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From care spaces to caring systems | Thilo Kroll | TEDxQMU


I think the essence of this slide and

I think the essence of this slide and this talk is how we actually move from

this talk is how we actually move from

this talk is how we actually move from care spaces to caring systems we have a

care spaces to caring systems we have a

care spaces to caring systems we have a lot of discourse around how we improve

lot of discourse around how we improve

lot of discourse around how we improve our hospitals our practices our caring

our hospitals our practices our caring

our hospitals our practices our caring institutions but how do we move on to

institutions but how do we move on to

institutions but how do we move on to caring systems we already when you think

caring systems we already when you think

caring systems we already when you think about that you already notice a slight

about that you already notice a slight

about that you already notice a slight difference in emphasis in preparation of

difference in emphasis in preparation of

difference in emphasis in preparation of this talk I came across a quote in a

this talk I came across a quote in a

this talk I came across a quote in a newspaper about a young couple that

newspaper about a young couple that

newspaper about a young couple that moved to New York City from Dublin this

moved to New York City from Dublin this

moved to New York City from Dublin this was around the time I moved to Ireland

was around the time I moved to Ireland

was around the time I moved to Ireland to moving to a new country allows you to

to moving to a new country allows you to

to moving to a new country allows you to reinvent yourself and I passed a little

reinvent yourself and I passed a little

reinvent yourself and I passed a little bit to think what that means in terms of

bit to think what that means in terms of

bit to think what that means in terms of our topic today the transgenerational

our topic today the transgenerational

our topic today the transgenerational world I’ve moved several times and you

world I’ve moved several times and you

world I’ve moved several times and you saw an illustration from Dundee to

saw an illustration from Dundee to

saw an illustration from Dundee to Dublin recently but I’ve used several

Dublin recently but I’ve used several

Dublin recently but I’ve used several times before and had to reinvent or

times before and had to reinvent or

times before and had to reinvent or readjust readapt had to change I’m

readjust readapt had to change I’m

readjust readapt had to change I’m thinking about our generations a

thinking about our generations a

thinking about our generations a transgenerational world when you think

transgenerational world when you think

transgenerational world when you think about it and reflect about it a moment

about it and reflect about it a moment

about it and reflect about it a moment when your parents were born your

when your parents were born your

when your parents were born your grandparents were born what that world

grandparents were born what that world

grandparents were born what that world looked like when you were born and what

looked like when you were born and what

looked like when you were born and what has happened the last maybe 20 30 years

has happened the last maybe 20 30 years

has happened the last maybe 20 30 years how life around you has changed how

how life around you has changed how

how life around you has changed how people around you have changed people

people around you have changed people

people around you have changed people who might still be here others might be

who might still be here others might be

who might still be here others might be gone and new people like our youngest

gone and new people like our youngest

gone and new people like our youngest TED talk member today have entered this

TED talk member today have entered this

TED talk member today have entered this world so this requires a lot of

world so this requires a lot of

world so this requires a lot of adaptation a lot of flexibility but our

adaptation a lot of flexibility but our

adaptation a lot of flexibility but our our caring systems our healthcare and

our caring systems our healthcare and

our caring systems our healthcare and social care systems our systems that we

social care systems our systems that we

social care systems our systems that we are interacting with are they prepared

are interacting with are they prepared

are interacting with are they prepared to match this diversity this dynamic so

to match this diversity this dynamic so

to match this diversity this dynamic so we’re living in changing worlds and have

we’re living in changing worlds and have

we’re living in changing worlds and have changing lives one of the those changes

changing lives one of the those changes

changing lives one of the those changes manifests themselves in the way

manifests themselves in the way

manifests themselves in the way we think of families still in policy

we think of families still in policy

we think of families still in policy documents and strategies we speak of

documents and strategies we speak of

documents and strategies we speak of family-centered family-friendly policies

family-centered family-friendly policies

family-centered family-friendly policies but rarely do we pause about and think

but rarely do we pause about and think

but rarely do we pause about and think about you know what family actually

about you know what family actually

about you know what family actually means nowadays we’ve great awareness of

means nowadays we’ve great awareness of

means nowadays we’ve great awareness of more diverse families than ever before

more diverse families than ever before

more diverse families than ever before I saw a while back in a little Metro

I saw a while back in a little Metro

I saw a while back in a little Metro free newspaper a clip of I think was

free newspaper a clip of I think was

free newspaper a clip of I think was around the time when and Elton John and

around the time when and Elton John and

around the time when and Elton John and his partner adopting a child is seeking

his partner adopting a child is seeking

his partner adopting a child is seeking to adopt a child forty five permutations

to adopt a child forty five permutations

to adopt a child forty five permutations family we have single-parent families we

family we have single-parent families we

family we have single-parent families we have same-sex families we have

have same-sex families we have

have same-sex families we have multi-generational families we have

multi-generational families we have

multi-generational families we have childless families with nuclear families

childless families with nuclear families

childless families with nuclear families extended families and so on this little

extended families and so on this little

extended families and so on this little illustration here just shows you a

illustration here just shows you a

illustration here just shows you a patchwork of these different notions of

patchwork of these different notions of

patchwork of these different notions of family again if we pause and think how

family again if we pause and think how

family again if we pause and think how well our systems geared up to match the

well our systems geared up to match the

well our systems geared up to match the needs of these diverse families another

needs of these diverse families another

needs of these diverse families another notion of change relates to community we

notion of change relates to community we

notion of change relates to community we can think about how communities now live

can think about how communities now live

can think about how communities now live together work together the spaces they

together work together the spaces they

together work together the spaces they inhabit and I’m thinking about my mom

inhabit and I’m thinking about my mom

inhabit and I’m thinking about my mom who lives in a suburban community in

who lives in a suburban community in

who lives in a suburban community in Germany has lived there about 40 years

Germany has lived there about 40 years

Germany has lived there about 40 years he’s 85 years old now and a lot of

he’s 85 years old now and a lot of

he’s 85 years old now and a lot of things have changed in that community

things have changed in that community

things have changed in that community when she moved in there were a lot of

when she moved in there were a lot of

when she moved in there were a lot of families of probably the same age there

families of probably the same age there

families of probably the same age there were a lot of traditional farm farmers

were a lot of traditional farm farmers

were a lot of traditional farm farmers still in the community active and she

still in the community active and she

still in the community active and she was welcomed she was become became

was welcomed she was become became

was welcomed she was become became quickly a part of the family of their

quickly a part of the family of their

quickly a part of the family of their community now in the last 10 years

community now in the last 10 years

community now in the last 10 years families older family members have moved

families older family members have moved

families older family members have moved out of the community or have died

out of the community or have died

out of the community or have died children like me have moved all have

children like me have moved all have

children like me have moved all have moved abroad and the neighbors are new

moved abroad and the neighbors are new

moved abroad and the neighbors are new their social support structures and

their social support structures and

their social support structures and social environments that she is

social environments that she is

social environments that she is confronted with

confronted with

confronted with is completely different now than was

is completely different now than was

is completely different now than was thirty years ago but now she needs those

thirty years ago but now she needs those

thirty years ago but now she needs those social connections now she needs those

social connections now she needs those

social connections now she needs those links but they’re hard to find people

links but they’re hard to find people

links but they’re hard to find people drive into the city to do their shopping

drive into the city to do their shopping

drive into the city to do their shopping the local shop that used to cater for

the local shop that used to cater for

the local shop that used to cater for immediate needs like milk potatoes and

immediate needs like milk potatoes and

immediate needs like milk potatoes and so on

so on

so on slows down it was not sustainable

slows down it was not sustainable

slows down it was not sustainable anymore that is the shop she could reach

anymore that is the shop she could reach

anymore that is the shop she could reach she doesn’t use the internet she doesn’t

she doesn’t use the internet she doesn’t

she doesn’t use the internet she doesn’t believe the Internet she is not a

believe the Internet she is not a

believe the Internet she is not a digital immigrant or digital native as

digital immigrant or digital native as

digital immigrant or digital native as we call it but she predates the internet

we call it but she predates the internet

we call it but she predates the internet technology the way we communicate the

technology the way we communicate the

technology the way we communicate the way we access information the way we buy

way we access information the way we buy

way we access information the way we buy things shop for things get get connected

things shop for things get get connected

things shop for things get get connected with each other has strange dramatically

with each other has strange dramatically

with each other has strange dramatically in the last 20 years or so

in the last 20 years or so

in the last 20 years or so smartphone density is now higher in some

smartphone density is now higher in some

smartphone density is now higher in some East African countries than in parts of

East African countries than in parts of

East African countries than in parts of Germany so it’s a global phenomenon that

Germany so it’s a global phenomenon that

Germany so it’s a global phenomenon that the way we communicate has changed

the way we communicate has changed

the way we communicate has changed people under 20 or 25 I would say have

people under 20 or 25 I would say have

people under 20 or 25 I would say have seen now more places in this world then

seen now more places in this world then

seen now more places in this world then the older generation could ever dream of

the older generation could ever dream of

the older generation could ever dream of so we’re highly mobile our workforce is

so we’re highly mobile our workforce is

so we’re highly mobile our workforce is highly mobile and yet our older

highly mobile and yet our older

highly mobile and yet our older population but not only them becomes

population but not only them becomes

population but not only them becomes increasingly socially isolated and

increasingly socially isolated and

increasingly socially isolated and lonely so loneliness is a real

lonely so loneliness is a real

lonely so loneliness is a real phenomenon we communicate a real-time

phenomenon we communicate a real-time

phenomenon we communicate a real-time more than ever before instantly through

more than ever before instantly through

more than ever before instantly through Twitter Facebook and so on but

Twitter Facebook and so on but

Twitter Facebook and so on but loneliness is increasing so what do we

loneliness is increasing so what do we

loneliness is increasing so what do we see we see a huge fragmentation of the

see we see a huge fragmentation of the

see we see a huge fragmentation of the way we live the way we communicate and

way we live the way we communicate and

way we live the way we communicate and also the way our services are arranged

also the way our services are arranged

also the way our services are arranged and organized we need to find a way to

and organized we need to find a way to

and organized we need to find a way to overcome this fragmentation and to

overcome this fragmentation and to

overcome this fragmentation and to reconnect the dots that are currently

reconnect the dots that are currently

reconnect the dots that are currently isolated we operate in these silos

isolated we operate in these silos

isolated we operate in these silos we try to create efficiencies in

we try to create efficiencies in

we try to create efficiencies in hospitals through Lean Six Sigma or

hospitals through Lean Six Sigma or

hospitals through Lean Six Sigma or whatever

whatever

whatever managerial mechanisms we try to

managerial mechanisms we try to

managerial mechanisms we try to implement but even connecting

implement but even connecting

implement but even connecting information from the hospital to the GP

information from the hospital to the GP

information from the hospital to the GP becomes difficult with all the

becomes difficult with all the

becomes difficult with all the technology in the world but cannot have

technology in the world but cannot have

technology in the world but cannot have electronic records that follow the

electronic records that follow the

electronic records that follow the patient Social Care

patient Social Care

patient Social Care supposedly integrated completely

supposedly integrated completely

supposedly integrated completely different ways of capturing data for

different ways of capturing data for

different ways of capturing data for instance in Scotland several initiatives

instance in Scotland several initiatives

instance in Scotland several initiatives are underway to rectify that but the

are underway to rectify that but the

are underway to rectify that but the huge challenging effort and then the

huge challenging effort and then the

huge challenging effort and then the communities that develop that change

communities that develop that change

communities that develop that change constantly and the families within those

constantly and the families within those

constantly and the families within those communities the ways they live the ways

communities the ways they live the ways

communities the ways they live the ways that communicate the ways they support

that communicate the ways they support

that communicate the ways they support each other who is the caregiver I’m a

each other who is the caregiver I’m a

each other who is the caregiver I’m a caregiver for my mum but I live about

caregiver for my mum but I live about

caregiver for my mum but I live about 2,000 kilometres away so that’s a new

2,000 kilometres away so that’s a new

2,000 kilometres away so that’s a new reality that we communicate that we need

reality that we communicate that we need

reality that we communicate that we need to communicate and work with so as I

to communicate and work with so as I

to communicate and work with so as I said we are focusing very much on our

said we are focusing very much on our

said we are focusing very much on our structures on making our hospitals

structures on making our hospitals

structures on making our hospitals efficient on improving discharge and all

efficient on improving discharge and all

efficient on improving discharge and all the data that we have so we are the

the data that we have so we are the

the data that we have so we are the length of stay for many conditions have

length of stay for many conditions have

length of stay for many conditions have has decreased at the same time we lack

has decreased at the same time we lack

has decreased at the same time we lack GPS a massive lack of GPS and under

GPS a massive lack of GPS and under

GPS a massive lack of GPS and under utilization of public health nurses for

utilization of public health nurses for

utilization of public health nurses for instance in in Ireland so we desperately

instance in in Ireland so we desperately

instance in in Ireland so we desperately need to reconnect the systems because at

need to reconnect the systems because at

need to reconnect the systems because at the moment they are fragmented we’re

the moment they are fragmented we’re

the moment they are fragmented we’re talking about clinical pathways and

talking about clinical pathways and

talking about clinical pathways and that’s fine we’re talking about stroke

that’s fine we’re talking about stroke

that’s fine we’re talking about stroke pathways dementia pathways but people

pathways dementia pathways but people

pathways dementia pathways but people are not just conditions and more often

are not just conditions and more often

are not just conditions and more often than not when you’re 65 and older you

than not when you’re 65 and older you

than not when you’re 65 and older you just have more than one condition to

just have more than one condition to

just have more than one condition to manage you might have dementia and a

manage you might have dementia and a

manage you might have dementia and a stroke and a learning disability or

stroke and a learning disability or

stroke and a learning disability or something else that need to come into

something else that need to come into

something else that need to come into the picture I think it’s time to think

the picture I think it’s time to think

the picture I think it’s time to think about people pathways relationship

about people pathways relationship

about people pathways relationship pathways rather than clinical pathways

pathways rather than clinical pathways

pathways rather than clinical pathways we need to move the power back from the

we need to move the power back from the

we need to move the power back from the professions into the public

professions into the public

professions into the public decision-making back into people and

decision-making back into people and

decision-making back into people and together with the professions not in

together with the professions not in

together with the professions not in isolation it’s about relationships

isolation it’s about relationships

isolation it’s about relationships it’s about people centeredness community

it’s about people centeredness community

it’s about people centeredness community centeredness family centeredness this

centeredness family centeredness this

centeredness family centeredness this these are the assets that people bring

these are the assets that people bring

these are the assets that people bring to the table then don’t live in

to the table then don’t live in

to the table then don’t live in isolation tank have hobby friends their

isolation tank have hobby friends their

isolation tank have hobby friends their relatives their colleagues they engage

relatives their colleagues they engage

relatives their colleagues they engage in work spaces and so on they have

in work spaces and so on they have

in work spaces and so on they have places of worship supermarkets they

places of worship supermarkets they

places of worship supermarkets they engage with and so on we need to think

engage with and so on we need to think

engage with and so on we need to think out of the box we need to harness the

out of the box we need to harness the

out of the box we need to harness the complexity of these systems in order to

complexity of these systems in order to

complexity of these systems in order to create something that I call a

create something that I call a

create something that I call a flourishing system a flourishing caring

flourishing system a flourishing caring

flourishing system a flourishing caring system and I’m drawing here on this

system and I’m drawing here on this

system and I’m drawing here on this ecosystem notion but also on concepts

ecosystem notion but also on concepts

ecosystem notion but also on concepts that come from positive psychology in

that come from positive psychology in

that come from positive psychology in terms of how people flourish and it’s

terms of how people flourish and it’s

terms of how people flourish and it’s not rocket science it’s five components

not rocket science it’s five components

not rocket science it’s five components that Seligman and colleagues have worked

that Seligman and colleagues have worked

that Seligman and colleagues have worked up there are positive emotions it’s

up there are positive emotions it’s

up there are positive emotions it’s about engagement it’s about

about engagement it’s about

about engagement it’s about relationships it’s about meaning and

relationships it’s about meaning and

relationships it’s about meaning and it’s about achievement if you think

it’s about achievement if you think

it’s about achievement if you think about those we lift these systems from

about those we lift these systems from

about those we lift these systems from individual a individual component up to

individual a individual component up to

individual a individual component up to a system level I think we can do it we

a system level I think we can do it we

a system level I think we can do it we need to enhance connectivity engagement

need to enhance connectivity engagement

need to enhance connectivity engagement and there’s lots of emphasis in Scotland

and there’s lots of emphasis in Scotland

and there’s lots of emphasis in Scotland in Ireland and other places about civic

in Ireland and other places about civic

in Ireland and other places about civic engagement public involvement but we

engagement public involvement but we

engagement public involvement but we also need to be mindful that it doesn’t

also need to be mindful that it doesn’t

also need to be mindful that it doesn’t become tokenism that people are excluded

become tokenism that people are excluded

become tokenism that people are excluded from this engagement practice we’re

from this engagement practice we’re

from this engagement practice we’re talking with the diverse population we

talking with the diverse population we

talking with the diverse population we need to adapt the methodologies the

need to adapt the methodologies the

need to adapt the methodologies the methods how we engage with people

methods how we engage with people

methods how we engage with people whether it’s using sign language for

whether it’s using sign language for

whether it’s using sign language for deaf population whether it’s providing

deaf population whether it’s providing

deaf population whether it’s providing accessible venues for people to come to

accessible venues for people to come to

accessible venues for people to come to to engage and transportation support

to engage and transportation support

to engage and transportation support whether it’s a supply supplying

whether it’s a supply supplying

whether it’s a supply supplying alternative formats for reading and

alternative formats for reading and

alternative formats for reading and understanding the information for people

understanding the information for people

understanding the information for people with learning disabilities and so on so

with learning disabilities and so on so

with learning disabilities and so on so we need to think in terms of diversity

we need to think in terms of diversity

we need to think in terms of diversity not only the easy to reach or easy to

not only the easy to reach or easy to

not only the easy to reach or easy to easy to engage people and it’s about

easy to engage people and it’s about

easy to engage people and it’s about happiness it’s about hope it’s about

happiness it’s about hope it’s about

happiness it’s about hope it’s about positivity when I went to Brazil a few

positivity when I went to Brazil a few

positivity when I went to Brazil a few years back and I visited a hospital one

years back and I visited a hospital one

years back and I visited a hospital one thing that struck me immediately is how

thing that struck me immediately is how

thing that struck me immediately is how the caring professions interacted with

the caring professions interacted with

the caring professions interacted with each other and with the patients there

each other and with the patients there

each other and with the patients there were a lot of smiles people pause the

were a lot of smiles people pause the

were a lot of smiles people pause the liqueur it was to hug each other asked

liqueur it was to hug each other asked

liqueur it was to hug each other asked about their day and there was a lot of

about their day and there was a lot of

about their day and there was a lot of laughter on the bedside there was a lot

laughter on the bedside there was a lot

laughter on the bedside there was a lot of painting drawing a lot of creative

of painting drawing a lot of creative

of painting drawing a lot of creative activity if you wear student nurse you

activity if you wear student nurse you

activity if you wear student nurse you were encouraged if you were a good

were encouraged if you were a good

were encouraged if you were a good singer to sing with the patients and

singer to sing with the patients and

singer to sing with the patients and they did that so they embrace this

they did that so they embrace this

they did that so they embrace this positive holistic understanding of well

positive holistic understanding of well

positive holistic understanding of well create a good environment a positive

create a good environment a positive

create a good environment a positive environment and positive relationships

environment and positive relationships

environment and positive relationships and create a hopeful environment create

and create a hopeful environment create

and create a hopeful environment create an environment that provides nourishment

an environment that provides nourishment

an environment that provides nourishment a while back we wrote a paper about

a while back we wrote a paper about

a while back we wrote a paper about dementia and trying to shift the notion

dementia and trying to shift the notion

dementia and trying to shift the notion away from decline to development things

away from decline to development things

away from decline to development things that you can discover there are armed

that you can discover there are armed

that you can discover there are armed people that constantly evolve and change

people that constantly evolve and change

people that constantly evolve and change if you adopt a notion of change rather

if you adopt a notion of change rather

if you adopt a notion of change rather than defect decline deficiency if you

than defect decline deficiency if you

than defect decline deficiency if you embrace a social model or a relational

embrace a social model or a relational

embrace a social model or a relational model rather than a deficit model of

model rather than a deficit model of

model rather than a deficit model of functional model finally I think really

functional model finally I think really

functional model finally I think really important meaning what matters to people

important meaning what matters to people

important meaning what matters to people we did some work on stroke a while back

we did some work on stroke a while back

we did some work on stroke a while back and asked really what kind of outcomes

and asked really what kind of outcomes

and asked really what kind of outcomes are really picked up by therapists who

are really picked up by therapists who

are really picked up by therapists who work in the community and we found

work in the community and we found

work in the community and we found actually they use the same measures the

actually they use the same measures the

actually they use the same measures the same standardized functional measures

same standardized functional measures

same standardized functional measures that they would use in the hospital

that they would use in the hospital

that they would use in the hospital whether someone can walk a certain

whether someone can walk a certain

whether someone can walk a certain distance or can pick up certain things

distance or can pick up certain things

distance or can pick up certain things but does that really matter when we

but does that really matter when we

but does that really matter when we people yeah it is maybe it means to an

people yeah it is maybe it means to an

people yeah it is maybe it means to an end but what ultimately matters is being

end but what ultimately matters is being

end but what ultimately matters is being down the down the pub with a friends

down the down the pub with a friends

down the down the pub with a friends being back in dance hall to do ballroom

being back in dance hall to do ballroom

being back in dance hall to do ballroom dancing to meet the grandchildren to

dancing to meet the grandchildren to

dancing to meet the grandchildren to lift them up so those things matter but

lift them up so those things matter but

lift them up so those things matter but we need to ask them we also need to

we need to ask them we also need to

we need to ask them we also need to understand the biographies of

understand the biographies of

understand the biographies of individuals of families how people live

individuals of families how people live

individuals of families how people live how they want to live how the desire to

how they want to live how the desire to

how they want to live how the desire to live how they’ve lived in the past no

live how they’ve lived in the past no

live how they’ve lived in the past no need to bang on about being physically

need to bang on about being physically

need to bang on about being physically active if you never been physically

active if you never been physically

active if you never been physically active in your life you know it’s you

active in your life you know it’s you

active in your life you know it’s you need to understand where it’s coming

need to understand where it’s coming

need to understand where it’s coming from

from

from well sit if you have an athletic family

well sit if you have an athletic family

well sit if you have an athletic family yeah it might be a no-brainer to do this

yeah it might be a no-brainer to do this

yeah it might be a no-brainer to do this after you had a stroke to encourage that

after you had a stroke to encourage that

after you had a stroke to encourage that physical activity and from a health

physical activity and from a health

physical activity and from a health perspective I’m not arguing from that it

perspective I’m not arguing from that it

perspective I’m not arguing from that it might be functional but is it meaningful

might be functional but is it meaningful

might be functional but is it meaningful and people need to have a sense of

and people need to have a sense of

and people need to have a sense of belonging as well and experience that

belonging as well and experience that

belonging as well and experience that again a while back we had a little

again a while back we had a little

again a while back we had a little project looking at the difference

project looking at the difference

project looking at the difference between housing and making a home I

between housing and making a home I

between housing and making a home I think it relates very much to place

think it relates very much to place

think it relates very much to place making as well as home making home is

making as well as home making home is

making as well as home making home is not a notion of a physicality per se

not a notion of a physicality per se

not a notion of a physicality per se home is something that has an emotional

home is something that has an emotional

home is something that has an emotional connotation as a social relational

connotation as a social relational

connotation as a social relational connotation it’s where people are happy

connotation it’s where people are happy

connotation it’s where people are happy where they connected where they feel

where they connected where they feel

where they connected where they feel well and this well-being this feeling

well and this well-being this feeling

well and this well-being this feeling feeling well I think is essential and

feeling well I think is essential and

feeling well I think is essential and lastly we need to enable people to gain

lastly we need to enable people to gain

lastly we need to enable people to gain the sense of achievement not necessarily

the sense of achievement not necessarily

the sense of achievement not necessarily it sounds almost patronizing to say

it sounds almost patronizing to say

it sounds almost patronizing to say enable because they bring a lot of

enable because they bring a lot of

enable because they bring a lot of assets people bring assets people have

assets people bring assets people have

assets people bring assets people have assets but we need to recognize them we

assets but we need to recognize them we

assets but we need to recognize them we need to encourage aides agency in people

need to encourage aides agency in people

need to encourage aides agency in people we need to harness that agency to create

we need to harness that agency to create

we need to harness that agency to create the systems that will ultimately help us

the systems that will ultimately help us

the systems that will ultimately help us flourish thank you

flourish thank you

flourish thank you you

you

you [Applause]

”

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