Chloe and I are here to share with you why we believe arguments for inclusion
why we believe arguments for inclusion
why we believe arguments for inclusion should be based on gain not pity I am a
should be based on gain not pity I am a
should be based on gain not pity I am a linguistic being and my halving of
linguistic being and my halving of
linguistic being and my halving of language bias is my view of the world
language bias is my view of the world
language bias is my view of the world I’ll be presenting verbally Chloe is a
I’ll be presenting verbally Chloe is a
I’ll be presenting verbally Chloe is a sensory being her view of the world is
sensory being her view of the world is
sensory being her view of the world is just as bias as my own and she will be
just as bias as my own and she will be
just as bias as my own and she will be presenting through her expression and
presenting through her expression and
presenting through her expression and presence here today and a linguistic
presence here today and a linguistic
presence here today and a linguistic being is just somebody who has acquired
being is just somebody who has acquired
being is just somebody who has acquired and uses language to experience and
and uses language to experience and
and uses language to experience and frame meaning and a sensory being is a
frame meaning and a sensory being is a
frame meaning and a sensory being is a person whose primary experience of the
person whose primary experience of the
person whose primary experience of the world and meaning within it is sensory
world and meaning within it is sensory
world and meaning within it is sensory and Chloe and I are each just one
and Chloe and I are each just one
and Chloe and I are each just one example of two very diverse groups so I
believe that pity erodes life
believe that pity erodes life that’s how I signed off my first letter
that’s how I signed off my first letter
that’s how I signed off my first letter of application to teach children with
of application to teach children with
of application to teach children with severe and profound special educational
severe and profound special educational
severe and profound special educational needs and disabilities and when I was
needs and disabilities and when I was
needs and disabilities and when I was cool to interview I was told that I had
cool to interview I was told that I had
cool to interview I was told that I had been invited there not because of my
been invited there not because of my
been invited there not because of my professional qualifications or personal
professional qualifications or personal
professional qualifications or personal experience but because they’d wanted to
experience but because they’d wanted to
experience but because they’d wanted to see if I had really written that letter
see if I had really written that letter
see if I had really written that letter my lack of pity for the people I work on
my lack of pity for the people I work on
my lack of pity for the people I work on behalf of at the sensory projects does
behalf of at the sensory projects does
behalf of at the sensory projects does not stem from a lack of understanding I
not stem from a lack of understanding I
not stem from a lack of understanding I regularly meet children who lead
regularly meet children who lead
regularly meet children who lead foreshortened lives
foreshortened lives
foreshortened lives I witnessed the struggles they face and
I witnessed the struggles they face and
I witnessed the struggles they face and through the window of Facebook once
through the window of Facebook once
through the window of Facebook once those lives are over I watched their
those lives are over I watched their
those lives are over I watched their families and I see their parents snapped
families and I see their parents snapped
families and I see their parents snapped smiling by friends at parties the light
smiling by friends at parties the light
smiling by friends at parties the light in their eyes is gone
in their eyes is gone
in their eyes is gone I watched the color drain out of though
I watched the color drain out of though
I watched the color drain out of though world’s and people ask them how they
world’s and people ask them how they
world’s and people ask them how they cope people say they couldn’t cope if it
cope people say they couldn’t cope if it
cope people say they couldn’t cope if it happened to them they couldn’t even
happened to them they couldn’t even
happened to them they couldn’t even imagine it and for the record I’ve known
imagine it and for the record I’ve known
imagine it and for the record I’ve known enough of these families now to know
enough of these families now to know
enough of these families now to know that coping isn’t a thing they do coping
that coping isn’t a thing they do coping
that coping isn’t a thing they do coping is a thing that is done to them by the
is a thing that is done to them by the
is a thing that is done to them by the continuation of life beyond that first
continuation of life beyond that first
continuation of life beyond that first decision not to follow your child into
decision not to follow your child into
decision not to follow your child into the grave and that’s no small one beyond
the grave and that’s no small one beyond
the grave and that’s no small one beyond that there is no doing coping happens
that there is no doing coping happens
that there is no doing coping happens life happens and so no my lack of pity
life happens and so no my lack of pity
life happens and so no my lack of pity does not stem from naivety have a naive
does not stem from naivety have a naive
does not stem from naivety have a naive I’m a look my lack of pity is down to
I’m a look my lack of pity is down to
I’m a look my lack of pity is down to its lack of utility it certainly has no
its lack of utility it certainly has no
its lack of utility it certainly has no use in breaking down the barriers to
use in breaking down the barriers to
use in breaking down the barriers to inclusion and we’re going to explain why
inclusion and we’re going to explain why
inclusion and we’re going to explain why everyone lives their lives on a scale of
everyone lives their lives on a scale of
everyone lives their lives on a scale of one to ten good to bad and our scale
one to ten good to bad and our scale
one to ten good to bad and our scale stretches according to our experience
stretches according to our experience
stretches according to our experience it’s a bit like when medics attending
it’s a bit like when medics attending
it’s a bit like when medics attending trauma victims asked them to rate their
trauma victims asked them to rate their
trauma victims asked them to rate their pain from 1 to 10 and then medicate
pain from 1 to 10 and then medicate
pain from 1 to 10 and then medicate accordingly it’s very subjective but
accordingly it’s very subjective but
accordingly it’s very subjective but it’s very real and when we ask someone
it’s very real and when we ask someone
it’s very real and when we ask someone who currently believes their life to be
who currently believes their life to be
who currently believes their life to be running at a stress level 8 – pity
running at a stress level 8 – pity
running at a stress level 8 – pity we’re asking them to give some think
we’re asking them to give some think
we’re asking them to give some think they do not believe they have and sure
they do not believe they have and sure
they do not believe they have and sure you know a gift is being given here
you know a gift is being given here
you know a gift is being given here we’re great who wouldn’t want to hang
we’re great who wouldn’t want to hang
we’re great who wouldn’t want to hang out with us it’s best not to check that
out with us it’s best not to check that
out with us it’s best not to check that part of the argument too closely if the
part of the argument too closely if the
part of the argument too closely if the gift goes both ways
gift goes both ways
gift goes both ways how much more open with those ears
how much more open with those ears
how much more open with those ears beyond that stress level 8 person if
beyond that stress level 8 person if
beyond that stress level 8 person if instead of asking them to give we were
instead of asking them to give we were
instead of asking them to give we were offering them a gift we tend to think
offering them a gift we tend to think
offering them a gift we tend to think about the barriers to inclusion as being
about the barriers to inclusion as being
about the barriers to inclusion as being physical things like ramp access and
physical things like ramp access and
physical things like ramp access and specialist wheelchairs or hearing aids
specialist wheelchairs or hearing aids
specialist wheelchairs or hearing aids or funky pieces of equipment and these
or funky pieces of equipment and these
or funky pieces of equipment and these things are important changing places for
things are important changing places for
things are important changing places for example a disabled toilet is
example a disabled toilet is
example a disabled toilet is accessible to those who can shift
accessible to those who can shift
accessible to those who can shift themselves from chair to toilet and if
themselves from chair to toilet and if
themselves from chair to toilet and if you can’t then super Josh on my slide is
you can’t then super Josh on my slide is
you can’t then super Josh on my slide is showing you what a disabled toilet means
showing you what a disabled toilet means
showing you what a disabled toilet means to you how can it be that in 2017 in a
to you how can it be that in 2017 in a
to you how can it be that in 2017 in a country like ours we are still asking
country like ours we are still asking
country like ours we are still asking for toilets for some members of our
for toilets for some members of our
for toilets for some members of our society just you know just imagine if
society just you know just imagine if
society just you know just imagine if you’d been invited here today and told
you’d been invited here today and told
you’d been invited here today and told how fantastic the event is gonna be just
how fantastic the event is gonna be just
how fantastic the event is gonna be just one thing to take note of before you
one thing to take note of before you
one thing to take note of before you come the toilets will be out of action
come the toilets will be out of action
come the toilets will be out of action but don’t worry because we will be
but don’t worry because we will be
but don’t worry because we will be handing out nappy pads on the door and
handing out nappy pads on the door and
handing out nappy pads on the door and if you want to change you can go and lie
if you want to change you can go and lie
if you want to change you can go and lie on the toilet floor to do it you’d have
on the toilet floor to do it you’d have
on the toilet floor to do it you’d have still come right that would be fine no
still come right that would be fine no
still come right that would be fine no if it’s not okay for you why is it okay
if it’s not okay for you why is it okay
if it’s not okay for you why is it okay for somebody who uses a wheelchair these
for somebody who uses a wheelchair these
for somebody who uses a wheelchair these things are important but if we had all
things are important but if we had all
things are important but if we had all of these things would that be inclusion
of these things would that be inclusion
of these things would that be inclusion acheived know the real barriers to
acheived know the real barriers to
acheived know the real barriers to inclusion are those of understanding and
inclusion are those of understanding and
inclusion are those of understanding and awareness it’s not a lack of ability in
awareness it’s not a lack of ability in
awareness it’s not a lack of ability in them it’s a lack of insight in us and
them it’s a lack of insight in us and
them it’s a lack of insight in us and the argument for inclusion should be
the argument for inclusion should be
the argument for inclusion should be made based on the extraordinariness of
made based on the extraordinariness of
made based on the extraordinariness of these lives
these lives
these lives the brilliance to the moment shared the
the brilliance to the moment shared the
the brilliance to the moment shared the unique perspective they bring you’ve met
unique perspective they bring you’ve met
unique perspective they bring you’ve met Larry we’d like to introduce you to some
Larry we’d like to introduce you to some
Larry we’d like to introduce you to some of her friends this is Shannon Shannon
of her friends this is Shannon Shannon
of her friends this is Shannon Shannon can teach you about joy and connection
can teach you about joy and connection
can teach you about joy and connection and the present moment this is Hannah
and the present moment this is Hannah
and the present moment this is Hannah Hannah can teach you wonder curiosity
Hannah can teach you wonder curiosity
Hannah can teach you wonder curiosity and persistence and this was Harry Harry
and persistence and this was Harry Harry
and persistence and this was Harry Harry was a super skilled communicator who
was a super skilled communicator who
was a super skilled communicator who used the limited set of resources he was
used the limited set of resources he was
used the limited set of resources he was given to communicate a thousand things
given to communicate a thousand things
given to communicate a thousand things in his short life and I’m devastated
in his short life and I’m devastated
in his short life and I’m devastated that I won’t get to
that I won’t get to
that I won’t get to from Harry anymore I’m not saying these
from Harry anymore I’m not saying these
from Harry anymore I’m not saying these things to be nice these talents are real
things to be nice these talents are real
things to be nice these talents are real when we first planned this presentation
when we first planned this presentation
when we first planned this presentation we plan to present you with a list of
we plan to present you with a list of
we plan to present you with a list of reasons based on gain not pity why
reasons based on gain not pity why
reasons based on gain not pity why people like Chloe and her friends should
people like Chloe and her friends should
people like Chloe and her friends should be included but we’ve decided not to
be included but we’ve decided not to
be included but we’ve decided not to we’re gonna start the list and we want
we’re gonna start the list and we want
we’re gonna start the list and we want you to continue it and together we will
you to continue it and together we will
you to continue it and together we will create a petition for inclusion a
create a petition for inclusion a
create a petition for inclusion a thousand ideas long so here’s one to get
thousand ideas long so here’s one to get
thousand ideas long so here’s one to get you going our society goes through
you going our society goes through
you going our society goes through emotional phases just like a person does
emotional phases just like a person does
emotional phases just like a person does and currently we are living through an
and currently we are living through an
and currently we are living through an age of anxiety with nearly a quarter of
age of anxiety with nearly a quarter of
age of anxiety with nearly a quarter of the UK population reporting feeling
the UK population reporting feeling
the UK population reporting feeling anxious all the time
anxious all the time
anxious all the time corresponding to this rise in anxiety
corresponding to this rise in anxiety
corresponding to this rise in anxiety we’re seeing increased interest in
we’re seeing increased interest in
we’re seeing increased interest in mindfulness practice with places as
mindfulness practice with places as
mindfulness practice with places as prestigious as Oxford University
prestigious as Oxford University
prestigious as Oxford University dedicating time to its study mindfulness
dedicating time to its study mindfulness
dedicating time to its study mindfulness has been shown to be a tonic for anxiety
has been shown to be a tonic for anxiety
has been shown to be a tonic for anxiety mindfulness is the nun judgemental
mindfulness is the nun judgemental
mindfulness is the nun judgemental attention to the present and in the
attention to the present and in the
attention to the present and in the population of people who are sensory
population of people who are sensory
population of people who are sensory beings we meet a great many people who
beings we meet a great many people who
beings we meet a great many people who lead lives of constant non-judgmental
lead lives of constant non-judgmental
lead lives of constant non-judgmental attention to the present and who often
attention to the present and who often
attention to the present and who often find those lives joyful thinking in this
find those lives joyful thinking in this
find those lives joyful thinking in this way you quickly come up with ideas of
way you quickly come up with ideas of
way you quickly come up with ideas of what we all gain from inclusion and you
what we all gain from inclusion and you
what we all gain from inclusion and you also realize that the line between those
also realize that the line between those
also realize that the line between those doing the including and those being
doing the including and those being
doing the including and those being included is distinctly blurry which side
included is distinctly blurry which side
included is distinctly blurry which side of the line do you fall on will you
of the line do you fall on will you
of the line do you fall on will you always fall on that side which side of
always fall on that side which side of
always fall on that side which side of the line do I fall on have you assumed
the line do I fall on have you assumed
the line do I fall on have you assumed that I’m neurotypical I’m not I’m
that I’m neurotypical I’m not I’m
that I’m neurotypical I’m not I’m autistic do we want a world where
autistic do we want a world where
autistic do we want a world where everyone is the same
everyone is the same
everyone is the same a world without people with Down
a world without people with Down
a world without people with Down syndrome without people with autism
syndrome without people with autism
syndrome without people with autism without people with Tourette’s without
without people with Tourette’s without
without people with Tourette’s without without without you know the assumption
without without you know the assumption
without without you know the assumption that is made when trying to eliminate
that is made when trying to eliminate
that is made when trying to eliminate diversity is one of hierarchy we assume
diversity is one of hierarchy we assume
diversity is one of hierarchy we assume that because some lives are different
that because some lives are different
that because some lives are different they are necessarily better or worse
they are necessarily better or worse
they are necessarily better or worse than our own in the idea that some lives
than our own in the idea that some lives
than our own in the idea that some lives for their own good should not be lived
for their own good should not be lived
for their own good should not be lived is just shocking the arrogant you know
is just shocking the arrogant you know
is just shocking the arrogant you know our lives is your life so good that you
our lives is your life so good that you
our lives is your life so good that you think one’s different – it should be
think one’s different – it should be
think one’s different – it should be prevented Chloe’s life is hers to live
prevented Chloe’s life is hers to live
prevented Chloe’s life is hers to live not yours hers to judge she’s living it
not yours hers to judge she’s living it
not yours hers to judge she’s living it and getting every ounce of life out of
and getting every ounce of life out of
and getting every ounce of life out of it are you doing the same with yours
it are you doing the same with yours
it are you doing the same with yours could you learn a thing or two from
could you learn a thing or two from
could you learn a thing or two from hanging out with Chloe I bet no one who
hanging out with Chloe I bet no one who
hanging out with Chloe I bet no one who had knows Chloe has a bad hair day and
had knows Chloe has a bad hair day and
had knows Chloe has a bad hair day and ranks her innate treat her pain saw out
ranks her innate treat her pain saw out
ranks her innate treat her pain saw out her seizures tackle medical difficulties
her seizures tackle medical difficulties
her seizures tackle medical difficulties sure but eliminate difference is that
sure but eliminate difference is that
sure but eliminate difference is that really what we want to do acknowledging
really what we want to do acknowledging
really what we want to do acknowledging difference does not necessarily mean the
difference does not necessarily mean the
difference does not necessarily mean the creation of a hierarchy difference
creation of a hierarchy difference
creation of a hierarchy difference brings gifts as a linguistic being I see
brings gifts as a linguistic being I see
brings gifts as a linguistic being I see my life in this way and as a sensory
my life in this way and as a sensory
my life in this way and as a sensory being Chloe views her life in this way
being Chloe views her life in this way
being Chloe views her life in this way and when we work together to share our
and when we work together to share our
and when we work together to share our views we each see more if we try and
views we each see more if we try and
views we each see more if we try and make everyone’s view the same or try and
make everyone’s view the same or try and
make everyone’s view the same or try and shut people out from our way of seeing
shut people out from our way of seeing
shut people out from our way of seeing we see less different and included we
we see less different and included we
we see less different and included we gained different and excluded we lose
gained different and excluded we lose
gained different and excluded we lose here’s one more for the list this one I
here’s one more for the list this one I
here’s one more for the list this one I hear a lot from people who care directly
hear a lot from people who care directly
hear a lot from people who care directly for individuals with profound
for individuals with profound
for individuals with profound disabilities complex needs autism Down
disabilities complex needs autism Down
disabilities complex needs autism Down syndrome fragile X Noonan syndrome
syndrome fragile X Noonan syndrome
syndrome fragile X Noonan syndrome charge
charge
charge Rhett’s you know on and on into this
Rhett’s you know on and on into this
Rhett’s you know on and on into this one’s this is what they say I have
one’s this is what they say I have
one’s this is what they say I have learned so much from them and people
learned so much from them and people
learned so much from them and people find it hard to articulate this learning
find it hard to articulate this learning
find it hard to articulate this learning but it is a stretching of the ha
but it is a stretching of the ha
but it is a stretching of the ha an extension to one’s limits a depth of
an extension to one’s limits a depth of
an extension to one’s limits a depth of experience unanticipated an ability to
experience unanticipated an ability to
experience unanticipated an ability to function without sleep people give out
function without sleep people give out
function without sleep people give out free phorus worries and selfish
free phorus worries and selfish
free phorus worries and selfish preoccupations and focus on a bigger
preoccupations and focus on a bigger
preoccupations and focus on a bigger picture and time runs out for insecurity
picture and time runs out for insecurity
picture and time runs out for insecurity and bad hair days I believe when we
and bad hair days I believe when we
and bad hair days I believe when we think about inclusion we should consider
think about inclusion we should consider
think about inclusion we should consider evolution and how we want progress to be
evolution and how we want progress to be
evolution and how we want progress to be measured you have body survival of the
measured you have body survival of the
measured you have body survival of the fittest and as a species we’re living
fittest and as a species we’re living
fittest and as a species we’re living into our 80s and 90s it’s done for us so
into our 80s and 90s it’s done for us so
into our 80s and 90s it’s done for us so then you have mind commentators talk
then you have mind commentators talk
then you have mind commentators talk about horizontal evolution about
about horizontal evolution about
about horizontal evolution about promoting survival through the
promoting survival through the
promoting survival through the horizontal exchange of knowledge and we
horizontal exchange of knowledge and we
horizontal exchange of knowledge and we have the World Wide Web so perhaps it’s
have the World Wide Web so perhaps it’s
have the World Wide Web so perhaps it’s time for a third as society diversifies
time for a third as society diversifies
time for a third as society diversifies does it not call for an evolution of the
does it not call for an evolution of the
does it not call for an evolution of the soul for an increased capacious honest
soul for an increased capacious honest
soul for an increased capacious honest at the heart for more caring for more
at the heart for more caring for more
at the heart for more caring for more awareness and understanding think about
awareness and understanding think about
awareness and understanding think about how you want progress to be measured you
how you want progress to be measured you
how you want progress to be measured you want to see us becoming ever stronger
want to see us becoming ever stronger
want to see us becoming ever stronger and more symmetrical or knowing more and
and more symmetrical or knowing more and
and more symmetrical or knowing more and more stuff what about more understanding
more stuff what about more understanding
more stuff what about more understanding more empathetic more loving when we seek
more empathetic more loving when we seek
more empathetic more loving when we seek to include those who are different to
to include those who are different to
to include those who are different to ourselves no matter what that difference
ourselves no matter what that difference
ourselves no matter what that difference might be this is the future we all gain
might be this is the future we all gain
might be this is the future we all gain our future for ourselves and for our
our future for ourselves and for our
our future for ourselves and for our children be those children neurotypical
children be those children neurotypical
children be those children neurotypical physically typical or otherwise
inclusion is for everyone thank you for
inclusion is for everyone thank you for your attention
”
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