hello this TED talk is being recorded in stoke-on-trent part of North Dakota and
stoke-on-trent part of North Dakota and
stoke-on-trent part of North Dakota and I’m thus packaging woman Warren bread i
I’m thus packaging woman Warren bread i
I’m thus packaging woman Warren bread i was born in material and in 76 years of
was born in material and in 76 years of
was born in material and in 76 years of my life I fell in love more than 12
my life I fell in love more than 12
my life I fell in love more than 12 miles loafer material so it’s not
miles loafer material so it’s not
miles loafer material so it’s not surprising but one of my heroes as long
surprising but one of my heroes as long
surprising but one of my heroes as long as being another bread Stafford’s around
as being another bread Stafford’s around
as being another bread Stafford’s around sub jobs and stereotypes of dr. Thompson
sub jobs and stereotypes of dr. Thompson
sub jobs and stereotypes of dr. Thompson with the dictionary but one thing he’s
with the dictionary but one thing he’s
with the dictionary but one thing he’s fed has always lift me a bit both as a
fed has always lift me a bit both as a
fed has always lift me a bit both as a woman and as a paper when told by a
woman and as a paper when told by a
woman and as a paper when told by a friend who’d attended to quaker meeting
friend who’d attended to quaker meeting
friend who’d attended to quaker meeting but he’s heard a woman preach sam said
but he’s heard a woman preach sam said
but he’s heard a woman preach sam said it’s not that it’s done well a woman
it’s not that it’s done well a woman
it’s not that it’s done well a woman preacher it’s rather that it’s done at
preacher it’s rather that it’s done at
preacher it’s rather that it’s done at all sometimes when i do this when i
all sometimes when i do this when i
all sometimes when i do this when i stand up to talk about dementia I feel
stand up to talk about dementia I feel
stand up to talk about dementia I feel good like that I wonder if a woman or
good like that I wonder if a woman or
good like that I wonder if a woman or the warmer preaching the dogs selling on
the warmer preaching the dogs selling on
the warmer preaching the dogs selling on the high leg the monkey on the top of
the high leg the monkey on the top of
the high leg the monkey on the top of the barrel open so that people can look
the barrel open so that people can look
the barrel open so that people can look me and say wow she’s got up homeless
me and say wow she’s got up homeless
me and say wow she’s got up homeless disease but she can still talk she can
disease but she can still talk she can
disease but she can still talk she can still join sentences together it’s
still join sentences together it’s
still join sentences together it’s actually amazing rather like people used
actually amazing rather like people used
actually amazing rather like people used to go to bed love to peer lunatics or is
to go to bed love to peer lunatics or is
to go to bed love to peer lunatics or is it
it
it you have dementia are the best people to
you have dementia are the best people to
you have dementia are the best people to talk about what it’s like to use our
talk about what it’s like to use our
talk about what it’s like to use our experience of what the living with
experience of what the living with
experience of what the living with dementia of being a carer as I have been
dementia of being a carer as I have been
dementia of being a carer as I have been on two occasions using that experience
on two occasions using that experience
on two occasions using that experience to shape policy to inform strategy to
to shape policy to inform strategy to
to shape policy to inform strategy to make a difference so this dreadful
make a difference so this dreadful
make a difference so this dreadful illness that so many people will get
illness that so many people will get
illness that so many people will get slightly is beginning to accept that
slightly is beginning to accept that
slightly is beginning to accept that people with physical disabilities still
people with physical disabilities still
people with physical disabilities still have an awful lot to contribute look at
have an awful lot to contribute look at
have an awful lot to contribute look at the Invictus gaming Paralympics the
the Invictus gaming Paralympics the
the Invictus gaming Paralympics the actors in reading at academia and look
actors in reading at academia and look
actors in reading at academia and look at Stephen Hawking it’s not like a third
at Stephen Hawking it’s not like a third
at Stephen Hawking it’s not like a third dimension so many people the diagnosis
dimension so many people the diagnosis
dimension so many people the diagnosis is still seen as the end of useful life
is still seen as the end of useful life
is still seen as the end of useful life but as the song says it ain’t
but as the song says it ain’t
but as the song says it ain’t necessarily so in the UK at the moment
necessarily so in the UK at the moment
necessarily so in the UK at the moment there are about 800,000 people living
there are about 800,000 people living
there are about 800,000 people living with dementia and it’s expected by the
with dementia and it’s expected by the
with dementia and it’s expected by the end of this decade that will have gone
end of this decade that will have gone
end of this decade that will have gone up to a million
there was recently at last I found a
there was recently at last I found a drug that would make a real difference
drug that would make a real difference
drug that would make a real difference but the minute they know from the test
but the minute they know from the test
but the minute they know from the test tube to working with my walls doesn’t
tube to working with my walls doesn’t
tube to working with my walls doesn’t work so we’re going you’ve gone back
work so we’re going you’ve gone back
work so we’re going you’ve gone back you’d have to go back to the only hope
you’d have to go back to the only hope
you’d have to go back to the only hope being the drugs which is existed for at
being the drugs which is existed for at
being the drugs which is existed for at least 10 years which held the symptoms
least 10 years which held the symptoms
least 10 years which held the symptoms back in a bit giving us a bit of
back in a bit giving us a bit of
back in a bit giving us a bit of remission to get the best out of you
remission to get the best out of you
remission to get the best out of you spokespeople need early diagnosis but
spokespeople need early diagnosis but
spokespeople need early diagnosis but there’s a huge problem with early
there’s a huge problem with early
there’s a huge problem with early diagnosis the first is that people are
diagnosis the first is that people are
diagnosis the first is that people are afraid of it but the second is that some
afraid of it but the second is that some
afraid of it but the second is that some medical opinion still says it’s better
medical opinion still says it’s better
medical opinion still says it’s better not to have a diagnosis because there’s
not to have a diagnosis because there’s
not to have a diagnosis because there’s nothing you can do now I’m a stoking
nothing you can do now I’m a stoking
nothing you can do now I’m a stoking woman by redditor an island and one of
woman by redditor an island and one of
woman by redditor an island and one of my guilty pleasures is mrs. Brown’s
my guilty pleasures is mrs. Brown’s
my guilty pleasures is mrs. Brown’s voice those of you who watch it will
voice those of you who watch it will
voice those of you who watch it will know but mrs. Brown had allocation
know but mrs. Brown had allocation
know but mrs. Brown had allocation lessons oakley result of higher
lessons oakley result of higher
lessons oakley result of higher education lessons was that she learns to
education lessons was that she learns to
education lessons was that she learns to say that’s nice instead of something the
say that’s nice instead of something the
say that’s nice instead of something the ends off well what I hear people say
ends off well what I hear people say
ends off well what I hear people say it’s better not to have a diagnosis
it’s better not to have a diagnosis
it’s better not to have a diagnosis because there’s nothing that can be done
because there’s nothing that can be done
because there’s nothing that can be done my responses that’s nice for a great
my responses that’s nice for a great
my responses that’s nice for a great number of people in our country that
number of people in our country that
number of people in our country that picture dementia is fueled by the press
picture dementia is fueled by the press
picture dementia is fueled by the press and media it’s a picture
and media it’s a picture
and media it’s a picture the dimension but people floating around
the dimension but people floating around
the dimension but people floating around the walls of care homes sell Tom Graham
the walls of care homes sell Tom Graham
the walls of care homes sell Tom Graham Oregon communication but just sitting
Oregon communication but just sitting
Oregon communication but just sitting away their lives and as long as public
away their lives and as long as public
away their lives and as long as public perception is that people will continue
perception is that people will continue
perception is that people will continue to fear diagnosis stay away from an
to fear diagnosis stay away from an
to fear diagnosis stay away from an adopter and loud on invaluable support
adopter and loud on invaluable support
adopter and loud on invaluable support not decently at samis I see the earth
not decently at samis I see the earth
not decently at samis I see the earth ain’t adventure where I was first told
ain’t adventure where I was first told
ain’t adventure where I was first told about it when the friend of my
about it when the friend of my
about it when the friend of my grandmother’s is Cena up k & soha all
grandmother’s is Cena up k & soha all
grandmother’s is Cena up k & soha all the work has burned into our psyche it’s
the work has burned into our psyche it’s
the work has burned into our psyche it’s changing but not nearly fast enough my
changing but not nearly fast enough my
changing but not nearly fast enough my husband’s a bike no there’s a warning if
husband’s a bike no there’s a warning if
husband’s a bike no there’s a warning if talks of christmas my husband pretty we
talks of christmas my husband pretty we
talks of christmas my husband pretty we live in an independent living object of
live in an independent living object of
live in an independent living object of some 60 apartments we look after each
some 60 apartments we look after each
some 60 apartments we look after each other so we have it needed yet to
other so we have it needed yet to
other so we have it needed yet to involve the characters were severe
involve the characters were severe
involve the characters were severe except for couple of emergencies it’s a
except for couple of emergencies it’s a
except for couple of emergencies it’s a wonderful place to live there are 60 /
wonderful place to live there are 60 /
wonderful place to live there are 60 / of people from the ages of 55 299
of people from the ages of 55 299
of people from the ages of 55 299 usually with some need for care or in
usually with some need for care or in
usually with some need for care or in the future certainly having need to care
the future certainly having need to care
the future certainly having need to care and yet
and yet
and yet people in the place where i live to
people in the place where i live to
people in the place where i live to other people with dementia is i think
other people with dementia is i think
other people with dementia is i think come here to live with people like that
come here to live with people like that
come here to live with people like that I don’t want to have people wandering
I don’t want to have people wandering
I don’t want to have people wandering around the corridor and knocking on my
around the corridor and knocking on my
around the corridor and knocking on my door at night I’d rather be shot than
door at night I’d rather be shot than
door at night I’d rather be shot than have that when I challenge this is I
have that when I challenge this is I
have that when I challenge this is I regularly do I have to say to me oh you
regularly do I have to say to me oh you
regularly do I have to say to me oh you haven’t what else timers that I’ve had
haven’t what else timers that I’ve had
haven’t what else timers that I’ve had it for seven years yet these same people
it for seven years yet these same people
it for seven years yet these same people but the most caring and loving people
but the most caring and loving people
but the most caring and loving people you could meet they make food for people
you could meet they make food for people
you could meet they make food for people who are coming back from chemotherapy
who are coming back from chemotherapy
who are coming back from chemotherapy they sit with the grief they visit
they sit with the grief they visit
they sit with the grief they visit people who are not coming downstairs to
people who are not coming downstairs to
people who are not coming downstairs to join it with shared activity they could
join it with shared activity they could
join it with shared activity they could not be better neighbors unless you have
not be better neighbors unless you have
not be better neighbors unless you have dimension and I think the reason
dimension and I think the reason
dimension and I think the reason this is particularly the earth look very
this is particularly the earth look very
this is particularly the earth look very healthy people is this it’s the greatest
healthy people is this it’s the greatest
healthy people is this it’s the greatest fear the first time I wrote it after my
fear the first time I wrote it after my
fear the first time I wrote it after my diagnosis I entitled the article
diagnosis I entitled the article
diagnosis I entitled the article director our worst nightmare because
director our worst nightmare because
director our worst nightmare because having cared for two people with
having cared for two people with
having cared for two people with dementia it was certainly mind and thats
dementia it was certainly mind and thats
dementia it was certainly mind and thats else would have been worse diagnosis you
else would have been worse diagnosis you
else would have been worse diagnosis you can have is very paranoid but people who
can have is very paranoid but people who
can have is very paranoid but people who don’t have early diagnosis and I was
don’t have early diagnosis and I was
don’t have early diagnosis and I was able to make the decisions that we made
able to make the decisions that we made
able to make the decisions that we made to give up up to large home to move
to give up up to large home to move
to give up up to large home to move somewhere I where that would be can the
somewhere I where that would be can the
somewhere I where that would be can the future to get rid of so much stuff and
future to get rid of so much stuff and
future to get rid of so much stuff and that they do it ten thousand bucks would
that they do it ten thousand bucks would
that they do it ten thousand bucks would you believe and we lost water it’s me
I was able to make a lasting power of
I was able to make a lasting power of attorney to set up a regards wishes
attorney to set up a regards wishes
attorney to set up a regards wishes directive so that my family know exactly
directive so that my family know exactly
directive so that my family know exactly what sort of care i do and don’t want
what sort of care i do and don’t want
what sort of care i do and don’t want when I’m no longer able to say on
when I’m no longer able to say on
when I’m no longer able to say on yourself the paw reportedly I’ve been
yourself the paw reportedly I’ve been
yourself the paw reportedly I’ve been able to talk to my husband my children
able to talk to my husband my children
able to talk to my husband my children my grandchildren about all things that
my grandchildren about all things that
my grandchildren about all things that really matter I’ve been able to build up
really matter I’ve been able to build up
really matter I’ve been able to build up a bank of memories the gates the time
a bank of memories the gates the time
a bank of memories the gates the time where they’ll need happy memories my
where they’ll need happy memories my
where they’ll need happy memories my grandson who’s a passionate political
grandson who’s a passionate political
grandson who’s a passionate political enthusiasts is all my kin is always like
enthusiasts is all my kin is always like
enthusiasts is all my kin is always like economy when I go to the houses of
economy when I go to the houses of
economy when I go to the houses of parliament to talk to politicians and
parliament to talk to politicians and
parliament to talk to politicians and afterwards we go any pizza and talk and
afterwards we go any pizza and talk and
afterwards we go any pizza and talk and say who think about the politicians who
say who think about the politicians who
say who think about the politicians who partied out support who might have been
partied out support who might have been
partied out support who might have been rare it’s part of me and my now just as
rare it’s part of me and my now just as
rare it’s part of me and my now just as a very meaningful in emotional visit to
a very meaningful in emotional visit to
a very meaningful in emotional visit to Auschwitz worth and I’ll i can take you
Auschwitz worth and I’ll i can take you
Auschwitz worth and I’ll i can take you different level physics london palladium
different level physics london palladium
different level physics london palladium where sheila hancock and it led us to go
where sheila hancock and it led us to go
where sheila hancock and it led us to go backstage in Tim productions’s done lady
backstage in Tim productions’s done lady
backstage in Tim productions’s done lady lady and it’s the same with my other
lady and it’s the same with my other
lady and it’s the same with my other nine grandchildren we are building of
nine grandchildren we are building of
nine grandchildren we are building of this back of memories the poet and read
this back of memories the poet and read
this back of memories the poet and read your writing
your writing
your writing get relatively fewer for more use these
get relatively fewer for more use these
get relatively fewer for more use these words now in the scales of plants would
words now in the scales of plants would
words now in the scales of plants would our childress stored in better season
our childress stored in better season
our childress stored in better season are only in heaven I’m not going into
are only in heaven I’m not going into
are only in heaven I’m not going into battle but I aren’t missing an enemy and
battle but I aren’t missing an enemy and
battle but I aren’t missing an enemy and then allelic will take me away from my
then allelic will take me away from my
then allelic will take me away from my friends and family as chilly as wall and
friends and family as chilly as wall and
friends and family as chilly as wall and take me away from them long before I’m
take me away from them long before I’m
take me away from them long before I’m dead but I hope they’ll be many more she
dead but I hope they’ll be many more she
dead but I hope they’ll be many more she was formed in happy as easy for them to
was formed in happy as easy for them to
was formed in happy as easy for them to feed on when that time comes it will
feed on when that time comes it will
feed on when that time comes it will come I’m not and I never shopping in
come I’m not and I never shopping in
come I’m not and I never shopping in July but at the moment slip retains many
July but at the moment slip retains many
July but at the moment slip retains many competencies for example I receptor six
competencies for example I receptor six
competencies for example I receptor six I still work at the counselor and
I still work at the counselor and
I still work at the counselor and there’s a supervisor for other capsulas
there’s a supervisor for other capsulas
there’s a supervisor for other capsulas and their feedback is that
and their feedback is that
and their feedback is that as good as everybody but I’ve almost
as good as everybody but I’ve almost
as good as everybody but I’ve almost completely lost any sets of numbers when
completely lost any sets of numbers when
completely lost any sets of numbers when I’m ordering online groceries we never
I’m ordering online groceries we never
I’m ordering online groceries we never quite know what size or how many will
quite know what size or how many will
quite know what size or how many will get everybody getting less in the
get everybody getting less in the
get everybody getting less in the morning is a sort of lottery because
morning is a sort of lottery because
morning is a sort of lottery because sometimes types and trousers something
sometimes types and trousers something
sometimes types and trousers something but I just can’t work out how how to put
but I just can’t work out how how to put
but I just can’t work out how how to put on yet I frequently we rejoice I can do
on yet I frequently we rejoice I can do
on yet I frequently we rejoice I can do you a fair paper on Kafka Shakespeare
you a fair paper on Kafka Shakespeare
you a fair paper on Kafka Shakespeare and lecture on the page is my greatest
and lecture on the page is my greatest
and lecture on the page is my greatest passion and I don’t forget things at
passion and I don’t forget things at
passion and I don’t forget things at Stoke that I will Majesty United how
Stoke that I will Majesty United how
Stoke that I will Majesty United how that loves to talk about Manchester
that loves to talk about Manchester
that loves to talk about Manchester United the diseased brain is truly a
United the diseased brain is truly a
United the diseased brain is truly a very complex seen in the last six months
very complex seen in the last six months
very complex seen in the last six months when staying away from home and
when staying away from home and
when staying away from home and frequently 23 mystified about what would
frequently 23 mystified about what would
frequently 23 mystified about what would be on the other side of the door of my
be on the other side of the door of my
be on the other side of the door of my bedroom when I go out of it few weekends
bedroom when I go out of it few weekends
bedroom when I go out of it few weekends ago while teaching it took like
ago while teaching it took like
ago while teaching it took like I work for a brief rest after lunch am i
I work for a brief rest after lunch am i
I work for a brief rest after lunch am i feeli boss what I woke up that if I went
feeli boss what I woke up that if I went
feeli boss what I woke up that if I went through the good I step into a kind of
through the good I step into a kind of
through the good I step into a kind of nothingness I wasn’t afraid of it but I
nothingness I wasn’t afraid of it but I
nothingness I wasn’t afraid of it but I doesn’t want to do it so I stayed in my
doesn’t want to do it so I stayed in my
doesn’t want to do it so I stayed in my room I got the means of making tea and
room I got the means of making tea and
room I got the means of making tea and coffee and hot chocolate I got my kindle
coffee and hot chocolate I got my kindle
coffee and hot chocolate I got my kindle at ilume the bar but wasn’t a bit afraid
at ilume the bar but wasn’t a bit afraid
at ilume the bar but wasn’t a bit afraid but approaching that door was more than
but approaching that door was more than
but approaching that door was more than likely do so I mr. Flannery I’m just
likely do so I mr. Flannery I’m just
likely do so I mr. Flannery I’m just workshop I must buy dinner and then my
workshop I must buy dinner and then my
workshop I must buy dinner and then my iPad pinged and it was a face me first
iPad pinged and it was a face me first
iPad pinged and it was a face me first for someone who was at the conference
for someone who was at the conference
for someone who was at the conference commenting on one of the workshops and
commenting on one of the workshops and
commenting on one of the workshops and suddenly like the mechanism of a lock
suddenly like the mechanism of a lock
suddenly like the mechanism of a lock going into place anywhere else I like
going into place anywhere else I like
going into place anywhere else I like went downstairs and I had some cheese
went downstairs and I had some cheese
went downstairs and I had some cheese biscuits coffee instead of dinner and my
biscuits coffee instead of dinner and my
biscuits coffee instead of dinner and my friends that we make a college start to
friends that we make a college start to
friends that we make a college start to talk about what they could do to stop it
talk about what they could do to stop it
talk about what they could do to stop it happening again having in my welcome
happening again having in my welcome
happening again having in my welcome packed in the future the picture of the
packed in the future the picture of the
packed in the future the picture of the place where I was and writing your note
place where I was and writing your note
place where I was and writing your note and where I was to put up my bedside I
and where I was to put up my bedside I
and where I was to put up my bedside I could have a buddy who would come always
could have a buddy who would come always
could have a buddy who would come always know where I should be and make sure the
know where I should be and make sure the
know where I should be and make sure the time is there many of those people that
time is there many of those people that
time is there many of those people that would
would
would dementia friends program that the
dementia friends program that the
dementia friends program that the Alzheimer’s Society runs and it makes
Alzheimer’s Society runs and it makes
Alzheimer’s Society runs and it makes such a difference to those of us who
such a difference to those of us who
such a difference to those of us who have dementia to be with people who’ve
have dementia to be with people who’ve
have dementia to be with people who’ve done that course and who understand it
done that course and who understand it
done that course and who understand it but I want a little ones i think
but I want a little ones i think
but I want a little ones i think sometimes think that i’ve got three
sometimes think that i’ve got three
sometimes think that i’ve got three found falcon
found falcon
found falcon I got my own large and dilly the family
I got my own large and dilly the family
I got my own large and dilly the family and I chewed a lot of my friends in that
and I chewed a lot of my friends in that
and I chewed a lot of my friends in that because there is dear to me as any
because there is dear to me as any
because there is dear to me as any family who together with my husband
family who together with my husband
family who together with my husband totally accept my dementia support me in
totally accept my dementia support me in
totally accept my dementia support me in every way they can my face community as
every way they can my face community as
every way they can my face community as I say I make her love and support me and
I say I make her love and support me and
I say I make her love and support me and give me first national than local work
give me first national than local work
give me first national than local work to do because they still trust me to do
to do because they still trust me to do
to do because they still trust me to do it and my blood family is the outcome
it and my blood family is the outcome
it and my blood family is the outcome society who have helped me with
society who have helped me with
society who have helped me with information about the future about the
information about the future about the
information about the future about the present give me a smile full of tips to
present give me a smile full of tips to
present give me a smile full of tips to manage my dementia giving me work to do
manage my dementia giving me work to do
manage my dementia giving me work to do that I really can commit myself to and
that I really can commit myself to and
that I really can commit myself to and what I feel so passionately about but
what I feel so passionately about but
what I feel so passionately about but there was a distant corporate body there
there was a distant corporate body there
there was a distant corporate body there are people friends it could be a big hug
are people friends it could be a big hug
are people friends it could be a big hug whenever I
whenever I
whenever I headquarters who sin rachita emails
headquarters who sin rachita emails
headquarters who sin rachita emails every time unsystematic lose who travel
every time unsystematic lose who travel
every time unsystematic lose who travel across London from targets to use blue
across London from targets to use blue
across London from targets to use blue because I left my bag there again my
because I left my bag there again my
because I left my bag there again my ticket in my purse are still there that
ticket in my purse are still there that
ticket in my purse are still there that our summers a few weeks ago I was
our summers a few weeks ago I was
our summers a few weeks ago I was attending a committee of a group I
attending a committee of a group I
attending a committee of a group I belong to about disability equality and
belong to about disability equality and
belong to about disability equality and the someone there is death and she
the someone there is death and she
the someone there is death and she demonstrated to us the signing for
demonstrated to us the signing for
demonstrated to us the signing for mainstream and it’s this
in order for people with dementia to
in order for people with dementia to live in the mainstream we need that
live in the mainstream we need that
live in the mainstream we need that support but it’s not like that for every
1,000 people living with dementia who’s
1,000 people living with dementia who’s never found their way to any services
never found their way to any services
never found their way to any services and that’s all that’s bigger the
and that’s all that’s bigger the
and that’s all that’s bigger the rectangle thousand-plus is probably
rectangle thousand-plus is probably
rectangle thousand-plus is probably wildly underestimated in the place where
wildly underestimated in the place where
wildly underestimated in the place where we live there are at least two people
we live there are at least two people
we live there are at least two people who clearly have the symptoms of
who clearly have the symptoms of
who clearly have the symptoms of dementia but they’re too afraid
dementia but they’re too afraid
dementia but they’re too afraid completely in denial because that part
completely in denial because that part
completely in denial because that part was a great deal of worrying or trouble
was a great deal of worrying or trouble
was a great deal of worrying or trouble because I’m not willing to go and get
because I’m not willing to go and get
because I’m not willing to go and get help because they’re so afraid in the
help because they’re so afraid in the
help because they’re so afraid in the stigma it seems very fishy to me that
stigma it seems very fishy to me that
stigma it seems very fishy to me that this talking people as a six-month
this talking people as a six-month
this talking people as a six-month college because the future the way of
college because the future the way of
college because the future the way of getting rid of the stigma is again
getting rid of the stigma is again
getting rid of the stigma is again people they are sinus article know mr.
people they are sinus article know mr.
people they are sinus article know mr. in partnership with all people stop
in partnership with all people stop
in partnership with all people stop movements you can now get a badge of
movements you can now get a badge of
movements you can now get a badge of dementia if you’re a scout or a cup and
dementia if you’re a scout or a cup and
dementia if you’re a scout or a cup and one young
one young
one young and tell his family that he thought that
and tell his family that he thought that
and tell his family that he thought that the problems never happen with Grandma
the problems never happen with Grandma
the problems never happen with Grandma were probably because she had to mention
were probably because she had to mention
were probably because she had to mention the family hadn’t noticed it that she
the family hadn’t noticed it that she
the family hadn’t noticed it that she was right at Manchester University the
was right at Manchester University the
was right at Manchester University the law students have set up an advice
law students have set up an advice
law students have set up an advice clinic and legal advice to me
free and open to many more and they
free and open to many more and they lecture a specialist defense reception
lecture a specialist defense reception
lecture a specialist defense reception and there’s a lot of legal advice needed
and there’s a lot of legal advice needed
and there’s a lot of legal advice needed around the issues of demented because of
around the issues of demented because of
around the issues of demented because of things like passive eternally human
things like passive eternally human
things like passive eternally human rights advanced directive a group in the
rights advanced directive a group in the
rights advanced directive a group in the Sixth Form College in worcestershire
Sixth Form College in worcestershire
Sixth Form College in worcestershire have designed an app which is a loop of
have designed an app which is a loop of
have designed an app which is a loop of popular favorite music so look for the
popular favorite music so look for the
popular favorite music so look for the dementia simply have to press a button
dementia simply have to press a button
dementia simply have to press a button to have the music they love on the
to have the music they love on the
to have the music they love on the constant loop my two grandchildren Wow
constant loop my two grandchildren Wow
constant loop my two grandchildren Wow except my dementia is naturally as if I
except my dementia is naturally as if I
except my dementia is naturally as if I had a cold because it’s fizzy hands and
had a cold because it’s fizzy hands and
had a cold because it’s fizzy hands and then produced by my granddaughter
then produced by my granddaughter
then produced by my granddaughter website could quite manage ourselves
website could quite manage ourselves
website could quite manage ourselves much myself like 50 hours
much myself like 50 hours
much myself like 50 hours like what’s going to run mother’s I’m
like what’s going to run mother’s I’m
like what’s going to run mother’s I’m more proud of my grandchildren that I
more proud of my grandchildren that I
more proud of my grandchildren that I could possibly say but I think I was
could possibly say but I think I was
could possibly say but I think I was never more proud than when my 50 year
never more proud than when my 50 year
never more proud than when my 50 year old grandson and those of you and some
old grandson and those of you and some
old grandson and those of you and some of you here I know will remember the
of you here I know will remember the
of you here I know will remember the embarrassment to the awkwardness of
embarrassment to the awkwardness of
embarrassment to the awkwardness of saying things when you’re 15 we were
saying things when you’re 15 we were
saying things when you’re 15 we were going out in the summer party to the
going out in the summer party to the
going out in the summer party to the theater and one of my 15 year old
theater and one of my 15 year old
theater and one of my 15 year old grandson said to me nothing he could
grandson said to me nothing he could
grandson said to me nothing he could enough leg because incontinence is part
enough leg because incontinence is part
enough leg because incontinence is part of our direction I don’t think that ever
of our direction I don’t think that ever
of our direction I don’t think that ever loved him so much that when he went to
loved him so much that when he went to
loved him so much that when he went to his embarrassment to make sure the line
his embarrassment to make sure the line
his embarrassment to make sure the line is safe and comfortable we need to look
is safe and comfortable we need to look
is safe and comfortable we need to look at the mention from the time of
at the mention from the time of
at the mention from the time of diagnosis until it’s at its end and to
diagnosis until it’s at its end and to
diagnosis until it’s at its end and to ensure that needs are met all the way
ensure that needs are met all the way
ensure that needs are met all the way along the way
two and a half years ago I went to have
two and a half years ago I went to have a parliament to lobby mps just before
a parliament to lobby mps just before
a parliament to lobby mps just before the election the plan was that during a
the election the plan was that during a
the election the plan was that during a day-long robbery we would talk
day-long robbery we would talk
day-long robbery we would talk individually to two or three hundred
individually to two or three hundred
individually to two or three hundred MPs and ask them to put a
MPs and ask them to put a
MPs and ask them to put a commitment to dementia care improvement
commitment to dementia care improvement
commitment to dementia care improvement in their election we flip the night
in their election we flip the night
in their election we flip the night before we were in a London hotel all if
before we were in a London hotel all if
before we were in a London hotel all if I had to stop to bear but my daughter
I had to stop to bear but my daughter
I had to stop to bear but my daughter run to say that my mother who was 92 now
run to say that my mother who was 92 now
run to say that my mother who was 92 now she’s like a fool had just died she was
she’s like a fool had just died she was
she’s like a fool had just died she was in the last stages of vascular dementia
in the last stages of vascular dementia
in the last stages of vascular dementia she was five stones she was being
she was five stones she was being
she was five stones she was being beautifully careful in hospital her
beautifully careful in hospital her
beautifully careful in hospital her little arms were black from the
little arms were black from the
little arms were black from the fingertips to the shoulders with insider
fingertips to the shoulders with insider
fingertips to the shoulders with insider camulus she had liver failure so she was
camulus she had liver failure so she was
camulus she had liver failure so she was itching and throwing herself around my
itching and throwing herself around my
itching and throwing herself around my bed because of the itching and so the
bed because of the itching and so the
bed because of the itching and so the nurses attractive put mattresses to
nurses attractive put mattresses to
nurses attractive put mattresses to clean so she didn’t love herself she
clean so she didn’t love herself she
clean so she didn’t love herself she couldn’t swallow that
couldn’t swallow that
couldn’t swallow that gone yet every day the nurses came to us
gone yet every day the nurses came to us
gone yet every day the nurses came to us very embarrassed for the bed language of
very embarrassed for the bed language of
very embarrassed for the bed language of came to us and said here’s a list of
came to us and said here’s a list of
came to us and said here’s a list of care homes you need to move us along
care homes you need to move us along
care homes you need to move us along because she’s been working do you know
because she’s been working do you know
because she’s been working do you know how long she wasn’t hospital 10 things
how long she wasn’t hospital 10 things
how long she wasn’t hospital 10 things can you imagine that to anyone dying
can you imagine that to anyone dying
can you imagine that to anyone dying with any other illness it’s not good
with any other illness it’s not good
with any other illness it’s not good enough they’re still so much work to be
enough they’re still so much work to be
enough they’re still so much work to be done much as I wanted to that night I
done much as I wanted to that night I
done much as I wanted to that night I can go home I stayed to do the lobby my
can go home I stayed to do the lobby my
can go home I stayed to do the lobby my mum was really proud of me as a
mum was really proud of me as a
mum was really proud of me as a campaigner she used to say here in a
campaigner she used to say here in a
campaigner she used to say here in a fight I she lives the best person to
fight I she lives the best person to
fight I she lives the best person to happen outside and I felt that the best
happen outside and I felt that the best
happen outside and I felt that the best way I could
way I could
way I could memory was to go to college and to talk
memory was to go to college and to talk
memory was to go to college and to talk about direction and what it’s actually
about direction and what it’s actually
about direction and what it’s actually like to move this at the classroom that
like to move this at the classroom that
like to move this at the classroom that has the illness or as the carers for
has the illness or as the carers for
has the illness or as the carers for whom its extraction even more difficult
whom its extraction even more difficult
whom its extraction even more difficult so I went to put the list us than I
so I went to put the list us than I
so I went to put the list us than I joined the lobby and I smiled lady
joined the lobby and I smiled lady
joined the lobby and I smiled lady members poles were part out at work and
members poles were part out at work and
members poles were part out at work and I’m going on company this tattoo is a
I’m going on company this tattoo is a
I’m going on company this tattoo is a way of campaigning in the words of my
way of campaigning in the words of my
way of campaigning in the words of my very dear friend Chris Rogers his story
very dear friend Chris Rogers his story
very dear friend Chris Rogers his story you might have seen on panorama Chris’s
you might have seen on panorama Chris’s
you might have seen on panorama Chris’s story I make a lot comers but it got me
”
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