how many of you are in connection with someone with Crohn’s disease show hands
someone with Crohn’s disease show hands
someone with Crohn’s disease show hands very interesting because I too know
very interesting because I too know
very interesting because I too know someone with the cause disease I’d like
someone with the cause disease I’d like
someone with the cause disease I’d like to share with you his story before he
to share with you his story before he
to share with you his story before he was diagnosed with Crohn’s in 2013 he
was diagnosed with Crohn’s in 2013 he
was diagnosed with Crohn’s in 2013 he was living his life enjoying all sorts
was living his life enjoying all sorts
was living his life enjoying all sorts of junky food
of junky food
of junky food he loved his weeknight pizzas and his
he loved his weeknight pizzas and his
he loved his weeknight pizzas and his ice cream dessert he especially loved to
ice cream dessert he especially loved to
ice cream dessert he especially loved to go on the tennis court and play tennis
go on the tennis court and play tennis
go on the tennis court and play tennis and he was living a very happy life
and he was living a very happy life
and he was living a very happy life borderline OBC now the fall of the
borderline OBC now the fall of the
borderline OBC now the fall of the summer of 2013 started experiencing
summer of 2013 started experiencing
summer of 2013 started experiencing cramps and diarrhea and it was just such
cramps and diarrhea and it was just such
cramps and diarrhea and it was just such a shock he could never look at food the
a shock he could never look at food the
a shock he could never look at food the same way every time he went to take a
same way every time he went to take a
same way every time he went to take a bite of food he’d run straight to the
bite of food he’d run straight to the
bite of food he’d run straight to the bathroom within seconds of having
bathroom within seconds of having
bathroom within seconds of having swallowed it and even if he could keep
swallowed it and even if he could keep
swallowed it and even if he could keep the food down for two minutes it wasn’t
the food down for two minutes it wasn’t
the food down for two minutes it wasn’t long before it came back out the way
long before it came back out the way
long before it came back out the way winning even when he went to the tennis
winning even when he went to the tennis
winning even when he went to the tennis court to do his favorite thing two
court to do his favorite thing two
court to do his favorite thing two minutes into the warm-up he had to stop
minutes into the warm-up he had to stop
minutes into the warm-up he had to stop because his cramps were hurting him too
because his cramps were hurting him too
because his cramps were hurting him too much mentally there was a time where he
much mentally there was a time where he
much mentally there was a time where he felt trapped
felt trapped
felt trapped between his bedroom and his bathroom he
between his bedroom and his bathroom he
between his bedroom and his bathroom he missed nearly two months of school and
missed nearly two months of school and
missed nearly two months of school and he was too afraid to go to school
he was too afraid to go to school
he was too afraid to go to school because of these conditions from those
because of these conditions from those
because of these conditions from those two months of summer and school he lost
two months of summer and school he lost
two months of summer and school he lost almost 25 pounds of weight from his
almost 25 pounds of weight from his
almost 25 pounds of weight from his conditions he spent those two months at
conditions he spent those two months at
conditions he spent those two months at shio getting several tests these
shio getting several tests these
shio getting several tests these included imaging colonoscopies and blood
included imaging colonoscopies and blood
included imaging colonoscopies and blood works very scary for him and then it was
works very scary for him and then it was
works very scary for him and then it was the fall of 2013 when doctors told him
the fall of 2013 when doctors told him
the fall of 2013 when doctors told him he had Crohn’s disease for those of you
he had Crohn’s disease for those of you
he had Crohn’s disease for those of you who are unfamiliar with cause disease
who are unfamiliar with cause disease
who are unfamiliar with cause disease Crohn’s disease is a chronic illness
Crohn’s disease is a chronic illness
Crohn’s disease is a chronic illness when there’s a lot of irritation and
when there’s a lot of irritation and
when there’s a lot of irritation and lining of the gut and this is what
lining of the gut and this is what
lining of the gut and this is what doctors call inflammatory bowel disease
doctors call inflammatory bowel disease
doctors call inflammatory bowel disease I needed for short there are two types
I needed for short there are two types
I needed for short there are two types of ieds Crohn’s disease and ulcerative
of ieds Crohn’s disease and ulcerative
of ieds Crohn’s disease and ulcerative colitis people usually get diagnosed
colitis people usually get diagnosed
colitis people usually get diagnosed with Crohn’s uh in between the ages of
with Crohn’s uh in between the ages of
with Crohn’s uh in between the ages of 12 to 30
12 to 30
12 to 30 although Crohn’s can be found although
although Crohn’s can be found although
although Crohn’s can be found although the Crohn’s can be found in between the
the Crohn’s can be found in between the
the Crohn’s can be found in between the mouth to the rectum which doctors
mouth to the rectum which doctors
mouth to the rectum which doctors usually refer to as cheek-to-cheek
usually refer to as cheek-to-cheek
usually refer to as cheek-to-cheek usually it’s most commonly found in the
usually it’s most commonly found in the
usually it’s most commonly found in the ileum which you can see up on the board
ileum which you can see up on the board
ileum which you can see up on the board in the small intestine so just to show
in the small intestine so just to show
in the small intestine so just to show you how aggressive this disease is up on
you how aggressive this disease is up on
you how aggressive this disease is up on the board we have two pictures one of a
the board we have two pictures one of a
the board we have two pictures one of a normal helium and one with Crohn’s just
normal helium and one with Crohn’s just
normal helium and one with Crohn’s just visually looking at those two pictures
visually looking at those two pictures
visually looking at those two pictures the one on the right with Crohn’s you
the one on the right with Crohn’s you
the one on the right with Crohn’s you can see the the white the pus you can
can see the the white the pus you can
can see the the white the pus you can just see all the ulcers you can see how
just see all the ulcers you can see how
just see all the ulcers you can see how it’s a road at that little gap all the
it’s a road at that little gap all the
it’s a road at that little gap all the regular tissue the mucosa that’s all
regular tissue the mucosa that’s all
regular tissue the mucosa that’s all gone now and you can just see the blood
gone now and you can just see the blood
gone now and you can just see the blood you can just see the hemorrhaging in the
you can just see the hemorrhaging in the
you can just see the hemorrhaging in the lining of the gut and then you look back
lining of the gut and then you look back
lining of the gut and then you look back to the left and you can visibly see
to the left and you can visibly see
to the left and you can visibly see right through it the difference is night
right through it the difference is night
right through it the difference is night and day now how does one ileum turn from
and day now how does one ileum turn from
and day now how does one ileum turn from such a beauty that’s such a disaster now
such a beauty that’s such a disaster now
such a beauty that’s such a disaster now peep now doctors believe that Crohn’s is
peep now doctors believe that Crohn’s is
peep now doctors believe that Crohn’s is is when it can be triggered by several
is when it can be triggered by several
is when it can be triggered by several factors such as environmental causes
factors such as environmental causes
factors such as environmental causes stress unhealthy eating and possibly
stress unhealthy eating and possibly
stress unhealthy eating and possibly genetics and unfortunately there’s no
genetics and unfortunately there’s no
genetics and unfortunately there’s no cure to the disease doctors can only
cure to the disease doctors can only
cure to the disease doctors can only control it and what I mean by control is
control it and what I mean by control is
control it and what I mean by control is take people with diabetes for example
take people with diabetes for example
take people with diabetes for example they take insulin the insulin can help
they take insulin the insulin can help
they take insulin the insulin can help control their blood sugar to keep it at
control their blood sugar to keep it at
control their blood sugar to keep it at a level but won’t actually get rid of
a level but won’t actually get rid of
a level but won’t actually get rid of the diabetes itself right now if you
the diabetes itself right now if you
the diabetes itself right now if you haven’t already guessed it by now the
haven’t already guessed it by now the
haven’t already guessed it by now the person in the story was me once again up
person in the story was me once again up
person in the story was me once again up on the board we have two images the one
on the board we have two images the one
on the board we have two images the one on the left is me before I got Crohn’s
on the left is me before I got Crohn’s
on the left is me before I got Crohn’s disease
disease
disease the one on the right is me after my
the one on the right is me after my
the one on the right is me after my colonoscopy when doctors told me I had
colonoscopy when doctors told me I had
colonoscopy when doctors told me I had closed once again visually on the left
closed once again visually on the left
closed once again visually on the left I’m smiling I’m happy I’m healthy – the
I’m smiling I’m happy I’m healthy – the
I’m smiling I’m happy I’m healthy – the nine or ten extra pounds and then on the
nine or ten extra pounds and then on the
nine or ten extra pounds and then on the right the difference once again I’m I’ve
right the difference once again I’m I’ve
right the difference once again I’m I’ve lost by twenty five pounds I don’t have
lost by twenty five pounds I don’t have
lost by twenty five pounds I don’t have cheeks anymore my face is pale I’m
cheeks anymore my face is pale I’m
cheeks anymore my face is pale I’m frowning I have dark circles on them
frowning I have dark circles on them
frowning I have dark circles on them under my eyes that is the sign of
under my eyes that is the sign of
under my eyes that is the sign of someone who is chronically unwell and
someone who is chronically unwell and
someone who is chronically unwell and unhappy now in my world food was my life
unhappy now in my world food was my life
unhappy now in my world food was my life unhealthy foods and just laziness was my
unhealthy foods and just laziness was my
unhealthy foods and just laziness was my life and I was told that I would have to
life and I was told that I would have to
life and I was told that I would have to take medications more needles more blood
take medications more needles more blood
take medications more needles more blood works and completely change my diet how
works and completely change my diet how
works and completely change my diet how would you feel now
now I had two options at this point when
now I had two options at this point when doctors told me I’d Chrome I could stay
doctors told me I’d Chrome I could stay
doctors told me I’d Chrome I could stay the same or I could change for the
the same or I could change for the
the same or I could change for the better
better
better I initially wasn’t sure what I was going
I initially wasn’t sure what I was going
I initially wasn’t sure what I was going to do and then I realized that she was
to do and then I realized that she was
to do and then I realized that she was right and I needed to change and
right and I needed to change and
right and I needed to change and initially knowing my very stubborn
initially knowing my very stubborn
initially knowing my very stubborn personality I knew it was going to be
personality I knew it was going to be
personality I knew it was going to be hard but once again my parents and my
hard but once again my parents and my
hard but once again my parents and my doctors had my back so I said let’s go
doctors had my back so I said let’s go
doctors had my back so I said let’s go for it why not change now coming to this
for it why not change now coming to this
for it why not change now coming to this and looking back to what I did I
and looking back to what I did I
and looking back to what I did I realized that life can present you with
realized that life can present you with
realized that life can present you with many hurdles many problems that are very
many hurdles many problems that are very
many hurdles many problems that are very hard to face and even try to overcome
hard to face and even try to overcome
hard to face and even try to overcome but what we don’t do we have to learn to
but what we don’t do we have to learn to
but what we don’t do we have to learn to face it adapt to that hurtle and
face it adapt to that hurtle and
face it adapt to that hurtle and eventually change yourself to get over
eventually change yourself to get over
eventually change yourself to get over the hurdle and get ready for the next
the hurdle and get ready for the next
the hurdle and get ready for the next one now I was willing to change so
one now I was willing to change so
one now I was willing to change so what’s next well you need to set up a
what’s next well you need to set up a
what’s next well you need to set up a sort of strategy I need to have a plan
sort of strategy I need to have a plan
sort of strategy I need to have a plan to go forward I can’t just go for it so
to go forward I can’t just go for it so
to go forward I can’t just go for it so I can’t really suggest the plan that
I can’t really suggest the plan that
I can’t really suggest the plan that will work for all of you
will work for all of you
will work for all of you but to make your own I like to refer to
but to make your own I like to refer to
but to make your own I like to refer to it as my acronym the for case you have
it as my acronym the for case you have
it as my acronym the for case you have to know yourself know your strengths
to know yourself know your strengths
to know yourself know your strengths know your weaknesses and know your help
know your weaknesses and know your help
know your weaknesses and know your help and support now I knew myself I knew I
and support now I knew myself I knew I
and support now I knew myself I knew I wanted to get well I knew I wanted to
wanted to get well I knew I wanted to
wanted to get well I knew I wanted to get back on the tennis court I knew that
get back on the tennis court I knew that
get back on the tennis court I knew that having prawns was it right for me
having prawns was it right for me
having prawns was it right for me and I knew that I was ready for change
and I knew that I was ready for change
and I knew that I was ready for change now my weakness
now my weakness
now my weakness one word sums it up feared I was
one word sums it up feared I was
one word sums it up feared I was terrified of having another cramp just
terrified of having another cramp just
terrified of having another cramp just the thought of it even now I’m still
the thought of it even now I’m still
the thought of it even now I’m still scared and I had a major phobia of
scared and I had a major phobia of
scared and I had a major phobia of needles which was really bad um and my
needles which was really bad um and my
needles which was really bad um and my strength was the other was the other one
strength was the other was the other one
strength was the other was the other one I just wanted to get well I didn’t want
I just wanted to get well I didn’t want
I just wanted to get well I didn’t want to have to stop playing tennis because
to have to stop playing tennis because
to have to stop playing tennis because of my Crohn’s I didn’t want to have to
of my Crohn’s I didn’t want to have to
of my Crohn’s I didn’t want to have to miss any more months of school I just
miss any more months of school I just
miss any more months of school I just wanted to be myself I want to stand on
wanted to be myself I want to stand on
wanted to be myself I want to stand on my two feet and still be happy and my
my two feet and still be happy and my
my two feet and still be happy and my support my parents my doctors including
support my parents my doctors including
support my parents my doctors including my gastroenterologist that she Oh
my gastroenterologist that she Oh
my gastroenterologist that she Oh and Ashley my teachers my friends are
and Ashley my teachers my friends are
and Ashley my teachers my friends are support meant everything to me
support meant everything to me
support meant everything to me I had a strategy and I was ready I was
I had a strategy and I was ready I was
I had a strategy and I was ready I was confident I said I’m going to do this
confident I said I’m going to do this
confident I said I’m going to do this I’m going to get over my hurdle now when
I’m going to get over my hurdle now when
I’m going to get over my hurdle now when I tell people I have crows they usually
I tell people I have crows they usually
I tell people I have crows they usually end up somewhere saying oh I feel so
end up somewhere saying oh I feel so
end up somewhere saying oh I feel so sorry for you hopefully you get well
sorry for you hopefully you get well
sorry for you hopefully you get well something along those lines
something along those lines
something along those lines although Crohn’s is something very bad
although Crohn’s is something very bad
although Crohn’s is something very bad to have for any human at any age I’d
to have for any human at any age I’d
to have for any human at any age I’d like to say that having Crohn’s disease
like to say that having Crohn’s disease
like to say that having Crohn’s disease was one of the best things that ever
was one of the best things that ever
was one of the best things that ever happened to me why because had I not had
happened to me why because had I not had
happened to me why because had I not had drones I would not be the person that I
drones I would not be the person that I
drones I would not be the person that I am today I would not be so aware about
am today I would not be so aware about
am today I would not be so aware about the food that I eat I would not care
the food that I eat I would not care
the food that I eat I would not care about my body and I would not realize
about my body and I would not realize
about my body and I would not realize how important it is to make sure you
how important it is to make sure you
how important it is to make sure you take value of your life and why call my
take value of your life and why call my
take value of your life and why call my eating habits like diet I enjoy food the
eating habits like diet I enjoy food the
eating habits like diet I enjoy food the way I eat it and that’s why I keep
way I eat it and that’s why I keep
way I eat it and that’s why I keep eating it so I don’t call it a diet I
eating it so I don’t call it a diet I
eating it so I don’t call it a diet I call my lifestyle
call my lifestyle
call my lifestyle I’ve been eating food the way I eat it
I’ve been eating food the way I eat it
I’ve been eating food the way I eat it for the past four years and that’s not
for the past four years and that’s not
for the past four years and that’s not going to change I like I like the water
going to change I like I like the water
going to change I like I like the water I like what I eat so I will continue
I like what I eat so I will continue
I like what I eat so I will continue it’s my lifestyle not a diet now I’m on
it’s my lifestyle not a diet now I’m on
it’s my lifestyle not a diet now I’m on this stage right now because we all have
this stage right now because we all have
this stage right now because we all have hurdles every one of you has one whether
hurdles every one of you has one whether
hurdles every one of you has one whether it’s big or small has a hurdle but how
it’s big or small has a hurdle but how
it’s big or small has a hurdle but how many of you will actually go that extra
many of you will actually go that extra
many of you will actually go that extra mile and jump it go for the change right
mile and jump it go for the change right
mile and jump it go for the change right now I’m here to encourage you to change
now I’m here to encourage you to change
now I’m here to encourage you to change me with my stubborn personality with all
me with my stubborn personality with all
me with my stubborn personality with all odds against me I jumped it I went for
odds against me I jumped it I went for
odds against me I jumped it I went for it and I did it if I could do it there
it and I did it if I could do it there
it and I did it if I could do it there should be no excuse friend you not to
should be no excuse friend you not to
should be no excuse friend you not to try I appreciate you all listening to me
try I appreciate you all listening to me
try I appreciate you all listening to me and I’d like to finish with this one
and I’d like to finish with this one
and I’d like to finish with this one quote nobody can change you unless you
quote nobody can change you unless you
quote nobody can change you unless you change yourself
”
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