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Souls worth living too | Arzoo Rajpar | TEDxYouth@AKAMombasa


I grew up in Tanzania a beautiful and

I grew up in Tanzania a beautiful and peaceful country with kind people and

peaceful country with kind people and

peaceful country with kind people and happy people too but as I was growing up

happy people too but as I was growing up

happy people too but as I was growing up I was exposed to the circumstances of

I was exposed to the circumstances of

I was exposed to the circumstances of different individuals including those of

different individuals including those of

different individuals including those of persons with albinism I then began

persons with albinism I then began

persons with albinism I then began questioning whether the people of my

questioning whether the people of my

questioning whether the people of my country were truly kind and whether my

country were truly kind and whether my

country were truly kind and whether my country was truly beautiful or peaceful

country was truly beautiful or peaceful

country was truly beautiful or peaceful because how can we be kind when we

because how can we be kind when we

because how can we be kind when we continue to treat each other with such

continue to treat each other with such

continue to treat each other with such disrespect and without integrity how

disrespect and without integrity how

disrespect and without integrity how will we ever be able to grow as a

will we ever be able to grow as a

will we ever be able to grow as a country if we continue to deprive each

country if we continue to deprive each

country if we continue to deprive each other from opportunities prosperity and

other from opportunities prosperity and

other from opportunities prosperity and happy lives and how can you take away

happy lives and how can you take away

happy lives and how can you take away alive with the intention of making yours

alive with the intention of making yours

alive with the intention of making yours better I took the initiative to learn

better I took the initiative to learn

better I took the initiative to learn about albinism about three years ago

about albinism about three years ago

about albinism about three years ago when I came across an article on the

when I came across an article on the

when I came across an article on the newspaper in the newspaper about a baby

newspaper in the newspaper about a baby

newspaper in the newspaper about a baby boy who was killed for his body parts

boy who was killed for his body parts

boy who was killed for his body parts leaving his mother devastated I wanted

leaving his mother devastated I wanted

leaving his mother devastated I wanted to understand why anyone who commits

to understand why anyone who commits

to understand why anyone who commits such a crime and what albinism truly is

such a crime and what albinism truly is

such a crime and what albinism truly is albinism is a skin condition whereby

albinism is a skin condition whereby

albinism is a skin condition whereby individuals lack melanin or pigmentation

individuals lack melanin or pigmentation

individuals lack melanin or pigmentation causing the skin to be pale their their

causing the skin to be pale their their

causing the skin to be pale their their eyes blue or gray and their hair of each

eyes blue or gray and their hair of each

eyes blue or gray and their hair of each blonde this condition makes the skin

blonde this condition makes the skin

blonde this condition makes the skin very prone to severe skin burns hen skin

very prone to severe skin burns hen skin

very prone to severe skin burns hen skin cancer and can also cause vision

cancer and can also cause vision

cancer and can also cause vision problems there has been a stigma

problems there has been a stigma

problems there has been a stigma surrounding persons with albinism in

surrounding persons with albinism in

surrounding persons with albinism in Tanzania for hundreds of years the

Tanzania for hundreds of years the

Tanzania for hundreds of years the stigma is characterized by the belief

stigma is characterized by the belief

stigma is characterized by the belief that persons with albinism have magical

that persons with albinism have magical

that persons with albinism have magical properties that their body parts can

properties that their body parts can

properties that their body parts can grant wealth success fame that they do

grant wealth success fame that they do

grant wealth success fame that they do not die their ghosts they simply

not die their ghosts they simply

not die their ghosts they simply disappear and that they will only bring

disappear and that they will only bring

disappear and that they will only bring chaos to a home these false ideas were

chaos to a home these false ideas were

chaos to a home these false ideas were first propagated by witch doctors who

first propagated by witch doctors who

first propagated by witch doctors who would request for I’ll be no body parts

would request for I’ll be no body parts

would request for I’ll be no body parts in order to brew a potion those believed

in order to brew a potion those believed

in order to brew a potion those believed to grant an individual with whatever the

to grant an individual with whatever the

to grant an individual with whatever the deeds that they desire persons with

deeds that they desire persons with

deeds that they desire persons with albinism are hunted and often killed

albinism are hunted and often killed

albinism are hunted and often killed their body parts are sold Rob’s seventy

their body parts are sold Rob’s seventy

their body parts are sold Rob’s seventy five thousand dollars and taking to

five thousand dollars and taking to

five thousand dollars and taking to witch doctors

witch doctors

witch doctors this price stunned me at first but as I

this price stunned me at first but as I

this price stunned me at first but as I began to delve deeper into the issue I

began to delve deeper into the issue I

began to delve deeper into the issue I realized that the people committing

realized that the people committing

realized that the people committing these crimes aren’t just anyone they’re

these crimes aren’t just anyone they’re

these crimes aren’t just anyone they’re people with authority people with large

people with authority people with large

people with authority people with large sums of money and people who are

sums of money and people who are

sums of money and people who are educated this is the this is proof that

educated this is the this is proof that

educated this is the this is proof that even the most successful believed in the

even the most successful believed in the

even the most successful believed in the stigma undeniably has Nia’s whole of our

stigma undeniably has Nia’s whole of our

stigma undeniably has Nia’s whole of our being albinism persecution but the

being albinism persecution but the

being albinism persecution but the prominent exists all over East Africa

prominent exists all over East Africa

prominent exists all over East Africa there have been albinism attacks in

there have been albinism attacks in

there have been albinism attacks in Kenya and burned in other regions and

Kenya and burned in other regions and

Kenya and burned in other regions and persons with albinism are subject to

persons with albinism are subject to

persons with albinism are subject to great amounts of prejudice and

great amounts of prejudice and

great amounts of prejudice and stigmatization in June and July 2015 I

stigmatization in June and July 2015 I

stigmatization in June and July 2015 I went on a beautiful journey of creating

went on a beautiful journey of creating

went on a beautiful journey of creating a documentary to raise awareness about

a documentary to raise awareness about

a documentary to raise awareness about the issue and to educate the Tanzanian

the issue and to educate the Tanzanian

the issue and to educate the Tanzanian community during this process I met a

community during this process I met a

community during this process I met a young girl named Joyce when Joyce was

young girl named Joyce when Joyce was

young girl named Joyce when Joyce was only 14 years old she was chased by two

only 14 years old she was chased by two

only 14 years old she was chased by two men on her way to school who wanted to

men on her way to school who wanted to

men on her way to school who wanted to kill her

kill her

kill her this happened on two occasions but Joyce

this happened on two occasions but Joyce

this happened on two occasions but Joyce was one of the lucky few to escape an

was one of the lucky few to escape an

was one of the lucky few to escape an albinism attack as she was telling me a

albinism attack as she was telling me a

albinism attack as she was telling me a story her father had to leave the room

story her father had to leave the room

story her father had to leave the room because of the memories this event

because of the memories this event

because of the memories this event brought to him and her mother had tears

brought to him and her mother had tears

brought to him and her mother had tears in her eyes off-camera Joyce looked at

in her eyes off-camera Joyce looked at

in her eyes off-camera Joyce looked at me and said for a long time I didn’t

me and said for a long time I didn’t

me and said for a long time I didn’t understand why they hated me so much why

understand why they hated me so much why

understand why they hated me so much why they want to take my life away or why I

they want to take my life away or why I

they want to take my life away or why I couldn’t be like the other boys and

couldn’t be like the other boys and

couldn’t be like the other boys and girls but as I grew older I began to

girls but as I grew older I began to

girls but as I grew older I began to understand that I’m different I’m

understand that I’m different I’m

understand that I’m different I’m special and that scares them

special and that scares them

special and that scares them Joyce’s family is one of the most caring

Joyce’s family is one of the most caring

Joyce’s family is one of the most caring supportive and loving families I know

supportive and loving families I know

supportive and loving families I know her younger brother also has albinism

her younger brother also has albinism

her younger brother also has albinism but her pants have never been ashamed of

but her pants have never been ashamed of

but her pants have never been ashamed of them if they’ve secured education for

them if they’ve secured education for

them if they’ve secured education for both and then everything to help them

both and then everything to help them

both and then everything to help them live life like I would and like you were

live life like I would and like you were

live life like I would and like you were I also visited the Salvation Army’s who

I also visited the Salvation Army’s who

I also visited the Salvation Army’s who we’re about a hundred children with

we’re about a hundred children with

we’re about a hundred children with albinism reside there I met a young boy

albinism reside there I met a young boy

albinism reside there I met a young boy named Sadie Sadie told me that he grew

named Sadie Sadie told me that he grew

named Sadie Sadie told me that he grew up mooing knowing that people wanted to

up mooing knowing that people wanted to

up mooing knowing that people wanted to kill him that people wanted his body

kill him that people wanted his body

kill him that people wanted his body parts for their own absurd and selfish

parts for their own absurd and selfish

parts for their own absurd and selfish reasons

reasons

reasons it saddens me to know the children at

it saddens me to know the children at

it saddens me to know the children at the school were all so full of life the

the school were all so full of life the

the school were all so full of life the eyes glistened with hope and happiness

eyes glistened with hope and happiness

eyes glistened with hope and happiness and they smile with so much kindness it

and they smile with so much kindness it

and they smile with so much kindness it saddens me to know that their childhood

saddens me to know that their childhood

saddens me to know that their childhood is filled with fear that there are

is filled with fear that there are

is filled with fear that there are people out there who do not see them as

people out there who do not see them as

people out there who do not see them as human beings but as objects who did not

human beings but as objects who did not

human beings but as objects who did not deserve the gift of life persons with

deserve the gift of life persons with

deserve the gift of life persons with albinism are constantly under threat

albinism are constantly under threat

albinism are constantly under threat especially during the childhood the most

especially during the childhood the most

especially during the childhood the most sacred time of an individual’s life they

sacred time of an individual’s life they

sacred time of an individual’s life they get faced oppression in the workplace

get faced oppression in the workplace

get faced oppression in the workplace they get stares as they walk down the

they get stares as they walk down the

they get stares as they walk down the street

street

street can you imagine a life like that a life

can you imagine a life like that a life

can you imagine a life like that a life when people do not see you for who you

when people do not see you for who you

when people do not see you for who you are but as an object that can grant them

are but as an object that can grant them

are but as an object that can grant them with whatever they like for a ghost a

with whatever they like for a ghost a

with whatever they like for a ghost a bad omen someone who is unworthy of life

bad omen someone who is unworthy of life

bad omen someone who is unworthy of life I personally refuse to live knowing that

I personally refuse to live knowing that

I personally refuse to live knowing that my fellow Tanzanians live in these

my fellow Tanzanians live in these

my fellow Tanzanians live in these circumstances and I refuse to sit back

circumstances and I refuse to sit back

circumstances and I refuse to sit back and watch all this happen without saying

and watch all this happen without saying

and watch all this happen without saying a word I call out to all of you tell me

a word I call out to all of you tell me

a word I call out to all of you tell me support persons with albinism believe in

support persons with albinism believe in

support persons with albinism believe in them enable them to live healthy lives

them enable them to live healthy lives

them enable them to live healthy lives to access education to ensure that they

to access education to ensure that they

to access education to ensure that they live in happiness with their families

live in happiness with their families

live in happiness with their families and without fear we need to educate the

and without fear we need to educate the

and without fear we need to educate the east african community expose the truth

east african community expose the truth

east african community expose the truth and dispel the light show everyone that

and dispel the light show everyone that

and dispel the light show everyone that albinism is simply a condition with

albinism is simply a condition with

albinism is simply a condition with biological defects none that are

biological defects none that are

biological defects none that are intellectual and none that make them

intellectual and none that make them

intellectual and none that make them different from you and me because the

different from you and me because the

different from you and me because the only thing you do when you kill a person

only thing you do when you kill a person

only thing you do when you kill a person with albinism is take another innocent

with albinism is take another innocent

with albinism is take another innocent and valuable life away thank you

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