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Our fight for disability rights and why we’re not done yet | Judith Heumann | TEDxMidAtlantic


you

you [Music]

[Music]

[Music] [Applause]

hello it’s great to be with you so I’ve

hello it’s great to be with you so I’ve spent my entire life fighting for

spent my entire life fighting for

spent my entire life fighting for disability rights and I can tell you

disability rights and I can tell you

disability rights and I can tell you that the challenges that I face are the

that the challenges that I face are the

that the challenges that I face are the same challenges that disabled people

same challenges that disabled people

same challenges that disabled people face around the world it shouldn’t be a

face around the world it shouldn’t be a

face around the world it shouldn’t be a big deal that I am here on this stage

big deal that I am here on this stage

big deal that I am here on this stage coming up a ramp having a sign language

coming up a ramp having a sign language

coming up a ramp having a sign language interpreter who I can’t see but I know

interpreter who I can’t see but I know

interpreter who I can’t see but I know is out there and being as the

is out there and being as the

is out there and being as the introduction said a disabled woman

introduction said a disabled woman

introduction said a disabled woman wheelchair rider who had polio from

wheelchair rider who had polio from

wheelchair rider who had polio from Brooklyn and can in fact be a diplomat

Brooklyn and can in fact be a diplomat

Brooklyn and can in fact be a diplomat but that’s not the way it’s always been

but that’s not the way it’s always been

but that’s not the way it’s always been so let me please take you back in time I

so let me please take you back in time I

so let me please take you back in time I was born in 1947 a long time ago and

was born in 1947 a long time ago and

was born in 1947 a long time ago and when I was 18 months old I had polio in

when I was 18 months old I had polio in

when I was 18 months old I had polio in one of the last epidemics in the United

one of the last epidemics in the United

one of the last epidemics in the United States of polio in 1949 my mother was

States of polio in 1949 my mother was

States of polio in 1949 my mother was pregnant with my brother Joseph eight

pregnant with my brother Joseph eight

pregnant with my brother Joseph eight months pregnant was when I contracted

months pregnant was when I contracted

months pregnant was when I contracted polio and then I was in an iron lung for

polio and then I was in an iron lung for

polio and then I was in an iron lung for three months and in and out of the

three months and in and out of the

three months and in and out of the hospital for three years now we had lots

hospital for three years now we had lots

hospital for three years now we had lots of neighbors in our Brooklyn

of neighbors in our Brooklyn

of neighbors in our Brooklyn neighborhood and some of them were

neighborhood and some of them were

neighborhood and some of them were really very helpful for my parents some

really very helpful for my parents some

really very helpful for my parents some of them were really afraid of contagion

of them were really afraid of contagion

of them were really afraid of contagion and they wouldn’t even walk in front of

and they wouldn’t even walk in front of

and they wouldn’t even walk in front of our house they would literally walk

our house they would literally walk

our house they would literally walk across the street I think this was a

across the street I think this was a

across the street I think this was a time when my family really began to

time when my family really began to

time when my family really began to realize what disability meant to some

realize what disability meant to some

realize what disability meant to some people fear and it wasn’t even a sure

people fear and it wasn’t even a sure

people fear and it wasn’t even a sure thing that I would live at home although

thing that I would live at home although

thing that I would live at home although I didn’t learn about this till I was 36

I didn’t learn about this till I was 36

I didn’t learn about this till I was 36 years old I was having a discussion with

years old I was having a discussion with

years old I was having a discussion with my father one night and he said you know

my father one night and he said you know

my father one night and he said you know when you were two years old one of the

when you were two years old one of the

when you were two years old one of the doctors suggested to your mom and I that

doctors suggested to your mom and I that

doctors suggested to your mom and I that you live in an institution that they

you live in an institution that they

you live in an institution that they could just go ahead with their lives

could just go ahead with their lives

could just go ahead with their lives raise their kids and kind of be done

raise their kids and kind of be done

raise their kids and kind of be done with having to deal with all the

with having to deal with all the

with having to deal with all the disability related things I didn’t

disability related things I didn’t

disability related things I didn’t believe my father not because he was a

believe my father not because he was a

believe my father not because he was a liar but I had never heard this story

liar but I had never heard this story

liar but I had never heard this story and my mother in fact validated that she

and my mother in fact validated that she

and my mother in fact validated that she never wanted to tell me but in reality I

never wanted to tell me but in reality I

never wanted to tell me but in reality I don’t know why I was really surprised by

don’t know why I was really surprised by

don’t know why I was really surprised by this story because when I was five years

this story because when I was five years

this story because when I was five years old and my mother like mothers and

old and my mother like mothers and

old and my mother like mothers and fathers all across the United States was

fathers all across the United States was

fathers all across the United States was taking me to school to enroll she pushed

taking me to school to enroll she pushed

taking me to school to enroll she pushed my wheelchair to the school in walking

my wheelchair to the school in walking

my wheelchair to the school in walking distance to our house pulled the

distance to our house pulled the

distance to our house pulled the wheelchair up the steps into the school

wheelchair up the steps into the school

wheelchair up the steps into the school and we were greeted by the principal not

and we were greeted by the principal not

and we were greeted by the principal not really greeted but the principal said no

really greeted but the principal said no

really greeted but the principal said no I couldn’t come to that school because

I couldn’t come to that school because

I couldn’t come to that school because it wasn’t accessible but he told us not

it wasn’t accessible but he told us not

it wasn’t accessible but he told us not to worry because the Board of Education

to worry because the Board of Education

to worry because the Board of Education in fact would send a teacher to my house

in fact would send a teacher to my house

in fact would send a teacher to my house and they did for a total of two and a

and they did for a total of two and a

and they did for a total of two and a half hours a week but for good behavior

half hours a week but for good behavior

half hours a week but for good behavior they threw in an occupational therapist

they threw in an occupational therapist

they threw in an occupational therapist who taught me that very essential skill

who taught me that very essential skill

who taught me that very essential skill of cross stitching and a cross stitch

of cross stitching and a cross stitch

of cross stitching and a cross stitch today I didn’t actually get to go to

today I didn’t actually get to go to

today I didn’t actually get to go to school in a real building until I was

school in a real building until I was

school in a real building until I was nine years old and then I was in classes

nine years old and then I was in classes

nine years old and then I was in classes only with disabled children in a school

only with disabled children in a school

only with disabled children in a school that had mainly non-disabled children

that had mainly non-disabled children

that had mainly non-disabled children and in my classes there were students up

and in my classes there were students up

and in my classes there were students up to the age of 21 and then after 21 they

to the age of 21 and then after 21 they

to the age of 21 and then after 21 they went to something called sheltered

went to something called sheltered

went to something called sheltered workshops with menial work and earning

workshops with menial work and earning

workshops with menial work and earning either nothing or below minimum wage now

either nothing or below minimum wage now

either nothing or below minimum wage now that was pretty terrible we were in a

that was pretty terrible we were in a

that was pretty terrible we were in a completely segregated environment not

completely segregated environment not

completely segregated environment not even able to eat lunch with the children

even able to eat lunch with the children

even able to eat lunch with the children who were eating lunch literally down the

who were eating lunch literally down the

who were eating lunch literally down the hall and although this school was a

hall and although this school was a

hall and although this school was a 15-minute drive from my house it took me

15-minute drive from my house it took me

15-minute drive from my house it took me an hour and a half each way to get to

an hour and a half each way to get to

an hour and a half each way to get to and from school

and from school

and from school because we would pick up other disabled

because we would pick up other disabled

because we would pick up other disabled students along the way that was a long

students along the way that was a long

students along the way that was a long amount of time in a bus but we didn’t

amount of time in a bus but we didn’t

amount of time in a bus but we didn’t waste time so we talked with each other

waste time so we talked with each other

waste time so we talked with each other about things that kids speak about but

about things that kids speak about but

about things that kids speak about but we also started talking about why were

we also started talking about why were

we also started talking about why were we on these buses and why would we not

we on these buses and why would we not

we on these buses and why would we not in the same schools as others and even

in the same schools as others and even

in the same schools as others and even though at that point it was 10 11 or 12

though at that point it was 10 11 or 12

though at that point it was 10 11 or 12 years old we were recognizing that

years old we were recognizing that

years old we were recognizing that changes needed to be made in our

changes needed to be made in our

changes needed to be made in our communities it wasn’t us that needed to

communities it wasn’t us that needed to

communities it wasn’t us that needed to be making the changes society needed to

be making the changes society needed to

be making the changes society needed to be making these changes so I understood

be making these changes so I understood

be making these changes so I understood discrimination my parents understood

discrimination my parents understood

discrimination my parents understood discrimination my parents came from

discrimination my parents came from

discrimination my parents came from Germany they were German Jews who left

Germany they were German Jews who left

Germany they were German Jews who left in the 1930s escaping the Holocaust my

in the 1930s escaping the Holocaust my

in the 1930s escaping the Holocaust my parents lost family and they lost

parents lost family and they lost

parents lost family and they lost parents both my parents lost their

parents both my parents lost their

parents both my parents lost their parents in the Holocaust and so they

parents in the Holocaust and so they

parents in the Holocaust and so they realized that they could not be silent

realized that they could not be silent

realized that they could not be silent as things were going wrong for me in my

as things were going wrong for me in my

as things were going wrong for me in my life not me personally but what was

life not me personally but what was

life not me personally but what was going on around me they learned that

going on around me they learned that

going on around me they learned that because I used a wheelchair none of the

because I used a wheelchair none of the

because I used a wheelchair none of the high schools in New York City in the

high schools in New York City in the

high schools in New York City in the entire city were wheelchair accessible

entire city were wheelchair accessible

entire city were wheelchair accessible so what was supposed to happen is I was

so what was supposed to happen is I was

so what was supposed to happen is I was supposed to go back onto home

supposed to go back onto home

supposed to go back onto home instruction along with many other

instruction along with many other

instruction along with many other students so my parents banded together

students so my parents banded together

students so my parents banded together with other parents they went to the

with other parents they went to the

with other parents they went to the Board of Education and they demanded

Board of Education and they demanded

Board of Education and they demanded that the Board of Ed makes some of the

that the Board of Ed makes some of the

that the Board of Ed makes some of the high schools accessible and they did and

high schools accessible and they did and

high schools accessible and they did and so I and many others were finally able

so I and many others were finally able

so I and many others were finally able to go to high school a regular high

to go to high school a regular high

to go to high school a regular high school and take regular classes so what

school and take regular classes so what

school and take regular classes so what happened next

happened next

happened next I was learning more and more about what

I was learning more and more about what

I was learning more and more about what discrimination was and equally important

discrimination was and equally important

discrimination was and equally important I was learning that I needed to become

I was learning that I needed to become

I was learning that I needed to become my own advocate I was entering college

my own advocate I was entering college

my own advocate I was entering college Long Island University and I had always

Long Island University and I had always

Long Island University and I had always wanted to be a teacher and so I minored

wanted to be a teacher and so I minored

wanted to be a teacher and so I minored in education and I took all the

in education and I took all the

in education and I took all the appropriate

appropriate

appropriate and then when it was time for me to go

and then when it was time for me to go

and then when it was time for me to go for my license I had to take a written

for my license I had to take a written

for my license I had to take a written exam an oral exam and a medical exam at

exam an oral exam and a medical exam at

exam an oral exam and a medical exam at that time all three of those exams

that time all three of those exams

that time all three of those exams were given in completely inaccessible

were given in completely inaccessible

were given in completely inaccessible buildings so I had friends who carried

buildings so I had friends who carried

buildings so I had friends who carried me up and down the steps for these exams

me up and down the steps for these exams

me up and down the steps for these exams not in a motorized wheelchair in a

not in a motorized wheelchair in a

not in a motorized wheelchair in a manual wheelchair but I’ve passed my

manual wheelchair but I’ve passed my

manual wheelchair but I’ve passed my oral exam

oral exam

oral exam I passed my written exam my medical exam

I passed my written exam my medical exam

I passed my written exam my medical exam was something completely different one

was something completely different one

was something completely different one of the first questions the doctor asked

of the first questions the doctor asked

of the first questions the doctor asked me was could I please show her how I

me was could I please show her how I

me was could I please show her how I went to the bathroom I was 22 years old

went to the bathroom I was 22 years old

went to the bathroom I was 22 years old and you know when you go for any kind of

and you know when you go for any kind of

and you know when you go for any kind of an interview we think about all the

an interview we think about all the

an interview we think about all the kinds of questions people could ask you

kinds of questions people could ask you

kinds of questions people could ask you that was not one of them and I was like

that was not one of them and I was like

that was not one of them and I was like freaked out in the first place because I

freaked out in the first place because I

freaked out in the first place because I had heard that there were actually no

had heard that there were actually no

had heard that there were actually no disabled people using wheelchairs who

disabled people using wheelchairs who

disabled people using wheelchairs who were teachers in New York so each step

were teachers in New York so each step

were teachers in New York so each step along the way I was expecting something

along the way I was expecting something

along the way I was expecting something bad so I said to her is it a requirement

bad so I said to her is it a requirement

bad so I said to her is it a requirement that teachers show their students how to

that teachers show their students how to

that teachers show their students how to go to the bathroom if it is I can do

go to the bathroom if it is I can do

go to the bathroom if it is I can do that so no surprise I was failed because

that so no surprise I was failed because

that so no surprise I was failed because I didn’t cast the medical the official

I didn’t cast the medical the official

I didn’t cast the medical the official reason that I was denied my job was

reason that I was denied my job was

reason that I was denied my job was paralysis of both lower limbs sequela of

paralysis of both lower limbs sequela of

paralysis of both lower limbs sequela of polio mellitus honestly I didn’t know

polio mellitus honestly I didn’t know

polio mellitus honestly I didn’t know what the word sequela I went so I went

what the word sequela I went so I went

what the word sequela I went so I went to the dictionary and it meant because

to the dictionary and it meant because

to the dictionary and it meant because up so I’d been denied my license because

up so I’d been denied my license because

up so I’d been denied my license because I couldn’t walk so what was I going to

I couldn’t walk so what was I going to

I couldn’t walk so what was I going to do this is a really important time in my

do this is a really important time in my

do this is a really important time in my life because it would be the first time

life because it would be the first time

life because it would be the first time that I really would be challenging the

that I really would be challenging the

that I really would be challenging the system me and although I was working

system me and although I was working

system me and although I was working with a lot of other friends who had

with a lot of other friends who had

with a lot of other friends who had disabilities who were encouraging me to

disabilities who were encouraging me to

disabilities who were encouraging me to move forward with this it was

move forward with this it was

move forward with this it was nonetheless quite frightening

nonetheless quite frightening

nonetheless quite frightening but I was really very lucky I had a

but I was really very lucky I had a

but I was really very lucky I had a friend who was a disabled student at

friend who was a disabled student at

friend who was a disabled student at Long Island University and was also a

Long Island University and was also a

Long Island University and was also a stringer at the New York Times and he

stringer at the New York Times and he

stringer at the New York Times and he was able to get a reporter to write a

was able to get a reporter to write a

was able to get a reporter to write a really good piece about what had

really good piece about what had

really good piece about what had happened and why he thought what had

happened and why he thought what had

happened and why he thought what had happened was wrong the next day there

happened was wrong the next day there

happened was wrong the next day there was an editorial in The New York Times

was an editorial in The New York Times

was an editorial in The New York Times with the title of human versus the Board

with the title of human versus the Board

with the title of human versus the Board of Education and the New York Times came

of Education and the New York Times came

of Education and the New York Times came out in support of my getting my teaching

out in support of my getting my teaching

out in support of my getting my teaching license that very same day I got a call

license that very same day I got a call

license that very same day I got a call from the Today Show to ask me if I would

from the Today Show to ask me if I would

from the Today Show to ask me if I would go on the program to tell my story

go on the program to tell my story

go on the program to tell my story well again I was about 22 years old and

well again I was about 22 years old and

well again I was about 22 years old and I’ve never done a radio show and I’d

I’ve never done a radio show and I’d

I’ve never done a radio show and I’d never done a television show I certainly

never done a television show I certainly

never done a television show I certainly knew what the Today Show was but I said

knew what the Today Show was but I said

knew what the Today Show was but I said what’s the hell I said sure

what’s the hell I said sure

what’s the hell I said sure and then the same day I got a call from

and then the same day I got a call from

and then the same day I got a call from an attorney who was writing a book about

an attorney who was writing a book about

an attorney who was writing a book about civil rights and he was calling me to

civil rights and he was calling me to

civil rights and he was calling me to interview me and I was interviewing him

interview me and I was interviewing him

interview me and I was interviewing him he didn’t know that and at the end of

he didn’t know that and at the end of

he didn’t know that and at the end of our discussion I said would you be

our discussion I said would you be

our discussion I said would you be willing to represent me I want to sue

willing to represent me I want to sue

willing to represent me I want to sue the Board of Education and he said yes

the Board of Education and he said yes

the Board of Education and he said yes and the next day my father had a small

and the next day my father had a small

and the next day my father had a small butcher shop with his brother in

butcher shop with his brother in

butcher shop with his brother in Brooklyn and one of their customers came

Brooklyn and one of their customers came

Brooklyn and one of their customers came in and said that he would be willing to

in and said that he would be willing to

in and said that he would be willing to represent me pro bono so we were on our

represent me pro bono so we were on our

represent me pro bono so we were on our way to court now sometimes I say that

way to court now sometimes I say that

way to court now sometimes I say that the stars were aligned around this court

the stars were aligned around this court

the stars were aligned around this court case because we had an amazing judge the

case because we had an amazing judge the

case because we had an amazing judge the first african-american female federal

first african-american female federal

first african-american female federal judge Constance Baker motley and she

judge Constance Baker motley and she

judge Constance Baker motley and she knew discrimination when she saw it

so she strongly encouraged the Board of

so she strongly encouraged the Board of Ed to give me another medical exam which

Ed to give me another medical exam which

Ed to give me another medical exam which they did and then I got my license and

they did and then I got my license and

they did and then I got my license and while it took a number of months for me

while it took a number of months for me

while it took a number of months for me to actually get a principal to offer me

to actually get a principal to offer me

to actually get a principal to offer me a job I finally did get a job and I

a job I finally did get a job and I

a job I finally did get a job and I started teaching that fall in the same

started teaching that fall in the same

started teaching that fall in the same school that I had gone to second grade

school that I had gone to second grade

school that I had gone to second grade but I was learning as my friends were

but I was learning as my friends were

but I was learning as my friends were and people I didn’t know around the

and people I didn’t know around the

and people I didn’t know around the country that we had to be our own

country that we had to be our own

country that we had to be our own advocates that we needed to fight back

advocates that we needed to fight back

advocates that we needed to fight back people’s view that if you had a

people’s view that if you had a

people’s view that if you had a disability you needed to be cured that

disability you needed to be cured that

disability you needed to be cured that equality was not part of the equation

equality was not part of the equation

equality was not part of the equation and we were learning from the civil

and we were learning from the civil

and we were learning from the civil rights movement and from the women’s

rights movement and from the women’s

rights movement and from the women’s rights movement we were learning from

rights movement we were learning from

rights movement we were learning from them about their activism and their

them about their activism and their

them about their activism and their ability to come together not only to

ability to come together not only to

ability to come together not only to discuss problems but to discuss

discuss problems but to discuss

discuss problems but to discuss solutions and we decided that we have to

solutions and we decided that we have to

solutions and we decided that we have to emulate that movement and we recognized

emulate that movement and we recognized

emulate that movement and we recognized that the banner under which we had to

that the banner under which we had to

that the banner under which we had to fight as disabled people was

fight as disabled people was

fight as disabled people was discrimination ending discrimination and

discrimination ending discrimination and

discrimination ending discrimination and regardless of the type of disability

regardless of the type of disability

regardless of the type of disability that we had we were fighting against

that we had we were fighting against

that we had we were fighting against discrimination and we had to band

discrimination and we had to band

discrimination and we had to band together so we did and what was born is

together so we did and what was born is

together so we did and what was born is what we call today the disability rights

what we call today the disability rights

what we call today the disability rights movement so I’d like to tell you a

movement so I’d like to tell you a

movement so I’d like to tell you a couple of riddles how many people do you

couple of riddles how many people do you

couple of riddles how many people do you think it takes to stop traffic on

think it takes to stop traffic on

think it takes to stop traffic on Madison Avenue during rush hour in New

Madison Avenue during rush hour in New

Madison Avenue during rush hour in New York City fifty people and there were no

York City fifty people and there were no

York City fifty people and there were no accessible paddy wagons so they had it

accessible paddy wagons so they had it

accessible paddy wagons so they had it just kind of deal with us

and just to point avid it was four days

and just to point avid it was four days before the Nixon election and it was

before the Nixon election and it was

before the Nixon election and it was right outside his office and they sent

right outside his office and they sent

right outside his office and they sent someone out to find out what we wanted

someone out to find out what we wanted

someone out to find out what we wanted and I said we wanted a public debate on

and I said we wanted a public debate on

and I said we wanted a public debate on television about why he had vetoed a

television about why he had vetoed a

television about why he had vetoed a particular piece of legislation the guy

particular piece of legislation the guy

particular piece of legislation the guy left scratching his head thinking we

left scratching his head thinking we

left scratching his head thinking we were completely crazy but let me tell

were completely crazy but let me tell

were completely crazy but let me tell you another riddle how many people does

you another riddle how many people does

you another riddle how many people does it take to stop a bus in New York City

it take to stop a bus in New York City

it take to stop a bus in New York City when they refuse to let you on because

when they refuse to let you on because

when they refuse to let you on because you’re in a wheelchair one that is the

you’re in a wheelchair one that is the

you’re in a wheelchair one that is the right answer so what you have to do

right answer so what you have to do

right answer so what you have to do though is take your wheelchair saddle in

though is take your wheelchair saddle in

though is take your wheelchair saddle in the right place right in front of the

the right place right in front of the

the right place right in front of the steps and give it a little push

steps and give it a little push

steps and give it a little push underneath and then their bus can’t move

any of you who want to learn how to do

any of you who want to learn how to do that talk to me after this so we knew

that talk to me after this so we knew

that talk to me after this so we knew discrimination when we saw it and we

discrimination when we saw it and we

discrimination when we saw it and we were not going to sit idly by any longer

were not going to sit idly by any longer

were not going to sit idly by any longer in 1972 President Nixon vetoed the

in 1972 President Nixon vetoed the

in 1972 President Nixon vetoed the Rehabilitation Act we protested he

Rehabilitation Act we protested he

Rehabilitation Act we protested he signed it then the regulation that

signed it then the regulation that

signed it then the regulation that needed to be promulgated to implement

needed to be promulgated to implement

needed to be promulgated to implement that law had not in fact been signed we

that law had not in fact been signed we

that law had not in fact been signed we demonstrated they were signed and when

demonstrated they were signed and when

demonstrated they were signed and when the Americans with Disabilities Act the

the Americans with Disabilities Act the

the Americans with Disabilities Act the ADA a our Emancipation Proclamation act

ADA a our Emancipation Proclamation act

ADA a our Emancipation Proclamation act looked as though it might not in fact be

looked as though it might not in fact be

looked as though it might not in fact be passed in the House or Senate disabled

passed in the House or Senate disabled

passed in the House or Senate disabled people from all across the United States

people from all across the United States

people from all across the United States came together and they crawled up the

came together and they crawled up the

came together and they crawled up the Capitol Steps that was an amazing day

Capitol Steps that was an amazing day

Capitol Steps that was an amazing day and the House and Senate passed the ad a

and the House and Senate passed the ad a

and the House and Senate passed the ad a and then President Bush signed the ad a

and then President Bush signed the ad a

and then President Bush signed the ad a on the lawn of the White House it was an

on the lawn of the White House it was an

on the lawn of the White House it was an amazing day and there are about 2,000

amazing day and there are about 2,000

amazing day and there are about 2,000 people

people

people there it was July 26 1990 and one of the

there it was July 26 1990 and one of the

there it was July 26 1990 and one of the most famous statements he had in his

most famous statements he had in his

most famous statements he had in his speech was let the shameful wall of

speech was let the shameful wall of

speech was let the shameful wall of exclusion finally come tumbling down so

exclusion finally come tumbling down so

exclusion finally come tumbling down so where are we today today we’ve seen that

where are we today today we’ve seen that

where are we today today we’ve seen that the Americans with Disabilities Act

the Americans with Disabilities Act

the Americans with Disabilities Act coupled with many other important us

coupled with many other important us

coupled with many other important us pieces of legislation with good

pieces of legislation with good

pieces of legislation with good regulations and strong enforcement and

regulations and strong enforcement and

regulations and strong enforcement and technical assistance and the education

technical assistance and the education

technical assistance and the education of people all across the United States

of people all across the United States

of people all across the United States we are seeing dramatic changes for any

we are seeing dramatic changes for any

we are seeing dramatic changes for any of you in the room who are 50 or older

of you in the room who are 50 or older

of you in the room who are 50 or older or maybe even 40 or older you remember a

or maybe even 40 or older you remember a

or maybe even 40 or older you remember a time when there were no ramps on the

time when there were no ramps on the

time when there were no ramps on the streets when buses were not accessible

streets when buses were not accessible

streets when buses were not accessible when trains were not accessible where

when trains were not accessible where

when trains were not accessible where there were no wheelchair accessible

there were no wheelchair accessible

there were no wheelchair accessible bathrooms and shopping malls well you

bathrooms and shopping malls well you

bathrooms and shopping malls well you certainly did not have a sign language

certainly did not have a sign language

certainly did not have a sign language interpreter or captioning or Braille or

interpreter or captioning or Braille or

interpreter or captioning or Braille or other kinds of supports these things

other kinds of supports these things

other kinds of supports these things have changed and they have inspired the

have changed and they have inspired the

have changed and they have inspired the world and disabled people around the

world and disabled people around the

world and disabled people around the world want laws like we have and they

world want laws like we have and they

world want laws like we have and they want those laws enforced and so what

want those laws enforced and so what

want those laws enforced and so what we’ve seen is something called the

we’ve seen is something called the

we’ve seen is something called the Convention on the Rights of persons with

Convention on the Rights of persons with

Convention on the Rights of persons with disabilities it is a treaty that was

disabilities it is a treaty that was

disabilities it is a treaty that was adopted in 2006

adopted in 2006

adopted in 2006 it’s celebrating its 10th year

it’s celebrating its 10th year

it’s celebrating its 10th year anniversary more than 165 countries have

anniversary more than 165 countries have

anniversary more than 165 countries have joined this treaty it is the first

joined this treaty it is the first

joined this treaty it is the first international human rights treaty fully

international human rights treaty fully

international human rights treaty fully focused on disabled people but I am sad

focused on disabled people but I am sad

focused on disabled people but I am sad to say that our US Senate has failed to

to say that our US Senate has failed to

to say that our US Senate has failed to recommend to our president that we

recommend to our president that we

recommend to our president that we ratify the treaty we signed it in 2009

ratify the treaty we signed it in 2009

ratify the treaty we signed it in 2009 but it doesn’t come into force until

but it doesn’t come into force until

but it doesn’t come into force until ratification and the president no

ratification and the president no

ratification and the president no president can ratify a treaty without

president can ratify a treaty without

president can ratify a treaty without the consent of the Senate so we feel

the consent of the Senate so we feel

the consent of the Senate so we feel really strongly that our US Senate needs

really strongly that our US Senate needs

really strongly that our US Senate needs to do its job

to do its job

to do its job that our Senate needs to enable us as

that our Senate needs to enable us as

that our Senate needs to enable us as Americans not only to be able to assist

Americans not only to be able to assist

Americans not only to be able to assist disabled people and governments around

disabled people and governments around

disabled people and governments around the world to learn about the good work

the world to learn about the good work

the world to learn about the good work but it’s equally important that disabled

but it’s equally important that disabled

but it’s equally important that disabled people have the same opportunities to

people have the same opportunities to

people have the same opportunities to travel study and work abroad as anyone

travel study and work abroad as anyone

travel study and work abroad as anyone else in our country and as long as many

else in our country and as long as many

else in our country and as long as many countries don’t have the same laws as we

countries don’t have the same laws as we

countries don’t have the same laws as we do and don’t enforce them if they have

do and don’t enforce them if they have

do and don’t enforce them if they have them opportunities for disabled people

them opportunities for disabled people

them opportunities for disabled people are more limited we have a lot more to

are more limited we have a lot more to

are more limited we have a lot more to do in the United States and laws like

do in the United States and laws like

do in the United States and laws like this would really help us make those

this would really help us make those

this would really help us make those advancements I know discrimination when

advancements I know discrimination when

advancements I know discrimination when I see it and I see it every day both

I see it and I see it every day both

I see it and I see it every day both here in the United States and when I

here in the United States and when I

here in the United States and when I travel abroad I’m always meeting with

travel abroad I’m always meeting with

travel abroad I’m always meeting with disabled women and those women tell me

disabled women and those women tell me

disabled women and those women tell me stories about how they experience

stories about how they experience

stories about how they experience violence and rape and how in many cases

violence and rape and how in many cases

violence and rape and how in many cases these forms of violence occur from

these forms of violence occur from

these forms of violence occur from family members and people that they know

family members and people that they know

family members and people that they know who in fact may be working for them and

who in fact may be working for them and

who in fact may be working for them and frequently these cases are not

frequently these cases are not

frequently these cases are not adjudicated I meet people who are

adjudicated I meet people who are

adjudicated I meet people who are albinos in countries where they are

albinos in countries where they are

albinos in countries where they are fearful for their lives because in some

fearful for their lives because in some

fearful for their lives because in some countries people believe that their

countries people believe that their

countries people believe that their bones are magical

bones are magical

bones are magical I meet disabled people who have been

I meet disabled people who have been

I meet disabled people who have been offered jobs by businesses because they

offered jobs by businesses because they

offered jobs by businesses because they live in a country where there’s a quota

live in a country where there’s a quota

live in a country where there’s a quota system and in order to avoid a fine they

system and in order to avoid a fine they

system and in order to avoid a fine they will hire you and then tell you you

will hire you and then tell you you

will hire you and then tell you you don’t need to come to work because we

don’t need to come to work because we

don’t need to come to work because we really don’t need you in the facility I

really don’t need you in the facility I

really don’t need you in the facility I have visited institutions with a stench

have visited institutions with a stench

have visited institutions with a stench of urine is so strong that before you

of urine is so strong that before you

of urine is so strong that before you open the door of your vehicle you’re

open the door of your vehicle you’re

open the door of your vehicle you’re kind of pushed back and then God into

kind of pushed back and then God into

kind of pushed back and then God into those institutions where people should

those institutions where people should

those institutions where people should be living in the community with

be living in the community with

be living in the community with appropriate supports and seeing people

appropriate supports and seeing people

appropriate supports and seeing people almost naked people who are chemically

almost naked people who are chemically

almost naked people who are chemically drugged

drugged

drugged and people are living lives of despair

and people are living lives of despair

and people are living lives of despair these are some of the things that the US

these are some of the things that the US

these are some of the things that the US needs to be doing more to correct

needs to be doing more to correct

needs to be doing more to correct we know discrimination when we see it

we know discrimination when we see it

we know discrimination when we see it and we need to be fighting it together

and we need to be fighting it together

and we need to be fighting it together so what is it that we can be doing

so what is it that we can be doing

so what is it that we can be doing together I encourage you all to

together I encourage you all to

together I encourage you all to recognize that disability is a family

recognize that disability is a family

recognize that disability is a family you can join at any point in your life

you can join at any point in your life

you can join at any point in your life how many of you have ever broken a bone

how many of you have ever broken a bone

how many of you have ever broken a bone and then I like when you leave today to

and then I like when you leave today to

and then I like when you leave today to maybe write a couple of sentences about

maybe write a couple of sentences about

maybe write a couple of sentences about what that period of time has been like

what that period of time has been like

what that period of time has been like for you because frequently I hear from

for you because frequently I hear from

for you because frequently I hear from people you know I couldn’t do this I

people you know I couldn’t do this I

people you know I couldn’t do this I couldn’t do that people talk to me

couldn’t do that people talk to me

couldn’t do that people talk to me differently they acted differently

differently they acted differently

differently they acted differently towards me and that’s what I see and

towards me and that’s what I see and

towards me and that’s what I see and other disabled people see in flashing

other disabled people see in flashing

other disabled people see in flashing letters there are about 1 billion people

letters there are about 1 billion people

letters there are about 1 billion people with disabilities that’s the size of

with disabilities that’s the size of

with disabilities that’s the size of China but we you in this room together

China but we you in this room together

China but we you in this room together we can make a difference together we can

we can make a difference together we can

we can make a difference together we can speak up for justice together we can

speak up for justice together we can

speak up for justice together we can help change the world thank you I have

help change the world thank you I have

help change the world thank you I have to go catch my bus

”

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