the science of cannabis has really evolved last four years and we
evolved last four years and we
evolved last four years and we understand a lot about the biology
understand a lot about the biology
understand a lot about the biology cannabidiol is the non psychoactive
cannabidiol is the non psychoactive
cannabidiol is the non psychoactive ingredient in marijuana and since it is
ingredient in marijuana and since it is
ingredient in marijuana and since it is non psychoactive one feels the potential
non psychoactive one feels the potential
non psychoactive one feels the potential harm is going to be much less and since
harm is going to be much less and since
harm is going to be much less and since some of these children had truly
some of these children had truly
some of these children had truly devastating epilepsies in which the
devastating epilepsies in which the
devastating epilepsies in which the seizures and the high doses of many
seizures and the high doses of many
seizures and the high doses of many drugs that doctors like myself were
drugs that doctors like myself were
drugs that doctors like myself were prescribing because really tremendous
prescribing because really tremendous
prescribing because really tremendous problems for these children
the first thing I tell people is you are
the first thing I tell people is you are a unique individual your chemistry is in
a unique individual your chemistry is in
a unique individual your chemistry is in there is unique to you you could have
there is unique to you you could have
there is unique to you you could have the same exact diagnosis of the last guy
the same exact diagnosis of the last guy
the same exact diagnosis of the last guy that walked in here but you may respond
that walked in here but you may respond
that walked in here but you may respond differently to a different strain of
differently to a different strain of
differently to a different strain of cannabis a different dose of cannabis a
cannabis a different dose of cannabis a
cannabis a different dose of cannabis a different method of using it I don’t
different method of using it I don’t
different method of using it I don’t know the answer and I don’t think
know the answer and I don’t think
know the answer and I don’t think anybody else knows the answers there’s
anybody else knows the answers there’s
anybody else knows the answers there’s this this crazy dissociation between
this this crazy dissociation between
this this crazy dissociation between what’s happening at a federal level of
what’s happening at a federal level of
what’s happening at a federal level of incredible restriction on safe things
incredible restriction on safe things
incredible restriction on safe things and a state level where it’s a little
and a state level where it’s a little
and a state level where it’s a little bit of the Wild West and states are
bit of the Wild West and states are
bit of the Wild West and states are allowing parents to play doctor and play
allowing parents to play doctor and play
allowing parents to play doctor and play chemist when they really don’t have that
chemist when they really don’t have that
chemist when they really don’t have that experience every two and a half hours
experience every two and a half hours
experience every two and a half hours okay she’s gonna get a dough
there is no one that will tell me that a
there is no one that will tell me that a parent this spends as much time with our
parent this spends as much time with our
parent this spends as much time with our child if we do does not know what’s best
child if we do does not know what’s best
child if we do does not know what’s best for them
for them
for them Mele was born March 6 2012 week later we
Mele was born March 6 2012 week later we
Mele was born March 6 2012 week later we started noticing some spasms about four
started noticing some spasms about four
started noticing some spasms about four months old we realized that something
months old we realized that something
months old we realized that something was wrong to the hospital and determent
was wrong to the hospital and determent
was wrong to the hospital and determent they were seizures she was having
they were seizures she was having
they were seizures she was having roughly I don’t know somewhere probably
roughly I don’t know somewhere probably
roughly I don’t know somewhere probably in the vicinity of 700 today they
in the vicinity of 700 today they
in the vicinity of 700 today they diagnosed her with infantile spasms with
diagnosed her with infantile spasms with
diagnosed her with infantile spasms with hips arrhythmia I’m almost immediately
hips arrhythmia I’m almost immediately
hips arrhythmia I’m almost immediately and put her on three different
and put her on three different
and put her on three different medications as well as started the
medications as well as started the
medications as well as started the ketogenic diet she did not progress at
ketogenic diet she did not progress at
ketogenic diet she did not progress at all she was not growing she was not
all she was not growing she was not
all she was not growing she was not gaining weight the doctors had given us
gaining weight the doctors had given us
gaining weight the doctors had given us a point one percent chance that she
a point one percent chance that she
a point one percent chance that she would really do anything they kind of
would really do anything they kind of
would really do anything they kind of felt like that they had done everything
felt like that they had done everything
felt like that they had done everything they could do there was no diagnosis
they could do there was no diagnosis
they could do there was no diagnosis therefore there was no prognosis we just
therefore there was no prognosis we just
therefore there was no prognosis we just felt like our hands were kind of tied
you don’t want to believe what they’re
you don’t want to believe what they’re telling you and so you try and find
telling you and so you try and find
telling you and so you try and find alternative solutions and thankfully we
alternative solutions and thankfully we
alternative solutions and thankfully we found one
we ended up you know leaving you know a
we ended up you know leaving you know a quarter of our possessions behind
quarter of our possessions behind
quarter of our possessions behind selling our business and we made the
selling our business and we made the
selling our business and we made the journey to Colorado our neurologist told
journey to Colorado our neurologist told
journey to Colorado our neurologist told us that she can’t prescribe it she knows
us that she can’t prescribe it she knows
us that she can’t prescribe it she knows nothing about it it hasn’t been studied
nothing about it it hasn’t been studied
nothing about it it hasn’t been studied but that she recommend we do what we
but that she recommend we do what we
but that she recommend we do what we need to in order to help Milly you don’t
need to in order to help Milly you don’t
need to in order to help Milly you don’t that stuff cleaned out yeah we started
that stuff cleaned out yeah we started
that stuff cleaned out yeah we started Charlotte’s Web right around her
Charlotte’s Web right around her
Charlotte’s Web right around her birthday and within the first 15 minutes
birthday and within the first 15 minutes
birthday and within the first 15 minutes of her first dose she was wide awake and
of her first dose she was wide awake and
of her first dose she was wide awake and looking around and I mean I was just
looking around and I mean I was just
looking around and I mean I was just crying I couldn’t believe it
crying I couldn’t believe it
crying I couldn’t believe it yeah probably within the first 90 days
yeah probably within the first 90 days
yeah probably within the first 90 days we noticed about a 75 to 90% reduction
we noticed about a 75 to 90% reduction
we noticed about a 75 to 90% reduction in seizures I mean we’ve had extended
in seizures I mean we’ve had extended
in seizures I mean we’ve had extended periods of time that we’ve had no
periods of time that we’ve had no
periods of time that we’ve had no seizure activity and when I say extended
seizure activity and when I say extended
seizure activity and when I say extended periods of time nine days 14 days we’ve
periods of time nine days 14 days we’ve
periods of time nine days 14 days we’ve had times where we backed off and not
had times where we backed off and not
had times where we backed off and not giving her doses of CBD for upwards of a
giving her doses of CBD for upwards of a
giving her doses of CBD for upwards of a week maybe a little more and then we
week maybe a little more and then we
week maybe a little more and then we have times when we will have to increase
have times when we will have to increase
have times when we will have to increase their CBD it’s not as complicated now
their CBD it’s not as complicated now
their CBD it’s not as complicated now that once was we first got here was a
that once was we first got here was a
that once was we first got here was a little scary it was a little difficult
little scary it was a little difficult
little scary it was a little difficult trying to figure it all out it really
trying to figure it all out it really
trying to figure it all out it really has been a lot of trial and error it was
has been a lot of trial and error it was
has been a lot of trial and error it was all parental experience asking other
all parental experience asking other
all parental experience asking other parents you know hey when you see this
parents you know hey when you see this
parents you know hey when you see this seizure what do you do it gets
seizure what do you do it gets
seizure what do you do it gets frustrating and then you find the sweet
frustrating and then you find the sweet
frustrating and then you find the sweet spot and you think yes we did it
spot and you think yes we did it
spot and you think yes we did it anything really consider off and sort of
anything really consider off and sort of
anything really consider off and sort of make it throw off the whole balance it’s
make it throw off the whole balance it’s
make it throw off the whole balance it’s kind of a two steps forward one step
kind of a two steps forward one step
kind of a two steps forward one step back
we have some seizure activity that are a
we have some seizure activity that are a bit more violent that are more painful I
bit more violent that are more painful I
bit more violent that are more painful I think the most difficult part is there’s
think the most difficult part is there’s
think the most difficult part is there’s nothing you can do about it and
nothing you can do about it and
nothing you can do about it and basically just have to wait it out there
basically just have to wait it out there
basically just have to wait it out there are days that I don’t know that I feel
are days that I don’t know that I feel
are days that I don’t know that I feel like it’s hard for me to know and then
like it’s hard for me to know and then
like it’s hard for me to know and then there are days that I feel very elated
there are days that I feel very elated
there are days that I feel very elated and very joyful then we have her
and very joyful then we have her
and very joyful then we have her we’ve gone from a place where we didn’t
we’ve gone from a place where we didn’t
we’ve gone from a place where we didn’t think we would have our daughter with us
think we would have our daughter with us
think we would have our daughter with us very long and trying to make every
very long and trying to make every
very long and trying to make every minute count
minute count
minute count so now we feel like we have prolonged
so now we feel like we have prolonged
so now we feel like we have prolonged her life that there is an opportunity
her life that there is an opportunity
her life that there is an opportunity for her to grow and maybe Walt Hulk do
for her to grow and maybe Walt Hulk do
for her to grow and maybe Walt Hulk do some of those things that you never
some of those things that you never
some of those things that you never thought were imaginable you know I don’t
thought were imaginable you know I don’t
thought were imaginable you know I don’t know what the future holds for us you
know what the future holds for us you
know what the future holds for us you know it is a very real possibility that
know it is a very real possibility that
know it is a very real possibility that mentally could have a seizure and never
mentally could have a seizure and never
mentally could have a seizure and never come out of it for Millie’s future I see
come out of it for Millie’s future I see
come out of it for Millie’s future I see a lot of beating the odds I see a lot of
a lot of beating the odds I see a lot of
a lot of beating the odds I see a lot of improvement I think that she’s I think
improvement I think that she’s I think
improvement I think that she’s I think she’s really gonna make the history
she’s really gonna make the history
she’s really gonna make the history books
Colorado has given us an opportunity to
Colorado has given us an opportunity to be parents to make decisions that we
be parents to make decisions that we
be parents to make decisions that we feel are best for our children I don’t
feel are best for our children I don’t
feel are best for our children I don’t know exactly why people are so afraid of
know exactly why people are so afraid of
know exactly why people are so afraid of this but I think it is harm now that we
this but I think it is harm now that we
this but I think it is harm now that we need to put that behind us and move on
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