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A Reflection of Cecilia | Valerie Nguyen | TEDxAshburnSalon


[Applause]

[Applause] before I begin I would like for everyone

before I begin I would like for everyone

before I begin I would like for everyone to please close their eyes imagine this

to please close their eyes imagine this

to please close their eyes imagine this it’s two o’clock in the morning on a

it’s two o’clock in the morning on a

it’s two o’clock in the morning on a school night and your mother abruptly

school night and your mother abruptly

school night and your mother abruptly knocks on your door you can open your

knocks on your door you can open your

knocks on your door you can open your eyes now you’re awake this is no longer

eyes now you’re awake this is no longer

eyes now you’re awake this is no longer a dream it is a reality this is the same

a dream it is a reality this is the same

a dream it is a reality this is the same reality that I faced on October 11 2016

reality that I faced on October 11 2016

reality that I faced on October 11 2016 half-asleep and exhausted I prepare

half-asleep and exhausted I prepare

half-asleep and exhausted I prepare myself for the last few moments before

myself for the last few moments before

myself for the last few moments before my sister’s death my calloused feet

my sister’s death my calloused feet

my sister’s death my calloused feet touched the midnight floor a contrast to

touched the midnight floor a contrast to

touched the midnight floor a contrast to my beating heart pounding out of my

my beating heart pounding out of my

my beating heart pounding out of my chest every step I took towards her

chest every step I took towards her

chest every step I took towards her deathbed there she was right in front of

deathbed there she was right in front of

deathbed there she was right in front of me

me

me what once was a woody thirteen-year-old

what once was a woody thirteen-year-old

what once was a woody thirteen-year-old who’s asked her doctors for allowing my

who’s asked her doctors for allowing my

who’s asked her doctors for allowing my parents Peter tumeric pills was replaced

parents Peter tumeric pills was replaced

parents Peter tumeric pills was replaced with a skeleton ones whose figure was

with a skeleton ones whose figure was

with a skeleton ones whose figure was emaciated from too few sips of in Shore

emaciated from too few sips of in Shore

emaciated from too few sips of in Shore and whose skin was paler than the first

and whose skin was paler than the first

and whose skin was paler than the first snow I wrapped my arms around her as her

snow I wrapped my arms around her as her

snow I wrapped my arms around her as her breath slowly became consumed by the

breath slowly became consumed by the

breath slowly became consumed by the ventilator and her beating heart

ventilator and her beating heart

ventilator and her beating heart Dimmie window to a pause I felt the

Dimmie window to a pause I felt the

Dimmie window to a pause I felt the warmth of her hands leave her body as

warmth of her hands leave her body as

warmth of her hands leave her body as her spirit lifted above the earth and

her spirit lifted above the earth and

her spirit lifted above the earth and calcified her remains after a long long

calcified her remains after a long long

calcified her remains after a long long four years cancer one but my sister was

four years cancer one but my sister was

four years cancer one but my sister was free and I was left with the painful

free and I was left with the painful

free and I was left with the painful shards a fallout my name is Valerie

shards a fallout my name is Valerie

shards a fallout my name is Valerie Angwin and I’m a proud outspoken

Angwin and I’m a proud outspoken

Angwin and I’m a proud outspoken childhood cancer advocate know if you

childhood cancer advocate know if you

childhood cancer advocate know if you just didn’t hear that you’re probably

just didn’t hear that you’re probably

just didn’t hear that you’re probably assuming for my bald head that I was the

assuming for my bald head that I was the

assuming for my bald head that I was the one who battled countless rounds of

one who battled countless rounds of

one who battled countless rounds of chemotherapy radiation and the greatest

chemotherapy radiation and the greatest

chemotherapy radiation and the greatest be stabber and that I’m the brave one or

be stabber and that I’m the brave one or

be stabber and that I’m the brave one or that I’m just weird but I’m not four

that I’m just weird but I’m not four

that I’m just weird but I’m not four years ago on March 18th 2013 my sister

years ago on March 18th 2013 my sister

years ago on March 18th 2013 my sister was diagnosed with osteosarcoma a rare

was diagnosed with osteosarcoma a rare

was diagnosed with osteosarcoma a rare form of childhood cancer

sorry this is hard I fell where form of

sorry this is hard I fell where form of childhood cancer she battled countless

childhood cancer she battled countless

childhood cancer she battled countless rounds of chemotherapy and radiation and

rounds of chemotherapy and radiation and

rounds of chemotherapy and radiation and she battled for the time of her life but

she battled for the time of her life but

she battled for the time of her life but she didn’t die because she wasn’t strong

she didn’t die because she wasn’t strong

she didn’t die because she wasn’t strong enough she died because there are a few

enough she died because there are a few

enough she died because there are a few options left out there for her no I’m

options left out there for her no I’m

options left out there for her no I’m not here to tell you about a sappy story

not here to tell you about a sappy story

not here to tell you about a sappy story about an innocent young girl got

about an innocent young girl got

about an innocent young girl got diagnosed with cancer I’ll spare you the

diagnosed with cancer I’ll spare you the

diagnosed with cancer I’ll spare you the details of how I watched her inject

details of how I watched her inject

details of how I watched her inject blood thinners in her stomach each night

blood thinners in her stomach each night

blood thinners in her stomach each night leaving her with countless amounts of

leaving her with countless amounts of

leaving her with countless amounts of bruises the real reason I’m here is to

bruises the real reason I’m here is to

bruises the real reason I’m here is to tell you that this is real and this

tell you that this is real and this

tell you that this is real and this isn’t something you can push to the side

isn’t something you can push to the side

isn’t something you can push to the side because it doesn’t affect you just yet

because it doesn’t affect you just yet

because it doesn’t affect you just yet this piece hasn’t picked its victims in

this piece hasn’t picked its victims in

this piece hasn’t picked its victims in any particular order picks on innocent

any particular order picks on innocent

any particular order picks on innocent young children like my sister who once

young children like my sister who once

young children like my sister who once left school more than anything else in

left school more than anything else in

left school more than anything else in the world now I know all of you know

the world now I know all of you know

the world now I know all of you know that any kid would take a chance in this

that any kid would take a chance in this

that any kid would take a chance in this school if they had the opportunity to

school if they had the opportunity to

school if they had the opportunity to now raise your hand either that kid

now raise your hand either that kid

now raise your hand either that kid because I know I certainly was the sad

because I know I certainly was the sad

because I know I certainly was the sad part is childhood cancer strips us away

part is childhood cancer strips us away

part is childhood cancer strips us away from you it seals the way even the

from you it seals the way even the

from you it seals the way even the smallest moments in your life for

smallest moments in your life for

smallest moments in your life for missing even the smallest opportunity

missing even the smallest opportunity

missing even the smallest opportunity such as seeing your friends at school –

such as seeing your friends at school –

such as seeing your friends at school – doing homework

doing homework

doing homework yes homework because you’re physically

yes homework because you’re physically

yes homework because you’re physically drained and exhausted from the countless

drained and exhausted from the countless

drained and exhausted from the countless amounts of treatments not to even

amounts of treatments not to even

amounts of treatments not to even mention a more physically apparent

mention a more physically apparent

mention a more physically apparent effect of such as losing hair an

effect of such as losing hair an

effect of such as losing hair an important accessory that we take for

important accessory that we take for

important accessory that we take for granted every day that can even

granted every day that can even

granted every day that can even determine how our day one has the term

determine how our day one has the term

determine how our day one has the term good or bad hair day I vividly remember

good or bad hair day I vividly remember

good or bad hair day I vividly remember how much it hurt looking at her her from

how much it hurt looking at her her from

how much it hurt looking at her her from the countless rounds of chemotherapy

the countless rounds of chemotherapy

the countless rounds of chemotherapy that made here designate barf bucket

that made here designate barf bucket

that made here designate barf bucket holder – amputations that eventually

holder – amputations that eventually

holder – amputations that eventually took away her left arm regardless all of

took away her left arm regardless all of

took away her left arm regardless all of that she was this is re she was a silly

that she was this is re she was a silly

that she was this is re she was a silly charismatic yet considered young girl

charismatic yet considered young girl

charismatic yet considered young girl regardless how she was feeling she would

regardless how she was feeling she would

regardless how she was feeling she would always mess up the courage to make a

always mess up the courage to make a

always mess up the courage to make a snarky comment this is actually like a

snarky comment this is actually like a

snarky comment this is actually like a couple days after she was out of

couple days after she was out of

couple days after she was out of treatment my cousin took her up to West

treatment my cousin took her up to West

treatment my cousin took her up to West Virginia this is a little kind of like a

Virginia this is a little kind of like a

Virginia this is a little kind of like a mini Luray Caverns and she she even

mini Luray Caverns and she she even

mini Luray Caverns and she she even though she was still sick but she still

though she was still sick but she still

though she was still sick but she still the courage to make calm just to give

the courage to make calm just to give

the courage to make calm just to give you an idea how snarky she was

regardless of how she was feeling she

regardless of how she was feeling she she would always present the best of

she would always present the best of

she would always present the best of herself she was a she was the brightest

herself she was a she was the brightest

herself she was a she was the brightest snow of my life and she was the light of

snow of my life and she was the light of

snow of my life and she was the light of my life and even if the world was

my life and even if the world was

my life and even if the world was toppling upon her she would always mess

toppling upon her she would always mess

toppling upon her she would always mess up the courage to ask me how my day went

up the courage to ask me how my day went

up the courage to ask me how my day went despite all these America amazing

despite all these America amazing

despite all these America amazing characteristics the world perceives her

characteristics the world perceives her

characteristics the world perceives her in different manner than she did than I

in different manner than she did than I

in different manner than she did than I did kids as we all know what our mean

did kids as we all know what our mean

did kids as we all know what our mean especially in middle school her short

especially in middle school her short

especially in middle school her short hair made her a boy well instead of a

hair made her a boy well instead of a

hair made her a boy well instead of a spunky character while her limp

spunky character while her limp

spunky character while her limp labeled her as a handicap she didn’t

labeled her as a handicap she didn’t

labeled her as a handicap she didn’t want cancer to make her the center of

want cancer to make her the center of

want cancer to make her the center of our attention she didn’t want cancer to

our attention she didn’t want cancer to

our attention she didn’t want cancer to control her life but sadly it did just

control her life but sadly it did just

control her life but sadly it did just that it turned her bright soul into the

that it turned her bright soul into the

that it turned her bright soul into the one of our Wicked Witch his truth is

one of our Wicked Witch his truth is

one of our Wicked Witch his truth is childhood cancers falsely advertised on

childhood cancers falsely advertised on

childhood cancers falsely advertised on TV as smiling young children with bald

TV as smiling young children with bald

TV as smiling young children with bald heads having a time of their life with

heads having a time of their life with

heads having a time of their life with their celebrities but the truth is is

their celebrities but the truth is is

their celebrities but the truth is is the complete opposite of that is the

the complete opposite of that is the

the complete opposite of that is the constant glares and looks that other

constant glares and looks that other

constant glares and looks that other give others gives these children that

give others gives these children that

give others gives these children that hurt more than any dose of chemotherapy

hurt more than any dose of chemotherapy

hurt more than any dose of chemotherapy he would think that the pain of

he would think that the pain of

he would think that the pain of amputation is greater than the opinions

amputation is greater than the opinions

amputation is greater than the opinions of others right well the truth is no one

of others right well the truth is no one

of others right well the truth is no one wants to be defined with cancer and no

wants to be defined with cancer and no

wants to be defined with cancer and no one wants to be controlled by in the

one wants to be controlled by in the

one wants to be controlled by in the first place I mean who wants to have

first place I mean who wants to have

first place I mean who wants to have cancer in the first place if we truly

cancer in the first place if we truly

cancer in the first place if we truly care about our loved ones we should see

care about our loved ones we should see

care about our loved ones we should see them in the light they want to be

them in the light they want to be

them in the light they want to be perceived as underneath all the physical

perceived as underneath all the physical

perceived as underneath all the physical appearances these are the same people

appearances these are the same people

appearances these are the same people that we’ve shared so many memories with

that we’ve shared so many memories with

that we’ve shared so many memories with countless amount of laughs with so why

countless amount of laughs with so why

countless amount of laughs with so why should a disease change all of that if

should a disease change all of that if

should a disease change all of that if we’re ignorant to her actions we’re only

we’re ignorant to her actions we’re only

we’re ignorant to her actions we’re only adding to cancers ever-growing flame to

adding to cancers ever-growing flame to

adding to cancers ever-growing flame to combat this we must first educate

combat this we must first educate

combat this we must first educate ourselves now I’m not saying overnight

ourselves now I’m not saying overnight

ourselves now I’m not saying overnight everyone has to become a pediatric

everyone has to become a pediatric

everyone has to become a pediatric oncologist to cure childhood cancer

oncologist to cure childhood cancer

oncologist to cure childhood cancer patients but what I’m saying is that

patients but what I’m saying is that

patients but what I’m saying is that there are small things that we can do in

there are small things that we can do in

there are small things that we can do in all of our lives to improve the lives of

all of our lives to improve the lives of

all of our lives to improve the lives of others around us to begin we must first

others around us to begin we must first

others around us to begin we must first break the omnipresent mindset of

break the omnipresent mindset of

break the omnipresent mindset of thinking that this won’t ever affect us

thinking that this won’t ever affect us

thinking that this won’t ever affect us ask yourself this what has been the

ask yourself this what has been the

ask yourself this what has been the the most painful moment of your life I

the most painful moment of your life I

the most painful moment of your life I don’t know about you but for me it was a

don’t know about you but for me it was a

don’t know about you but for me it was a mere two-second job of the needle

mere two-second job of the needle

mere two-second job of the needle breaking the epidermis of my skin in the

breaking the epidermis of my skin in the

breaking the epidermis of my skin in the doctor’s office for childhood cancer

doctor’s office for childhood cancer

doctor’s office for childhood cancer patients it goes beyond just that

patients it goes beyond just that

patients it goes beyond just that needles become a daily part of the

needles become a daily part of the

needles become a daily part of the routine along with nausea constant

routine along with nausea constant

routine along with nausea constant headaches and pain just just to name a

headaches and pain just just to name a

headaches and pain just just to name a few

few

few it’s also the pain of isolation and

it’s also the pain of isolation and

it’s also the pain of isolation and authorization from friends and families

authorization from friends and families

authorization from friends and families and constantly plastering us fake smile

and constantly plastering us fake smile

and constantly plastering us fake smile to avoid get being thrown out yet

to avoid get being thrown out yet

to avoid get being thrown out yet another pity party but more broadly

another pity party but more broadly

another pity party but more broadly speaking it’s the pain of isolation a

speaking it’s the pain of isolation a

speaking it’s the pain of isolation a study from BYU suggests that this

study from BYU suggests that this

study from BYU suggests that this isolation might even be more deadly than

isolation might even be more deadly than

isolation might even be more deadly than cancer itself with this in mind it’s

cancer itself with this in mind it’s

cancer itself with this in mind it’s important to spend time with their loved

important to spend time with their loved

important to spend time with their loved ones whether they’re fighting for every

ones whether they’re fighting for every

ones whether they’re fighting for every breath of their life or there’s simply

breath of their life or there’s simply

breath of their life or there’s simply nothing wrong with their lives time as

nothing wrong with their lives time as

nothing wrong with their lives time as that we all know it’s precious and we

that we all know it’s precious and we

that we all know it’s precious and we never know when anyone’s ever going to

never know when anyone’s ever going to

never know when anyone’s ever going to take their last breath in life although

take their last breath in life although

take their last breath in life although I missed out a lot on my high school

I missed out a lot on my high school

I missed out a lot on my high school life from attending gain football games

life from attending gain football games

life from attending gain football games to spending time with my friends even

to spending time with my friends even

to spending time with my friends even homecoming dances I’m so incredibly

homecoming dances I’m so incredibly

homecoming dances I’m so incredibly thankful to have spent those moments

thankful to have spent those moments

thankful to have spent those moments instead of with my sister because now I

instead of with my sister because now I

instead of with my sister because now I don’t live a life of what-ifs and I’m

don’t live a life of what-ifs and I’m

don’t live a life of what-ifs and I’m really thankful and I hope you guys

really thankful and I hope you guys

really thankful and I hope you guys would all do the same because no one

would all do the same because no one

would all do the same because no one ever wants to live a life of what-ifs

ever wants to live a life of what-ifs

ever wants to live a life of what-ifs furthermore when you’re spending time

furthermore when you’re spending time

furthermore when you’re spending time with your loved ones ensure that you

with your loved ones ensure that you

with your loved ones ensure that you aren’t just listening to hear but that

aren’t just listening to hear but that

aren’t just listening to hear but that you’re listening to understand some of

you’re listening to understand some of

you’re listening to understand some of the most important life lessons that

the most important life lessons that

the most important life lessons that I’ve employed in my life today I learned

I’ve employed in my life today I learned

I’ve employed in my life today I learned from just spending time with my sister

from just spending time with my sister

from just spending time with my sister treating her like any other sister would

treating her like any other sister would

treating her like any other sister would have it’s important that these people

have it’s important that these people

have it’s important that these people received in the light that they want to

received in the light that they want to

received in the light that they want to be seen as because no one wants to be

be seen as because no one wants to be

be seen as because no one wants to be defined by a disease that they can’t

defined by a disease that they can’t

defined by a disease that they can’t control in the first place

control in the first place

control in the first place empathizing and sympathizing is it

empathizing and sympathizing is it

empathizing and sympathizing is it enough the most important thing that we

enough the most important thing that we

enough the most important thing that we can do is to stand up for these children

can do is to stand up for these children

can do is to stand up for these children and to do our part whether it’s big or

and to do our part whether it’s big or

and to do our part whether it’s big or small the truth is cancer doesn’t care

small the truth is cancer doesn’t care

small the truth is cancer doesn’t care at all how many people love you or how

at all how many people love you or how

at all how many people love you or how badly you want to live it doesn’t even

badly you want to live it doesn’t even

badly you want to live it doesn’t even care about how strong you’ve been

care about how strong you’ve been

care about how strong you’ve been fighting after four incredibly long year

fighting after four incredibly long year

fighting after four incredibly long year is my sister fought every single for

is my sister fought every single for

is my sister fought every single for every single breath of her life but that

every single breath of her life but that

every single breath of her life but that wasn’t enough and it’s not because she

wasn’t enough and it’s not because she

wasn’t enough and it’s not because she wasn’t strong enough it was because

wasn’t strong enough it was because

wasn’t strong enough it was because there are too few treatments out there

there are too few treatments out there

there are too few treatments out there for childhood cancer patients what is

for childhood cancer patients what is

for childhood cancer patients what is happing today it’s the same thing that

happing today it’s the same thing that

happing today it’s the same thing that happened 30 years ago and even 50 years

happened 30 years ago and even 50 years

happened 30 years ago and even 50 years ago because no one is trying hard enough

ago because no one is trying hard enough

ago because no one is trying hard enough to cure these children it’s so

to cure these children it’s so

to cure these children it’s so depressing

depressing

depressing we’re too wrapped up in our first world

we’re too wrapped up in our first world

we’re too wrapped up in our first world issues from our looks to a rat races

issues from our looks to a rat races

issues from our looks to a rat races that we forget there’s a whole world

that we forget there’s a whole world

that we forget there’s a whole world revolving around us from forgetting to

revolving around us from forgetting to

revolving around us from forgetting to check on our sick friends even pulling

check on our sick friends even pulling

check on our sick friends even pulling out a single dollar to donate a tropical

out a single dollar to donate a tropical

out a single dollar to donate a tropical smoothies free smoothie day for

smoothies free smoothie day for

smoothies free smoothie day for childhood cancer patient this is

childhood cancer patient this is

childhood cancer patient this is ignorant at our doorstep and if we

ignorant at our doorstep and if we

ignorant at our doorstep and if we aren’t doing something about it we’re

aren’t doing something about it we’re

aren’t doing something about it we’re only adding to the issue the truth is

only adding to the issue the truth is

only adding to the issue the truth is Cecilia could have been your friend she

Cecilia could have been your friend she

Cecilia could have been your friend she could have been your classmate she could

could have been your classmate she could

could have been your classmate she could have been your student she could have

have been your student she could have

have been your student she could have been your neighbor or just a passerby

been your neighbor or just a passerby

been your neighbor or just a passerby smile because of childhood cancer

smile because of childhood cancer

smile because of childhood cancer there’s one less ‘silly on this world

there’s one less ‘silly on this world

there’s one less ‘silly on this world there’s one more empty seat one less

there’s one more empty seat one less

there’s one more empty seat one less paper to grade but one more hole in all

paper to grade but one more hole in all

paper to grade but one more hole in all of our hearts but the sad part is

of our hearts but the sad part is

of our hearts but the sad part is Cecilia story isn’t rare each year over

Cecilia story isn’t rare each year over

Cecilia story isn’t rare each year over two hundred sixty three thousand

two hundred sixty three thousand

two hundred sixty three thousand children are diagnosed with childhood

children are diagnosed with childhood

children are diagnosed with childhood cancer and and their parents are now

cancer and and their parents are now

cancer and and their parents are now burying their own children while

burying their own children while

burying their own children while siblings have to live a life wondering

siblings have to live a life wondering

siblings have to live a life wondering what it’s like to live without a best

what it’s like to live without a best

what it’s like to live without a best friend if we don’t do anything about it

friend if we don’t do anything about it

friend if we don’t do anything about it as able-bodied people then only more

as able-bodied people then only more

as able-bodied people then only more children will die because we aren’t

children will die because we aren’t

children will die because we aren’t wrapped up in this own race and because

wrapped up in this own race and because

wrapped up in this own race and because we are living our normal lives and we’re

we are living our normal lives and we’re

we are living our normal lives and we’re we’re healthy and happy we should be

we’re healthy and happy we should be

we’re healthy and happy we should be standing up for these children because

standing up for these children because

standing up for these children because the families to be completely honest or

the families to be completely honest or

the families to be completely honest or too wrapped up and exhausted to be

too wrapped up and exhausted to be

too wrapped up and exhausted to be fighting for their own children together

fighting for their own children together

fighting for their own children together we can end a path II and together

we can end a path II and together

we can end a path II and together hopefully there’ll be one more Cecilia

hopefully there’ll be one more Cecilia

hopefully there’ll be one more Cecilia in this world thank you

in this world thank you

in this world thank you [Applause]

”

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