[Applause]
firstly I would like to know how much
of you are godfathers and well like
you I’m a parent I’m actually a
ordinary mom now tell me
how many of you are parents of a
handicapped child sick or different
and well like me you are
probably ordinary departure but with
an extraordinary challenge your challenge to
you may be the disease
degenerative of your child my
challenge a month if severe autism from
montrichard let me talk to you
tell his story and at the same time
that of the ina of maxence and some
other
from their earliest childhood was
different from the others and charles was doing
move his fingers in front of his eyes
maxence was fixing on
fans and li na lost all his
acquired at the age of two today
they are young adults the useless
beautiful young woman who excels at the game
video
maxence is a big fan of music
Quebec and hiking charles
forest but what do they have two
special autistic people
basically what is difficult for her
is irritated to make eye contact
understand some social codes to
not told the changes in their
environment are a great source
anxiety and they often have
stereotyped behaviors or
repetitive
one day in November 1999
I’m sitting in the office of the
doctor
with this beautiful blonde or
curly on the knees
charles three and a half years when the
doctor and tell me what I anticipate
already for a while
my child is autistic I lost my footing
but I ended up pulling myself together to
to face the most important challenge of
life very quickly I got
struck back painful finding
first the diagnosis comes with a
cruel lack of services they are
still the case today twenty years
later on the parents’ life
of different children sites a long
following battle
at first to get a
diagnosis then services
specialized then inclusion to the
daycare in school at leisure
transportation
and when they arrive then I have ltte
professional social services or
day activities and services
residential
to be a parent of a different child
it’s constantly looking for
solutions
here is my family
the men of my life as I like
to call them ive joint of the 30
last years and our sons antoine
samuel and charles one of the great challenges
for families like us it’s not
not to make the disabled child or
sick the sense of family
but a member like the others in
despite these great needs and another
big challenge for paras as we
it’s about coping with the arrival of
the broad adult age where our children
leave the family nest to steal
their own wings a normal step
positive but still it is necessary that everyone
members lived in an environment
flourish a Cisme look it’s a
big challenge in itself but get some
adapted services
it is a true way of the cross
charles 20 years old he is autistic no
verbal and it requires a
accompaniment one for one then all
the spheres of everyday life
since leaving home
familiar family place three backgrounds
residential different from the network
public and he’s waiting for his
fourth he is currently living in a
environment poorly adapted to his needs
but especially to his abilities a middle
of temporary life which restricts his
freedom and its autonomy in favor of
security he lives in a residence
which is aimed at young people who have
a big hole of the gold behavior that’s
not his body but given these
great coaching needs is not
of lighter backgrounds you can
accompany
what you need to know is that a medium
life unadapted and that does not exclude
the family environment has
consequences
that is to say, it favors
increased agitation
anxiety is inevitable
organizations from thread to needle we’re going
to appear serious disorders of the
behavior of health problems
mental physique was said to be huge cost
for society but it’s not fair
a question of budget
a question of human lives the
autistic people can flourish
her too
you have to accept the people who have
a handicap with their limits and their
give access to the same conditions of
life and have the same opportunity
development than other citizens
Olivier is a young adult man
leaves the opposite of the spectrum of
autism is a good example as well
of a poorly adapted living environment he lives in
apartment for a few years but
there really is the difficulty in getting
manage completely alone in his
parents exercise supervision
continue to make sure he takes his
medication that takes care of his
hygiene that feeds well his health
and his security are the greatest
concerns, however, for its
aging parents is running out
but olive tree was she her
independence it’s normal if and its
parents are aging so so if his
living environment
if his living environment included a
slight supervision of
support for autonomy and services
adapted him could continue to live
in apartment and his parents could
to blow some people with autism
feel things way down
and that it’s the noise the temperature
the movement the light the smells
imagine imagine yourself in an arena
with shouting applause
suddenly the movement on the ice in
the stands
the noise for you and me it’s
maybe tired but it’s manageable
for posts autistic people
all these stimulants are aggression
so imagine now a medium of
life
which would include six rites in batch
daily
so 8 10 12 people in a
restricted environment that speak
laughing shouts that move that run even
is good for them it’s like is at
the arena stability structure
predictability and calm
basically it’s under who need the
autistic people
it is in this connection the tale
has been working for several years at a
innovative space housing project
life tsa tsa for spectrum disorders
autistic is intended for sixteen young
adults a living environment totally
different from what exists
currently where everything is thought of a
to z to increase the autonomy
adaptability
but above all the well-being of the people
autistic in an integration bus
social and participation in life
citizen
what we propose is to offer them
their home a place and where they go
to be able to live for only a few
months or a few years here and
deposit their luggage for life
our contention is that
working upstream in prevention their
adaptability you be their well-being
will be greatly increased and that
it’s all the companies that go there
to win
take our example to all we live
probably in a house well
adapted to our needs
we are comfortable when we come back to
the house at night we decompress and
well that’s what we want for
people who will live this pass
speed but since they are strongly
affected by stress and anxiety
they need more
when I’m comfortable a bit like
you and me a carton city of things
intense we need to do
go down the pressure take the
great ways to get there anyway
is what we want to reproduce with
space life tsa it’s the state of
well-being you feel you and me
for example when we see in a sport
the cozy atmosphere the brightness and the
small music soothing smells
rest assured you do not build a
sport but what we want to breed there
a coherent whole so that he feels good
as soon as they put their feet in
their home
here are the basics of the concept of happening
quickly and that to make it a medium of
stable life structure is predictable and
calm
we first need an environment
physical that soothes their hyper sense
active or the architectured design plays
a therapeutic role then
soundproofing the brightness the
materials or colors the layout
spaces
everything must be thought to mitigate
their sensitivity to the environment that
anxiety and at the same time foster
the development of autonomy and
social interactions
we need access to nature
also the e learning center for
design in england to achieve a
interesting study especially
the use of nature and
outdoor gardens to enhance the
quality of life of people with autism
so with its different sections a
layout like this one allows between
others vigils of gasoline or
soothe to socialize mouth
relaxed another important element of
our approach
a high quality food offer
with medical services integrate a
custom framing by units of
trained staff in autism and
environments reduced in terms of
number of people who live and who
intervene so our project six
supervised apartments for young people
that have been solid and that could
live in an apartment but who need
a slight supervision for hervé
two apartments learning so
transitional for young people who have the
potential and willingness to go live
possibly alone in the community
but who need to do some
learning first played by
example learning to cook or to
manage a budget and three big
apartments are intended for
young people who have the greatest needs
accompaniment to which we will offer
stimulating day activities
if we add to 1.6 elements the water
parental involvement families
and autistic people herself
just like in our sport we have a
coherent environment where everything is put
to promote well-being
we claim to believe that this
Wolf concept can change the lives of
people with autism and their families
and we are polite only our partners or
if they believe we are very
happy to team up with a group
University research to test
the model and make it productive for
that it can be used by others
a caring and inclusive society
with these people with disabilities
it is the society in which I want
live to which I want to contribute that
I want to bequeath to my children our
children
a soothing environment and
benevolent opens the door to them
a life rich in achievements then
offer a fulfilling living environment
to different humans
thank you
[Applause]
”
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