said that you know I
hey 1 sorry you said that you know I heard Beth Beth died when I was in a
heard Beth Beth died when I was in a
heard Beth Beth died when I was in a conference like this out outside a
conference like this out outside a
conference like this out outside a hospital it was very close Batman just
hospital it was very close Batman just
hospital it was very close Batman just like I was close wrong so what I did was
like I was close wrong so what I did was
like I was close wrong so what I did was after my dog I had to rush to the
after my dog I had to rush to the
after my dog I had to rush to the hospital but I couldn’t see where he
hospital but I couldn’t see where he
hospital but I couldn’t see where he wasn’t into the warrior who know what
wasn’t into the warrior who know what
wasn’t into the warrior who know what we’re no better you know what I found
we’re no better you know what I found
we’re no better you know what I found him I found him at the morgue what it
him I found him at the morgue what it
him I found him at the morgue what it did was without thinking I went to the
did was without thinking I went to the
did was without thinking I went to the morgue went inside took of the tree and
morgue went inside took of the tree and
morgue went inside took of the tree and I kissed him because I could not let him
I kissed him because I could not let him
I kissed him because I could not let him go without saying goodbye I said I don’t
go without saying goodbye I said I don’t
go without saying goodbye I said I don’t do that normally why didn’t I do I guess
do that normally why didn’t I do I guess
do that normally why didn’t I do I guess you need somebody you go out of your
you need somebody you go out of your
you need somebody you go out of your comfort zone
comfort zone
comfort zone relax
Thanks and it’s okay to show your feet
Thanks and it’s okay to show your feet you know in our medical world they say
you know in our medical world they say
you know in our medical world they say that as doctors as medical professionals
that as doctors as medical professionals
that as doctors as medical professionals you don’t have to cry you can’t show
you don’t have to cry you can’t show
you don’t have to cry you can’t show that you’re crying with a patient but we
that you’re crying with a patient but we
that you’re crying with a patient but we do because we say that we understand you
do because we say that we understand you
do because we say that we understand you and that we are one with you so we show
and that we are one with you so we show
and that we are one with you so we show empathy it’s not a sign of weakness but
empathy it’s not a sign of weakness but
empathy it’s not a sign of weakness but it is a sign of empathy another instance
it is a sign of empathy another instance
it is a sign of empathy another instance is when the lady to my left Jesus cut
is when the lady to my left Jesus cut
is when the lady to my left Jesus cut the nail volunteer and just placed to
the nail volunteer and just placed to
the nail volunteer and just placed to become the president of but she met a
become the president of but she met a
become the president of but she met a tragic death
tragic death
tragic death her whole family and tragic them it was
her whole family and tragic them it was
her whole family and tragic them it was supposed to be kind of leap when she
supposed to be kind of leap when she
supposed to be kind of leap when she died we were supposed to be flying kites
died we were supposed to be flying kites
died we were supposed to be flying kites that week so what happened was the whole
that week so what happened was the whole
that week so what happened was the whole kind of the near community was
kind of the near community was
kind of the near community was devastated and we have to do counseling
devastated and we have to do counseling
devastated and we have to do counseling and debris field so we were all there
and debris field so we were all there
and debris field so we were all there out in the room but I could not do it I
out in the room but I could not do it I
out in the room but I could not do it I have to ask help from other
have to ask help from other
have to ask help from other professionals I have a spell for my
professionals I have a spell for my
professionals I have a spell for my colleagues because I could not process
colleagues because I could not process
colleagues because I could not process the students so this lets me and you
the students so this lets me and you
the students so this lets me and you know it is okay to admit that you are
know it is okay to admit that you are
know it is okay to admit that you are weak it is okay to admit your faults
weak it is okay to admit your faults
weak it is okay to admit your faults don’t be don’t appear to be always
don’t be don’t appear to be always
don’t be don’t appear to be always strong and for help especially you’re
strong and for help especially you’re
strong and for help especially you’re really depressed ask for help call
really depressed ask for help call
really depressed ask for help call person call a friend and ask for help so
person call a friend and ask for help so
person call a friend and ask for help so many suicides would have been avoided if
many suicides would have been avoided if
many suicides would have been avoided if you just asked for help
again be humble humble enough to admit
again be humble humble enough to admit that you have limitations that you can’t
that you have limitations that you can’t
that you have limitations that you can’t always be strong for others I am awarded
always be strong for others I am awarded
always be strong for others I am awarded here but what makes me go on and on for
here but what makes me go on and on for
here but what makes me go on and on for 25 years is because I have a personal
25 years is because I have a personal
25 years is because I have a personal mission my personal mission is very
mission my personal mission is very
mission my personal mission is very clear to me and this is what I do I see
clear to me and this is what I do I see
clear to me and this is what I do I see you do you know your personal mission
you’re very quiet let me help you if you
you’re very quiet let me help you if you were to die tomorrow what would you like
were to die tomorrow what would you like
were to die tomorrow what would you like to be written on their epitaph on your
to be written on their epitaph on your
to be written on their epitaph on your tombstone they get some volunteers if
tombstone they get some volunteers if
tombstone they get some volunteers if you complete the sentence here lies
you complete the sentence here lies
you complete the sentence here lies state your name he or she rather because
state your name he or she rather because
state your name he or she rather because there are no boys here she boy I get one
there are no boys here she boy I get one
there are no boys here she boy I get one or two older peers state your name and
or two older peers state your name and
or two older peers state your name and how do you want to hear
okay from this side one more no more
okay from this side one more no more Joey Joey God okay this is a simple
Joey Joey God okay this is a simple
Joey Joey God okay this is a simple exercise for you to determine your
exercise for you to determine your
exercise for you to determine your personal mission
personal mission
personal mission why because I think it’s really gamble
why because I think it’s really gamble
why because I think it’s really gamble alone she wants choose remember really
alone she wants choose remember really
alone she wants choose remember really remember that the person who wants to
remember that the person who wants to
remember that the person who wants to keep people happy so that means from
keep people happy so that means from
keep people happy so that means from this time on everything that she will do
this time on everything that she will do
this time on everything that she will do everything that she will say should be
everything that she will say should be
everything that she will say should be towards making other people happy
towards making other people happy
towards making other people happy we understand yes
we understand yes
we understand yes so with me this is my personal mission
so with me this is my personal mission
so with me this is my personal mission here lies Fatima all so long as early
here lies Fatima all so long as early
here lies Fatima all so long as early she cared for children in hospitals
she cared for children in hospitals
she cared for children in hospitals always and always thank you
always and always thank you
always and always thank you [Applause]
”
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