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Disrupting Alzheimer’s and Dementia Care | Jean Makesh | TEDxIndianapolis


a disease or a condition is a problem if

a disease or a condition is a problem if it does one of these two things number

it does one of these two things number

it does one of these two things number one it impairs our ability to live

one it impairs our ability to live

one it impairs our ability to live number two it impairs our ability to

number two it impairs our ability to

number two it impairs our ability to care for ourselves and for people around

care for ourselves and for people around

care for ourselves and for people around us prevent us from reintegrating back

us prevent us from reintegrating back

us prevent us from reintegrating back into our communities forty years ago 40

into our communities forty years ago 40

into our communities forty years ago 40 years ago people with multiple sclerosis

years ago people with multiple sclerosis

years ago people with multiple sclerosis amyotrophic lateral sclerosis motor

amyotrophic lateral sclerosis motor

amyotrophic lateral sclerosis motor neuron disease Parkinson’s and even

neuron disease Parkinson’s and even

neuron disease Parkinson’s and even certain forms of stroke they were not

certain forms of stroke they were not

certain forms of stroke they were not able to reintegrate back into their

able to reintegrate back into their

able to reintegrate back into their communities or to their vocation today

communities or to their vocation today

communities or to their vocation today they can why is that every single

they can why is that every single

they can why is that every single disease and condition that I just

disease and condition that I just

disease and condition that I just mentioned except for stroke is

mentioned except for stroke is

mentioned except for stroke is neurological it’s progressive there’s no

neurological it’s progressive there’s no

neurological it’s progressive there’s no cure and there’s no miracle drug

cure and there’s no miracle drug

cure and there’s no miracle drug Alzheimer disease is no different than

Alzheimer disease is no different than

Alzheimer disease is no different than any of those diseases why can’t we do

any of those diseases why can’t we do

any of those diseases why can’t we do the same thing the only reason I believe

the same thing the only reason I believe

the same thing the only reason I believe that they were able to reintegrate back

that they were able to reintegrate back

that they were able to reintegrate back is because of against the pure

is because of against the pure

is because of against the pure pharmaceuticals and rehabilitation our

pharmaceuticals and rehabilitation our

pharmaceuticals and rehabilitation our human brain is about three pounds heavy

human brain is about three pounds heavy

human brain is about three pounds heavy for every heart beat 25 to 25 percent of

for every heart beat 25 to 25 percent of

for every heart beat 25 to 25 percent of the blood supply goes to our human brain

the blood supply goes to our human brain

the blood supply goes to our human brain our human brain is one of the most

our human brain is one of the most

our human brain is one of the most powerful organs in our body it is

powerful organs in our body it is

powerful organs in our body it is supplied by a very complex and a rich

supplied by a very complex and a rich

supplied by a very complex and a rich network of blood vessels when you look

network of blood vessels when you look

network of blood vessels when you look at Alzheimer disease the way it’s

at Alzheimer disease the way it’s

at Alzheimer disease the way it’s clinically diagnosis it’s purely based

clinically diagnosis it’s purely based

clinically diagnosis it’s purely based on one’s ability

on one’s ability

on one’s ability to perform their instrumental activities

to perform their instrumental activities

to perform their instrumental activities of daily living and basic cognitive

of daily living and basic cognitive

of daily living and basic cognitive skills the progression of the disease is

skills the progression of the disease is

skills the progression of the disease is classified into seven stages as the

classified into seven stages as the

classified into seven stages as the individual declines as they move from

individual declines as they move from

individual declines as they move from one stage to another they decline in

one stage to another they decline in

one stage to another they decline in their ADL functions activities of daily

their ADL functions activities of daily

their ADL functions activities of daily living and basic cognitive skills

living and basic cognitive skills

living and basic cognitive skills activities of daily living is nothing

activities of daily living is nothing

activities of daily living is nothing but simple stuff like feeding brushing

but simple stuff like feeding brushing

but simple stuff like feeding brushing our teeth dressing bathing walking

our teeth dressing bathing walking

our teeth dressing bathing walking running for us to do all of these

running for us to do all of these

running for us to do all of these activities we need strength good range

activities we need strength good range

activities we need strength good range of motion balance coordination and

of motion balance coordination and

of motion balance coordination and posture some office for the last 20

posture some office for the last 20

posture some office for the last 20 years maybe 30 40 50 60 70 80 we’ve been

years maybe 30 40 50 60 70 80 we’ve been

years maybe 30 40 50 60 70 80 we’ve been doing all of these activities either

doing all of these activities either

doing all of these activities either consciously or unconsciously Alzheimer

consciously or unconsciously Alzheimer

consciously or unconsciously Alzheimer disease impacts short-term memory

usually the long-term memory stays and

usually the long-term memory stays and is the last one to go well if that’s the

is the last one to go well if that’s the

is the last one to go well if that’s the case what is that you and I did every

case what is that you and I did every

case what is that you and I did every single day what is that my patients that

single day what is that my patients that

single day what is that my patients that are about 90 years old or even 80 years

are about 90 years old or even 80 years

are about 90 years old or even 80 years old did every single day since the age

old did every single day since the age

old did every single day since the age of three and as they slip through the

of three and as they slip through the

of three and as they slip through the stages of the disease why do they forget

stages of the disease why do they forget

stages of the disease why do they forget to perform those activities there’s

to perform those activities there’s

to perform those activities there’s something called as mini brain we call

something called as mini brain we call

something called as mini brain we call it the cerebellum cerebellum has 50% of

it the cerebellum cerebellum has 50% of

it the cerebellum cerebellum has 50% of brain neurons when you look when we look

brain neurons when you look when we look

brain neurons when you look when we look at our human brain our human brain has

at our human brain our human brain has

at our human brain our human brain has over 100 billion neurons and over

over 100 billion neurons and over

over 100 billion neurons and over trillion connections we call them

trillion connections we call them

trillion connections we call them synapses if you take those neurons and

synapses if you take those neurons and

synapses if you take those neurons and if you connect them with synapses you

if you connect them with synapses you

if you connect them with synapses you can go to the moon and come back that’s

can go to the moon and come back that’s

can go to the moon and come back that’s how much we have in our three-pound

how much we have in our three-pound

how much we have in our three-pound brain now cerebellum is a mini brain 50%

brain now cerebellum is a mini brain 50%

brain now cerebellum is a mini brain 50% of the brain neurons are in cerebellum

of the brain neurons are in cerebellum

of the brain neurons are in cerebellum Alzheimer disease is the disease of the

Alzheimer disease is the disease of the

Alzheimer disease is the disease of the cerebral cortex Alzheimer disease

cerebral cortex Alzheimer disease

cerebral cortex Alzheimer disease doesn’t usually affect the cerebellum

doesn’t usually affect the cerebellum

doesn’t usually affect the cerebellum directly cerebellum is responsible for

directly cerebellum is responsible for

directly cerebellum is responsible for movements coordination posture and

movements coordination posture and

movements coordination posture and balance every single component that you

balance every single component that you

balance every single component that you and I need to complete our instrumental

and I need to complete our instrumental

and I need to complete our instrumental activities of daily living well if

activities of daily living well if

activities of daily living well if that’s the case why are individuals with

that’s the case why are individuals with

that’s the case why are individuals with Alzheimer disease tend to decline as

Alzheimer disease tend to decline as

Alzheimer disease tend to decline as they progress through one stage of the

they progress through one stage of the

they progress through one stage of the disease to another let’s talk a little

disease to another let’s talk a little

disease to another let’s talk a little bit about this stage here let’s say

bit about this stage here let’s say

bit about this stage here let’s say that’s the stage where I’m standing

that’s the stage where I’m standing

that’s the stage where I’m standing right now is about thousand square feet

right now is about thousand square feet

right now is about thousand square feet I’m going to take a gallon of water a

I’m going to take a gallon of water a

I’m going to take a gallon of water a bucket of water I’m going to pour it in

bucket of water I’m going to pour it in

bucket of water I’m going to pour it in one corner and I’m going to let the

one corner and I’m going to let the

one corner and I’m going to let the water trickle all the way down to the

water trickle all the way down to the

water trickle all the way down to the opposite corner how long do you think

opposite corner how long do you think

opposite corner how long do you think it’s going to take let’s say five

it’s going to take let’s say five

it’s going to take let’s say five minutes now let me increase the square

minutes now let me increase the square

minutes now let me increase the square footage of this space the stage let’s

footage of this space the stage let’s

footage of this space the stage let’s increase it to 10,000 square feet and I

increase it to 10,000 square feet and I

increase it to 10,000 square feet and I take the same bucket of water pour it in

take the same bucket of water pour it in

take the same bucket of water pour it in that corner and let it trickle all the

that corner and let it trickle all the

that corner and let it trickle all the way down to the opposite side how long

way down to the opposite side how long

way down to the opposite side how long do you think it takes it’s going to take

do you think it takes it’s going to take

do you think it takes it’s going to take a little bit more time maybe 20 minutes

a little bit more time maybe 20 minutes

a little bit more time maybe 20 minutes maybe 15 minutes

this particular stage that I’m standing

this particular stage that I’m standing is the human brain the water that I just

is the human brain the water that I just

is the human brain the water that I just poured is the disease process there’s

poured is the disease process there’s

poured is the disease process there’s nothing you and I can do to stop the

nothing you and I can do to stop the

nothing you and I can do to stop the progression of the disease is it

progression of the disease is it

progression of the disease is it possible for us to slow the progression

possible for us to slow the progression

possible for us to slow the progression of the disease by increase the

of the disease by increase the

of the disease by increase the functional surface area of our human

functional surface area of our human

functional surface area of our human brain is it possible for us to increase

brain is it possible for us to increase

brain is it possible for us to increase the cognitive reserve in such a way that

the cognitive reserve in such a way that

the cognitive reserve in such a way that we can enable our patients our clients

we can enable our patients our clients

we can enable our patients our clients to continue to perform those activities

to continue to perform those activities

to continue to perform those activities of daily living and even some basic

of daily living and even some basic

of daily living and even some basic cognitive skills our brain is directly

cognitive skills our brain is directly

cognitive skills our brain is directly proportionate to what we learn the size

proportionate to what we learn the size

proportionate to what we learn the size of our brain is directly proportional to

of our brain is directly proportional to

of our brain is directly proportional to proportionate to what we learn the brain

proportionate to what we learn the brain

proportionate to what we learn the brain today is much more larger than the brain

today is much more larger than the brain

today is much more larger than the brain 20 years ago the reason being is the new

20 years ago the reason being is the new

20 years ago the reason being is the new technologies the new learning the

technologies the new learning the

technologies the new learning the constant changes the advancements we

constant changes the advancements we

constant changes the advancements we have to adjust and adapt from the

have to adjust and adapt from the

have to adjust and adapt from the environment has enabled our brain to

environment has enabled our brain to

environment has enabled our brain to grow theory of neuroplasticity states

grow theory of neuroplasticity states

grow theory of neuroplasticity states that you and I have the ability to mold

that you and I have the ability to mold

that you and I have the ability to mold our brain the way we want it was widely

our brain the way we want it was widely

our brain the way we want it was widely believed that neuroplasticity occurred

believed that neuroplasticity occurred

believed that neuroplasticity occurred only during early developmental stages

only during early developmental stages

only during early developmental stages studies lately shows that we can see

studies lately shows that we can see

studies lately shows that we can see neuroplasticity in a ninety-year-old

neuroplasticity in a ninety-year-old

neuroplasticity in a ninety-year-old brain for neuroplasticity to occur a

brain for neuroplasticity to occur a

brain for neuroplasticity to occur a task that requires learning must be

task that requires learning must be

task that requires learning must be repeated 400 to 450 times and it has to

repeated 400 to 450 times and it has to

repeated 400 to 450 times and it has to be errorless in our code

be errorless in our code

be errorless in our code reimbursement model do physicians do

reimbursement model do physicians do

reimbursement model do physicians do therapists or any other clinicians have

therapists or any other clinicians have

therapists or any other clinicians have that kind of time to spend with their

that kind of time to spend with their

that kind of time to spend with their patients to teach them to learn newer

patients to teach them to learn newer

patients to teach them to learn newer skills to increase their functional

skills to increase their functional

skills to increase their functional surfacer of the human brain who does

surfacer of the human brain who does

surfacer of the human brain who does it’s a caregivers caregivers spend 24/7

it’s a caregivers caregivers spend 24/7

it’s a caregivers caregivers spend 24/7 with them in a nursing home in an

with them in a nursing home in an

with them in a nursing home in an assisted living facility in any

assisted living facility in any

assisted living facility in any institution they have the ability to

institution they have the ability to

institution they have the ability to give our patients an opportunity to

give our patients an opportunity to

give our patients an opportunity to develop neuroplasticity in a child

develop neuroplasticity in a child

develop neuroplasticity in a child daycare center the caregiver not only

daycare center the caregiver not only

daycare center the caregiver not only cares for the kid in addition the

cares for the kid in addition the

cares for the kid in addition the caregiver teaches the kid they train the

caregiver teaches the kid they train the

caregiver teaches the kid they train the kid they educate the kid they get the

kid they educate the kid they get the

kid they educate the kid they get the kid ready for kindergarten they provide

kid ready for kindergarten they provide

kid ready for kindergarten they provide care and then and they teach their

care and then and they teach their

care and then and they teach their caregivers and teachers they inspire

caregivers and teachers they inspire

caregivers and teachers they inspire learning they get them ready for the

learning they get them ready for the

learning they get them ready for the world can me as a provider can we as a

world can me as a provider can we as a

world can me as a provider can we as a provider do the same with our patients

provider do the same with our patients

provider do the same with our patients that have that have Alzheimer disease

provide care and at the same time also

provide care and at the same time also teach a task that needs to be learned

teach a task that needs to be learned

teach a task that needs to be learned has to be practiced errorless Lee at

has to be practiced errorless Lee at

has to be practiced errorless Lee at least four hundred to four hundred times

least four hundred to four hundred times

least four hundred to four hundred times a task that they already know you don’t

a task that they already know you don’t

a task that they already know you don’t want them to lose it that needs to be

want them to lose it that needs to be

want them to lose it that needs to be practiced over and over traditionally

practiced over and over traditionally

practiced over and over traditionally the nursing home industry has done a

the nursing home industry has done a

the nursing home industry has done a phenomenal job caring for individuals

phenomenal job caring for individuals

phenomenal job caring for individuals with Alzheimer disease but it’s caring

with Alzheimer disease but it’s caring

with Alzheimer disease but it’s caring just enough can we continue to do what

just enough can we continue to do what

just enough can we continue to do what we’ve been doing for the last 25 years

we’ve been doing for the last 25 years

we’ve been doing for the last 25 years can we learn something from the day care

can we learn something from the day care

can we learn something from the day care industry care and teach

industry care and teach

industry care and teach to create neuroplasticity our our

to create neuroplasticity our our

to create neuroplasticity our our services relevant to our clients needs

services relevant to our clients needs

services relevant to our clients needs to the demands can we continue to do

to the demands can we continue to do

to the demands can we continue to do what we’ve been doing even today nursing

what we’ve been doing even today nursing

what we’ve been doing even today nursing homes assisted living facilities are

homes assisted living facilities are

homes assisted living facilities are built like hotels they’re built like

built like hotels they’re built like

built like hotels they’re built like institutions buildings that have no

institutions buildings that have no

institutions buildings that have no sense of purpose that is not therapeutic

sense of purpose that is not therapeutic

sense of purpose that is not therapeutic in nature that lacks the human element

my question to you today if you may

my question to you today if you may allow me to ask number one can we as

allow me to ask number one can we as

allow me to ask number one can we as caregivers and care providers approach

caregivers and care providers approach

caregivers and care providers approach care from a treatment standpoint can

care from a treatment standpoint can

care from a treatment standpoint can developers like me providers like me

developers like me providers like me

developers like me providers like me operators like me design and construct

operators like me design and construct

operators like me design and construct facilities that incorporate human

facilities that incorporate human

facilities that incorporate human element is Purpose Driven many times

element is Purpose Driven many times

element is Purpose Driven many times I’ve heard people tell me there’s

I’ve heard people tell me there’s

I’ve heard people tell me there’s nothing you can do for Alzheimer’s

nothing you can do for Alzheimer’s

nothing you can do for Alzheimer’s disease Alzheimer patients where there

disease Alzheimer patients where there

disease Alzheimer patients where there is no hope there is no life hope gives

is no hope there is no life hope gives

is no hope there is no life hope gives life hope paves paths for innovation and

life hope paves paths for innovation and

life hope paves paths for innovation and inventions imagine for a second if every

inventions imagine for a second if every

inventions imagine for a second if every caregiver if every care provider if

caregiver if every care provider if

caregiver if every care provider if every developer Fe if every operator

every developer Fe if every operator

every developer Fe if every operator designs and constructs facility that

designs and constructs facility that

designs and constructs facility that incorporates human element is Purpose

incorporates human element is Purpose

incorporates human element is Purpose Driven what we as an industry can do

Driven what we as an industry can do

Driven what we as an industry can do collectively for it for greater good

every evening Walter would walk down the

every evening Walter would walk down the corridor around 7:00 p.m. in the night

corridor around 7:00 p.m. in the night

corridor around 7:00 p.m. in the night and ask for breakfast he just had his

and ask for breakfast he just had his

and ask for breakfast he just had his dinner water was a very successful

dinner water was a very successful

dinner water was a very successful developer

developer

developer ORN bunch of vineyards it was still out

ORN bunch of vineyards it was still out

ORN bunch of vineyards it was still out bright outside he just had his dinner

bright outside he just had his dinner

bright outside he just had his dinner it’s about around 7:00 p.m. is asking

it’s about around 7:00 p.m. is asking

it’s about around 7:00 p.m. is asking for breakfast Norma every single evening

for breakfast Norma every single evening

for breakfast Norma every single evening at 5:30

at 5:30

at 5:30 she was stand by the door wanting to

she was stand by the door wanting to

she was stand by the door wanting to leave she wants to go home she’s 94

leave she wants to go home she’s 94

leave she wants to go home she’s 94 years old she wants to go home so that

years old she wants to go home so that

years old she wants to go home so that she can take care of her five-year-old

she can take care of her five-year-old

she can take care of her five-year-old kids that would get dropped off the bus

at that time I decided that I need to do

at that time I decided that I need to do something for these crimes for my crimes

something for these crimes for my crimes

something for these crimes for my crimes what is it I can do to reset their

what is it I can do to reset their

what is it I can do to reset their biological clock what is that I can do

biological clock what is that I can do

biological clock what is that I can do to reset their physiological clock is

to reset their physiological clock is

to reset their physiological clock is there any way I could bring the outside

there any way I could bring the outside

there any way I could bring the outside inside the building long-term memories

inside the building long-term memories

inside the building long-term memories intact they’re very very close to the

intact they’re very very close to the

intact they’re very very close to the early childhood days what if I create a

early childhood days what if I create a

early childhood days what if I create a capsule a time capsule that looks like

capsule a time capsule that looks like

capsule a time capsule that looks like 1930s and 1940s what if I bring the

1930s and 1940s what if I bring the

1930s and 1940s what if I bring the elements from the outside inside what if

elements from the outside inside what if

elements from the outside inside what if I give them a feeling that the Sun can

I give them a feeling that the Sun can

I give them a feeling that the Sun can rise and sunset inside the building how

rise and sunset inside the building how

rise and sunset inside the building how many saw the app will fall from it from

many saw the app will fall from it from

many saw the app will fall from it from the tree before Isaac Newton saw it

the tree before Isaac Newton saw it

the tree before Isaac Newton saw it my guess is many but Isaac Newton

my guess is many but Isaac Newton

my guess is many but Isaac Newton decided to do something about it and

decided to do something about it and

decided to do something about it and that’s what put man on the moon the way

that’s what put man on the moon the way

that’s what put man on the moon the way we think about Alzheimer’s care is

we think about Alzheimer’s care is

we think about Alzheimer’s care is broken it doesn’t have to be

[Applause]

[Applause] thank you so much

”

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