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How I learned to see through they eyes of my sons. | Kristin Smedley | TEDxLincolnSquare


[Music]

[Music] Erik Weihenmayer climbed to the top of

Erik Weihenmayer climbed to the top of

Erik Weihenmayer climbed to the top of the highest mountain on all seven

the highest mountain on all seven

the highest mountain on all seven continents Cathy Nimr is Teacher of the

continents Cathy Nimr is Teacher of the

continents Cathy Nimr is Teacher of the Year in Indiana and in the top four in

Year in Indiana and in the top four in

Year in Indiana and in the top four in the country

the country

the country Tom wood Kowski is vice president at

Tom wood Kowski is vice president at

Tom wood Kowski is vice president at Comcast NBC Universal Lani bedwell kayak

Comcast NBC Universal Lani bedwell kayak

Comcast NBC Universal Lani bedwell kayak the 226 miles of the Grand Canyon

the 226 miles of the Grand Canyon

the 226 miles of the Grand Canyon Diane Berberian is a triathlete and

Diane Berberian is a triathlete and

Diane Berberian is a triathlete and Ironman competitor now these rock stars

Ironman competitor now these rock stars

Ironman competitor now these rock stars are at the top of their game but they

are at the top of their game but they

are at the top of their game but they have one interesting thing in common

have one interesting thing in common

have one interesting thing in common they’re all blind

they’re all blind

they’re all blind I met a blind person for the first time

I met a blind person for the first time

I met a blind person for the first time 17 years ago it was my newborn son

17 years ago it was my newborn son

17 years ago it was my newborn son Michael until that point I I don’t know

Michael until that point I I don’t know

Michael until that point I I don’t know any blind people I mean I knew of blind

any blind people I mean I knew of blind

any blind people I mean I knew of blind people so I grew up in the 70s and 80s

people so I grew up in the 70s and 80s

people so I grew up in the 70s and 80s and Stevie Wonder was all over the radio

and Stevie Wonder was all over the radio

and Stevie Wonder was all over the radio and and on TV at the award shows and

and and on TV at the award shows and

and and on TV at the award shows and also on TV was one of my favorite shows

also on TV was one of my favorite shows

also on TV was one of my favorite shows of all time back then was Little House

of all time back then was Little House

of all time back then was Little House on the Prairie so if you were a fan you

on the Prairie so if you were a fan you

on the Prairie so if you were a fan you might remember that one episode where

might remember that one episode where

might remember that one episode where the one daughter Mary woke up completely

the one daughter Mary woke up completely

the one daughter Mary woke up completely blind the parents were devastated I was

blind the parents were devastated I was

blind the parents were devastated I was devastated

devastated

devastated I mean it was they they they freaked out

I mean it was they they they freaked out

I mean it was they they they freaked out they had to ship her off to a school for

they had to ship her off to a school for

they had to ship her off to a school for the blind where she had to live I didn’t

the blind where she had to live I didn’t

the blind where she had to live I didn’t have real life role models for blindness

have real life role models for blindness

have real life role models for blindness so all I knew about blindness was it

so all I knew about blindness was it

so all I knew about blindness was it would be lonely isolating devastating

would be lonely isolating devastating

would be lonely isolating devastating the day that our journey into blindness

the day that our journey into blindness

the day that our journey into blindness began was like one of those days went

began was like one of those days went

began was like one of those days went you know in the movies when everything’s

you know in the movies when everything’s

you know in the movies when everything’s picture-perfect and then all hell breaks

picture-perfect and then all hell breaks

picture-perfect and then all hell breaks loose that was my day I mean I was it

loose that was my day I mean I was it

loose that was my day I mean I was it was back in the year 2000 and I was

was back in the year 2000 and I was

was back in the year 2000 and I was living in my brand-new McMansion with my

living in my brand-new McMansion with my

living in my brand-new McMansion with my perfectly manicured green lawn and I had

perfectly manicured green lawn and I had

perfectly manicured green lawn and I had the perfect little family of mommy daddy

the perfect little family of mommy daddy

the perfect little family of mommy daddy and bouncing baby boy swear to god we

and bouncing baby boy swear to god we

and bouncing baby boy swear to god we lived in a town that was always rated

lived in a town that was always rated

lived in a town that was always rated the number one place to raise a child

the number one place to raise a child

the number one place to raise a child I was in my 20s I I still had the

I was in my 20s I I still had the

I was in my 20s I I still had the perfectly shiny hair that didn’t require

perfectly shiny hair that didn’t require

perfectly shiny hair that didn’t require all the product to get that shine it was

all the product to get that shine it was

all the product to get that shine it was amazing it was a perfect life actually

amazing it was a perfect life actually

amazing it was a perfect life actually and then a doctor told me not so much I

and then a doctor told me not so much I

and then a doctor told me not so much I was like blind wait what he’s blind

was like blind wait what he’s blind

was like blind wait what he’s blind come on how blind very blind

come on how blind very blind

come on how blind very blind well he’ll play baseball right no oh my

well he’ll play baseball right no oh my

well he’ll play baseball right no oh my god will he drive no well what’s he

god will he drive no well what’s he

god will he drive no well what’s he gonna do well I’ll have to learn Braille

gonna do well I’ll have to learn Braille

gonna do well I’ll have to learn Braille Braille and he’s gonna have to walk with

Braille and he’s gonna have to walk with

Braille and he’s gonna have to walk with a white cane the blind cane my son

a white cane the blind cane my son

a white cane the blind cane my son Kristen the life you had planned for

Kristen the life you had planned for

Kristen the life you had planned for your son isn’t gonna happen good luck as

your son isn’t gonna happen good luck as

your son isn’t gonna happen good luck as that doctor finished talking the feeling

that doctor finished talking the feeling

that doctor finished talking the feeling that had grown in the pit of my stomach

that had grown in the pit of my stomach

that had grown in the pit of my stomach climbed its way up to my heart and it

climbed its way up to my heart and it

climbed its way up to my heart and it was squeezing tighter and tighter as

was squeezing tighter and tighter as

was squeezing tighter and tighter as images of the life I had planned for my

images of the life I had planned for my

images of the life I had planned for my son were racing through my mind it’s

son were racing through my mind it’s

son were racing through my mind it’s things that I had planned since before I

things that I had planned since before I

things that I had planned since before I even met him

even met him

even met him I mean baseball prom his wedding MVP

I mean baseball prom his wedding MVP

I mean baseball prom his wedding MVP valedictorian summa laude I mean his

valedictorian summa laude I mean his

valedictorian summa laude I mean his dad and I were pretty talented athletes

dad and I were pretty talented athletes

dad and I were pretty talented athletes so I figured I had the football

so I figured I had the football

so I figured I had the football quarterback or starting baseball pitcher

quarterback or starting baseball pitcher

quarterback or starting baseball pitcher I mean in every scene in my mind he he

I mean in every scene in my mind he he

I mean in every scene in my mind he he was achieving succeeding and happy the

was achieving succeeding and happy the

was achieving succeeding and happy the whole scene went dark without one

whole scene went dark without one

whole scene went dark without one sentence from the doctor your son is

sentence from the doctor your son is

sentence from the doctor your son is blind but here’s the thing it would take

blind but here’s the thing it would take

blind but here’s the thing it would take me a while but I would come to figure

me a while but I would come to figure

me a while but I would come to figure out that those were my dreams for my son

out that those were my dreams for my son

out that those were my dreams for my son that was the life I planned for him but

that was the life I planned for him but

that was the life I planned for him but what about Michael what about his dreams

what about Michael what about his dreams

what about Michael what about his dreams I mean he was just getting started on a

I mean he was just getting started on a

I mean he was just getting started on a journey that he was supposed to be on

journey that he was supposed to be on

journey that he was supposed to be on and to live a life the way he wanted to

and to live a life the way he wanted to

and to live a life the way he wanted to live it hmm it turns out that my son has

live it hmm it turns out that my son has

live it hmm it turns out that my son has a mutation in a gene by the name of CR

a mutation in a gene by the name of CR

a mutation in a gene by the name of CR b1 and this mutation causes an inherited

b1 and this mutation causes an inherited

b1 and this mutation causes an inherited retinal disease called Leber’s

retinal disease called Leber’s

retinal disease called Leber’s congenital amaurosis we just say LCA

congenital amaurosis we just say LCA

congenital amaurosis we just say LCA because it

because it

because it easier and shorter so CRB one LCA

easier and shorter so CRB one LCA

easier and shorter so CRB one LCA attacks the two pieces of the retina

attacks the two pieces of the retina

attacks the two pieces of the retina that you use to see the rods and the

that you use to see the rods and the

that you use to see the rods and the cones so the rods are for your nighttime

cones so the rods are for your nighttime

cones so the rods are for your nighttime vision and the cones are for details and

vision and the cones are for details and

vision and the cones are for details and colors like you’re using your cones

colors like you’re using your cones

colors like you’re using your cones right now to see all the details of my

right now to see all the details of my

right now to see all the details of my face CR b1 LCA patients like my son

face CR b1 LCA patients like my son

face CR b1 LCA patients like my son don’t see at night and they can’t see

don’t see at night and they can’t see

don’t see at night and they can’t see print in a book

print in a book

print in a book Michael’s never see my smile and he

Michael’s never see my smile and he

Michael’s never see my smile and he actually has no idea what I look like

actually has no idea what I look like

actually has no idea what I look like CR b1 LCA is a rare disease that only

CR b1 LCA is a rare disease that only

CR b1 LCA is a rare disease that only affects about 300 kids in the United

affects about 300 kids in the United

affects about 300 kids in the United States I know it’s that rare both

States I know it’s that rare both

States I know it’s that rare both parents have to be carriers of this to

parents have to be carriers of this to

parents have to be carriers of this to have an affected child and each

have an affected child and each

have an affected child and each pregnancy stands a 25% chance of an

pregnancy stands a 25% chance of an

pregnancy stands a 25% chance of an effective baby the CR p1 LCA is not

effective baby the CR p1 LCA is not

effective baby the CR p1 LCA is not included in those prenatal and

included in those prenatal and

included in those prenatal and premarital blood screenings as you can

premarital blood screenings as you can

premarital blood screenings as you can probably imagine I struggled with this

probably imagine I struggled with this

probably imagine I struggled with this for for longer than I care to admit and

for for longer than I care to admit and

for for longer than I care to admit and there was one particular morning when

there was one particular morning when

there was one particular morning when Michael was 3 years old I was stuck I

Michael was 3 years old I was stuck I

Michael was 3 years old I was stuck I got out of bed and and made it to the

got out of bed and and made it to the

got out of bed and and made it to the foot of my bed where that’s as far as I

foot of my bed where that’s as far as I

foot of my bed where that’s as far as I made it that morning and I was stuck in

made it that morning and I was stuck in

made it that morning and I was stuck in fear of how to raise a blind child well

fear of how to raise a blind child well

fear of how to raise a blind child well because I didn’t know how to do that and

because I didn’t know how to do that and

because I didn’t know how to do that and if I’m being honest I was stuck in in

if I’m being honest I was stuck in in

if I’m being honest I was stuck in in grief over the loss of the life I was

grief over the loss of the life I was

grief over the loss of the life I was supposed to have you know and I was

supposed to have you know and I was

supposed to have you know and I was having one of my many conversations with

having one of my many conversations with

having one of my many conversations with God we’ll call it that it’s a full-blown

God we’ll call it that it’s a full-blown

God we’ll call it that it’s a full-blown tantrum one sided tantrum

tantrum one sided tantrum

tantrum one sided tantrum and I was getting pretty good at them

and I was getting pretty good at them

and I was getting pretty good at them giving him the what’s now and how this

giving him the what’s now and how this

giving him the what’s now and how this really should go down you know and I

really should go down you know and I

really should go down you know and I could hear Michael playing in his room

could hear Michael playing in his room

could hear Michael playing in his room down the hall from mine so I was doing

down the hall from mine so I was doing

down the hall from mine so I was doing all this in my head you know doing my

all this in my head you know doing my

all this in my head you know doing my screaming and yelling tantrum and I was

screaming and yelling tantrum and I was

screaming and yelling tantrum and I was just like this is so hard and I actually

just like this is so hard and I actually

just like this is so hard and I actually think it’s mean to do this to a kid and

think it’s mean to do this to a kid and

think it’s mean to do this to a kid and what did I ever do to deserve this and

what did I ever do to deserve this and

what did I ever do to deserve this and then I heard Michael making his way down

then I heard Michael making his way down

then I heard Michael making his way down the hallway Michael didn’t walk Michael

the hallway Michael didn’t walk Michael

the hallway Michael didn’t walk Michael bounced and he skipped and he glided

bounced and he skipped and he glided

bounced and he skipped and he glided through every day and he made his way

through every day and he made his way

through every day and he made his way into my room and stopped when he was

into my room and stopped when he was

into my room and stopped when he was about a foot in front of me and he said

about a foot in front of me and he said

about a foot in front of me and he said mommy are you in here

mommy are you in here

mommy are you in here yeah buddy I’m right here in front of

yeah buddy I’m right here in front of

yeah buddy I’m right here in front of you on my bed he said mommy I just had

you on my bed he said mommy I just had

you on my bed he said mommy I just had to come down here and tell you isn’t

to come down here and tell you isn’t

to come down here and tell you isn’t this the best day ever

and I was like is it and he goes mommy

and I was like is it and he goes mommy um the sun is shining and I’m playing

um the sun is shining and I’m playing

um the sun is shining and I’m playing with all my stuff and I’m just so happy

with all my stuff and I’m just so happy

with all my stuff and I’m just so happy and then he spun around and went back to

and then he spun around and went back to

and then he spun around and went back to his perfect day and hit me like a ton of

his perfect day and hit me like a ton of

his perfect day and hit me like a ton of bricks

bricks

bricks I thought he’s not stuck he’s not

I thought he’s not stuck he’s not

I thought he’s not stuck he’s not devastated he wasn’t bothered by this

devastated he wasn’t bothered by this

devastated he wasn’t bothered by this blindness thing at all I was the one

blindness thing at all I was the one

blindness thing at all I was the one stuck and so bothered and I had such a

stuck and so bothered and I had such a

stuck and so bothered and I had such a limited view of this that all I could

limited view of this that all I could

limited view of this that all I could see was blindness is devastating what I

see was blindness is devastating what I

see was blindness is devastating what I couldn’t see was right in front of me

couldn’t see was right in front of me

couldn’t see was right in front of me the happiest three-year-old the happiest

the happiest three-year-old the happiest

the happiest three-year-old the happiest kid I had ever met things started racing

kid I had ever met things started racing

kid I had ever met things started racing through my mind like the the pictures of

through my mind like the the pictures of

through my mind like the the pictures of a typical day with Michael at that point

a typical day with Michael at that point

a typical day with Michael at that point I mean him playing out in the driveway

I mean him playing out in the driveway

I mean him playing out in the driveway with that yeah Cozy Coupe car thing and

with that yeah Cozy Coupe car thing and

with that yeah Cozy Coupe car thing and then him splashing around in the

then him splashing around in the

then him splashing around in the neighborhood pool and and playing at the

neighborhood pool and and playing at the

neighborhood pool and and playing at the playground always smiling always living

playground always smiling always living

playground always smiling always living completely unaffected by his challenge

completely unaffected by his challenge

completely unaffected by his challenge Michael couldn’t see with his eyes but

Michael couldn’t see with his eyes but

Michael couldn’t see with his eyes but he could experience the world with his

he could experience the world with his

he could experience the world with his entire self I mean he could hear and

entire self I mean he could hear and

entire self I mean he could hear and taste and touch and feel his way through

taste and touch and feel his way through

taste and touch and feel his way through everything life had to offer he just

everything life had to offer he just

everything life had to offer he just couldn’t see with his eyes didn’t bother

couldn’t see with his eyes didn’t bother

couldn’t see with his eyes didn’t bother him at all I was the one that had been

him at all I was the one that had been

him at all I was the one that had been blind to the possibility of my son

blind to the possibility of my son

blind to the possibility of my son having an amazing life so right then and

having an amazing life so right then and

having an amazing life so right then and there I decided to stop seeing Michael’s

there I decided to stop seeing Michael’s

there I decided to stop seeing Michael’s world as I thought it should be and

world as I thought it should be and

world as I thought it should be and instead how Michael saw it he completely

instead how Michael saw it he completely

instead how Michael saw it he completely shifted my perception of blindness at

shifted my perception of blindness at

shifted my perception of blindness at that point in that little three-year-old

that point in that little three-year-old

that point in that little three-year-old taught me to see a whole new future for

taught me to see a whole new future for

taught me to see a whole new future for him I was amazing

him I was amazing

him I was amazing so who loves a curve ball my life is

so who loves a curve ball my life is

so who loves a curve ball my life is full of them my second baby Mitchell was

full of them my second baby Mitchell was

full of them my second baby Mitchell was diagnosed with CR b1 LCA just like

diagnosed with CR b1 LCA just like

diagnosed with CR b1 LCA just like Michael this time though things are

Michael this time though things are

Michael this time though things are different now I had a role model I had

different now I had a role model I had

different now I had a role model I had Michael and he had already taught me to

Michael and he had already taught me to

Michael and he had already taught me to see this whole thing differently and I

see this whole thing differently and I

see this whole thing differently and I did

did

did I grabbed my two boys by the hands and

I grabbed my two boys by the hands and

I grabbed my two boys by the hands and we jumped into the typical over

we jumped into the typical over

we jumped into the typical over scheduled ridiculous life that everybody

scheduled ridiculous life that everybody

scheduled ridiculous life that everybody else was living I mean we went to the

else was living I mean we went to the

else was living I mean we went to the playground every day and we were at the

playground every day and we were at the

playground every day and we were at the birthday parties every single one of

birthday parties every single one of

birthday parties every single one of them and we signed up for every views a

them and we signed up for every views a

them and we signed up for every views a class that we could fit into our

class that we could fit into our

class that we could fit into our schedule as they got older they joined

schedule as they got older they joined

schedule as they got older they joined the football team and they wrestled and

the football team and they wrestled and

the football team and they wrestled and went out for the soccer team too now

went out for the soccer team too now

went out for the soccer team too now okay I was right there with them in all

okay I was right there with them in all

okay I was right there with them in all of this guiding describing narrating all

of this guiding describing narrating all

of this guiding describing narrating all the visuals that came their way and

the visuals that came their way and

the visuals that came their way and Jonah the blessing is and all of that

Jonah the blessing is and all of that

Jonah the blessing is and all of that having to be with them teaching them

having to be with them teaching them

having to be with them teaching them about the world at that level I got to

about the world at that level I got to

about the world at that level I got to be in their world all the time where

be in their world all the time where

be in their world all the time where they talked to me all the time they

they talked to me all the time they

they talked to me all the time they shared with me all their thoughts oh

shared with me all their thoughts oh

shared with me all their thoughts oh their their dreams god they’re ginormous

their their dreams god they’re ginormous

their their dreams god they’re ginormous dreams and when the time came for them

dreams and when the time came for them

dreams and when the time came for them to be independent and they let go of my

to be independent and they let go of my

to be independent and they let go of my hand and took that white cane

hand and took that white cane

hand and took that white cane I was actually cool with that I was

I was actually cool with that I was

I was actually cool with that I was because the thing I learned from guiding

because the thing I learned from guiding

because the thing I learned from guiding two blind kids to be independent it

two blind kids to be independent it

two blind kids to be independent it showed me that that our kids are

showed me that that our kids are

showed me that that our kids are extraordinary and they’re remarkably

extraordinary and they’re remarkably

extraordinary and they’re remarkably capable if we give them the right tools

capable if we give them the right tools

capable if we give them the right tools my guys had their tools and they were

my guys had their tools and they were

my guys had their tools and they were ready to go and and little by little I

ready to go and and little by little I

ready to go and and little by little I stopped regretting what I thought they

stopped regretting what I thought they

stopped regretting what I thought they were missing and instead I let them

were missing and instead I let them

were missing and instead I let them teach me what I was missing so we were

teach me what I was missing so we were

teach me what I was missing so we were in Hawaii and learned how to surf

in Hawaii and learned how to surf

in Hawaii and learned how to surf Michael patiently learned the rhythm of

Michael patiently learned the rhythm of

Michael patiently learned the rhythm of the ocean and he figured out when to

the ocean and he figured out when to

the ocean and he figured out when to pick the right wave and ride it into

pick the right wave and ride it into

pick the right wave and ride it into Shore then there was me I was awful I

Shore then there was me I was awful I

Shore then there was me I was awful I was awful he had to coach me on when to

was awful he had to coach me on when to

was awful he had to coach me on when to ride the wave and then we were in

ride the wave and then we were in

ride the wave and then we were in Colorado and had a chance to snowmobile

Colorado and had a chance to snowmobile

Colorado and had a chance to snowmobile on this ginormous mountain and I’m at

on this ginormous mountain and I’m at

on this ginormous mountain and I’m at the top thinking how do you begin to

the top thinking how do you begin to

the top thinking how do you begin to describe the spectacular view to them

describe the spectacular view to them

describe the spectacular view to them they’d have time to wait on me

they’d have time to wait on me

they’d have time to wait on me describing they were busy talking about

describing they were busy talking about

describing they were busy talking about the changes in air pressure and and

the changes in air pressure and and

the changes in air pressure and and temperature and wind speeds mean their

temperature and wind speeds mean their

temperature and wind speeds mean their view was so much broader than mine then

view was so much broader than mine then

view was so much broader than mine then we had an opportunity to be in Florida

we had an opportunity to be in Florida

we had an opportunity to be in Florida where we were we spent time on the west

where we were we spent time on the west

where we were we spent time on the west coast in the East Coast and compared the

coast in the East Coast and compared the

coast in the East Coast and compared the two on laying their watch and sunrises

two on laying their watch and sunrises

two on laying their watch and sunrises and sunsets and trying to think of names

and sunsets and trying to think of names

and sunsets and trying to think of names of colors to tell them they were off

of colors to tell them they were off

of colors to tell them they were off comparing the the intensity of the waves

comparing the the intensity of the waves

comparing the the intensity of the waves and the difference in textures of the

and the difference in textures of the

and the difference in textures of the sand and Mitchell was all over

sand and Mitchell was all over

sand and Mitchell was all over collecting all the different shells that

collecting all the different shells that

collecting all the different shells that he could find I mean they had so much to

he could find I mean they had so much to

he could find I mean they had so much to do and so much to talk about so there’s

do and so much to talk about so there’s

do and so much to talk about so there’s this this term in blindness called

this this term in blindness called

this this term in blindness called sighted guide and it refers to a sighted

sighted guide and it refers to a sighted

sighted guide and it refers to a sighted person guiding a blind person through a

person guiding a blind person through a

person guiding a blind person through a new or maybe a complicated space it’s

new or maybe a complicated space it’s

new or maybe a complicated space it’s pretty simple the blind person takes the

pretty simple the blind person takes the

pretty simple the blind person takes the elbow or the wrist of the sighted person

elbow or the wrist of the sighted person

elbow or the wrist of the sighted person and they walk together spending so many

and they walk together spending so many

and they walk together spending so many years being the sighted guide for my

years being the sighted guide for my

years being the sighted guide for my boys has allowed me stay in touch with

boys has allowed me stay in touch with

boys has allowed me stay in touch with them really in touch with them you know

them really in touch with them you know

them really in touch with them you know what I mean and now they’re my guides

what I mean and now they’re my guides

what I mean and now they’re my guides for the things that I should be seeing

for the things that I should be seeing

for the things that I should be seeing in this world and one thing they’re

in this world and one thing they’re

in this world and one thing they’re adamant about is not to be seeing any

adamant about is not to be seeing any

adamant about is not to be seeing any limb

limb

limb on their lives I mean they’ve been on

on their lives I mean they’ve been on

on their lives I mean they’ve been on this limitless adventure where they’re

this limitless adventure where they’re

this limitless adventure where they’re they’re thriving and they’re so normal

they’re thriving and they’re so normal

they’re thriving and they’re so normal you know that years ago we enrolled them

you know that years ago we enrolled them

you know that years ago we enrolled them in the regular public schools in our

in the regular public schools in our

in the regular public schools in our neighborhood now they’re in middle

neighborhood now they’re in middle

neighborhood now they’re in middle school in high school and they’re both

school in high school and they’re both

school in high school and they’re both in the top of their class so the Center

in the top of their class so the Center

in the top of their class so the Center for Disease Control reports that there

for Disease Control reports that there

for Disease Control reports that there are 21 million Americans that are

are 21 million Americans that are

are 21 million Americans that are considered blind or visually impaired it

considered blind or visually impaired it

considered blind or visually impaired it makes up about 9% of the population but

makes up about 9% of the population but

makes up about 9% of the population but get this of that 21 million nearly 70

get this of that 21 million nearly 70

get this of that 21 million nearly 70 percent are unemployed nearly 70% of

percent are unemployed nearly 70% of

percent are unemployed nearly 70% of blind Americans are unemployed and the

blind Americans are unemployed and the

blind Americans are unemployed and the kicker is it has nothing to do with

kicker is it has nothing to do with

kicker is it has nothing to do with career options but everything to do with

career options but everything to do with

career options but everything to do with the fact that people think blind people

the fact that people think blind people

the fact that people think blind people just can’t do the work wait there’s more

just can’t do the work wait there’s more

just can’t do the work wait there’s more 30% of blind Americans are living below

30% of blind Americans are living below

30% of blind Americans are living below the poverty line only 31% will get a

the poverty line only 31% will get a

the poverty line only 31% will get a high school diploma or GED and only 14.4

high school diploma or GED and only 14.4

high school diploma or GED and only 14.4 percent will get a bachelor’s degree or

percent will get a bachelor’s degree or

percent will get a bachelor’s degree or higher and the kicker with that one is

higher and the kicker with that one is

higher and the kicker with that one is it has nothing to do with intellect but

it has nothing to do with intellect but

it has nothing to do with intellect but everything to do with a lack of access

could you imagine if only 30 percent of

could you imagine if only 30 percent of your high school class is going to

your high school class is going to

your high school class is going to graduate or only 14% of your college

graduate or only 14% of your college

graduate or only 14% of your college buddies made it to the finish line I

buddies made it to the finish line I

buddies made it to the finish line I mean blind people are denied access to

mean blind people are denied access to

mean blind people are denied access to jobs training education simply because

jobs training education simply because

jobs training education simply because we can’t get our heads around how

we can’t get our heads around how

we can’t get our heads around how someone can access the world without

someone can access the world without

someone can access the world without sight a former president of the National

sight a former president of the National

sight a former president of the National Federation of the blind said this the

Federation of the blind said this the

Federation of the blind said this the future of sighted children depends on a

future of sighted children depends on a

future of sighted children depends on a proper education the future of America’s

proper education the future of America’s

proper education the future of America’s blind children is no different is no

blind children is no different is no

blind children is no different is no different I learned that my guys are not

different I learned that my guys are not

different I learned that my guys are not different they just see things

different they just see things

different they just see things differently and quite frankly it tends

differently and quite frankly it tends

differently and quite frankly it tends to make them way more efficient than the

to make them way more efficient than the

to make them way more efficient than the rest of us I mean the things people rely

rest of us I mean the things people rely

rest of us I mean the things people rely on my blind kids for now it’s it’s

on my blind kids for now it’s it’s

on my blind kids for now it’s it’s insane so take those my guys are

insane so take those my guys are

insane so take those my guys are legendary in our neighborhood because

legendary in our neighborhood because

legendary in our neighborhood because they can hear that ice cream truck

they can hear that ice cream truck

they can hear that ice cream truck coming why

coming why

coming why before the rest of us there is a Michael

before the rest of us there is a Michael

before the rest of us there is a Michael metro always like wait for it wait for

metro always like wait for it wait for

metro always like wait for it wait for come on sighted people catch up to us

come on sighted people catch up to us

come on sighted people catch up to us catch up to us so thank God technology

catch up to us so thank God technology

catch up to us so thank God technology finally caught up to them and closed a

finally caught up to them and closed a

finally caught up to them and closed a ton of gaps in the classroom for us so

ton of gaps in the classroom for us so

ton of gaps in the classroom for us so take a look at this this is called the

take a look at this this is called the

take a look at this this is called the apex Braille note and it’s about the

apex Braille note and it’s about the

apex Braille note and it’s about the size of an iPad sort of my guys can read

size of an iPad sort of my guys can read

size of an iPad sort of my guys can read and write in Braille with this and the

and write in Braille with this and the

and write in Braille with this and the best part is it hooks up to a regular

best part is it hooks up to a regular

best part is it hooks up to a regular printer so they can print out their work

printer so they can print out their work

printer so they can print out their work for their sighted teachers to see it but

for their sighted teachers to see it but

for their sighted teachers to see it but they’re moving even faster than that now

they’re moving even faster than that now

they’re moving even faster than that now they just email all their stuff directly

they just email all their stuff directly

they just email all their stuff directly to their teachers who get it they access

to their teachers who get it they access

to their teachers who get it they access the Internet with this that you stick a

the Internet with this that you stick a

the Internet with this that you stick a jump drive on the side and they can read

jump drive on the side and they can read

jump drive on the side and they can read all of their books and textbooks in

all of their books and textbooks in

all of their books and textbooks in Braille yeah it’s so cool I mean with

Braille yeah it’s so cool I mean with

Braille yeah it’s so cool I mean with such a game-changer for us and it isn’t

such a game-changer for us and it isn’t

such a game-changer for us and it isn’t just this I mean computers cell phones

just this I mean computers cell phones

just this I mean computers cell phones even cable TV they’re all being

even cable TV they’re all being

even cable TV they’re all being redesigned so that the blind and sighted

redesigned so that the blind and sighted

redesigned so that the blind and sighted can use the same product and get the

can use the same product and get the

can use the same product and get the same access it’s amazing I mean take it

same access it’s amazing I mean take it

same access it’s amazing I mean take it from me a mom of three thriving kids

from me a mom of three thriving kids

from me a mom of three thriving kids that things are finally changing in the

that things are finally changing in the

that things are finally changing in the world of the blind and got ahead of

world of the blind and got ahead of

world of the blind and got ahead of myself let me back up for a second I had

myself let me back up for a second I had

myself let me back up for a second I had a third child sorry I had a third child

a third child sorry I had a third child

a third child sorry I had a third child and and when Carissa was born I didn’t

and and when Carissa was born I didn’t

and and when Carissa was born I didn’t need a doctor to tell me I saw her eyes

need a doctor to tell me I saw her eyes

need a doctor to tell me I saw her eyes and I saw her eyes recognize that I was

and I saw her eyes recognize that I was

and I saw her eyes recognize that I was her mom it was a look my boys never had

Carissa can see but she has a unique

Carissa can see but she has a unique advantage that’s even more convenient

advantage that’s even more convenient

advantage that’s even more convenient than sight by the time Carissa was born

than sight by the time Carissa was born

than sight by the time Carissa was born we were nearly five years into

we were nearly five years into

we were nearly five years into accessibility I mean she walked with her

accessibility I mean she walked with her

accessibility I mean she walked with her brothers on the bridges that we spent

brothers on the bridges that we spent

brothers on the bridges that we spent years building inclusion and access they

years building inclusion and access they

years building inclusion and access they were words that she didn’t need to learn

were words that she didn’t need to learn

were words that she didn’t need to learn she lived them since birth I had two

she lived them since birth I had two

she lived them since birth I had two blind kids and then I gave birth to this

blind kids and then I gave birth to this

blind kids and then I gave birth to this little sighted person that would

little sighted person that would

little sighted person that would automatically include adapt for and

automatically include adapt for and

automatically include adapt for and embrace

embrace

embrace everyone it’s a gift that I’m finding so

everyone it’s a gift that I’m finding so

everyone it’s a gift that I’m finding so few people have but everyone that meets

few people have but everyone that meets

few people have but everyone that meets Carissa sees it Chris has grown up

Carissa sees it Chris has grown up

Carissa sees it Chris has grown up watching her blind brothers go to school

watching her blind brothers go to school

watching her blind brothers go to school play sports get elected to student

play sports get elected to student

play sports get elected to student council get in trouble she enjoys way

council get in trouble she enjoys way

council get in trouble she enjoys way too much and she’s watched them succeed

too much and she’s watched them succeed

too much and she’s watched them succeed and fail just like the rest of us

and fail just like the rest of us

and fail just like the rest of us blindness it’s in the background at our

blindness it’s in the background at our

blindness it’s in the background at our house and it’s in the background of the

house and it’s in the background of the

house and it’s in the background of the homes and lives and careers of people

homes and lives and careers of people

homes and lives and careers of people living without sight to take a look at

living without sight to take a look at

living without sight to take a look at these kids and what do you think they

these kids and what do you think they

these kids and what do you think they all have in common they’re all baseball

all have in common they’re all baseball

all have in common they’re all baseball players right these were regular teams

players right these were regular teams

players right these were regular teams in our regular town and my guys wanted

in our regular town and my guys wanted

in our regular town and my guys wanted in Michael and Mitchell were the only

in Michael and Mitchell were the only

in Michael and Mitchell were the only blind kids to take the field

blind kids to take the field

blind kids to take the field Michael led the team in RBIs Mitchell

Michael led the team in RBIs Mitchell

Michael led the team in RBIs Mitchell was his team’s fastest baserunner they

was his team’s fastest baserunner they

was his team’s fastest baserunner they both were voted as all-stars they both

both were voted as all-stars they both

both were voted as all-stars they both were on teams that went to the

were on teams that went to the

were on teams that went to the championship and they’ve both won when I

championship and they’ve both won when I

championship and they’ve both won when I gave birth to my kids I expected success

gave birth to my kids I expected success

gave birth to my kids I expected success achievement and above all else happiness

achievement and above all else happiness

achievement and above all else happiness for all three of them now I initially

for all three of them now I initially

for all three of them now I initially saw blindness as a barrier to all of my

saw blindness as a barrier to all of my

saw blindness as a barrier to all of my dreams but once I had a change in

dreams but once I had a change in

dreams but once I had a change in perception my eyes were open and man I

perception my eyes were open and man I

perception my eyes were open and man I saw their successes their achievements

saw their successes their achievements

saw their successes their achievements and every day their happiness a change

and every day their happiness a change

and every day their happiness a change in perception can happen for all of us

in perception can happen for all of us

in perception can happen for all of us at any point in time I highly recommend

at any point in time I highly recommend

at any point in time I highly recommend it sooner than later

it sooner than later

it sooner than later thank you

thank you

thank you [Applause]

[Applause]

[Applause] [Music]

”

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