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Stepping into the world of Autism | Sonali Kataria | TEDxPune


[Music]

[Music] [Applause]

let’s start with my story this is about

let’s start with my story this is about my son poorab who was born on 12 March

my son poorab who was born on 12 March

my son poorab who was born on 12 March 2009 he was a little Prince Charming a

2009 he was a little Prince Charming a

2009 he was a little Prince Charming a happy active loving bubbly chirpy child

happy active loving bubbly chirpy child

happy active loving bubbly chirpy child but around his first birthday

but around his first birthday

but around his first birthday he seemed to be regressing as if he’s

he seemed to be regressing as if he’s

he seemed to be regressing as if he’s creeping into a shell as if a bubble is

creeping into a shell as if a bubble is

creeping into a shell as if a bubble is starting to grow around him both me and

starting to grow around him both me and

starting to grow around him both me and my husband being doctors

my husband being doctors

my husband being doctors we were so concerned we felt something

we were so concerned we felt something

we were so concerned we felt something was not right within a few months he

was not right within a few months he

was not right within a few months he stopped looking at us stopped smiling

stopped looking at us stopped smiling

stopped looking at us stopped smiling stopped interacting stopped imitating us

stopped interacting stopped imitating us

stopped interacting stopped imitating us he became quiet he just lost the little

he became quiet he just lost the little

he became quiet he just lost the little tiny words he had started using he was

tiny words he had started using he was

tiny words he had started using he was trapped inside an invisible bubble as if

trapped inside an invisible bubble as if

trapped inside an invisible bubble as if we are not there he was detached it was

we are not there he was detached it was

we are not there he was detached it was then that our doubts were confirmed our

then that our doubts were confirmed our

then that our doubts were confirmed our child was on the autism spectrum now

child was on the autism spectrum now

child was on the autism spectrum now what is autism medically autism is a

what is autism medically autism is a

what is autism medically autism is a developmental condition usually reported

developmental condition usually reported

developmental condition usually reported between one and three years any child

between one and three years any child

between one and three years any child who has poor eye contact is not able to

who has poor eye contact is not able to

who has poor eye contact is not able to communicate his needs through pointing

communicate his needs through pointing

communicate his needs through pointing or gestures or small words who doesn’t

or gestures or small words who doesn’t

or gestures or small words who doesn’t want to interact or play with his peers

want to interact or play with his peers

want to interact or play with his peers or with his toys in a meaningful way who

or with his toys in a meaningful way who

or with his toys in a meaningful way who seems to be emotionally detached who

seems to be emotionally detached who

seems to be emotionally detached who wants to do the same kinds of activities

wants to do the same kinds of activities

wants to do the same kinds of activities again and again and again alone who

again and again and again alone who

again and again and again alone who seems to be out of sync gets extremely

seems to be out of sync gets extremely

seems to be out of sync gets extremely disturbed with some lights or sound or

disturbed with some lights or sound or

disturbed with some lights or sound or touch or seeks excessive touch or

touch or seeks excessive touch or

touch or seeks excessive touch or pressure or jumping who finds it

pressure or jumping who finds it

pressure or jumping who finds it difficult to focus and concentrate who

difficult to focus and concentrate who

difficult to focus and concentrate who is very rigid with his routines this

is very rigid with his routines this

is very rigid with his routines this child should be assessed and evaluated

child should be assessed and evaluated

child should be assessed and evaluated for autism and related conditions right

for autism and related conditions right

for autism and related conditions right away because many of these children are

away because many of these children are

away because many of these children are wrongly labeled as brats or misbehaved

wrongly labeled as brats or misbehaved

wrongly labeled as brats or misbehaved or badly parented when this

or badly parented when this

or badly parented when this nursers was handed over to me my only

nursers was handed over to me my only

nursers was handed over to me my only question was why why me and my child it

question was why why me and my child it

question was why why me and my child it was then that my mother asked me why not

was then that my mother asked me why not

was then that my mother asked me why not if God can shower you with so much

if God can shower you with so much

if God can shower you with so much happiness such great times

happiness such great times

happiness such great times why can’t he hand over a little

why can’t he hand over a little

why can’t he hand over a little challenge a little responsibility which

challenge a little responsibility which

challenge a little responsibility which he believes you would be able to do

he believes you would be able to do

he believes you would be able to do justice to after all what better way to

justice to after all what better way to

justice to after all what better way to put all your medical education to use

put all your medical education to use

put all your medical education to use but for your own child that was my first

but for your own child that was my first

but for your own child that was my first encounter with reality with accepting

encounter with reality with accepting

encounter with reality with accepting the fact that my child has autism with

the fact that my child has autism with

the fact that my child has autism with the help of my husband I could really

the help of my husband I could really

the help of my husband I could really stand up and come face to face with this

stand up and come face to face with this

stand up and come face to face with this actuality and I accepted the truth with

actuality and I accepted the truth with

actuality and I accepted the truth with complete faith in God just for the first

complete faith in God just for the first

complete faith in God just for the first thing that I did that day was I said

thing that I did that day was I said

thing that I did that day was I said goodbye to my medical career and I

goodbye to my medical career and I

goodbye to my medical career and I resigned from my job and I promised my

resigned from my job and I promised my

resigned from my job and I promised my child don’t worry baby I’m there to help

child don’t worry baby I’m there to help

child don’t worry baby I’m there to help you overcome your challenges so that you

you overcome your challenges so that you

you overcome your challenges so that you can live in this very world with all

can live in this very world with all

can live in this very world with all your differences

your differences

your differences just for information autism doesn’t come

just for information autism doesn’t come

just for information autism doesn’t come with a sure-shot remedy so far it just

with a sure-shot remedy so far it just

with a sure-shot remedy so far it just comes away and there are few reliable

comes away and there are few reliable

comes away and there are few reliable therapy approaches that are available to

therapy approaches that are available to

therapy approaches that are available to help these children so there was a

help these children so there was a

help these children so there was a series of rounds to the doctors to the

series of rounds to the doctors to the

series of rounds to the doctors to the therapist to the professionals many of

therapist to the professionals many of

therapist to the professionals many of them clearly mentioned that my child

them clearly mentioned that my child

them clearly mentioned that my child will never be able to live a complete

will never be able to live a complete

will never be able to live a complete fulfilled life and I wondered if a

fulfilled life and I wondered if a

fulfilled life and I wondered if a person has a limitation say for example

person has a limitation say for example

person has a limitation say for example we guys he doesn’t run after getting it

we guys he doesn’t run after getting it

we guys he doesn’t run after getting it treated he needs a pair of spectacles to

treated he needs a pair of spectacles to

treated he needs a pair of spectacles to help him live with that challenge live

help him live with that challenge live

help him live with that challenge live with that limitation comfortably I was

with that limitation comfortably I was

with that limitation comfortably I was looking for that tool that kind of

looking for that tool that kind of

looking for that tool that kind of spectacles for my child so that I can

spectacles for my child so that I can

spectacles for my child so that I can help him live with his challenge and

help him live with his challenge and

help him live with his challenge and come at par with the world this was a

come at par with the world this was a

come at par with the world this was a challenge and I kind of took the

challenge and I kind of took the

challenge and I kind of took the steering wheel in my own hands I started

steering wheel in my own hands I started

steering wheel in my own hands I started reading exploring and this

reading exploring and this

reading exploring and this I started to learn from the therapist

I started to learn from the therapist

I started to learn from the therapist and professionals I did

and professionals I did

and professionals I did autism training programs and took up

autism training programs and took up

autism training programs and took up some really effective inspiring powerful

some really effective inspiring powerful

some really effective inspiring powerful courses in autism management gradually

courses in autism management gradually

courses in autism management gradually all my wives started getting answered

all my wives started getting answered

all my wives started getting answered why did I spend my entire youth in

why did I spend my entire youth in

why did I spend my entire youth in trying to understand and study the human

trying to understand and study the human

trying to understand and study the human brain everything started to fall in

brain everything started to fall in

brain everything started to fall in place it all seems so relevant now and

place it all seems so relevant now and

place it all seems so relevant now and as I really entered this world of autism

as I really entered this world of autism

as I really entered this world of autism I started looking at my child in a

I started looking at my child in a

I started looking at my child in a completely new light he was wired so

completely new light he was wired so

completely new light he was wired so differently and whatever trainings I did

differently and whatever trainings I did

differently and whatever trainings I did my son was my best teacher so we started

my son was my best teacher so we started

my son was my best teacher so we started our sessions with him and he started

our sessions with him and he started

our sessions with him and he started responding to the awesome time that we

responding to the awesome time that we

responding to the awesome time that we were spending together he started

were spending together he started

were spending together he started opening up he started connecting we

opening up he started connecting we

opening up he started connecting we could build a little bridge to his heart

could build a little bridge to his heart

could build a little bridge to his heart the bridge is still quite shaky but we

the bridge is still quite shaky but we

the bridge is still quite shaky but we do get to visit his feelings and

do get to visit his feelings and

do get to visit his feelings and emotions every once in a while and that

emotions every once in a while and that

emotions every once in a while and that is priceless I was filled with a new

is priceless I was filled with a new

is priceless I was filled with a new energy to share all that I had learned

energy to share all that I had learned

energy to share all that I had learned with the other parents who were in the

with the other parents who were in the

with the other parents who were in the same boat with me and this was how the

same boat with me and this was how the

same boat with me and this was how the idea of starting a school for children

idea of starting a school for children

idea of starting a school for children with autism was born

with autism was born

with autism was born sunrise learning was born so what do we

sunrise learning was born so what do we

sunrise learning was born so what do we do here

do here

do here first we try to find and identify a

first we try to find and identify a

first we try to find and identify a child’s interests whatever drives him

child’s interests whatever drives him

child’s interests whatever drives him whatever he is fascinated with it could

whatever he is fascinated with it could

whatever he is fascinated with it could be even a fixation with an object or a

be even a fixation with an object or a

be even a fixation with an object or a toy sometimes it’s animals or cars or

toy sometimes it’s animals or cars or

toy sometimes it’s animals or cars or maybe a xylophone then we work around

maybe a xylophone then we work around

maybe a xylophone then we work around those interests to strike a chord with

those interests to strike a chord with

those interests to strike a chord with that child to help him build human

that child to help him build human

that child to help him build human connections more than object connections

connections more than object connections

connections more than object connections and give a specific anecdote of Dersch

and give a specific anecdote of Dersch

and give a specific anecdote of Dersch Darsh was our second child at sunrise

Darsh was our second child at sunrise

Darsh was our second child at sunrise after my son Horeb when he came to us

after my son Horeb when he came to us

after my son Horeb when he came to us his love was animals specifically

his love was animals specifically

his love was animals specifically elephants and our team literally lived

elephants and our team literally lived

elephants and our team literally lived the jungle safari every day

the jungle safari every day

the jungle safari every day elephant masks elephant trunks elephant

elephant masks elephant trunks elephant

elephant masks elephant trunks elephant tusks

tusks

tusks we even emitted elephant sounds pow-pow

we even emitted elephant sounds pow-pow

we even emitted elephant sounds pow-pow pow-pow pow-pow which only he taught us

pow-pow pow-pow which only he taught us

pow-pow pow-pow which only he taught us and we became walking talking elephants

and we became walking talking elephants

and we became walking talking elephants and needless to say he found his best

and needless to say he found his best

and needless to say he found his best friends in us he started opening up he

friends in us he started opening up he

friends in us he started opening up he started connecting he started

started connecting he started

started connecting he started communicating with us in his own

communicating with us in his own

communicating with us in his own beautiful ways he started speaking to us

beautiful ways he started speaking to us

beautiful ways he started speaking to us it was all like a beautiful miracle we

it was all like a beautiful miracle we

it was all like a beautiful miracle we even went to elephant picnics his mother

even went to elephant picnics his mother

even went to elephant picnics his mother was really happy she still supports the

was really happy she still supports the

was really happy she still supports the sunrise vision with us unbelievable

sunrise vision with us unbelievable

sunrise vision with us unbelievable isn’t it all this for being an elephant

isn’t it all this for being an elephant

isn’t it all this for being an elephant so there are many such anecdotes which

so there are many such anecdotes which

so there are many such anecdotes which come to state that autistics are not

come to state that autistics are not

come to state that autistics are not less than their peers they are different

less than their peers they are different

less than their peers they are different they love their world where they are in

they love their world where they are in

they love their world where they are in they are very happy in their own little

they are very happy in their own little

they are very happy in their own little bubble very happy in their own worlds if

bubble very happy in their own worlds if

bubble very happy in their own worlds if we wish to connect with them we need to

we wish to connect with them we need to

we wish to connect with them we need to enter that bubble enter their world be

enter that bubble enter their world be

enter that bubble enter their world be with them there find our connection and

with them there find our connection and

with them there find our connection and help them bring them out into this world

help them bring them out into this world

help them bring them out into this world only when they are ready also we need to

only when they are ready also we need to

only when they are ready also we need to sensitize our society about autism and

sensitize our society about autism and

sensitize our society about autism and about these special and different people

about these special and different people

about these special and different people you know there are many famous people

you know there are many famous people

you know there are many famous people who are on the autism spectrum who are

who are on the autism spectrum who are

who are on the autism spectrum who are famous for such good reasons there are

famous for such good reasons there are

famous for such good reasons there are authors musicians scientists actors

authors musicians scientists actors

authors musicians scientists actors educationists before becoming successful

educationists before becoming successful

educationists before becoming successful and famous grown-ups their childhoods

and famous grown-ups their childhoods

and famous grown-ups their childhoods must have faced some really rough times

must have faced some really rough times

must have faced some really rough times and they are beautiful people they are

and they are beautiful people they are

and they are beautiful people they are pure and innocent they don’t know how to

pure and innocent they don’t know how to

pure and innocent they don’t know how to tell lies or cheat or bully they don’t

tell lies or cheat or bully they don’t

tell lies or cheat or bully they don’t know how to make fun of others in fact

know how to make fun of others in fact

know how to make fun of others in fact they don’t even get to know when others

they don’t even get to know when others

they don’t even get to know when others are making fun of them in sarcastic ways

are making fun of them in sarcastic ways

are making fun of them in sarcastic ways because they don’t understand walking

because they don’t understand walking

because they don’t understand walking body language the only understands

body language the only understands

body language the only understands simple literal language if at all they

simple literal language if at all they

simple literal language if at all they do so how should we accept them first

do so how should we accept them first

do so how should we accept them first let’s not label any child who behaves

let’s not label any child who behaves

let’s not label any child who behaves laughs cries plays runs differently as

laughs cries plays runs differently as

laughs cries plays runs differently as badly

badly

badly shut up any child who screams on the

shut up any child who screams on the

shut up any child who screams on the streets as misbehaved he could be having

streets as misbehaved he could be having

streets as misbehaved he could be having a sensory meltdown he could be autistic

a sensory meltdown he could be autistic

a sensory meltdown he could be autistic second we have to and we should teach

second we have to and we should teach

second we have to and we should teach our normal or neurotypical children to

our normal or neurotypical children to

our normal or neurotypical children to be good and nice to people or children

be good and nice to people or children

be good and nice to people or children who are different third we need to

who are different third we need to

who are different third we need to really understand and accept and support

really understand and accept and support

really understand and accept and support specialness and we need to celebrate

specialness and we need to celebrate

specialness and we need to celebrate uniqueness the least we can do is help

uniqueness the least we can do is help

uniqueness the least we can do is help them find acceptance in our society we

them find acceptance in our society we

them find acceptance in our society we need to invite them to parties conduct

need to invite them to parties conduct

need to invite them to parties conduct sports events dance events music

sports events dance events music

sports events dance events music competitions fashion shows art events

competitions fashion shows art events

competitions fashion shows art events you know help them compete help them win

you know help them compete help them win

you know help them compete help them win and that’s exactly what we are trying to

and that’s exactly what we are trying to

and that’s exactly what we are trying to do and this I believe is just the

do and this I believe is just the

do and this I believe is just the beginning as a next step we wish to

beginning as a next step we wish to

beginning as a next step we wish to create bigger and better learning and

create bigger and better learning and

create bigger and better learning and earning opportunities for these children

earning opportunities for these children

earning opportunities for these children my journey so far with these children

my journey so far with these children

my journey so far with these children has taught me a few important things

has taught me a few important things

has taught me a few important things about myself and about my lives first

about myself and about my lives first

about myself and about my lives first first I’m Way happier in teaching these

first I’m Way happier in teaching these

first I’m Way happier in teaching these children than postgraduate doctors for

children than postgraduate doctors for

children than postgraduate doctors for sure

sure

sure second happiness is a choice we make

second happiness is a choice we make

second happiness is a choice we make every single day of our life and third

every single day of our life and third

every single day of our life and third our response to any situation is based

our response to any situation is based

our response to any situation is based on our belief system you know we have

on our belief system you know we have

on our belief system you know we have been brought up to believe that

been brought up to believe that

been brought up to believe that different is bad and normal is good I

different is bad and normal is good I

different is bad and normal is good I think it’s time we should stop looking

think it’s time we should stop looking

think it’s time we should stop looking at different in a bad way so next time

at different in a bad way so next time

at different in a bad way so next time if you see a person with a difference

if you see a person with a difference

if you see a person with a difference except her specialness with open arms

except her specialness with open arms

except her specialness with open arms teach him help him to live his life with

teach him help him to live his life with

teach him help him to live his life with dignity and confidence with his

dignity and confidence with his

dignity and confidence with his challenges and help him identify his

challenges and help him identify his

challenges and help him identify his strengths he might be having many so

strengths he might be having many so

strengths he might be having many so next time life throws a challenge at you

next time life throws a challenge at you

next time life throws a challenge at you please don’t ask why ask why not why not

please don’t ask why ask why not why not

please don’t ask why ask why not why not a dad

a dad

a dad why not bring about a real and

why not bring about a real and

why not bring about a real and meaningful change in your life as well

meaningful change in your life as well

meaningful change in your life as well as that of others thank you

as that of others thank you

as that of others thank you [Applause]

”

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