there is a revolution needed in medical research technology can accelerate
research technology can accelerate
research technology can accelerate research and empower patients I’m going
research and empower patients I’m going
research and empower patients I’m going to tell you why this revolution is
to tell you why this revolution is
to tell you why this revolution is needed and how it’s happening this is my
needed and how it’s happening this is my
needed and how it’s happening this is my dad when he was 43 years old he was
dad when he was 43 years old he was
dad when he was 43 years old he was diagnosed with cancer like many people
diagnosed with cancer like many people
diagnosed with cancer like many people that were diagnosed with cancer he went
that were diagnosed with cancer he went
that were diagnosed with cancer he went through chemotherapy surgery
through chemotherapy surgery
through chemotherapy surgery unfortunately he passed away the year
unfortunately he passed away the year
unfortunately he passed away the year later when he was 44 years old during
later when he was 44 years old during
later when he was 44 years old during the process of caring for my father no
the process of caring for my father no
the process of caring for my father no one even mentioned clinical trials to us
one even mentioned clinical trials to us
one even mentioned clinical trials to us and this is part of the big problem
and this is part of the big problem
and this is part of the big problem clinical trials are needed to bring
clinical trials are needed to bring
clinical trials are needed to bring drugs to market but there’s no efficient
drugs to market but there’s no efficient
drugs to market but there’s no efficient way for patients to find trials and for
way for patients to find trials and for
way for patients to find trials and for trials to find patients an average drug
trials to find patients an average drug
trials to find patients an average drug takes about 5 to 12 years to come to the
takes about 5 to 12 years to come to the
takes about 5 to 12 years to come to the market going through several tests and
market going through several tests and
market going through several tests and clinical trials there’s a hundred and
clinical trials there’s a hundred and
clinical trials there’s a hundred and twenty-five million people needed for
twenty-five million people needed for
twenty-five million people needed for clinical trials today to give you an
clinical trials today to give you an
clinical trials today to give you an idea of scale that’s about four times
idea of scale that’s about four times
idea of scale that’s about four times the population of the UK but they’re not
the population of the UK but they’re not
the population of the UK but they’re not just needed in the UK they are needed
just needed in the UK they are needed
just needed in the UK they are needed all over the world is 42 9000 trials in
all over the world is 42 9000 trials in
all over the world is 42 9000 trials in a hundred and seventy nine countries
a hundred and seventy nine countries
a hundred and seventy nine countries that said more than ninety percent of
that said more than ninety percent of
that said more than ninety percent of trials run late because they can’t find
trials run late because they can’t find
trials run late because they can’t find the right patients on time this is not
the right patients on time this is not
the right patients on time this is not just a huge problem for the
just a huge problem for the
just a huge problem for the pharmaceutical companies developing the
pharmaceutical companies developing the
pharmaceutical companies developing the drugs this affects each and every one of
drugs this affects each and every one of
drugs this affects each and every one of us because it takes longer for
us because it takes longer for
us because it takes longer for life-saving treatments to come to
life-saving treatments to come to
life-saving treatments to come to patients and it ends up costing us a lot
patients and it ends up costing us a lot
patients and it ends up costing us a lot more clinical trials remain the best and
more clinical trials remain the best and
more clinical trials remain the best and safest methods to bring drugs to the
safest methods to bring drugs to the
safest methods to bring drugs to the market but there’s a lot of
market but there’s a lot of
market but there’s a lot of inefficiencies today as a patient you
inefficiencies today as a patient you
inefficiencies today as a patient you rely on luck you rely on gatekeepers
rely on luck you rely on gatekeepers
rely on luck you rely on gatekeepers telling you about the right trial that
telling you about the right trial that
telling you about the right trial that can save your life and patients
can save your life and patients
can save your life and patients basically need to empower themselves on
basically need to empower themselves on
basically need to empower themselves on the other side medical researchers
the other side medical researchers
the other side medical researchers struggle to find the right patients
struggle to find the right patients
struggle to find the right patients because each trial is looking for very
because each trial is looking for very
because each trial is looking for very specific people eligibility criteria
specific people eligibility criteria
specific people eligibility criteria the inclusion and exclusion criteria
the inclusion and exclusion criteria
the inclusion and exclusion criteria means that you need to find the odd
means that you need to find the odd
means that you need to find the odd patient that has exactly what the trial
patient that has exactly what the trial
patient that has exactly what the trial requires but doesn’t have what
requires but doesn’t have what
requires but doesn’t have what disqualifies you from the trial imagine
disqualifies you from the trial imagine
disqualifies you from the trial imagine this an oncologist in the hospital has
this an oncologist in the hospital has
this an oncologist in the hospital has to manually called call patients asking
to manually called call patients asking
to manually called call patients asking them if they would be willing to
them if they would be willing to
them if they would be willing to participate in clinical trials in the
participate in clinical trials in the
participate in clinical trials in the best private hospitals nurses are
best private hospitals nurses are
best private hospitals nurses are manually matching electronic health
manually matching electronic health
manually matching electronic health records or paper health records to try
records or paper health records to try
records or paper health records to try us to see if they can find more people
us to see if they can find more people
us to see if they can find more people to attend these Strauss and fifty
to attend these Strauss and fifty
to attend these Strauss and fifty percent of all trials fail because they
percent of all trials fail because they
percent of all trials fail because they can’t find enough people it’s very clear
can’t find enough people it’s very clear
can’t find enough people it’s very clear that something has to change we need a
that something has to change we need a
that something has to change we need a way for patients to find trials and for
way for patients to find trials and for
way for patients to find trials and for trials to find patients the internet is
trials to find patients the internet is
trials to find patients the internet is bringing the power to the hands of
bringing the power to the hands of
bringing the power to the hands of consumers so we all know this this is
consumers so we all know this this is
consumers so we all know this this is happening all over the place it happened
happening all over the place it happened
happening all over the place it happened in flights right you needed to talk to a
in flights right you needed to talk to a
in flights right you needed to talk to a travel agent to find your flight and by
travel agent to find your flight and by
travel agent to find your flight and by the way if you found a flight what
the way if you found a flight what
the way if you found a flight what happens if you needed to change it you
happens if you needed to change it you
happens if you needed to change it you need to pick up the phone call the
need to pick up the phone call the
need to pick up the phone call the travel agent again ask how the price
travel agent again ask how the price
travel agent again ask how the price would change and now we do it with kayak
would change and now we do it with kayak
would change and now we do it with kayak it happened in hotels very similar in
it happened in hotels very similar in
it happened in hotels very similar in shopping I don’t need to tell you about
shopping I don’t need to tell you about
shopping I don’t need to tell you about that real estate and even in mortgages
that real estate and even in mortgages
that real estate and even in mortgages you know there’s no need for a mortgage
you know there’s no need for a mortgage
you know there’s no need for a mortgage broker today you can simply go online
broker today you can simply go online
broker today you can simply go online and you would get this thick legal
and you would get this thick legal
and you would get this thick legal documents electronically sign it and
documents electronically sign it and
documents electronically sign it and that’s it you’re ready to go think you
that’s it you’re ready to go think you
that’s it you’re ready to go think you get the point even is starting to come
get the point even is starting to come
get the point even is starting to come to digital health new technologies are
to digital health new technologies are
to digital health new technologies are putting power in the hands of the
putting power in the hands of the
putting power in the hands of the consumer we can now sample our DNA we
consumer we can now sample our DNA we
consumer we can now sample our DNA we can get health insurance online we can
can get health insurance online we can
can get health insurance online we can even go to join online communities where
even go to join online communities where
even go to join online communities where we can find patients with it have the
we can find patients with it have the
we can find patients with it have the similar symptoms like us but it hasn’t
similar symptoms like us but it hasn’t
similar symptoms like us but it hasn’t arrived to medical research and I think
arrived to medical research and I think
arrived to medical research and I think that it can really revolutionize the way
that it can really revolutionize the way
that it can really revolutionize the way that we conduct medical research and
that we conduct medical research and
that we conduct medical research and bring drugs to the market this is
bring drugs to the market this is
bring drugs to the market this is clinical trials.gov the number one
clinical trials.gov the number one
clinical trials.gov the number one repository for clinical trials online
repository for clinical trials online
repository for clinical trials online and as you can see it doesn’t resemble
and as you can see it doesn’t resemble
and as you can see it doesn’t resemble most
most
most websites that you’re used to using on
websites that you’re used to using on
websites that you’re used to using on the Internet so how can technology help
the Internet so how can technology help
the Internet so how can technology help how can we help patients find trials and
how can we help patients find trials and
how can we help patients find trials and trials find patients well first imagine
trials find patients well first imagine
trials find patients well first imagine we’re going it’d be amazing if we can
we’re going it’d be amazing if we can
we’re going it’d be amazing if we can index all the information about clinical
index all the information about clinical
index all the information about clinical trials organize it and make it
trials organize it and make it
trials organize it and make it searchable the same way that we’re used
searchable the same way that we’re used
searchable the same way that we’re used to searching at Google sounds like it
to searching at Google sounds like it
to searching at Google sounds like it makes sense right the government has a
makes sense right the government has a
makes sense right the government has a role to play here and initiatives like
role to play here and initiatives like
role to play here and initiatives like the cancer moonshot are encouraging
the cancer moonshot are encouraging
the cancer moonshot are encouraging companies to collaborate and work with
companies to collaborate and work with
companies to collaborate and work with the government to digitize this
the government to digitize this
the government to digitize this information and make it available and
information and make it available and
information and make it available and putting it in the hands of patients so
putting it in the hands of patients so
putting it in the hands of patients so in this case organizations like the
in this case organizations like the
in this case organizations like the National Cancer Institute are saying
National Cancer Institute are saying
National Cancer Institute are saying like look there’s technology out there
like look there’s technology out there
like look there’s technology out there there’s data out there that we have
there’s data out there that we have
there’s data out there that we have gathered and we’re happy to share it
gathered and we’re happy to share it
gathered and we’re happy to share it with you if we can together fight this
with you if we can together fight this
with you if we can together fight this disease social media I’m sure that all
disease social media I’m sure that all
disease social media I’m sure that all of you here have multiple social media
of you here have multiple social media
of you here have multiple social media accounts so think if we could use the
accounts so think if we could use the
accounts so think if we could use the power of social media in the rich 1.5
power of social media in the rich 1.5
power of social media in the rich 1.5 billion people to connect patients with
billion people to connect patients with
billion people to connect patients with trials or to be found basically to say
trials or to be found basically to say
trials or to be found basically to say hey I have this problem or I have
hey I have this problem or I have
hey I have this problem or I have someone in my family that has this
someone in my family that has this
someone in my family that has this problem why can’t we help you find
problem why can’t we help you find
problem why can’t we help you find like-minded people or even medical
like-minded people or even medical
like-minded people or even medical researchers who are looking for people
researchers who are looking for people
researchers who are looking for people exactly like you and finally there’s the
exactly like you and finally there’s the
exactly like you and finally there’s the movement technology has provided us with
movement technology has provided us with
movement technology has provided us with networks and with tools and communities
networks and with tools and communities
networks and with tools and communities where we can find people who can inspire
where we can find people who can inspire
where we can find people who can inspire us and can send us in the right way this
us and can send us in the right way this
us and can send us in the right way this is a patient Dave where e doesn’t stand
is a patient Dave where e doesn’t stand
is a patient Dave where e doesn’t stand for electronic it stands for engaged it
for electronic it stands for engaged it
for electronic it stands for engaged it stands for empowered and this is part of
stands for empowered and this is part of
stands for empowered and this is part of a larger movement that’s trying to get
a larger movement that’s trying to get
a larger movement that’s trying to get people to advocate for themselves and
people to advocate for themselves and
people to advocate for themselves and find solutions to their own problems the
find solutions to their own problems the
find solutions to their own problems the patient is the missing ingredient in
patient is the missing ingredient in
patient is the missing ingredient in this problem so consumerization of the
this problem so consumerization of the
this problem so consumerization of the internet gave us the power to do
internet gave us the power to do
internet gave us the power to do whatever we want really we can find our
whatever we want really we can find our
whatever we want really we can find our favorite products I can even get an
favorite products I can even get an
favorite products I can even get an alert and automatically order my wife’s
alert and automatically order my wife’s
alert and automatically order my wife’s favorite shoes when they become
favorite shoes when they become
favorite shoes when they become available we’re going to be amazing if
available we’re going to be amazing if
available we’re going to be amazing if we could do the same for clinical trials
we could do the same for clinical trials
we could do the same for clinical trials and many
and many
and many research wouldn’t it be amazing if we
research wouldn’t it be amazing if we
research wouldn’t it be amazing if we can help people find trials and trials
can help people find trials and trials
can help people find trials and trials find people it would not only help save
find people it would not only help save
find people it would not only help save lives and money most importantly it
lives and money most importantly it
lives and money most importantly it would save time which is the only
would save time which is the only
would save time which is the only resource that patients with a condition
resource that patients with a condition
resource that patients with a condition don’t have so I hope that this helped
don’t have so I hope that this helped
don’t have so I hope that this helped you understand the challenge in medical
you understand the challenge in medical
you understand the challenge in medical research let’s empower patients together
research let’s empower patients together
research let’s empower patients together thank you very much
thank you very much
thank you very much [Applause]
”
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