Press "Enter" to skip to content

Government, Civil Society and Community Engagement | Susan Swider | TEDxRushU


[Applause]

[Applause] thank you I understand I am what

thank you I understand I am what

thank you I understand I am what separates you all from happy hour today

separates you all from happy hour today

separates you all from happy hour today but I’m a faculty member I could talk

but I’m a faculty member I could talk

but I’m a faculty member I could talk forever so you got to hope that I’m

forever so you got to hope that I’m

forever so you got to hope that I’m paying attention to the time there and

paying attention to the time there and

paying attention to the time there and it’s really hard to follow Marlon but

it’s really hard to follow Marlon but

it’s really hard to follow Marlon but what I want to talk to you about a

what I want to talk to you about a

what I want to talk to you about a little bit today is kind of flipping the

little bit today is kind of flipping the

little bit today is kind of flipping the ready for everything by building

ready for everything by building

ready for everything by building community capacity by really encouraging

community capacity by really encouraging

community capacity by really encouraging civic engagement or community

civic engagement or community

civic engagement or community participation I have a Margaret Mead

participation I have a Margaret Mead

participation I have a Margaret Mead quote here those of you who are social

quote here those of you who are social

quote here those of you who are social media savvy you probably see this come

media savvy you probably see this come

media savvy you probably see this come up on your Facebook feed all the time

up on your Facebook feed all the time

up on your Facebook feed all the time right it’s an inspirational quote that

right it’s an inspirational quote that

right it’s an inspirational quote that says that the world is changed by a

says that the world is changed by a

says that the world is changed by a small group of committed citizens I find

small group of committed citizens I find

small group of committed citizens I find it inspiring I think it’s kind of a

it inspiring I think it’s kind of a

it inspiring I think it’s kind of a feels like an American ideal I have a

feels like an American ideal I have a

feels like an American ideal I have a second quote for maybe a less famous

second quote for maybe a less famous

second quote for maybe a less famous person on a similar speaker this is how

person on a similar speaker this is how

person on a similar speaker this is how Speaker Paul Ryan saying that basically

Speaker Paul Ryan saying that basically

Speaker Paul Ryan saying that basically every successful individual is

every successful individual is

every successful individual is surrounded by a community of people that

surrounded by a community of people that

surrounded by a community of people that brought them there I think this is a

brought them there I think this is a

brought them there I think this is a almost a uniquely American idea that

almost a uniquely American idea that

almost a uniquely American idea that Democratic participation in all aspects

Democratic participation in all aspects

Democratic participation in all aspects of society is how we reach long term

of society is how we reach long term

of society is how we reach long term sustainable Democratic Change we look at

sustainable Democratic Change we look at

sustainable Democratic Change we look at it in our government we look at it in

it in our government we look at it in

it in our government we look at it in our civil society we look at it in in

our civil society we look at it in in

our civil society we look at it in in our churches we look at it in a variety

our churches we look at it in a variety

our churches we look at it in a variety of places in our lives where we don’t

of places in our lives where we don’t

of places in our lives where we don’t always look at it is is in health care

always look at it is is in health care

always look at it is is in health care and I want to talk to you a little bit

and I want to talk to you a little bit

and I want to talk to you a little bit today from the perspective of a nurse

today from the perspective of a nurse

today from the perspective of a nurse and a public health nurse about why I

and a public health nurse about why I

and a public health nurse about why I see this as important in health care if

see this as important in health care if

see this as important in health care if you don’t already know it and many of

you don’t already know it and many of

you don’t already know it and many of you are in health care so you already do

you are in health care so you already do

you are in health care so you already do we spend more money than anybody else on

we spend more money than anybody else on

we spend more money than anybody else on the planet on our health care system and

the planet on our health care system and

the planet on our health care system and we don’t really achieve much in the way

we don’t really achieve much in the way

we don’t really achieve much in the way of outcomes our outcomes are not

of outcomes our outcomes are not

of outcomes our outcomes are not horrible but they’re mediocre

horrible but they’re mediocre

horrible but they’re mediocre the Institute of Medicine about three

the Institute of Medicine about three

the Institute of Medicine about three years ago did a study where they

years ago did a study where they

years ago did a study where they compared us health outcomes with 17

compared us health outcomes with 17

compared us health outcomes with 17 other countries that are at similar

other countries that are at similar

other countries that are at similar levels of Economic Development with us

levels of Economic Development with us

levels of Economic Development with us so countries that you would expect us to

so countries that you would expect us to

so countries that you would expect us to compete with in the health care arena

compete with in the health care arena

compete with in the health care arena and indeed we did well in some things

and indeed we did well in some things

and indeed we did well in some things but we didn’t do well in a whole variety

but we didn’t do well in a whole variety

but we didn’t do well in a whole variety of things and a couple of them are

of things and a couple of them are

of things and a couple of them are really notable even if you’re not a

really notable even if you’re not a

really notable even if you’re not a health care person one is life

health care person one is life

health care person one is life expectancy so infant born today how long

expectancy so infant born today how long

expectancy so infant born today how long on average can they expect to

on average can they expect to

on average can they expect to and the second is infant mortality

and the second is infant mortality

and the second is infant mortality infant born today how many of them will

infant born today how many of them will

infant born today how many of them will make it through the first year of life

make it through the first year of life

make it through the first year of life those are two really key outcome

those are two really key outcome

those are two really key outcome indicators that tell you something about

indicators that tell you something about

indicators that tell you something about how healthy a community is we were dead

how healthy a community is we were dead

how healthy a community is we were dead last in both of those when you compare

last in both of those when you compare

last in both of those when you compare us to the 17 peer countries so to kind

us to the 17 peer countries so to kind

us to the 17 peer countries so to kind of really critical indicators that we

of really critical indicators that we

of really critical indicators that we don’t do so well despite the fact that

don’t do so well despite the fact that

don’t do so well despite the fact that we spend all kinds of money on this we

we spend all kinds of money on this we

we spend all kinds of money on this we also know that we have problems in

also know that we have problems in

also know that we have problems in health care even with our outcomes with

health care even with our outcomes with

health care even with our outcomes with disparities between groups racial ethnic

disparities between groups racial ethnic

disparities between groups racial ethnic disparities talk about health inequity

disparities talk about health inequity

disparities talk about health inequity disparities by where you live

disparities by where you live

disparities by where you live disparities by gender gender orientation

disparities by gender gender orientation

disparities by gender gender orientation we know that so even our outcomes as

we know that so even our outcomes as

we know that so even our outcomes as they are are not equitable across the

they are are not equitable across the

they are are not equitable across the country we also know we have a variety

country we also know we have a variety

country we also know we have a variety of other kinds of health care problems

of other kinds of health care problems

of other kinds of health care problems we have chronic diseases that again more

we have chronic diseases that again more

we have chronic diseases that again more telling in minority communities and

telling in minority communities and

telling in minority communities and communities of low income not only do

communities of low income not only do

communities of low income not only do those communities have higher death

those communities have higher death

those communities have higher death rates and lower life expectancy but the

rates and lower life expectancy but the

rates and lower life expectancy but the quality of life for people in those

quality of life for people in those

quality of life for people in those communities as they deal with chronic

communities as they deal with chronic

communities as they deal with chronic illness like diabetes heart disease

illness like diabetes heart disease

illness like diabetes heart disease obesity is really much diminished we

obesity is really much diminished we

obesity is really much diminished we know we have new and infectious diseases

know we have new and infectious diseases

know we have new and infectious diseases coming out Ebola and Zika in the last

coming out Ebola and Zika in the last

coming out Ebola and Zika in the last couple of years that we’re going to have

couple of years that we’re going to have

couple of years that we’re going to have to deal with as a society we know that

to deal with as a society we know that

to deal with as a society we know that in many communities and Chicago has

in many communities and Chicago has

in many communities and Chicago has become the poster child we have a big

become the poster child we have a big

become the poster child we have a big problem with interpersonal and community

problem with interpersonal and community

problem with interpersonal and community violence both in the homes and out in

violence both in the homes and out in

violence both in the homes and out in the street we know that we have a

the street we know that we have a

the street we know that we have a variety of health policy challenges and

variety of health policy challenges and

variety of health policy challenges and I could list them forever but the ones

I could list them forever but the ones

I could list them forever but the ones that are most recent and really caught

that are most recent and really caught

that are most recent and really caught our attention because I thought we had

our attention because I thought we had

our attention because I thought we had fixed these a while back is if you’ve

fixed these a while back is if you’ve

fixed these a while back is if you’ve noticed that northeastern Indiana is

noticed that northeastern Indiana is

noticed that northeastern Indiana is having a big problem with lead in their

having a big problem with lead in their

having a big problem with lead in their water and the people in Flint Michigan

water and the people in Flint Michigan

water and the people in Flint Michigan still don’t have safe and clean drinking

still don’t have safe and clean drinking

still don’t have safe and clean drinking water and that’s coming up on two years

water and that’s coming up on two years

water and that’s coming up on two years so we have a large variety of health

so we have a large variety of health

so we have a large variety of health issues what does community engagement

issues what does community engagement

issues what does community engagement mean for those issues what does it bring

mean for those issues what does it bring

mean for those issues what does it bring to the table so I’ll tell you why I came

to the table so I’ll tell you why I came

to the table so I’ll tell you why I came to this interest I told you I was a

to this interest I told you I was a

to this interest I told you I was a public health nurse researcher educator

public health nurse researcher educator

public health nurse researcher educator and many years ago before I got into

and many years ago before I got into

and many years ago before I got into public health I started in acute care in

public health I started in acute care in

public health I started in acute care in nursing

nursing

nursing as many new nurses do and this was a

as many new nurses do and this was a

as many new nurses do and this was a long time ago and people stayed in the

long time ago and people stayed in the

long time ago and people stayed in the hospital for a long time and I would get

hospital for a long time and I would get

hospital for a long time and I would get to know my patients and I would spend

to know my patients and I would spend

to know my patients and I would spend time with them and I would tell them how

time with them and I would tell them how

time with them and I would tell them how they were going to take their medicine

they were going to take their medicine

they were going to take their medicine and how they were going to test their

and how they were going to test their

and how they were going to test their blood sugar and activity levels and what

blood sugar and activity levels and what

blood sugar and activity levels and what their diet should be like and then I

their diet should be like and then I

their diet should be like and then I would send them home and a week two

would send them home and a week two

would send them home and a week two weeks three weeks a month many of them

weeks three weeks a month many of them

weeks three weeks a month many of them came back in the door with the same

came back in the door with the same

came back in the door with the same problem that we had thought we had fixed

problem that we had thought we had fixed

problem that we had thought we had fixed and sent them home with and as a fairly

and sent them home with and as a fairly

and sent them home with and as a fairly new nurse who had really put a lot of

new nurse who had really put a lot of

new nurse who had really put a lot of time and effort into that I was

time and effort into that I was

time and effort into that I was astounded what had gone wrong how come

astounded what had gone wrong how come

astounded what had gone wrong how come they didn’t listen to my great advice

they didn’t listen to my great advice

they didn’t listen to my great advice and somehow fix themselves up when they

and somehow fix themselves up when they

and somehow fix themselves up when they got home what was happening in those

got home what was happening in those

got home what was happening in those communities so I left acute care and

communities so I left acute care and

communities so I left acute care and went and worked in home health care for

went and worked in home health care for

went and worked in home health care for about a decade where I went in to where

about a decade where I went in to where

about a decade where I went in to where people lived and worked and played and

people lived and worked and played and

people lived and worked and played and it was a great humility lesson for me

it was a great humility lesson for me

it was a great humility lesson for me because what I found out was what I had

because what I found out was what I had

because what I found out was what I had been telling those patients for all that

been telling those patients for all that

been telling those patients for all that time was pretty much irrelevant in their

time was pretty much irrelevant in their

time was pretty much irrelevant in their lives and they had been very nice to me

lives and they had been very nice to me

lives and they had been very nice to me and they’ve been patting me on the hand

and they’ve been patting me on the hand

and they’ve been patting me on the hand and smiling at me and going home and

and smiling at me and going home and

and smiling at me and going home and doing what they could do given their

doing what they could do given their

doing what they could do given their resources their capacity their community

resources their capacity their community

resources their capacity their community their home environment so when I went

their home environment so when I went

their home environment so when I went into homecare I found that the little

into homecare I found that the little

into homecare I found that the little old man that I said don’t eat canned

old man that I said don’t eat canned

old man that I said don’t eat canned food because you want to really watch

food because you want to really watch

food because you want to really watch your sodium intake because sodium will

your sodium intake because sodium will

your sodium intake because sodium will cause you to retain fluids and that will

cause you to retain fluids and that will

cause you to retain fluids and that will put excess burden on your heart he was

put excess burden on your heart he was

put excess burden on your heart he was unable to get up and down his

unable to get up and down his

unable to get up and down his third-floor walk-up and he had a

third-floor walk-up and he had a

third-floor walk-up and he had a neighbor who shopped for him once a

neighbor who shopped for him once a

neighbor who shopped for him once a month so if you get food in your house

month so if you get food in your house

month so if you get food in your house once a month it’s going to be canned

once a month it’s going to be canned

once a month it’s going to be canned food and that’s what you’re going to eat

food and that’s what you’re going to eat

food and that’s what you’re going to eat the little old lady who took care of her

the little old lady who took care of her

the little old lady who took care of her elderly husband and he needed a lot of

elderly husband and he needed a lot of

elderly husband and he needed a lot of care and so I would remind her take care

care and so I would remind her take care

care and so I would remind her take care of yourself too when I got into the home

of yourself too when I got into the home

of yourself too when I got into the home and met them

and met them

and met them she had no backup she was 24/7 she

she had no backup she was 24/7 she

she had no backup she was 24/7 she couldn’t even get a good night’s sleep

couldn’t even get a good night’s sleep

couldn’t even get a good night’s sleep much less a chance to take a walk around

much less a chance to take a walk around

much less a chance to take a walk around the block or get her hair done or go to

the block or get her hair done or go to

the block or get her hair done or go to church or anything else that might have

church or anything else that might have

church or anything else that might have been re-energizing for her the woman

been re-energizing for her the woman

been re-energizing for her the woman that I setup and said here’s what you

that I setup and said here’s what you

that I setup and said here’s what you need to do during the day here’s when

need to do during the day here’s when

need to do during the day here’s when you need to take your medications here’s

you need to take your medications here’s

you need to take your medications here’s the activity level you should have found

the activity level you should have found

the activity level you should have found out later that her family was glad to

out later that her family was glad to

out later that her family was glad to have her living with them but they had

have her living with them but they had

have her living with them but they had to work 10-hour days and so what they

to work 10-hour days and so what they

to work 10-hour days and so what they did because she couldn’t get around on

did because she couldn’t get around on

did because she couldn’t get around on her own was they put her in a chair in

her own was they put her in a chair in

her own was they put her in a chair in front of the television set at 8:00 in

front of the television set at 8:00 in

front of the television set at 8:00 in the morning with her food her pills or

the morning with her food her pills or

the morning with her food her pills or water

water

water and then they came and helped her again

and then they came and helped her again

and then they came and helped her again at 6:00 at night because that’s all they

at 6:00 at night because that’s all they

at 6:00 at night because that’s all they could do so besides the humility which

could do so besides the humility which

could do so besides the humility which was obviously well needed for me I

was obviously well needed for me I

was obviously well needed for me I thought of two things that I took out of

thought of two things that I took out of

thought of two things that I took out of that experience one was that I had spent

that experience one was that I had spent

that experience one was that I had spent time with my patients but I hadn’t

time with my patients but I hadn’t

time with my patients but I hadn’t engaged with them at all

engaged with them at all

engaged with them at all I had just talked at them I didn’t

I had just talked at them I didn’t

I had just talked at them I didn’t really listened to them and what was

really listened to them and what was

really listened to them and what was relevant to them and what was real and

relevant to them and what was real and

relevant to them and what was real and what their lived experience was like so

what their lived experience was like so

what their lived experience was like so that we could work out together what

that we could work out together what

that we could work out together what they might do to improve their health

they might do to improve their health

they might do to improve their health and the second thing was a lot of what

and the second thing was a lot of what

and the second thing was a lot of what did people’s health happened outside of

did people’s health happened outside of

did people’s health happened outside of the clinical setting here I thought I

the clinical setting here I thought I

the clinical setting here I thought I was in the center of the universe I was

was in the center of the universe I was

was in the center of the universe I was in an acute care setting and doctors and

in an acute care setting and doctors and

in an acute care setting and doctors and nurses are relatively irrelevant to most

nurses are relatively irrelevant to most

nurses are relatively irrelevant to most of what makes people healthy or not

of what makes people healthy or not

of what makes people healthy or not healthy most of what happens to people

healthy most of what happens to people

healthy most of what happens to people with regard to their health happens

with regard to their health happens

with regard to their health happens where they live work play and pray so I

where they live work play and pray so I

where they live work play and pray so I decided after that that I was going to

decided after that that I was going to

decided after that that I was going to go into public health to find out a

go into public health to find out a

go into public health to find out a little bit more about all of these

little bit more about all of these

little bit more about all of these things that happen outside of the of the

things that happen outside of the of the

things that happen outside of the of the healthcare system this is the health

healthcare system this is the health

healthcare system this is the health impact pyramid I learned about it many

impact pyramid I learned about it many

impact pyramid I learned about it many years ago as the social determinants of

years ago as the social determinants of

years ago as the social determinants of health now in healthcare everyone talks

health now in healthcare everyone talks

health now in healthcare everyone talks about the social determinants of health

about the social determinants of health

about the social determinants of health but actually public health people have

but actually public health people have

but actually public health people have been having these conversations for 40

been having these conversations for 40

been having these conversations for 40 years nobody would listen to us this

years nobody would listen to us this

years nobody would listen to us this health impact pyramid is from dr. Tom

health impact pyramid is from dr. Tom

health impact pyramid is from dr. Tom Frieden who was the head of CDC until

Frieden who was the head of CDC until

Frieden who was the head of CDC until about until the new administration so

about until the new administration so

about until the new administration so about four months ago and it’s hard to

about four months ago and it’s hard to

about four months ago and it’s hard to see from here but the bottom of the

see from here but the bottom of the

see from here but the bottom of the health impact pyramid so the pyramid the

health impact pyramid so the pyramid the

health impact pyramid so the pyramid the things at the bottom have greater impact

things at the bottom have greater impact

things at the bottom have greater impact on the health of populations and

on the health of populations and

on the health of populations and communities the things at the top

communities the things at the top

communities the things at the top require greater resources so the bottom

require greater resources so the bottom

require greater resources so the bottom is things like socio-economic factors

is things like socio-economic factors

is things like socio-economic factors because really health is greatly

because really health is greatly

because really health is greatly impacted by the resources you have

impacted by the resources you have

impacted by the resources you have available whether you have a job an

available whether you have a job an

available whether you have a job an income

income

income it’s greatly impacted by your

it’s greatly impacted by your

it’s greatly impacted by your educational level there’s a really

educational level there’s a really

educational level there’s a really strong correlation between education

strong correlation between education

strong correlation between education level and health it’s greatly impacted

level and health it’s greatly impacted

level and health it’s greatly impacted by weather you have safe of housing and

by weather you have safe of housing and

by weather you have safe of housing and whether you have affordable food

whether you have affordable food

whether you have affordable food affordable healthy food the second one

affordable healthy food the second one

affordable healthy food the second one here it says changing the context to

here it says changing the context to

here it says changing the context to make individuals default decisions

make individuals default decisions

make individuals default decisions healthy turn that into making the

healthy turn that into making the

healthy turn that into making the Healthy Choice the easy choice what can

Healthy Choice the easy choice what can

Healthy Choice the easy choice what can we do that makes it easier for people to

we do that makes it easier for people to

we do that makes it easier for people to make healthy choices so one thing would

make healthy choices so one thing would

make healthy choices so one thing would be we put recessed back in the Chicago

be we put recessed back in the Chicago

be we put recessed back in the Chicago Public Schools recently so kids are able

Public Schools recently so kids are able

Public Schools recently so kids are able to get activity on a regular basis don’t

to get activity on a regular basis don’t

to get activity on a regular basis don’t have to go and start

have to go and start

have to go and start special programs it’s part of their

special programs it’s part of their

special programs it’s part of their daily life or we’ve made cigarettes more

daily life or we’ve made cigarettes more

daily life or we’ve made cigarettes more expensive and made it harder we can’t

expensive and made it harder we can’t

expensive and made it harder we can’t smoke in public buildings so that we

smoke in public buildings so that we

smoke in public buildings so that we make that unhealthy choice a little bit

make that unhealthy choice a little bit

make that unhealthy choice a little bit harder for people so these really um

harder for people so these really um

harder for people so these really um high-impact relatively low-cost things

high-impact relatively low-cost things

high-impact relatively low-cost things are where we don’t spend as much time

are where we don’t spend as much time

are where we don’t spend as much time where we put a lot of our energy as

where we put a lot of our energy as

where we put a lot of our energy as clinical interventions and counseling

clinical interventions and counseling

clinical interventions and counseling and education where those patients need

and education where those patients need

and education where those patients need to know more about what they do now

to know more about what they do now

to know more about what they do now those are good things and they’re

those are good things and they’re

those are good things and they’re impactful but they’re very resource

impactful but they’re very resource

impactful but they’re very resource intensive particularly compared to the

intensive particularly compared to the

intensive particularly compared to the to the outcomes you get from them so the

to the outcomes you get from them so the

to the outcomes you get from them so the more I learned about this I took this

more I learned about this I took this

more I learned about this I took this into my practice as a public health

into my practice as a public health

into my practice as a public health nurse in the community there’s a variety

nurse in the community there’s a variety

nurse in the community there’s a variety of challenges trying to make this happen

of challenges trying to make this happen

of challenges trying to make this happen and I’m just going to talk about a few

and I’m just going to talk about a few

and I’m just going to talk about a few of them

of them

of them the first challenge I found was

the first challenge I found was

the first challenge I found was conflicting priorities so I go in as the

conflicting priorities so I go in as the

conflicting priorities so I go in as the public health nurse I was working in

public health nurse I was working in

public health nurse I was working in Robert Taylor homes which was a public

Robert Taylor homes which was a public

Robert Taylor homes which was a public housing complex on the south near South

housing complex on the south near South

housing complex on the south near South Side in Chicago until a few years back

Side in Chicago until a few years back

Side in Chicago until a few years back and I would go and I would talk to women

and I would go and I would talk to women

and I would go and I would talk to women about the infant mortality rate in

about the infant mortality rate in

about the infant mortality rate in Robert table homes and it was horrible

Robert table homes and it was horrible

Robert table homes and it was horrible and the women were concerned and they

and the women were concerned and they

and the women were concerned and they thought that wasn’t a good thing but it

thought that wasn’t a good thing but it

thought that wasn’t a good thing but it really didn’t feel relevant to their

really didn’t feel relevant to their

really didn’t feel relevant to their lives what felt relevant is this was the

lives what felt relevant is this was the

lives what felt relevant is this was the late 80s the crack cocaine epidemic was

late 80s the crack cocaine epidemic was

late 80s the crack cocaine epidemic was a big deal there was a lot of gang

a big deal there was a lot of gang

a big deal there was a lot of gang warfare about who was going to sell

warfare about who was going to sell

warfare about who was going to sell crack cocaine what felt relevant to them

crack cocaine what felt relevant to them

crack cocaine what felt relevant to them was that they sometimes had to walk

was that they sometimes had to walk

was that they sometimes had to walk their children to school and walk past a

their children to school and walk past a

their children to school and walk past a chalk outline because someone had been

chalk outline because someone had been

chalk outline because someone had been shot outside their building or they

shot outside their building or they

shot outside their building or they couldn’t send their kid out to the

couldn’t send their kid out to the

couldn’t send their kid out to the vacant lot to play or down to the corner

vacant lot to play or down to the corner

vacant lot to play or down to the corner for a gallon of milk because of the

for a gallon of milk because of the

for a gallon of milk because of the level of violence in the community so

level of violence in the community so

level of violence in the community so how do you juxtapose those two things

how do you juxtapose those two things

how do you juxtapose those two things the data is correct there is a problem

the data is correct there is a problem

the data is correct there is a problem but the lived experience is also correct

but the lived experience is also correct

but the lived experience is also correct there is a problem that people need to

there is a problem that people need to

there is a problem that people need to deal with every single day the second

deal with every single day the second

deal with every single day the second set of challenges I found was commitment

set of challenges I found was commitment

set of challenges I found was commitment and sustainability in my community work

and sustainability in my community work

and sustainability in my community work and I’m sure this has happened to any of

and I’m sure this has happened to any of

and I’m sure this has happened to any of you who’ve done this as well I can’t

you who’ve done this as well I can’t

you who’ve done this as well I can’t tell you how many times people said to

tell you how many times people said to

tell you how many times people said to me who is getting their PhD from this

me who is getting their PhD from this

me who is getting their PhD from this what are you doing here and who is going

what are you doing here and who is going

what are you doing here and who is going to get their degree from this work

to get their degree from this work

to get their degree from this work because people in the communities I

because people in the communities I

because people in the communities I worked in were a little bit jaded they

worked in were a little bit jaded they

worked in were a little bit jaded they had seen people particularly people from

had seen people particularly people from

had seen people particularly people from universities come in do a project

universities come in do a project

universities come in do a project collect data and leave

collect data and leave

collect data and leave and then the next group came in and the

and then the next group came in and the

and then the next group came in and the neck how many times are you going to you

neck how many times are you going to you

neck how many times are you going to you know drink the kool-aid with the folks

know drink the kool-aid with the folks

know drink the kool-aid with the folks that came in no matter how nice they

that came in no matter how nice they

that came in no matter how nice they seemed to be and so I had to think about

seemed to be and so I had to think about

seemed to be and so I had to think about being honest with people about what my

being honest with people about what my

being honest with people about what my work was and how long I was going to be

work was and how long I was going to be

work was and how long I was going to be there and I had to think about what I

there and I had to think about what I

there and I had to think about what I was going to leave behind so is it doing

was going to leave behind so is it doing

was going to leave behind so is it doing something and walking away or is it

something and walking away or is it

something and walking away or is it doing something with people so that

doing something with people so that

doing something with people so that they’ve developed new skills and they

they’ve developed new skills and they

they’ve developed new skills and they this is where they live can continue the

this is where they live can continue the

this is where they live can continue the work after we leave and that gets into

work after we leave and that gets into

work after we leave and that gets into whole conversations about ownership and

whole conversations about ownership and

whole conversations about ownership and what participation is it is relatively

what participation is it is relatively

what participation is it is relatively easy to get a bunch of people together

easy to get a bunch of people together

easy to get a bunch of people together and say we want to hear from you about

and say we want to hear from you about

and say we want to hear from you about your issues it’s a little bit more

your issues it’s a little bit more

your issues it’s a little bit more challenging to say to those people let’s

challenging to say to those people let’s

challenging to say to those people let’s get together about how you can impact

get together about how you can impact

get together about how you can impact those issues not suggesting that we

those issues not suggesting that we

those issues not suggesting that we don’t need government hospitals

don’t need government hospitals

don’t need government hospitals healthcare organizations churches etc

healthcare organizations churches etc

healthcare organizations churches etc but you are the missing part of the

but you are the missing part of the

but you are the missing part of the equation here and how can we get you

equation here and how can we get you

equation here and how can we get you meaningfully meaningfully involved in

meaningfully meaningfully involved in

meaningfully meaningfully involved in setting the direction of what’s going to

setting the direction of what’s going to

setting the direction of what’s going to happen to make this community a

happen to make this community a

happen to make this community a healthier better place the third thing

healthier better place the third thing

healthier better place the third thing was to look at assets versus needs John

was to look at assets versus needs John

was to look at assets versus needs John McKnight from Northwestern helped with

McKnight from Northwestern helped with

McKnight from Northwestern helped with this when he said you know we go into

this when he said you know we go into

this when he said you know we go into communities and we do community health

communities and we do community health

communities and we do community health needs assessments and what you do is you

needs assessments and what you do is you

needs assessments and what you do is you leave the community with a whole laundry

leave the community with a whole laundry

leave the community with a whole laundry list of needs when you leave people with

list of needs when you leave people with

list of needs when you leave people with a whole laundry list of needs what they

a whole laundry list of needs what they

a whole laundry list of needs what they feel like is that they are passive

feel like is that they are passive

feel like is that they are passive consumers who need help to fix their all

consumers who need help to fix their all

consumers who need help to fix their all of their needs John McKnight said let’s

of their needs John McKnight said let’s

of their needs John McKnight said let’s take a look at the assets in communities

take a look at the assets in communities

take a look at the assets in communities as well and help them think about how

as well and help them think about how

as well and help them think about how they can bring their assets to address

they can bring their assets to address

they can bring their assets to address their needs and all communities have

their needs and all communities have

their needs and all communities have assets it may be the park it may be the

assets it may be the park it may be the

assets it may be the park it may be the closeness to CTA to public

closeness to CTA to public

closeness to CTA to public transportation it may be the public

transportation it may be the public

transportation it may be the public library which is a clean safe space

library which is a clean safe space

library which is a clean safe space that’s open to everybody it may be

that’s open to everybody it may be

that’s open to everybody it may be individual capacities maybe somebody

individual capacities maybe somebody

individual capacities maybe somebody bakes a great pie maybe somebody can fix

bakes a great pie maybe somebody can fix

bakes a great pie maybe somebody can fix cars how do we help communities see all

cars how do we help communities see all

cars how do we help communities see all of those things they have and bring it

of those things they have and bring it

of those things they have and bring it together to help them address their

together to help them address their

together to help them address their needs in ways that work and are

needs in ways that work and are

needs in ways that work and are sustainable in our capacity building and

sustainable in our capacity building and

sustainable in our capacity building and the last challenge I want to talk about

the last challenge I want to talk about

the last challenge I want to talk about is the idea of resilience versus

is the idea of resilience versus

is the idea of resilience versus capacity so the Department of Defense

capacity so the Department of Defense

capacity so the Department of Defense and the RAND Corporation have been doing

and the RAND Corporation have been doing

and the RAND Corporation have been doing a lot of research on community

a lot of research on community

a lot of research on community resilience how come you have two

resilience how come you have two

resilience how come you have two communities they look a little bit alike

communities they look a little bit alike

communities they look a little bit alike a disaster happens one

a disaster happens one

a disaster happens one comes back and the other really just has

comes back and the other really just has

comes back and the other really just has a hard time recuperating I want to

a hard time recuperating I want to

a hard time recuperating I want to switch that around and say how do we

switch that around and say how do we

switch that around and say how do we build community capacity so that yes if

build community capacity so that yes if

build community capacity so that yes if a disaster occurs god forbid they’re

a disaster occurs god forbid they’re

a disaster occurs god forbid they’re able to recoup but that they have

able to recoup but that they have

able to recoup but that they have capacity on a daily basis to help

capacity on a daily basis to help

capacity on a daily basis to help improve the health and well-being in

improve the health and well-being in

improve the health and well-being in that neighborhood to help get stronger

that neighborhood to help get stronger

that neighborhood to help get stronger and better every day the California

and better every day the California

and better every day the California Endowment has this quote on their

Endowment has this quote on their

Endowment has this quote on their website where they say if you can plug

website where they say if you can plug

website where they say if you can plug the community into the right kind of

the community into the right kind of

the community into the right kind of political power grid it’ll do more to

political power grid it’ll do more to

political power grid it’ll do more to create health and wellness than any

create health and wellness than any

create health and wellness than any other single intervention it is the

other single intervention it is the

other single intervention it is the untapped thing we do a little bit of

untapped thing we do a little bit of

untapped thing we do a little bit of talking about communities but mostly

talking about communities but mostly

talking about communities but mostly it’s to get them to participate in the

it’s to get them to participate in the

it’s to get them to participate in the things that those of us in health care

things that those of us in health care

things that those of us in health care have already decided to do mostly it’s

have already decided to do mostly it’s

have already decided to do mostly it’s to say oh we asked for your opinion and

to say oh we asked for your opinion and

to say oh we asked for your opinion and we got your opinion and now we’re still

we got your opinion and now we’re still

we got your opinion and now we’re still going to go ahead it’s not serious civic

going to go ahead it’s not serious civic

going to go ahead it’s not serious civic engagement of the type that I think

engagement of the type that I think

engagement of the type that I think Margaret Mead and hopefully Paul Ryan

Margaret Mead and hopefully Paul Ryan

Margaret Mead and hopefully Paul Ryan we’re talking about so the last thing I

we’re talking about so the last thing I

we’re talking about so the last thing I want to talk about a little so what I’ve

want to talk about a little so what I’ve

want to talk about a little so what I’ve done more recently in this work is I had

done more recently in this work is I had

done more recently in this work is I had sabbatical last year it’s a lovely thing

sabbatical last year it’s a lovely thing

sabbatical last year it’s a lovely thing and I looked at the concept of community

and I looked at the concept of community

and I looked at the concept of community engagement and spent some time in the

engagement and spent some time in the

engagement and spent some time in the literature as we like to do and then I

literature as we like to do and then I

literature as we like to do and then I went and interviewed people around the

went and interviewed people around the

went and interviewed people around the country who have done successful

country who have done successful

country who have done successful community health and development

community health and development

community health and development projects and I said how did you involve

projects and I said how did you involve

projects and I said how did you involve people at the grassroots level what

people at the grassroots level what

people at the grassroots level what worked what didn’t what challenges did

worked what didn’t what challenges did

worked what didn’t what challenges did you find what wisdom do you have to

you find what wisdom do you have to

you find what wisdom do you have to share and I’m in the midst of analyzing

share and I’m in the midst of analyzing

share and I’m in the midst of analyzing that data right now so I don’t have

that data right now so I don’t have

that data right now so I don’t have anything definitive but I have a few

anything definitive but I have a few

anything definitive but I have a few themes that I wanted to share with you

themes that I wanted to share with you

themes that I wanted to share with you as kind of a positive thing one thing

as kind of a positive thing one thing

as kind of a positive thing one thing they said is strong civic participation

they said is strong civic participation

they said is strong civic participation you really need to get people involved

you really need to get people involved

you really need to get people involved from the get-go

from the get-go

from the get-go a woman in Maine says she does something

a woman in Maine says she does something

a woman in Maine says she does something called community circles where she

called community circles where she

called community circles where she brings groups of people together summer

brings groups of people together summer

brings groups of people together summer community residents some might be

community residents some might be

community residents some might be professionals or church leadership

professionals or church leadership

professionals or church leadership around an issue and she said sometimes

around an issue and she said sometimes

around an issue and she said sometimes it doesn’t work sometimes they’ll meet

it doesn’t work sometimes they’ll meet

it doesn’t work sometimes they’ll meet once or twice and say you know we got

once or twice and say you know we got

once or twice and say you know we got nothing for each other we’re going to

nothing for each other we’re going to

nothing for each other we’re going to disband but some of them have been very

disband but some of them have been very

disband but some of them have been very effective

effective

effective so her mental health community circle

so her mental health community circle

so her mental health community circle has been meeting every six weeks now for

has been meeting every six weeks now for

has been meeting every six weeks now for four years and they have actually

four years and they have actually

four years and they have actually developed some things that they’ve

developed some things that they’ve

developed some things that they’ve implemented in this small rural

implemented in this small rural

implemented in this small rural community to help people with mental

community to help people with mental

community to help people with mental illness cope better and to help the

illness cope better and to help the

illness cope better and to help the community figure out how to support them

community figure out how to support them

community figure out how to support them better and

better and

better and how to live congenial e together the

how to live congenial e together the

how to live congenial e together the second thing that people my interviewees

second thing that people my interviewees

second thing that people my interviewees have told me what’s wrong said wrong

have told me what’s wrong said wrong

have told me what’s wrong said wrong with thing is that engagement starts at

with thing is that engagement starts at

with thing is that engagement starts at home and you got to start by knowing

home and you got to start by knowing

home and you got to start by knowing your neighbors and I think that’s true

your neighbors and I think that’s true

your neighbors and I think that’s true for all the communities we belong in not

for all the communities we belong in not

for all the communities we belong in not just the ones that I work in but the

just the ones that I work in but the

just the ones that I work in but the ones that I live in as well the Westside

ones that I live in as well the Westside

ones that I live in as well the Westside health authority here in the Austin

health authority here in the Austin

health authority here in the Austin neighborhood in Chicago has a project

neighborhood in Chicago has a project

neighborhood in Chicago has a project they’ve been working on called um every

they’ve been working on called um every

they’ve been working on called um every black sub village and what they’ve tried

black sub village and what they’ve tried

black sub village and what they’ve tried to do is take blocks and say let’s

to do is take blocks and say let’s

to do is take blocks and say let’s connect people on a block cuz you can

connect people on a block cuz you can

connect people on a block cuz you can get your head around your block it’s not

get your head around your block it’s not

get your head around your block it’s not that huge let’s find out what the assets

that huge let’s find out what the assets

that huge let’s find out what the assets and the needs are and see if we can

and the needs are and see if we can

and the needs are and see if we can connect people on this block to solve

connect people on this block to solve

connect people on this block to solve those immediate problems but also to

those immediate problems but also to

those immediate problems but also to create ongoing social connectedness so

create ongoing social connectedness so

create ongoing social connectedness so if this is the retired couple at one

if this is the retired couple at one

if this is the retired couple at one side of the block who has a little bit

side of the block who has a little bit

side of the block who has a little bit of extra time maybe they can do

of extra time maybe they can do

of extra time maybe they can do childcare for the young family here who

childcare for the young family here who

childcare for the young family here who the parents have to work and they could

the parents have to work and they could

the parents have to work and they could use some less expensive childcare and in

use some less expensive childcare and in

use some less expensive childcare and in return the young couple will come and

return the young couple will come and

return the young couple will come and cut grass and shovel snow and maybe take

cut grass and shovel snow and maybe take

cut grass and shovel snow and maybe take them to the doctor occasionally so it’s

them to the doctor occasionally so it’s

them to the doctor occasionally so it’s a lovely model to start at the very

a lovely model to start at the very

a lovely model to start at the very small to create connections across

small to create connections across

small to create connections across community in very concrete ways civil

community in very concrete ways civil

community in very concrete ways civil discourse is another thing my

discourse is another thing my

discourse is another thing my interviewees talked about it’s really

interviewees talked about it’s really

interviewees talked about it’s really important that we learn how to talk to

important that we learn how to talk to

important that we learn how to talk to each other in a civil way I think we’ve

each other in a civil way I think we’ve

each other in a civil way I think we’ve particularly lost that in the last year

particularly lost that in the last year

particularly lost that in the last year or so in this country we’re going to

or so in this country we’re going to

or so in this country we’re going to disagree we’re good I we probably

disagree we’re good I we probably

disagree we’re good I we probably couldn’t all agree on what to order for

couldn’t all agree on what to order for

couldn’t all agree on what to order for dinner if we got together and someone

dinner if we got together and someone

dinner if we got together and someone offered to buy us all dinner in this

offered to buy us all dinner in this

offered to buy us all dinner in this room so how do we spend the time and

room so how do we spend the time and

room so how do we spend the time and energy it takes and use conflict

energy it takes and use conflict

energy it takes and use conflict resolution skills and use communication

resolution skills and use communication

resolution skills and use communication skills so that we can get to know one

skills so that we can get to know one

skills so that we can get to know one another we can recognize our differences

another we can recognize our differences

another we can recognize our differences but try to find some larger commonality

but try to find some larger commonality

but try to find some larger commonality that we could work on together and

that we could work on together and

that we could work on together and through the course of doing that get to

through the course of doing that get to

through the course of doing that get to know each other and trust each other and

know each other and trust each other and

know each other and trust each other and maybe be a little bit better at

maybe be a little bit better at

maybe be a little bit better at addressing some of our differences the

addressing some of our differences the

addressing some of our differences the one thing all of my interviewees agreed

one thing all of my interviewees agreed

one thing all of my interviewees agreed on is it takes time there’s no shortcut

on is it takes time there’s no shortcut

on is it takes time there’s no shortcut for this it just takes time and

for this it just takes time and

for this it just takes time and attention and commitment one of the

attention and commitment one of the

attention and commitment one of the stories that people told me was

stories that people told me was

stories that people told me was community health centers have to have

community health centers have to have

community health centers have to have 51% of their board as community members

51% of their board as community members

51% of their board as community members and she said they would always have

and she said they would always have

and she said they would always have dinner before the board would meet and a

dinner before the board would meet and a

dinner before the board would meet and a lot of times the professionals wouldn’t

lot of times the professionals wouldn’t

lot of times the professionals wouldn’t come to dinner

come to dinner

come to dinner they didn’t have time they were busy

they didn’t have time they were busy

they didn’t have time they were busy they would just come for the meeting

they would just come for the meeting

they would just come for the meeting what they found out is when everyone

what they found out is when everyone

what they found out is when everyone showed up for dinner the later business

showed up for dinner the later business

showed up for dinner the later business meeting was much more productive because

meeting was much more productive because

meeting was much more productive because people had a chance to develop

people had a chance to develop

people had a chance to develop relationships and start to trust and

relationships and start to trust and

relationships and start to trust and then they were able to work more

then they were able to work more

then they were able to work more effectively together the last thing my

effectively together the last thing my

effectively together the last thing my interviewees shared with me is Community

interviewees shared with me is Community

interviewees shared with me is Community Action strategies we have to figure out

Action strategies we have to figure out

Action strategies we have to figure out ways and some of them had some methods

ways and some of them had some methods

ways and some of them had some methods like my community circles lady and

like my community circles lady and

like my community circles lady and hopefully as I get into the data will

hopefully as I get into the data will

hopefully as I get into the data will find more we have to find ways to

find more we have to find ways to

find more we have to find ways to develop mutual goals again even beyond

develop mutual goals again even beyond

develop mutual goals again even beyond our disagreements and then how to

our disagreements and then how to

our disagreements and then how to develop structures for action it’s not

develop structures for action it’s not

develop structures for action it’s not enough to set goals if we don’t do

enough to set goals if we don’t do

enough to set goals if we don’t do anything about them and our structures

anything about them and our structures

anything about them and our structures for action have to be inclusive so that

for action have to be inclusive so that

for action have to be inclusive so that people feel like their participation is

people feel like their participation is

people feel like their participation is meaningful to the overall effort and to

meaningful to the overall effort and to

meaningful to the overall effort and to their expenditure of their time so how

their expenditure of their time so how

their expenditure of their time so how do we develop those inclusive structures

do we develop those inclusive structures

do we develop those inclusive structures and knowing that people are going to ebb

and knowing that people are going to ebb

and knowing that people are going to ebb and flow in their participation you may

and flow in their participation you may

and flow in their participation you may be at a time when you have an ill family

be at a time when you have an ill family

be at a time when you have an ill family member and you can’t spend as much time

member and you can’t spend as much time

member and you can’t spend as much time in your community other people may be at

in your community other people may be at

in your community other people may be at a time when they’ve retired and they

a time when they’ve retired and they

a time when they’ve retired and they have more time so knowing that we’re

have more time so knowing that we’re

have more time so knowing that we’re going to have that ebb and flow how do

going to have that ebb and flow how do

going to have that ebb and flow how do we keep those structures going the last

we keep those structures going the last

we keep those structures going the last thing all of my folks talked about was

thing all of my folks talked about was

thing all of my folks talked about was we need to think about the long term

we need to think about the long term

we need to think about the long term horizon so we need some short-term

horizon so we need some short-term

horizon so we need some short-term outcomes like setting up a X getting a

outcomes like setting up a X getting a

outcomes like setting up a X getting a clinic to come into our community or

clinic to come into our community or

clinic to come into our community or cleaning up a vacant lot or getting a

cleaning up a vacant lot or getting a

cleaning up a vacant lot or getting a playground but we need to have the long

playground but we need to have the long

playground but we need to have the long horizon we need to think we’re in this

horizon we need to think we’re in this

horizon we need to think we’re in this to improve the health of this community

to improve the health of this community

to improve the health of this community and well-being for the duration and that

and well-being for the duration and that

and well-being for the duration and that means a commitment and a long-term set

means a commitment and a long-term set

means a commitment and a long-term set of outcomes and that means we need to

of outcomes and that means we need to

of outcomes and that means we need to talk to our government and philanthropy

talk to our government and philanthropy

talk to our government and philanthropy people about a long term a long timeline

people about a long term a long timeline

people about a long term a long timeline for outcomes as well so the last quote I

for outcomes as well so the last quote I

for outcomes as well so the last quote I want to leave you with is a hero of mine

want to leave you with is a hero of mine

want to leave you with is a hero of mine Marian Wright Edelman who says the

Marian Wright Edelman who says the

Marian Wright Edelman who says the challenge of social justice is to evoke

challenge of social justice is to evoke

challenge of social justice is to evoke a sense of community that we need to

a sense of community that we need to

a sense of community that we need to make our nation a better place just as

make our nation a better place just as

make our nation a better place just as we make it a safer place and I would say

we make it a safer place and I would say

we make it a safer place and I would say and a healthier place so have a good

and a healthier place so have a good

and a healthier place so have a good weekend and go talk to a neighbor

weekend and go talk to a neighbor

weekend and go talk to a neighbor [Applause]

”

Be First to Comment

Leave a Reply

Your email address will not be published. Required fields are marked *